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My Joe -Quite long

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Hi I havent posted much about this before, but we are now doing facilitated

communication with Joe, who is 12, severely autistic and just slightly verbal.

We have a brilliant speech therapist who is very experenced in FC and who really

believes in Joe's abilities.

He had a bittersweet conversation today, which I wanted to share:-

Therapist - What would you like to learn about?

Joe (facilitated) - WHY I AM AUTISTIC

(Therapist talks about changes to the brain, reads from encyclopaedia how brain

works)

Joe (facilitated) HAVE UNDERSTOOD. THIS IS GOING TO BE MY LIFE

Therapist - What do you mean by that?

Joe I WILL NOT GET BETTER.

Therapist said he will always have autism but will get much better, talked about

his home program, etc.

Those of you who have met Joe, or who have a severe, non verbal child yourselves

will understand how incredible this is. Incredibly sad too.

But my question is for parents of children who may have communicated something

similar, either verbally or with fc - I can use this as a way in to explain why

I give him supplements, and get him hopefully to tell me how new supps make him

feel, what helps, what doesnt - has anyone been able to communicate with their

child to this extent - does anyone have any tips?

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