Re: New to your group/Trev

[Guest guest]

Hi Trev-

Welcome to the group. We would like to comment on the

medications of your mom. We noticed you mentioned Haldol

and Ativan. Please be careful with these meds. My dad had

taken Ativan and I accredit it to his fast decline. There have

been others here who's loved ones have had the same

reactions to these meds.

Also, remember to take care of you during the caregiving.

This disease can be overwhelming at times so taking care

of the caregiver helps our loved ones.

Hugs from Iowa-

Sandie and - my dad, Merle, passed away 9-20-02

of LBD - 's mom, Jo, 76, still living with LBD in

New Zealand.

-- New to your group

My mother has LBD, it was finally diagnosed correctly last July. Before that

they were treating her for AD. She had gone to my sisters to stay awhile and

fell and broke her arm and a week later fell and broke her hip. After

surgery she became combative so they gave her Haldal which sent her into a

coma state. The doctor that did her surgery called in a nero doctor who told

us about the LBD. All the things he listed was our mother. Prior to this we

had taken her to every doctor we could think of because she was going down

hill very rapid.

My mother was out going and mostly a care take of others. She was always

very independent and very involved with her kids and grand kids. Today she

can hardly talk to you, only one or two words, she no longer can walk, feed

herself, nor tell you what she needs. I have been on a downhill spiral since

we had to put her in a Nursing Home this past January. It was one of the

hardest days of my life. She had been there for us for so many years. I

still miss her calling me for lunch or just running by her house to see her

after work. I know I need the help of others that understand where I am

coming from. I read about the caregiveritis I know I have that and I am

trying to make a few changes. But I still want to know how much time we have

left with her, tho my older sister tells me we will never know till the time

comes.

My mother has what we call spells or tremors, which is the Parkinson's. When

these come on she is stiff as a board, her eyes roll back in her head, she

is in her own world and we have to get her teeth out or she will chew up the

inside of her mouth. Her drugs are atavin and loritab, as well has

antidepressant.

My days start off at 5:30 each morning, I am at the nursing home by 6:15

-6:30 just to make sure my mother is having a good day or not (which if she

is going to talk it normally is early before she becomes to tired) then it

is off to work by 7:45, some days I drive back at lunch, then after 5pm I go

back to feed her at night and home sometimes around 7:30 to 8 pm. I do have

other sisters, one comes and stays for a month then goes home for 2 weeks,

the baby sister helps and my brother comes when ever he wants to. I have

tried to get a schedule going but it just does not work out half the time. I

just have a problems when I know that no one has been there to feed her in

the morning and at night. I have a problem just trying to let go and let

some one else take care of her.

I know this might help to talk to others that are in the same position as I

am.

I look forward to reading your emails.

Trev

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