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Hi,

Recently I have been having a lot of trouble with

my writing hand shaking. It has gotten to the point

that I can hardly write at work. If things aren't

already bad enough having MS, this hand shaking

problem has prevented me from applying for a job that

would be less stress. I don't want another

opportunity to pass me by, so I told my neuro about

it. He put me on Neurontin but so far it hasn't

helped to much. Anyone with opinions on this med or

advice on how I can get the shaking to stop?

Thanks,

KV

I'm afraid you wouldn't think my advice would help you much, as it isn't much of a quick fix. I don't think there are any quick fixes where MS is concerned, unless possibly using a drug that will end up being much more harmful in the long run than being worth any quick fix it provides. I had begun to have hand tremors before I started to get better from my diet, but it took almost 4 years of the diet for me. I have heard of many people who notice great improvement in much shorter time, but none in less than a couple of months. Diet is about the only thing I feel we know of that will cause improvement in most anyone, if done correctly, but it takes a while.

Carol

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I had vit B12 sublingual suggested and found it very helpful indeed - except

curiously the toes which never did stop twitching. B12 swallowed didn't do

it. B12 injections didn't do it. Sublingual did. Either gone or diminished

greatly in 20 minutes and holding for about 4 hours. It let me sleep, let me

work.

Jock,

How many milligrams a day do you take ob B12 sublingual? I take the sublingual form also.

Carol

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Hi,

Recently I have been having a lot of trouble with

my writing hand shaking. It has gotten to the point

that I can hardly write at work. If things aren't

already bad enough having MS, this hand shaking

problem has prevented me from applying for a job that

would be less stress. I don't want another

opportunity to pass me by, so I told my neuro about

it. He put me on Neurontin but so far it hasn't

helped to much. Anyone with opinions on this med or

advice on how I can get the shaking to stop?

Thanks,

KV

__________________________________________________

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Jock,

I basically agree with you. I'm taking 5,000 mcg in my sublingual, but I have been having doubts about whether I really need to be doing it at all.

(I don't test with a deficiency, although they say that doesn't matter.)

I'd like to mention, though, that you can't compare microgram to microgram between injections and sublinguals or pills. I've been told by a couple of nurses and doctors, that you only absorb 1/5 or less the amount orally that you do by injection. I discovered this when I was getting magnesium injections at the doctors office, for my magnesium deficiency. They were only injecting about 5 mg and I though how could that do anything. So, I asked them, "Why bother for that small amount?". I was told that an injection provided the nutrient right into the system where it needs to go, whereas a lot is lost when something is taken orally, because it has to go through the digestion/absorption process etc. That IS one reason why it's better to take sublinguals than swallowed pills, because sublinguals don't have to go through the digestive and absorption systems, but it's still probable, I would think, that injecting it into the muscle would be better yet, as part of the sublingual is probably swallowed anyway.

Carol

Carol

Haven't taken any for a long while. Looked at bottle. Label worn. 1000 is the dosage number. I remember micrograms not milligrams was the measure. Tried smaller. 1000 was the largest available. It mattered.

There were even some papers that said B12 deficiency made a disease similar to MS. Again it was my mother that told me of B12 because of her doctors, friends, experience. A 1950's idea apparently. She has an anemia requiring her to take monthly B12 IM injections and clearly is energized by it. But when I calculated the dosages of the injections against the sublingual B12 that worked, I didn't find any help at all from a week of trying IM injection.

Amazing what works a bit and what doesn't! I've been really thinking about making my million with that Ganges Mud idea!

Jock

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Karin

May not fit. Won't hurt.

A few years ago I had really bad tingling with a small bit of tremor in my

hands, forearms, shins and toes.

I had vit B12 sublingual suggested and found it very helpful indeed - except

curiously the toes which never did stop twitching. B12 swallowed didn't do

it. B12 injections didn't do it. Sublingual did. Either gone or diminished

greatly in 20 minutes and holding for about 4 hours. It let me sleep, let me

work.

Like Carol says. I think diet has helped stabilize things a bit. Haven't had

that problem for about 3 years. Had it for 2 years.

Another thought. I fix aircraft instruments. Naturally that requires a

steady hand. And using hands in a more or less regular way to just reach

over and touch or grab or whatever just doesn't work in that context. Things

are too small, too delicate. We may be working under a microscope. So we

rest our wrist so we can use our hand, our fingers and be steady enough.

Same also with painters. They use a steady stick for their wrist while

painting critical spots. Maybe you can adapt your work a bit to using these

techniques.

Good luck.

Jock

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Carol

Haven't taken any for a long while. Looked at bottle. Label worn. 1000 is the dosage number. I remember micrograms not milligrams was the measure. Tried smaller. 1000 was the largest available. It mattered.

There were even some papers that said B12 deficiency made a disease similar to MS. Again it was my mother that told me of B12 because of her doctors, friends, experience. A 1950's idea apparently. She has an anemia requiring her to take monthly B12 IM injections and clearly is energized by it. But when I calculated the dosages of the injections against the sublingual B12 that worked, I didn't find any help at all from a week of trying IM injection.

Amazing what works a bit and what doesn't! I've been really thinking about making my million with that Ganges Mud idea!

Jock

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I'd recommend trying the Mannatech to see if it helps. If you are

interested, I'll set you up so you can order it directly at wholesale. Try

it for a few months to give it time to have an effect. It ain't cheap, but

if it helps... I had a homeopathic Dr say that I didn't get this way

overnight so chances are I won't get back to my old self overnight either.

,

I've been hearing about Manatech for a few years now, and as I thought I remembered, it's just a brand name, isn't it? What are the ingredients?

Carol

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Karrin- Real preliminary feedback, but I have noticed symptoms like

" electric shocks " , muscle spasms and an almost imperceptible (so far) hand

tremor seem to abate when I got on Mannatech for just a month. Also seemed

to have better energy level. To be sure, I got off it for a month and I

decided to get back on asap. Have not fared well at all since off of it.

Evidently there is a lady who claims to have been, shall we say, " greatly

helped " by it in just 12 days. I used her " recipe " and while I did not have

as dramatic an experience, I think it is definitely worth the expense. I

will try to find her testimonial and will forward it to you, if interested.

Interestingly, there is a video put out by the company that describes

pictorially an overactive immune system brought under control or in balance

or back to health or whatever by the products. I became a distributor to buy

wholesale and because a friend with ms did the same thing and seems to have

been getting benefits. It appears that nutrition is the key. Most of us have

lousy diets of lifeless, starchy, overcooked convenience " food " laced with

chemicals and we wonder why we are having health challenges. I just found a

plate of this stuff in my kitchen and dumped it in the trash where it

belongs. It no longer even looks appetizing to me.

I am intrigued by the dietary discussions you guys have been having. I have

been living on nuts, fruits and carrot juice to a large degree. I fell off

the wagon baking my own bread including grinding the wheat myself. I am

going back to that asap too. Ran out of wheat. Met a biochemist who gave me

a 3-hr dissertation on the health benefits of freshly ground wheat in bread.

She spoke of store-bought bread as the " Bread of idleness " . Interesting.

I'd recommend trying the Mannatech to see if it helps. If you are

interested, I'll set you up so you can order it directly at wholesale. Try

it for a few months to give it time to have an effect. It ain't cheap, but

if it helps... I had a homeopathic Dr say that I didn't get this way

overnight so chances are I won't get back to my old self overnight either.

Anyone with advice.........................

> Hi,

>

> Recently I have been having a lot of trouble with

> my writing hand shaking. It has gotten to the point

> that I can hardly write at work. If things aren't

> already bad enough having MS, this hand shaking

> problem has prevented me from applying for a job that

> would be less stress. I don't want another

> opportunity to pass me by, so I told my neuro about

> it. He put me on Neurontin but so far it hasn't

> helped to much. Anyone with opinions on this med or

> advice on how I can get the shaking to stop?

>

> Thanks,

> KV

>

> __________________________________________________

>

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I tried Mannatech for about six month and noticed absolutely no benefit. I

also had become a distributor to buy it wholesale, but the stuff still costs

a fortune, especially when they were upping my dosage to 2 tbsp at a time

because it wasn't helping. I eat very, very cleanly, no sugar, no chemicals,

no grains. I must add to read the labels on Mannatech products, a number of

them have sugar and soy, if you have sensitivities to those. I spoke to

people who had great improvement from Mannatech and raved about it, but Your

Mileage May Vary. I was taking it during my most serious period of

worsening, and during that time is when I got all new lesions spread to the

spinal cord. I deeply WISH it helped.

Rani

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Rani- what's wrong with grains?? I'd think that'd be better than pork chops!

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Re: Anyone with advice.........................

> I tried Mannatech for about six month and noticed absolutely no benefit.

I

> also had become a distributor to buy it wholesale, but the stuff still

costs

> a fortune, especially when they were upping my dosage to 2 tbsp at a time

> because it wasn't helping. I eat very, very cleanly, no sugar, no

chemicals,

> no grains. I must add to read the labels on Mannatech products, a number

of

> them have sugar and soy, if you have sensitivities to those. I spoke to

> people who had great improvement from Mannatech and raved about it, but

Your

> Mileage May Vary. I was taking it during my most serious period of

> worsening, and during that time is when I got all new lesions spread to

the

> spinal cord. I deeply WISH it helped.

>

> Rani

>

> .

>

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