Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 Hi, Recently I have been having a lot of trouble with my writing hand shaking. It has gotten to the point that I can hardly write at work. If things aren't already bad enough having MS, this hand shaking problem has prevented me from applying for a job that would be less stress. I don't want another opportunity to pass me by, so I told my neuro about it. He put me on Neurontin but so far it hasn't helped to much. Anyone with opinions on this med or advice on how I can get the shaking to stop? Thanks, KV I'm afraid you wouldn't think my advice would help you much, as it isn't much of a quick fix. I don't think there are any quick fixes where MS is concerned, unless possibly using a drug that will end up being much more harmful in the long run than being worth any quick fix it provides. I had begun to have hand tremors before I started to get better from my diet, but it took almost 4 years of the diet for me. I have heard of many people who notice great improvement in much shorter time, but none in less than a couple of months. Diet is about the only thing I feel we know of that will cause improvement in most anyone, if done correctly, but it takes a while. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 I had vit B12 sublingual suggested and found it very helpful indeed - except curiously the toes which never did stop twitching. B12 swallowed didn't do it. B12 injections didn't do it. Sublingual did. Either gone or diminished greatly in 20 minutes and holding for about 4 hours. It let me sleep, let me work. Jock, How many milligrams a day do you take ob B12 sublingual? I take the sublingual form also. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 Hi, Recently I have been having a lot of trouble with my writing hand shaking. It has gotten to the point that I can hardly write at work. If things aren't already bad enough having MS, this hand shaking problem has prevented me from applying for a job that would be less stress. I don't want another opportunity to pass me by, so I told my neuro about it. He put me on Neurontin but so far it hasn't helped to much. Anyone with opinions on this med or advice on how I can get the shaking to stop? Thanks, KV __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 Jock, I basically agree with you. I'm taking 5,000 mcg in my sublingual, but I have been having doubts about whether I really need to be doing it at all. (I don't test with a deficiency, although they say that doesn't matter.) I'd like to mention, though, that you can't compare microgram to microgram between injections and sublinguals or pills. I've been told by a couple of nurses and doctors, that you only absorb 1/5 or less the amount orally that you do by injection. I discovered this when I was getting magnesium injections at the doctors office, for my magnesium deficiency. They were only injecting about 5 mg and I though how could that do anything. So, I asked them, "Why bother for that small amount?". I was told that an injection provided the nutrient right into the system where it needs to go, whereas a lot is lost when something is taken orally, because it has to go through the digestion/absorption process etc. That IS one reason why it's better to take sublinguals than swallowed pills, because sublinguals don't have to go through the digestive and absorption systems, but it's still probable, I would think, that injecting it into the muscle would be better yet, as part of the sublingual is probably swallowed anyway. Carol Carol Haven't taken any for a long while. Looked at bottle. Label worn. 1000 is the dosage number. I remember micrograms not milligrams was the measure. Tried smaller. 1000 was the largest available. It mattered. There were even some papers that said B12 deficiency made a disease similar to MS. Again it was my mother that told me of B12 because of her doctors, friends, experience. A 1950's idea apparently. She has an anemia requiring her to take monthly B12 IM injections and clearly is energized by it. But when I calculated the dosages of the injections against the sublingual B12 that worked, I didn't find any help at all from a week of trying IM injection. Amazing what works a bit and what doesn't! I've been really thinking about making my million with that Ganges Mud idea! Jock Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 Karin May not fit. Won't hurt. A few years ago I had really bad tingling with a small bit of tremor in my hands, forearms, shins and toes. I had vit B12 sublingual suggested and found it very helpful indeed - except curiously the toes which never did stop twitching. B12 swallowed didn't do it. B12 injections didn't do it. Sublingual did. Either gone or diminished greatly in 20 minutes and holding for about 4 hours. It let me sleep, let me work. Like Carol says. I think diet has helped stabilize things a bit. Haven't had that problem for about 3 years. Had it for 2 years. Another thought. I fix aircraft instruments. Naturally that requires a steady hand. And using hands in a more or less regular way to just reach over and touch or grab or whatever just doesn't work in that context. Things are too small, too delicate. We may be working under a microscope. So we rest our wrist so we can use our hand, our fingers and be steady enough. Same also with painters. They use a steady stick for their wrist while painting critical spots. Maybe you can adapt your work a bit to using these techniques. Good luck. Jock Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 Carol Haven't taken any for a long while. Looked at bottle. Label worn. 1000 is the dosage number. I remember micrograms not milligrams was the measure. Tried smaller. 1000 was the largest available. It mattered. There were even some papers that said B12 deficiency made a disease similar to MS. Again it was my mother that told me of B12 because of her doctors, friends, experience. A 1950's idea apparently. She has an anemia requiring her to take monthly B12 IM injections and clearly is energized by it. But when I calculated the dosages of the injections against the sublingual B12 that worked, I didn't find any help at all from a week of trying IM injection. Amazing what works a bit and what doesn't! I've been really thinking about making my million with that Ganges Mud idea! Jock Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 I'd recommend trying the Mannatech to see if it helps. If you are interested, I'll set you up so you can order it directly at wholesale. Try it for a few months to give it time to have an effect. It ain't cheap, but if it helps... I had a homeopathic Dr say that I didn't get this way overnight so chances are I won't get back to my old self overnight either. , I've been hearing about Manatech for a few years now, and as I thought I remembered, it's just a brand name, isn't it? What are the ingredients? Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 Karrin- Real preliminary feedback, but I have noticed symptoms like " electric shocks " , muscle spasms and an almost imperceptible (so far) hand tremor seem to abate when I got on Mannatech for just a month. Also seemed to have better energy level. To be sure, I got off it for a month and I decided to get back on asap. Have not fared well at all since off of it. Evidently there is a lady who claims to have been, shall we say, " greatly helped " by it in just 12 days. I used her " recipe " and while I did not have as dramatic an experience, I think it is definitely worth the expense. I will try to find her testimonial and will forward it to you, if interested. Interestingly, there is a video put out by the company that describes pictorially an overactive immune system brought under control or in balance or back to health or whatever by the products. I became a distributor to buy wholesale and because a friend with ms did the same thing and seems to have been getting benefits. It appears that nutrition is the key. Most of us have lousy diets of lifeless, starchy, overcooked convenience " food " laced with chemicals and we wonder why we are having health challenges. I just found a plate of this stuff in my kitchen and dumped it in the trash where it belongs. It no longer even looks appetizing to me. I am intrigued by the dietary discussions you guys have been having. I have been living on nuts, fruits and carrot juice to a large degree. I fell off the wagon baking my own bread including grinding the wheat myself. I am going back to that asap too. Ran out of wheat. Met a biochemist who gave me a 3-hr dissertation on the health benefits of freshly ground wheat in bread. She spoke of store-bought bread as the " Bread of idleness " . Interesting. I'd recommend trying the Mannatech to see if it helps. If you are interested, I'll set you up so you can order it directly at wholesale. Try it for a few months to give it time to have an effect. It ain't cheap, but if it helps... I had a homeopathic Dr say that I didn't get this way overnight so chances are I won't get back to my old self overnight either. Anyone with advice......................... > Hi, > > Recently I have been having a lot of trouble with > my writing hand shaking. It has gotten to the point > that I can hardly write at work. If things aren't > already bad enough having MS, this hand shaking > problem has prevented me from applying for a job that > would be less stress. I don't want another > opportunity to pass me by, so I told my neuro about > it. He put me on Neurontin but so far it hasn't > helped to much. Anyone with opinions on this med or > advice on how I can get the shaking to stop? > > Thanks, > KV > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 I tried Mannatech for about six month and noticed absolutely no benefit. I also had become a distributor to buy it wholesale, but the stuff still costs a fortune, especially when they were upping my dosage to 2 tbsp at a time because it wasn't helping. I eat very, very cleanly, no sugar, no chemicals, no grains. I must add to read the labels on Mannatech products, a number of them have sugar and soy, if you have sensitivities to those. I spoke to people who had great improvement from Mannatech and raved about it, but Your Mileage May Vary. I was taking it during my most serious period of worsening, and during that time is when I got all new lesions spread to the spinal cord. I deeply WISH it helped. Rani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Rani- what's wrong with grains?? I'd think that'd be better than pork chops! Medaris & Associates Re/Max Horizons Private Office Private Fax Mobile www.homesdatabase.com/metrorelo Oh By The Way... Whenever you come across people who are thinking about buying or selling a home who would appreciate the level of service we provide, I'd love to help them. Just give me a call with their name and number and I will be happy to follow up and take care of them too. Re: Anyone with advice......................... > I tried Mannatech for about six month and noticed absolutely no benefit. I > also had become a distributor to buy it wholesale, but the stuff still costs > a fortune, especially when they were upping my dosage to 2 tbsp at a time > because it wasn't helping. I eat very, very cleanly, no sugar, no chemicals, > no grains. I must add to read the labels on Mannatech products, a number of > them have sugar and soy, if you have sensitivities to those. I spoke to > people who had great improvement from Mannatech and raved about it, but Your > Mileage May Vary. I was taking it during my most serious period of > worsening, and during that time is when I got all new lesions spread to the > spinal cord. I deeply WISH it helped. > > Rani > > . > Quote Link to comment Share on other sites More sharing options...
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