Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Welcome , you are a very strong and brave woman! What a story and you've have fought back against the system to return to work, hold a job and get the help that you needed. much love, barb k. --- sqbear2 wrote: > I just joined your group and thought i would > introduce myself: > > My name is , i live in Calif, i am almost > 40yr(ouch)single > mother of a 18yr daughter. I have 3 torn disks in my > neck C3-C4-C5 > which will never be repaired by sugery. This was a > work related > injury, i work 12hr night shifts as a clerk at a > busy L/D unit. > > We moved to a new unit and the clerk's workstation > was not > eregonomically correct. I ended up going on work > comp and getting a > lawyer. My lawyer sent me to a wonderful Dr. who > treats his patients > with respect and understands their pain, and who is > not afraid to rx > narcoticss. > > My Dr. started me off on Norco (Vicodin) which was > useless, then asked > work comp to pay for a Diskogram which they refused > to do until my > lawyer and I took them to an expidited hearing, > which we did win. > > When i finally did get this test it showed my torn > disks...wow...no > wonder i was in so much pain! So i was sent to see a > wonderful pain > mgt Dr. who rx'd me Fentanyl patches and Methadone. > Finally i had some > pain relief!!! But work comp was laying in wait. > > After 2yrs of being off work, feeling like a loser, > damaged goods, > depression (which i take meds for) and thinking of > suicide almost > everyday. and getting paid Temp Disability, not > being able to pay my > bills.....i made the choice to go back to work and > not apply for SSDI > as my Dr. wanted me to. > > I am finally " free " from work comp after having > settled my case, there > is no compensation for a lifetime injury...oh and > yeah i have the blue > handicap sign too. > > I am a single mom who gets no child support i really > saw no other way > but to go back to work and take my meds everyday > just to be able to > work. Yeah i still hurt everyday but we all know how > this is the life > of a chronic pain-er. > > Thank you so much for allowing me to join your group > and i do see some > familar faces, i am so sorry that pain has brought > us all together, > but i have made some really good friends on the many > pain groups i > belong to. > > I do work nights but am online almost all the time, > if anyone needs to > vent i am around somewhere...and yep i do > understand. > > Thanks again, > > > > > > > > > > > > > > Barbara K. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Welcome ! Glad you found the group, its a great place to be. I am sorry for all your health problems, we all know what your going through. There is great support here, and I will be looking forward to getting to know you, hugs Tawny > > Hi there. My name is , and I have been lurking for the past few days. I > have a laundry list of medical diagnoses . . . > Fibromyalgia, degenerative disc disease, spinal stenosis, spinal arthritis, > endometriosis, mild asthma, bilateral lower limb lymphedema, athrtitis in both > knees and both shoulders, tendonitis, bursitis in right hip, stress and > urgency incontinence, medication induced constipation, chronic pain syndrome, > depression, anxiety, social anxiety, frequent headaches, carpal tunnel syndrome, > etc, etc. . . . . . > > I take 60 mgs of Methadone every day, along with 25mgs Percocet for breakthru > pain. I know that 60mgs doesn't sound like alot, but for me it is. I take > just enough at a time to ease the pain, I hate the " high " that goes with it. I > titrate the dosage gradually, about 5 mgs at a time, every few weeks. All with > the approval and supervision of my pain doc. I can now take 20 mgs at once > without getting high. I'm working on 25mgs now. > > My family and friends have no clue as to what I'm really going through on a > daily basis. They think they know, but thy really don't. My hubby has chronic > pain too, so he has some idea, but each person's pain is different, and hits > them / effects them in different ways. And we each deal with our own pain in our > own unique ways. > > Anyways, I just wanted to pop in and intro myself, say hello, and go back > into my own little world. > > > *********************************** > in Washington > > Emotionally and Medically screwed up > *********************************** > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 >Hi Liz. My name is " G " . You have found the right place for what you need. It seems we all understand pain,even if the circumstances are each unique. Welcome, and I am always here if you want to communicate to someone;so very many people on this site will be here for you G > Intro > > Hi, > My name is Liz and I have had rsd for two years now. I am, or was, a > executive chef. Two years ago 30 chefs traveled to France and Italy to do some > guest cheffing. In an ancient building now used as a restaurant on the French > Riviera I tripped and fell only a few stone steps. As in slow motion, I felt, > heard and watched my right leg break, followed by my left leg which shattered > my thigh severely. After surgery in France I finally made it home and started > physical therapy. > Just two months after coming home I began to experience severe pain in the > knee of the leg I shattered. The Dr. chalked it up to healing until one Sunday > I woke up and my entire left leg was dark purple. The hospital rushed me in, > expecting to find a clot in the leg, they found nothing. > Soon after, we had hurricane Frances come through. The first sign of > problems was the unbroken ankle blew up like a basketball and I couldn‘t move from > the pain and swelling. > Luckily my first neurologist ran into an RSD specialist at some function and > referred me to him. After numerous caudal and epidural blocks and a year of > living in a fog due to the drugs, we seem to finally have the right > combination. The RSD is now in all four limbs, my face and my brain. Very frustrating > with short term memory loss and the problem of not being able to come up with > the right word all the time. > Right now I am going through a $30,000 makeover of my mouth from the damage > to bone and gums from RSD. This has called for full facial blocks prior to > the dental surgeon. My last visit 10 Lorazapam and numerous injections of > Marcaine barely allowed them to work on me. In that visit they took 10 teeth, cut > all my gums, bone grafted and sutured my gums back. > Currently I am on Gabatril, Elavil, Clonazapam, Lexapro, Lunesta, Tramadol > and Nalbuphine Hydrochloride injections five times a day. > This disease has totally changed everything. I sold my restaurant and have > almost gone through that money between drugs and co Pays. It has cost me both > friends and now a lover. Just two days ago I was informed that they could not > live a life like mine, needing to limit activities to a half day and then > resting. I have stopped trying to explain to my few friends left. The general > reaction I get from people is ‘if I wasn‘t on so many drugs, I‘d be much > better‘.. > I feel as if this disease has com[pletely changed my life and is slowly > turning me into a solitary person who really misses friends and just the company > of others. > Anyway, I doubt I am telling anyone anything new, but hope to find others > who don’t write me off due to my RSD. > > Liz > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 In a message dated 6/8/2006 8:57:26 A.M. Eastern Daylight Time, tropixchef@... writes: Currently I am on Gabatril, Elavil, Clonazapam, Lexapro, Lunesta, Tramadol and Nalbuphine Hydrochloride injections five times a day. This disease has totally changed everything. I sold my restaurant and have almost gone through that money between drugs and co Pays. It has cost me both friends and now a lover. Just two days ago I was informed that they could not live a life like mine, needing to limit activities to a half day and then resting. I have stopped trying to explain to my few friends left. The general reaction I get from people is ‘if I wasn‘t on so many drugs, I‘d be much better‘.. Nalbuphine (Nalbuphine hydrochloride) is a synthetic opioid just curious why U cant take any pills instead the shot would just work faster but it seems the pills would level off the pain longer Tramadol is an atypical opioid which is a centrally acting analgesic used for treating moderate to severe pain ....Gabatril is a seizure med ,Elavil, Clonazapam, Lexapro are all anti depressants ,Lunesta is a sleep aid , it sure seems like if they titrated your pain med's properly you wouldn't need the huge mixture im not saying its a lot of med's its just a lot of different kinds and a awful lot of anti depressants Tramadol and the injections are the only actual pain med's and Tramadol or ultram which is the same thing isn't a very strong pain med at that .. a lot of the anti depressants and seizure med's can cause confusion forgetfulness and sleeplessness or sleepiness .. are U located in the united states? just curious many of us have RSD .. and all of us live with some sort of chronic pain no one is writing anyone off .. but with the right pain control U can live a fairly normal life with RSD if you have the right pain control..sometimes rather then give a patient the right amount of pain drugs Dr slide off to all the other cocktail med's and people end up taking tons of med's and paying tons of co pays when they would pay one co pay per pain med such as like time released oxycontin and then for break through pain oxycodone that's only two co pays see what I mean what caused your RSD to spread so fast? Rose God Bless and Keep You Owner/ Moderator Hugs N Pain _http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086_ (http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086) _http://groups.yahoo.com/group/ChronicPainInIndiana/?yguid=2992086_ (http://groups.yahoo.com/group/ChronicPainInIndiana/?yguid=2992086) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 In a message dated 6/8/2006 7:46:25 P.M. Eastern Daylight Time, tropixchef@... writes: It gets quite depressing having to explain my meds, my pain, my depression and all I hoped for here was some support. Liz many of us have been dealing with RSD a long time we are always curious about any different treatment there is always a chance there is more help we don't know about...I'm not questioning that U are on med's just curious when I see a different mixture that's all ... and that is part of support us learning so that maybe we can help someone that the norm doesn't work for.. like the patch doesn't work for everyone lots have problems with it but then some swear by it ...trust me I have had RSD a long time and I support what helps for that matter I support whatever helps anyone in there pain ... Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Welcome Liz, This is a great place to be, and I am so looking forward to knowing more about you. You have been through so much, I'm very sorry. I don't have RSD, but I have a lot of health problems, that has basically changed my life. Of course, no one understands, so its nice to find others who understand. That is so cool your a chef! You sure went to some amazing places, just sorry that is where the problem started. Just know I'm here if you need to chat. Hugs Tawny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 they uses Elavil to treat pain as well as for depression. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 The Gabatril helps with color changes in my limbs and some of the wierd swelling, the elavil is used with numerous drugs to allow me to reach rem sleep, something you must know rsd patients have problems reaching. I was on oral synthetic morphine under the tongue until the break through pain became too much. As the duragesic patch made me unable to moderate my body temp. The under the tongue synthetic morphine ran me 786 a month, the injectable runs me 500. I have to pay up front for my meds, $1600/month and then Blue Cross reemburses me anywhere from 40-60% Why my RSD went wild so fast? Your guess is as good as mine. It gets quite depressing having to explain my meds, my pain, my depression and all I hoped for here was some support. Liz > > > In a message dated 6/8/2006 8:57:26 A.M. Eastern Daylight Time, > tropixchef@... writes: > > Currently I am on Gabatril, Elavil, Clonazapam, Lexapro, Lunesta, Tramadol > and Nalbuphine Hydrochloride injections five times a day. > This disease has totally changed everything. I sold my restaurant and have > almost gone through that money between drugs and co Pays. It has cost me > both > friends and now a lover. Just two days ago I was informed that they could > not > live a life like mine, needing to limit activities to a half day and then > resting. I have stopped trying to explain to my few friends left. The > general > reaction I get from people is ‘if I wasn‘t on so many drugs, I‘d be much > better‘.. > > > > Nalbuphine (Nalbuphine hydrochloride) is a synthetic opioid just curious > why U cant take any pills instead the shot would just work faster but it > seems the pills would level off the pain longer Tramadol is an atypical opioid > which is a centrally acting analgesic used for treating moderate to severe pain > ...Gabatril is a seizure med ,Elavil, Clonazapam, Lexapro are all anti > depressants ,Lunesta is a sleep aid , it sure seems like if they titrated your pain > med's properly you wouldn't need the huge mixture im not saying its a > lot of med's its just a lot of different kinds and a awful lot of anti > depressants Tramadol and the injections are the only actual pain med's and Tramadol > or ultram which is the same thing isn't a very strong pain med at that .. a > lot of the anti depressants and seizure med's can cause confusion > forgetfulness and sleeplessness or sleepiness .. are U located in the united states? > just curious > > many of us have RSD .. and all of us live with some sort of chronic pain no > one is writing anyone off .. but with the right pain control U can live a > fairly normal life with RSD if you have the right pain control..sometimes > rather then give a patient the right amount of pain drugs Dr slide off to all > the other cocktail med's and people end up taking tons of med's and paying tons > of co pays when they would pay one co pay per pain med such as like time > released oxycontin and then for break through pain oxycodone that's only two co > pays see what I mean > what caused your RSD to spread so fast? > > Rose > God Bless and Keep You > Owner/ Moderator Hugs N Pain > _http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086_ > (http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086) > _http://groups.yahoo.com/group/ChronicPainInIndiana/?yguid=2992086_ > (http://groups.yahoo.com/group/ChronicPainInIndiana/?yguid=2992086) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Yes, I am in the states, FL to be exact and work with a neurologist whose primary patient base is people with RSD. I have lost enough friends and relationships already, how about I just unsubscribe? > > > In a message dated 6/8/2006 8:57:26 A.M. Eastern Daylight Time, > tropixchef@... writes: > > Currently I am on Gabatril, Elavil, Clonazapam, Lexapro, Lunesta, Tramadol > and Nalbuphine Hydrochloride injections five times a day. > This disease has totally changed everything. I sold my restaurant and have > almost gone through that money between drugs and co Pays. It has cost me > both > friends and now a lover. Just two days ago I was informed that they could > not > live a life like mine, needing to limit activities to a half day and then > resting. I have stopped trying to explain to my few friends left. The > general > reaction I get from people is ‘if I wasn‘t on so many drugs, I‘d be much > better‘.. > > > > Nalbuphine (Nalbuphine hydrochloride) is a synthetic opioid just curious > why U cant take any pills instead the shot would just work faster but it > seems the pills would level off the pain longer Tramadol is an atypical opioid > which is a centrally acting analgesic used for treating moderate to severe pain > ...Gabatril is a seizure med ,Elavil, Clonazapam, Lexapro are all anti > depressants ,Lunesta is a sleep aid , it sure seems like if they titrated your pain > med's properly you wouldn't need the huge mixture im not saying its a > lot of med's its just a lot of different kinds and a awful lot of anti > depressants Tramadol and the injections are the only actual pain med's and Tramadol > or ultram which is the same thing isn't a very strong pain med at that .. a > lot of the anti depressants and seizure med's can cause confusion > forgetfulness and sleeplessness or sleepiness .. are U located in the united states? > just curious > > many of us have RSD .. and all of us live with some sort of chronic pain no > one is writing anyone off .. but with the right pain control U can live a > fairly normal life with RSD if you have the right pain control..sometimes > rather then give a patient the right amount of pain drugs Dr slide off to all > the other cocktail med's and people end up taking tons of med's and paying tons > of co pays when they would pay one co pay per pain med such as like time > released oxycontin and then for break through pain oxycodone that's only two co > pays see what I mean > what caused your RSD to spread so fast? > > Rose > God Bless and Keep You > Owner/ Moderator Hugs N Pain > _http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086_ > (http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086) > _http://groups.yahoo.com/group/ChronicPainInIndiana/?yguid=2992086_ > (http://groups.yahoo.com/group/ChronicPainInIndiana/?yguid=2992086) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Hi-I had a fusion at L4/L5,and have been in pain since.Your Post caught my eye! My legs turn funky colors and splotchy when I stand up-neuro says no idea why-hmmmmmm.....I am 41 5'8,and 130 pounds,so being heavy is not my problem...I was accepted at the Rothman Institute after I got my last Ct scan and x-rays that say I now have Scoliosis-something I did NOT have before the surgery!...My family Dr told me NOT to go back to the Neuro who did this-as something is waaaay wrong-go figure..My appt is not till July 17th.I got sick of getting the Dr run arounds-so stopped taking medications in Sept-but at this point would be willing to beg for something-lol....No sleep makes me cranky-and shall I mention PMS?.I was on 12 mg of hydromorphone,but my Neuro was uncomfortable prescribing me more.then we tried Oxycontin-which after taking the first 12 hour pill put me in the hospital-very very bad reaction.I am allergic to codeine,so he wanted me to get a morphine pump-which is when I finally went to my Family Dr-who said wait till I see the Neuro at the Rothman Inst. ...My family Dr prescribed Elavil-which freaked me out-thought it was for folks with head troubles-but-it lets me sleep some-joy!...........Until my surgery(had a mass on my spine) I was a bartender,skied.and Showed my 3 dogs.....Will follow up later.Thanks-Dottie Re: Intro The Gabatril helps with color changes in my limbs and some of the wierd swelling, the elavil is used with numerous drugs to allow me to reach rem sleep, something you must know rsd patients have problems reaching. I> > > Please Pray for them You are receiving Individual Emails Change Delivery Settings Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Yup! They also use it to prevent migraines, that brought mine down from six or eight a month to one or two. And that's with a dose that isn't high enough to be useful as an anti-depressant for most people (50 mg). Liz... different people seem to view " support " differently. I can totally sympathize with you, I get disgusted at the people who, on hearing that I have back pain, suggest that I should try some exercise. Like they think that the doctors have just prescribed me a bunch of pills and given me a disabled parking sticker, with no attempt whatsoever to fix the problem. I hope you stick around, so you can see that Rose's intent really was supportive. She has a sharp and practical mind, and I strongly suspect she thought that if your " cocktail " could be tuned a little, you might get more pain relief for less money. Some of us definitely see that as support. You don't -- okay, we're all different, and now we know... and hopefully we will remember, but... we're human, and dealing with our own stuff, so if somebody forgets, please try to remember that we all tend to give the kind of support we ourselves would hope to get, so we're doing the best we know how. > > they uses Elavil to treat pain as well as for depression. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Hi Liz, I'm sorry you feel unsupported...this is the most supportive group I ve been on and I think you have to make a connection in order to support each other and unfortunately that connection for us is pain, our illnesses and the pain meds used to control that pain and hopefully in this process of you learning about me and me learning about you so we can help each other we hopefully help somebody else. I unfortunately don't have insurance but I'm in the process of getting it through the state....I'm in the Katrina hit zone and many areas don't have much left same with Dr choices......I don't have rsd but many other immune problems. -- Re: Intro The Gabatril helps with color changes in my limbs and some of the wierd swelling, the elavil is used with numerous drugs to allow me to reach rem sleep, something you must know rsd patients have problems reaching. I was on oral synthetic morphine under the tongue until the break through pain became too much. As the duragesic patch made me unable to moderate my body temp. The under the tongue synthetic morphine ran me 786 a month, the injectable runs me 500. I have to pay up front for my meds, $1600/month and then Blue Cross reemburses me anywhere from 40-60% Why my RSD went wild so fast? Your guess is as good as mine. It gets quite depressing having to explain my meds, my pain, my depression and all I hoped for here was some support. Liz > > > In a message dated 6/8/2006 8:57:26 A.M. Eastern Daylight Time, > tropixchef@... writes: > > Currently I am on Gabatril, Elavil, Clonazapam, Lexapro, Lunesta, Tramadol > and Nalbuphine Hydrochloride injections five times a day. > This disease has totally changed everything. I sold my restaurant and have > almost gone through that money between drugs and co Pays. It has cost me > both > friends and now a lover. Just two days ago I was informed that they could > not > live a life like mine, needing to limit activities to a half day and then > resting. I have stopped trying to explain to my few friends left. The > general > reaction I get from people is ‘if I wasn‘t on so many drugs, I‘d be much > better‘.. > > > > Nalbuphine (Nalbuphine hydrochloride) is a synthetic opioid just curious > why U cant take any pills instead the shot would just work faster but it > seems the pills would level off the pain longer Tramadol is an atypical opioid > which is a centrally acting analgesic used for treating moderate to severe pain > ...Gabatril is a seizure med ,Elavil, Clonazapam, Lexapro are all anti > depressants ,Lunesta is a sleep aid , it sure seems like if they titrated your pain > med's properly you wouldn't need the huge mixture im not saying its a > lot of med's its just a lot of different kinds and a awful lot of anti > depressants Tramadol and the injections are the only actual pain med's and Tramadol > or ultram which is the same thing isn't a very strong pain med at that .. a > lot of the anti depressants and seizure med's can cause confusion > forgetfulness and sleeplessness or sleepiness .. are U located in the united states? > just curious > > many of us have RSD .. and all of us live with some sort of chronic pain no > one is writing anyone off .. but with the right pain control U can live a > fairly normal life with RSD if you have the right pain control..sometimes > rather then give a patient the right amount of pain drugs Dr slide off to all > the other cocktail med's and people end up taking tons of med's and paying tons > of co pays when they would pay one co pay per pain med such as like time > released oxycontin and then for break through pain oxycodone that's only two co > pays see what I mean > what caused your RSD to spread so fast? > > Rose > God Bless and Keep You > Owner/ Moderator Hugs N Pain > _http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086_ > (http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086) > _http://groups.yahoo.com/group/ChronicPainInIndiana/?yguid=2992086_ > (http://groups.yahoo.com/group/ChronicPainInIndiana/?yguid=2992086) > > > Quote Link to comment Share on other sites More sharing options...
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