Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 In a message dated 6/28/2003 7:30:31 PM Eastern Daylight Time, camclark@... writes: > My daughter has a few of the lesser traits of Retts, (doesn't have > Retts) she has almost no muscle and no fat and if she could stand she > would be about 5'1 " . I am about 5'10 " , way too tall for gymnastics, > and also on the under muscled side. > Nicollette and I are hypotonic, Nicollette has Rett's Syndrome, I am diagnosed as HFA but they are considering a variant form of Rett's due to other problems very similar to Rett's and that I have a daughter with similar problems. They are now diagnosing high functioning Rett's, yes, atypical Rett's, and Rett's/autism. Rett's was usually considered as mentally retarded due to lack of speech, but it has been discovered after some time that there was more to the girls as previously thought, Nicollette and i have suffered some encephalitis of the brain, but i think we are okay. although i think i may be not all there, my brain and thinking does not seem to be normal, but also physical problems as well, gastrointestinal, feeding tube at one time, spastic muscles, myoclonic jerks, seizures. but now they are discovering that there are many that are not mentally retarded as previously thought but can be quite intelligent, alas somewhat differently, in the way autistics are, so they are looking into the Rett/autism connection in this. there are a high number of Rett's with autism in the family. it appears Rett's seems more physically compromised, yes. like Nicollette i am anorexic thin almost, because of metabolic issues. and we look wasted thin really. I was termed mentally retarded until age twelve and a Rett woman in Australia who is 38 now, it had not been discovered that she was not MR until her twenties, they are really playing catch up with her. she is just finishing high school. this was after she was still being read nursery books when she was fifteen. lol. how she really wanted a science book read to her instead of nursery books for all those years. I guess I would have done so earlier but I was still having those problems like making in my diaper and rubbing feces all over me, and this was still up into age 9-10. I'm sorry can't really recall why I did that except that I liked the smell and the texture. But it was stuff like this, yes, that really did not make me look to good to others, no. > There were women on the other list who said they were like 5 feet or > even one was 4'11 " I think. An average woman is what? 5'5 " ? I > think, and an average (american) man is 5'9 " (If I remember right). > > (humming a lullaby) > Nicollette and I look very tiny, small hands and wrists, small skeletal development. Nicollette is six but smaller than most. Looking very pixie like. Juli ASD mother to Nicollette Rett Syndrome w/autism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 In a message dated 6/28/2003 7:10:24 PM Eastern Daylight Time, MissAsparagus@... writes: > > My eyes are slightly larger than average and slightly wider set. > As for size, I am 5'5 " which is runty for my family but tall for a > gymnast (which I am), and I am considered underweight, but am quite well > muscled as well. > kassiane > who hasn't slept in 4 days woo Nicollette and I have larger eyes, also VERY wide set. in school they called me alien head and told me to keep away from Area 51. Doctors took pictures of our brains, did they you? We are runts as well, we look like elf people also. I am only 105 lbs. now and Nicollette at age six is only 32 lbs. we look anorexic thin but we both eat like 5 times a day, yes. and we both have sleep problems as well, yes. Juli ASD mother to Nicollette Rett Syndrome w/autism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 My eyes are slightly larger than average and slightly wider set. As for size, I am 5'5 " which is runty for my family but tall for a gymnast (which I am), and I am considered underweight, but am quite well muscled as well. kassiane who hasnt slept in 4 days woo < Re: Picture of me Hi, I posted a picture of me in the albums. Not trying to look for male companionship. You can see a part of my painting " Camille's Cream of Aspergers Soup " . It has stuff written on the background in clear acrylic retarder (which dries like a varnish, kind of). The writing is about my experience with AS. I giggled as I wrote the stuff in " retarder " , but then I'm strange that way. I am trying to figure out if most aspies have certain physical traits. I seem to notice in photos, not that there are many on the web of AS people, that we tend to have wide-set eyes. Anybody want to comment on their eyes? (this is not an official inquiry, just my curiosity) If I am sharing a pair of binoculars with someone I have to readjust the width considerably to fit my eyes.... On a delphi board it seemed like we were more likely to be either above average or below average in height, can't tell you the standard deviation on that.... We also seem to be either very skinny or very heavy. me, I have tended to pudginess, but mostly I am close to normal weight and I am tall. And if anyone wants to get in a hairy discussion, just tell me that my dog Sasha isn't the most wonderful thing on four legs..... :-) --- There is no science without fancy and no art without facts. Vladimir Nabokov Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 My goodness, get some sleep! (I know that doesn't help) My daughter has a few of the lesser traits of Retts, (doesn't have Retts) she has almost no muscle and no fat and if she could stand she would be about 5'1 " . I am about 5'10 " , way too tall for gymnastics, and also on the under muscled side. There were women on the other list who said they were like 5 feet or even one was 4'11 " I think. An average woman is what? 5'5 " ? I think, and an average (american) man is 5'9 " (If I remember right). (humming a lullaby) > My eyes are slightly larger than average and slightly wider set. > As for size, I am 5'5 " which is runty for my family but tall for a > gymnast (which I am), and I am considered underweight, but am quite well > muscled as well. > kassiane > who hasnt slept in 4 days woo > > > < Re: Picture of me > > Hi, > > I posted a picture of me in the albums. Not trying to look for male > companionship. > > You can see a part of my painting " Camille's Cream of Aspergers Soup " . > > It has stuff written on the background in clear acrylic retarder > (which dries like a varnish, kind of). The writing is about my > experience with AS. I giggled as I wrote the stuff in " retarder " , > but then I'm strange that way. > > I am trying to figure out if most aspies have certain physical > traits. I seem to notice in photos, not that there are many on the > web of AS people, that we tend to have wide-set eyes. Anybody want > to comment on their eyes? (this is not an official inquiry, just my > curiosity) If I am sharing a pair of binoculars with someone I have > to readjust the width considerably to fit my eyes.... > > On a delphi board it seemed like we were more likely to be either > above average or below average in height, can't tell you the standard > deviation on that.... > > We also seem to be either very skinny or very heavy. me, I have > tended to pudginess, but mostly I am close to normal weight and I am > tall. > > And if anyone wants to get in a hairy discussion, just tell me that > my dog Sasha isn't the most wonderful thing on four legs..... > > :-) > --- > > There is no science without fancy and no art without facts. > Vladimir Nabokov > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Nope, telling me to sleep wont change that I havent been....Ive been TRYING, just cant DO it! Kassiane < Re: Picture of me > > Hi, > > I posted a picture of me in the albums. Not trying to look for male > companionship. > > You can see a part of my painting " Camille's Cream of Aspergers Soup " . > > It has stuff written on the background in clear acrylic retarder > (which dries like a varnish, kind of). The writing is about my > experience with AS. I giggled as I wrote the stuff in " retarder " , > but then I'm strange that way. > > I am trying to figure out if most aspies have certain physical > traits. I seem to notice in photos, not that there are many on the > web of AS people, that we tend to have wide-set eyes. Anybody want > to comment on their eyes? (this is not an official inquiry, just my > curiosity) If I am sharing a pair of binoculars with someone I have > to readjust the width considerably to fit my eyes.... > > On a delphi board it seemed like we were more likely to be either > above average or below average in height, can't tell you the standard > deviation on that.... > > We also seem to be either very skinny or very heavy. me, I have > tended to pudginess, but mostly I am close to normal weight and I am > tall. > > And if anyone wants to get in a hairy discussion, just tell me that > my dog Sasha isn't the most wonderful thing on four legs..... > > :-) > --- > > There is no science without fancy and no art without facts. > Vladimir Nabokov > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 In a message dated 6/28/2003 7:10:24 PM Eastern Daylight Time, MissAsparagus@... writes: > > My eyes are slightly larger than average and slightly wider set. > As for size, I am 5'5 " which is runty for my family but tall for a > gymnast (which I am), and I am considered underweight, but am quite well > muscled as well. > kassiane > who hasn't slept in 4 days woo Nicollette and I have larger eyes, also VERY wide set. in school they called me alien head and told me to keep away from Area 51. Doctors took pictures of our brains, did they you? We are runts as well, we look like elf people also. I am only 105 lbs. now and Nicollette at age six is only 32 lbs. we look anorexic thin but we both eat like 5 times a day, yes. and we both have sleep problems as well, yes. Juli ASD mother to Nicollette Rett Syndrome w/autism >> They've not taken pics of my brain yet, I am dreading it because it looks like it is going to happen, they think Im having seizures and want an EEG and MRI (but I am fighting it as long as possible). Kassiane _______________________________________________________________ Get the FREE email that has everyone talking at http://www.mail2world.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 > > My eyes are slightly larger than average and slightly wider set. > > As for size, I am 5'5 " which is runty for my family but tall for a > > gymnast (which I am), and I am considered underweight, but am quite well > > muscled as well. > > kassiane > > who hasn't slept in 4 days woo > Nicollette and I have larger eyes, also VERY wide set. in school they called > me alien head and told me to keep away from Area 51. Large eyes (95th percentile) but normal eye distance from each other on me. > Doctors took pictures of our brains, did they you? We are runts as well, we > look like elf people also. I am only 105 lbs. now and Nicollette at age six is > only 32 lbs. we look anorexic thin but we both eat like 5 times a day, yes. I am short and chubby, growing up was short and thin. > and we both have sleep problems as well, yes. Me too. Also, like you, have features of a genetic syndrome (not Rett's) that they did not believe in a mild or atypical version of before. Will never know if I have it because no genetic test yet, and no desire to have children. Have a " twin " in Canada who was mistaken for me in a photo by a non-faceblind person. -- " People go crazy for all kinds of good reasons. " -Rae Unzicker Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Camille wrote: >I am trying to figure out if most aspies have certain physical >traits. I seem to notice in photos, not that there are many on the >web of AS people, that we tend to have wide-set eyes. Anybody want >to comment on their eyes? My eyes are close together. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 --On Saturday, June 28, 2003 22:53 +0000 Camille wrote: > > I am trying to figure out if most aspies have certain physical > traits. I seem to notice in photos, not that there are many on the > web of AS people, that we tend to have wide-set eyes. Anybody want > to comment on their eyes? (this is not an official inquiry, just my > curiosity) If I am sharing a pair of binoculars with someone I have > to readjust the width considerably to fit my eyes.... I usually have to adjust the width the other way. > On a delphi board it seemed like we were more likely to be either > above average or below average in height, can't tell you the standard > deviation on that.... Wouldn't know. I am well to the " below " side. > We also seem to be either very skinny or very heavy. me, I have > tended to pudginess, but mostly I am close to normal weight and I am > tall. same here. > And if anyone wants to get in a hairy discussion, just tell me that > my dog Sasha isn't the most wonderful thing on four legs..... I'm more of a cat person. Ride the Music AndyTiedye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 > Camille wrote: > >I am trying to figure out if most aspies have > certain physical > >traits. I seem to notice in photos, not that there > are many on the > >web of AS people, that we tend to have wide-set > eyes. Anybody want > >to comment on their eyes? > ----------Don't think so...go to any autism conference and you'll see all body sizes and shapes, heights, eye spacing, etc. Nanne ===== " Let's go get drunk on light again---it has the power to console. " -- Seurat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Camille wrote: > I am trying to figure out if most aspies have certain physical > traits. I seem to notice in photos, not that there are many on the > web of AS people, that we tend to have wide-set eyes. Anybody want > to comment on their eyes? I know quite a few spectrum people, and I have not noticed any trends toward wide-spaced eyes. The one I see the most has rather narrowly-spaced eywa. Wide-spaced eyes are a good thing, though, as they allow for better depth perception. We should all be so lucky. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Hi, I went to a page about Retts a couple of days ago and most of the girls were VERY cute. My daughter was kind of an odd looking baby, but she became very cute in a pixie way. I'll try to remember to post a picture in the albums of her and announce it on the board so you can go see it. Can you see any high functioning sort of Retts symptoms in the males in your family. This is what puzzles me about my daughter, she is like her father and his mother and her mother and possibly her mother, with all kinds of male and female relatives of the odd type. If my daughter gets sick and doesn't eat for a day she looks like one of the starving children from a famine. (especially her shoulders) It's so hard to feed her a normal diet. I keep trying on and off, but she can't be reasoned with on this. (or on brushing her teeth...) Thanks for your post. > In a message dated 6/28/2003 7:30:31 PM Eastern Daylight Time, > camclark@p... writes: > > > My daughter has a few of the lesser traits of Retts, (doesn't have > > Retts) she has almost no muscle and no fat and if she could stand she > > would be about 5'1 " . I am about 5'10 " , way too tall for gymnastics, > > and also on the under muscled side. > > > > Nicollette and I are hypotonic, Nicollette has Rett's Syndrome, I am > diagnosed as HFA but they are considering a variant form of Rett's due to other > problems very similar to Rett's and that I have a daughter with similar problems. > They are now diagnosing high functioning Rett's, yes, atypical Rett's, and > Rett's/autism. > > Rett's was usually considered as mentally retarded due to lack of speech, but > it has been discovered after some time that there was more to the girls as > previously thought, Nicollette and i have suffered some encephalitis of the > brain, but i think we are okay. although i think i may be not all there, my brain > and thinking does not seem to be normal, but also physical problems as well, > gastrointestinal, feeding tube at one time, spastic muscles, myoclonic jerks, > seizures. but now they are discovering that there are many that are not > mentally retarded as previously thought but can be quite intelligent, alas somewhat > differently, in the way autistics are, so they are looking into the > Rett/autism connection in this. there are a high number of Rett's with autism in the > family. it appears Rett's seems more physically compromised, yes. like Nicollette > i am anorexic thin almost, because of metabolic issues. and we look wasted > thin really. > > I was termed mentally retarded until age twelve and a Rett woman in Australia > who is 38 now, it had not been discovered that she was not MR until her > twenties, they are really playing catch up with her. she is just finishing high > school. this was after she was still being read nursery books when she was > fifteen. lol. how she really wanted a science book read to her instead of nursery > books for all those years. > > I guess I would have done so earlier but I was still having those problems > like making in my diaper and rubbing feces all over me, and this was still up > into age 9-10. I'm sorry can't really recall why I did that except that I liked > the smell and the texture. But it was stuff like this, yes, that really did > not make me look to good to others, no. > > > > There were women on the other list who said they were like 5 feet or > > even one was 4'11 " I think. An average woman is what? 5'5 " ? I > > think, and an average (american) man is 5'9 " (If I remember right). > > > > (humming a lullaby) > > > > Nicollette and I look very tiny, small hands and wrists, small skeletal > development. Nicollette is six but smaller than most. Looking very pixie like. > > Juli ASD mother to Nicollette Rett Syndrome w/autism > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 I'd have to agree with that. My oddest physical traits--a spinal curvature and a lazy eye--are the consequences of my premature birth and my cerebral palsy, not Asperger's. I do have abnormally large ears, but that's a Newstead family trait. My half-sister, who I finally got to meet when I was 33, told me she was called " Dumbo " growing up. ----------Don't think so...go to any autism conference and you'll see all body sizes and shapes, heights, eye spacing, etc. Nanne ===== " Let's go get drunk on light again---it has the power to console. " -- Seurat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Tell my eyes that =/ Given the size of my face, theyre a bit wide, and I have HORRID depth perception. Kassiane < Re: Picture of me Camille wrote: > I am trying to figure out if most aspies have certain physical > traits. I seem to notice in photos, not that there are many on the > web of AS people, that we tend to have wide-set eyes. Anybody want > to comment on their eyes? I know quite a few spectrum people, and I have not noticed any trends toward wide-spaced eyes. The one I see the most has rather narrowly-spaced eywa. Wide-spaced eyes are a good thing, though, as they allow for better depth perception. We should all be so lucky. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Kassiane Yelbis wrote: > Tell my eyes that =/ > Given the size of my face, theyre a bit wide, and I have HORRID depth > perception. Imagine how much worse it would be if they are set closely Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 < Re: Picture of me Kassiane Yelbis wrote: > Tell my eyes that =/ > Given the size of my face, theyre a bit wide, and I have HORRID depth > perception. Imagine how much worse it would be if they are set closely I wouldnt be able to do anything the way I do now! Id walk into things more than I do...and forget parking on the sidewalk, Id be fully in the yard....eeeeeeeeek@ Kassiane who managed to miss the kneeler at church...oops... _______________________________________________________________ Get the FREE email that has everyone talking at http://www.mail2world.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2003 Report Share Posted June 29, 2003 In a message dated 6/29/2003 1:38:04 AM Eastern Daylight Time, MissAsparagus@... writes: > Wide-spaced eyes are a good thing, though, as they allow for better > depth > perception. We should all be so lucky. > > my vision is strange i can see far and wide from one eye corners, yes, but the other will blur out so i always look like I'm watching out of the corner of my eye. also i can't see thing's so close to me in detail form, no, just somewhat where it may be, yes, unless i focus on it and catch every detail then, yes. everything changes on my as my focus changes, as when I'm listening I can almost become blind. Or if I'm watching I become deaf almost. Can't seem to do both at same time, no. Juli ASD mother to Nicollette Rett Syndrome w/autism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2003 Report Share Posted June 29, 2003 In a message dated 6/28/2003 11:25:34 PM Eastern Daylight Time, camclark@... writes: > I went to a page about Retts a couple of days ago and most of the > girls were VERY cute. My daughter was kind of an odd looking baby, > but she became very cute in a pixie way. I'll try to remember to > post a picture in the albums of her and announce it on the board so > you can go see it. > Can you see any high functioning sort of Retts symptoms in the males > in your family. This is what puzzles me about my daughter, she is > like her father and his mother and her mother and possibly her > mother, with all kinds of male and female relatives of the odd type. it took so long to test Nicollette for Rett's, even though she hit many of the classic symptoms because when we were at the neurologist, we were, myself and my father. my father is very thin, only 135 lbs, with small hands and feet, handwringing, hyper, teeth grinding, also myself this is, so the doctor said Nicollette looked more like suffering whatever we were suffering so it couldn't possibly be Rett's and gave her a PDD-Nos label. my father is diagnosed with obsessive compulsive disorder and tourrette's syndrome. his movement disorder really can look like Nicollette's Rett's syndrome. those constant movements and such, yes. So eventually after some time after Nicollette, really looked like suffering Rett's she tested positive. At a doctor's appointment. One doctor thought I was a Rett patient, I looked so similar and they ordered a test done. the test done was at the cost of $850.00 (which is why insurance hates to pay for it) but it was taken under research, because of my similarities. After testing positive it is now being considered to have my dad tested. As it seems this is where the problems came from, yes. somehow even being tested, and knowing I'm a mutant, really hasn't changed life any. as i did not get any different services or different treatments. they are still too early on to really do much for us. more like we are doing help for them i think. so it did not really change anything. and the rettnet where i got tossed off of where i was told i was being rude, was no real help as it was more full of the classic rette cases. even now as the are finding boys with Rett's there is almost not much to really to go on, because they are just discovering things now. also they did not like it on RettNet when the few of the atypical or variant Rett's came on rettnet because they did not consider it true Rett's and the parent's of the higher functioning girls (the ones playing chess, reading and writing, running, skipping, mainstreaming in school) were told to stop bragging about their performances when the other parent's or *true* Rett girls are dealing with Mickey tubes, seizures 8 times a day, spinal fusions and so on. So the handful of us with high functioning, atypical Rett's had almost no information to go on at this point, and researchers suspect there may be more of us. and research hasn't reached doctors offices yet on all these new developments. So hopefully as they learn more, we may have some more useful information. But I do know my father, with his epilepsy, autistic traits, vision problems, small skeletal structure, metabolism issues, gastrointestinal issues, is of interest to them now... Juli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2003 Report Share Posted June 29, 2003 BTW Camille, that painting rocks. You wouldn't happen to have a better pic of it, would you? Huzzah for Aspie artists! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2003 Report Share Posted June 29, 2003 Juli wrote: >...when I'm listening I can >almost become blind. Or if I'm watching I become deaf almost. >Can't seem to do both at same time, no. I'm that way, too, to some extent. Divided focus is very difficult and can't be sustained for any length of time. Even dividing vision doesn't work. That's why I don't watch sub-titled movies. Well, there are two reasons. If I were going to watch them (it would be on video, since I don't go to movie theaters anymore), I would have to sit with my nose inches from the screen in order to be able to read the words. Plus, if I'm reading the words, I can't watch the movie. Moving back and forth between them (the words and the movie) doesn't work for me. It also wears me out and makes me want to go away from it all. It irritates me that I am cut off by my own ignorance (of other languages) from all but English-language movies. But the sub-titles don't work for me and dubbing drives me mad. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2003 Report Share Posted June 29, 2003 Jane Meyerding danced around singing: >Plus, if I'm reading the words, >I can't watch the movie. Moving back and forth between >them (the words and the movie) doesn't work for me. It >also wears me out and makes me want to go away from it >all. That's interesting... I can handle subtitles/visual aspect of a movie with *relatively* little effort, but attempting to watch a movie while figuring out the spoken dialogue is exhausting. There's about a 3-second overlap between my hearing things I don't expect and my brain figuring out the meaning, plus integrating the audio with the visual so I know who is speaking causes further delays. Often I end up losing about 1/4 - 1/3 of the dialogue and 90% of the meaning brought in from auditory cues -- plus my brain is so busy handling raw input that it has little chance to figure out the reasons behind character behavior, so huge parts of films make no sense. :-p I watched Monty Python's " Life of " the other night without subtitles, in part because I was curious whether being in a relaxing environment would help. It did to a degree, as did Parrish saying a good portion of the lines along with the movie under his breath (his voice is easier for me to handle than most) but I still missed out on enough that I'm going to rewatch it with subtitles on while he's gone at work tomorrow. DeGraf ~*~ http://www.sonic.net/mustang/moggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2003 Report Share Posted June 29, 2003 Wow! I would say that you and I look a lot alike! I am 5’10”, 185lbs. My eyes are probably average distance apart, but I have a terrible sense of distance. I have a “fake prescription” for glasses because as the day wears on my vision gets blurrier and blurrier. The ophthalmologist told me I was greedy because I have 20/20 vision and wanted it to be better, but he gave me a prescription from this two-sided Plexiglas thingy he had (one side is for near-sighted, one side for far-sighted). I usually wear them when I am driving so I can read road signs from farther away than I could read them without the glasses. I was very skinny until after my third child, now I am overweight, but I am very muscular as well. Hubby is 5’6” and used to be skinny until our third child as well (he tends to yo-yo with me, which is cool, I think). Louis From: Camille I am trying to figure out if most aspies have certain physical traits. I seem to notice in photos, not that there are many on the web of AS people, that we tend to have wide-set eyes. Anybody want to comment on their eyes On a delphi board it seemed like we were more likely to be either above average or below average in height, can't tell you the standard deviation on that.... We also seem to be either very skinny or very heavy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2003 Report Share Posted June 29, 2003 I wrote: >> Seems like a lot of people have been posting pictures lately. >> Could someone please send to the group (or to me individually) >> a step-by-step ( " ...for dummies " ) description of where to >> find these photos and how to gain access to them? and responded: >They are on the yahoogroups web site for this group. Are you ready to >take on >your web problem? I can try to help with that. Well, I don't have web problems at work. Unless the site (thanks, Louis/Louise, for the URL) requires a pass word. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Hi, Your story is great, and really fascinating. I was trying to figure out what Caitlin had (on and off for years) and at one point thought maybe sydrome, because I was responding to the autism that they have and didn't know it...Anyway, lots of people, maybe 99 percent of people with will never live alone and have only minor jobs with supervision, they are often retarded, but not always. I emailed several times back and forth with a young man who was atypical. He had WS and was going for a Masters (I think) in some field of medicine. His problems were mostly like AS (emotional stuff) but he was nice looking and had a pretty wife who was NT as far as I could tell. (lots of people with WS are very odd looking). The parents on the WS listserve basically hated him and treated him badly for being so high functioning. He dropped of the list entirely. So I am not surprised at they way the Retts parents acted toward the more fortunate ones with Retts. It's so stupid though. C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 I’ll have to hunt up a picture of me and post it. Louis From: Camille Hi, There is younger woman on another board who was posting her picture because she had lost a bunch of weight. I said the same thing to her, " wow, you look alot like me " . I have heavier eyebrows than she has and she had a pointy chin, but something about the rest of the face was very similar. Separated at birth????? gasp :-) C Quote Link to comment Share on other sites More sharing options...
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