Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 I went to my rheumy yesterday and after much discussion, I persuaded him into prescribing minocin, which is the suggested antibiotic for RA. He doesn't believe all the research and thinks Dr Brown was a quack, but he had to admit that it works as an anti-inflammatory and inhibits cartilage destruction, so on those grounds he agreed to prescribe it. YIPPEE! My CRP was really elevated, meaning my disease activity is quite active. I didn't need a blood test to tell me that. This weather has been hitting me hard. But worse of all is my liver enzymes are still elevated even though it's been 3-4 months since I quit MTX. He wasn't happy adding minocin, which can also affect the liver enzymes so I'm surprised he did it. This doctor knows me very well since I saw him for 15 years before trying other rheumatologists. He knows I've read a lot about it. I don't expect any miracles. As I told him, I'm at the end of the line. I have nothing to loose. It's the only thing I haven't tried, so why not just shut me up LOL! a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 I think he knows he'll never be able to shut you up, a, LOL! That's great news. I hope the Minocin helps you. Will you also be on Enbrel? [ ] My rheumy visit > I went to my rheumy yesterday and after much discussion, I persuaded him > into prescribing minocin, which is the suggested antibiotic for RA. He > doesn't believe all the research and thinks Dr Brown was a quack, but he had > to admit that it works as an anti-inflammatory and inhibits cartilage > destruction, so on those grounds he agreed to prescribe it. YIPPEE! > My CRP was really elevated, meaning my disease activity is quite active. I > didn't need a blood test to tell me that. This weather has been hitting me > hard. But worse of all is my liver enzymes are still elevated even though > it's been 3-4 months since I quit MTX. He wasn't happy adding minocin, > which can also affect the liver enzymes so I'm surprised he did it. > This doctor knows me very well since I saw him for 15 years before trying > other rheumatologists. He knows I've read a lot about it. I don't expect > any miracles. As I told him, I'm at the end of the line. I have nothing to > loose. It's the only thing I haven't tried, so why not just shut me up LOL! > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 Yes, I'm also on Enbrel and will be taking it regularly instead of skipping injections if I'm having a good day. Between all these storms and some stressful things going on, my poor body doesn't stand a chance lately. Oh well, things will get better. My ex Sister in law was found murdered in Philly. They found her months ago, but didn't know who she was. Pretty sad. a > I think he knows he'll never be able to shut you up, a, LOL! > > That's great news. I hope the Minocin helps you. Will you also be on > Enbrel? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 What's the idea of slipping that news about your ex-SIL here, a? Oh, my goodness. That's a horrible thing. I'm glad you will still be taking Enbrel. Maybe that and the Minocin will be a magical combination. Re: [ ] My rheumy visit > Yes, I'm also on Enbrel and will be taking it regularly instead of skipping > injections if I'm having a good day. Between all these storms and some > stressful things going on, my poor body doesn't stand a chance lately. > Oh well, things will get better. My ex Sister in law was found murdered in > Philly. They found her months ago, but didn't know who she was. Pretty > sad. > a > > > I think he knows he'll never be able to shut you up, a, LOL! > > > > That's great news. I hope the Minocin helps you. Will you also be on > > Enbrel? > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2009 Report Share Posted May 25, 2009 Great news Dennis!!! > > Thursday, I saw my new Rheumy and he's given me some good news. It seems > that my RA is in remission! I've gone from 10 mg of Prednisone to 5 mg as of > today and stopped taking Lodine because it causes a lot of my indigestion. > I've been having problems with my intestines gurgling and hurting for a few > months and nobody knows why. I've also stopped taking my daily dose of > Prilosec. I'm also changing from Morphine Sulphate to Methocodone (sp) so I > won't have to drive to town every month to pick up the script. I'm going to > start Enbrel soon, so I sure hope this works. > > -- > Dennis in eastexas > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2009 Report Share Posted May 25, 2009 Did you mean hydrocodone so that the RX can be called in? Deb RN From: [mailto: ] On Behalf Of Sauve Sent: Monday, May 25, 2009 1:31 PM Subject: [ ] Re:My Rheumy visit why would you need enbrel if you are in remission?? makes no sense. monique Thursday, I saw my new Rheumy and he's given me some good news. It seems that my RA is in remission! I've gone from 10 mg of Prednisone to 5 mg as of today and stopped taking Lodine because it causes a lot of my indigestion. I've been having problems with my intestines gurgling and hurting for a few months and nobody knows why. I've also stopped taking my daily dose of Prilosec. I'm also changing from Morphine Sulphate to Methocodone (sp) so I won't have to drive to town every month to pick up the script. I'm going to start Enbrel soon, so I sure hope this works. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2009 Report Share Posted May 25, 2009 I knew it was some kind of " codone " and yes, it can be called in. lol He also said the Enbrel is to help me get off Prednisone. I have to trust that he knows what he's talking about. Dennis in eastexas On Mon, May 25, 2009 at 4:02 PM, Deb <i_ownaberner@...> wrote: > > > Did you mean hydrocodone so that the RX can be called in? > > Deb RN > > From: < %40> [mailto: > < %40>] On > Behalf Of Sauve > Sent: Monday, May 25, 2009 1:31 PM > < %40> > Subject: [ ] Re:My Rheumy visit > > > why would you need enbrel if you are in remission?? makes no sense. > > monique > > Thursday, I saw my new Rheumy and he's given me some good news. It seems > that my RA is in remission! I've gone from 10 mg of Prednisone to 5 mg as > of > today and stopped taking Lodine because it causes a lot of my indigestion. > I've been having problems with my intestines gurgling and hurting for a few > months and nobody knows why. I've also stopped taking my daily dose of > Prilosec. I'm also changing from Morphine Sulphate to Methocodone (sp) so I > won't have to drive to town every month to pick up the script. I'm going to > start Enbrel soon, so I sure hope this works. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2009 Report Share Posted May 25, 2009 I'm gonna check into it, thanks for the tip. Dennis in eastexas On Mon, May 25, 2009 at 7:50 PM, D. <edalfrey@...>wrote: > > > Hi- Where you posted: > > > I've been having problems with my intestines gurgling and hurting for a few > months and nobody knows why. > > I had years of intestinal pain and upset stomach and sores that would just > show up often on my arms and legs. My Rheumy told me that it was Celiac > Disease (even though I had tested negative and am on a gluten free diet). He > started me on Immuran and soon after, my GI is vastly improved! Yay! Little > GI pain, formed stools, and few sores. Working for me. - in south > Louisiana > > > > > > why would you need enbrel if you are in remission?? makes no sense. > > > > monique > > > > > > Thursday, I saw my new Rheumy and he's given me some good news. It seems > > that my RA is in remission! I've gone from 10 mg of Prednisone to 5 mg as > of > > today and stopped taking Lodine because it causes a lot of my > indigestion. > > I've been having problems with my intestines gurgling and hurting for a > few > > months and nobody knows why. I've also stopped taking my daily dose of > > Prilosec. I'm also changing from Morphine Sulphate to Methocodone (sp) so > I > > won't have to drive to town every month to pick up the script. I'm going > to > > start Enbrel soon, so I sure hope this works. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 Hi - I've read on the Enbrel website that it can put us into remission, but as soon as the medication is stopped, symptoms can return. " Remission " is just the absence of disease activity. Enbrel is a TNF BLOCKER - TNF being one of the culprits for RA as our body can make too much of it. So, it makes sense that as long as this excess of TNF is blocked, we can be in remission, but if we stop blocking it by discontinuing the medication, symptoms will return. There is no cure for RA. Only treatments. Hope this helps to answer your question.....Doreen PS - My FIRST shipment of Enbrel will be here in TWO MORE DAYS!! I can't wait! I have so much hope!! Please pray this will work for me. why would you need enbrel if you are in remission?? makes no sense. monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2009 Report Share Posted May 27, 2009 Hi - I agree - you would think that if someone was in remission they would stay on the regimen that helped to get them there - kinda like leave well enough alone. But in some of 's recent posts on remission, it seems that some doctors would choose to lower or even discontinue certain medications once the patient has achieved remission. Why a doctor would choose to ADD a medication if someone is in remission is beyond me. Sounds like a good question for the Rheumy. Doreen i know that doreen but if one is in remission then usually one would stay on the regimen that out one in remission not do something different. adding something different indicates to me that the disease is still active and therefore requiring better management which is not remission. monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 Thanks for clarifying this, . I guess I was in a total fog over who and what we were talking about. I thought it was a more generalized question, but I understand now what it was all about. Forgive my fog, please.....Doreen > > and Doreen, > > It sounds like Dennis' rheumatologist believes Dennis is in a > drug-induced remission, BUT he wants Dennis off the prednisone he > has been taking for many years. If he removes the prednisone, > Dennis may or may not remain in remission on methotrexate alone. The > rheumatologist may be thinking that it's going to be easier for > Dennis to discontinue prednisone and remain in remission if Enbrel > is added (or Enbrel is used alone). > > > > Not an MD Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.