Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 Yep, I was vaccinated as a kid. Hep B about 14 years ago too. Grew up on a ‘farm’ and remember lots of fertilizers. Took out dental fillings about 10 years ago. No root canals or other things like that. When you say scar tissue, what do you mean exactly? Yes I have scars – one big one on my leg. Only rx meds are hormones and metformin. I do take Zomig for migraines if I have to. Have taken a ton of other stuff over the years – just not in the last few years. Cipro about 11 years ago. Tons of antidepressants, antianxiety, pain meds, etc.. 2 births, gestational diabetes with both. 8lbs 8oz and 9lbs 3oz. 2nd one was tough pregnancy and birth. Any help? Need to know what’s going on! From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of RRM Sent: Tuesday, September 01, 2009 7:46 AM To: Lyme_and_Rife Subject: gina- OT: doc follow up find a good SCIO practioner the machine can scan the body for 30,000 different things. were you vaccinated? ever work around chemicals-farm-lawn-industrial? heavy metals,dental,rootcanals,cavations, scar tissue? rx medications? child birth on & on. roger From: <vegasmomof3> Subject: OT: doc follow up To: Lyme_and_Rife Date: Tuesday, September 1, 2009, 9:24 AM So, I had my follow up with my ‘LLMD’ doc yesterday. I’m still very frustrated. The first appt went pretty well and I was encouraged. Not that I’m completely discouraged now, but definitely not as hopeful this time. Not all of my labs were back, but there wasn’t much to say about what was. My thyroid levels are quite odd – all very low, despite the fact that I take thyroid meds! They didn’t do the right tests, so it’s hard to say what my Reverse T3 ratio is. But just using what they do have, it’s still too high or at least borderline. She wants me to lower my dose of T3, which I’m just not sure I want to do. I’ll be asking on my thyroid board what to do about all of that! The only other thing with my labs was my Vit D levels were very low – low enough that she was concerned about it and told me to supplement. Of course, we had the whole discussion about how much to take and they thought me taking 5000 IU was too much. I haven’t taken any Vit D in about a month because of that diet I was on – no oils and the Vit D I take is in oil. My brain MRI with and without contrast was clear – so no MS. Glad to have that ruled out! The thyroid ultrasound showed a tiny (6mm x 4mm x 3mm) nodule and a borderline enlarged thyroid. She was not even remotely concerned about it and thought it was nothing to be worried about. But based on my family history (mom had goiter, both aunts and mom had low thyroid, one of those aunts died of thyroid cancer) she wants to do a scan just to see how my thyroid is functioning and such. We’ll see how that goes. She is at least doing some research on the Reverse T3 issue I have, so that’s good. The Igenex Western Blot was not back, but the Quest one was and of course it was all negative. Before sh figured out it was the Quest one and had ‘ruled out’ Lyme, I mentioned STARI to her. She had never heard of it. Shouldn’t a LLMD at least have heard of STARI? Maybe not, but it concerned me that she hadn’t. But, not sure about Lyme yet… All in all I got some good info, but am still frustrated at some of the things she said. I didn’t have the energy to dispute her, so I just listened to her spill and went about my business. Ugh. The main thing that bothered me was she said that diseases/health problems can be idiopathic (have no known cause). I completely disagree with that. There is a reason my thyroid doesn’t work right – maybe it’s the nodule, maybe it’s an underlying infection, maybe Lyme, maybe it’s bad genes… But there IS a reason. An ‘idiopathic’ disease is nonsense to me. I’m just about in tears because I want to know what is causing all of this. How can it NOT be Lyme? I have so many Lyme symptoms! Oh, she does want me to get tested for Parvo. Yep, Parvo. She says my symptoms sound like that to her. Just something else to rule in/out, which is fine. I want to get to the bottom of this. Don’t get me wrong here… I know that finding the true cause may be futile. Even if I found the true cause, my treatment won’t be much different than what I’m doing now. I do salt/C, CS, some MMS sometimes, and a whole host of supplements. So, I’m fixing whatever is wrong regardless by giving my body what it needs. If I knew I had some other specific issue, I’d just add what I needed to my regimen. Anyway, just wanted to vent a bit. If anyone has some thoughts, I’d love to hear them. Thanks for listening, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 is there a website like find scio practitioner in your area? i tried to google it and no luck i'm in a well known area you'd think there would be one. any websites to find? carol > > > > Subject: OT: doc follow up > To: Lyme_and_Rife > Date: Tuesday, September 1, 2009, 9:24 AM > > > > > > So, I had my follow up with my ‘LLMD’ doc yesterday. I’m still very frustrated. The first appt went pretty well and I was encouraged. Not that I’m completely discouraged now, but definitely not as hopeful this time. > > > > Not all of my labs were back, but there wasn’t much to say about what was. My thyroid levels are quite odd †" all very low, despite the fact that I take thyroid meds! They didn’t do the right tests, so it’s hard to say what my Reverse T3 ratio is. But just using what they do have, it’s still too high or at least borderline. She wants me to lower my dose of T3, which I’m just not sure I want to do. I’ll be asking on my thyroid board what to do about all of that! > > > > The only other thing with my labs was my Vit D levels were very low †" low enough that she was concerned about it and told me to supplement. Of course, we had the whole discussion about how much to take and they thought me taking 5000 IU was too much. I haven’t taken any Vit D in about a month because of that diet I was on †" no oils and the Vit D I take is in oil. > > > > My brain MRI with and without contrast was clear †" so no MS. Glad to have that ruled out! > > > > The thyroid ultrasound showed a tiny (6mm x 4mm x 3mm) nodule and a borderline enlarged thyroid. She was not even remotely concerned about it and thought it was nothing to be worried about. But based on my family history (mom had goiter, both aunts and mom had low thyroid, one of those aunts died of thyroid cancer) she wants to do a scan just to see how my thyroid is functioning and such. We’ll see how that goes. She is at least doing some research on the Reverse T3 issue I have, so that’s good. > > > > The Igenex Western Blot was not back, but the Quest one was and of course it was all negative. Before sh figured out it was the Quest one and had ‘ruled out’ Lyme, I mentioned STARI to her. She had never heard of it. Shouldn’t a LLMD at least have heard of STARI? Maybe not, but it concerned me that she hadn’t. But, not sure about Lyme yet… > > > > All in all I got some good info, but am still frustrated at some of the things she said. I didn’t have the energy to dispute her, so I just listened to her spill and went about my business. Ugh. The main thing that bothered me was she said that diseases/health problems can be idiopathic (have no known cause). I completely disagree with that. There is a reason my thyroid doesn’t work right †" maybe it’s the nodule, maybe it’s an underlying infection, maybe Lyme, maybe it’s bad genes… But there IS a reason. An ‘idiopathic’ disease is nonsense to me. > > > > I’m just about in tears because I want to know what is causing all of this. How can it NOT be Lyme? I have so many Lyme symptoms! Oh, she does want me to get tested for Parvo. Yep, Parvo. She says my symptoms sound like that to her. Just something else to rule in/out, which is fine. I want to get to the bottom of this. > > > > Don’t get me wrong here… I know that finding the true cause may be futile. Even if I found the true cause, my treatment won’t be much different than what I’m doing now. I do salt/C, CS, some MMS sometimes, and a whole host of supplements. So, I’m fixing whatever is wrong regardless by giving my body what it needs. If I knew I had some other specific issue, I’d just add what I needed to my regimen. > > > > Anyway, just wanted to vent a bit. If anyone has some thoughts, I’d love to hear them. > > > > Thanks for listening, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 find someone with a SCIO. look into the hep b shot toxins !! scar tissue can hold/block in toxins & bugs. cipro can cause nerve problems. a lot or rx meds used with/in birth problems can be very toxic. abx can cause a lot of damage to the gut & brain as do vaccines. most of this the dr. miss !! too http://iansvoice.org/ianslife.aspx http://vactruth.com/2009/08/03/vaccinations-are-causing-impaired-blood-flow-ischemia-chronic-illness-disease-and-death-for-us-all-hp/ http://vactruth.com/2009/06/26/dr-andrew-moulden-answers-to-autism-and-vaccine-damage/ http://vactruth.com/2009/07/21/dr-andrew-moulden-interview-what-you-were-never-told-about-vaccines/ roger From: < vegasmomof3@ cox.net >Subject: OT: doc follow upTo: Lyme_and_Rife@ yahoogroups. comDate: Tuesday, September 1, 2009, 9:24 AM So, I had my follow up with my ‘LLMD’ doc yesterday. I’m still very frustrated. The first appt went pretty well and I was encouraged. Not that I’m completely discouraged now, but definitely not as hopeful this time. Not all of my labs were back, but there wasn’t much to say about what was. My thyroid levels are quite odd – all very low, despite the fact that I take thyroid meds! They didn’t do the right tests, so it’s hard to say what my Reverse T3 ratio is. But just using what they do have, it’s still too high or at least borderline. She wants me to lower my dose of T3, which I’m just not sure I want to do. I’ll be asking on my thyroid board what to do about all of that! The only other thing with my labs was my Vit D levels were very low – low enough that she was concerned about it and told me to supplement. Of course, we had the whole discussion about how much to take and they thought me taking 5000 IU was too much. I haven’t taken any Vit D in about a month because of that diet I was on – no oils and the Vit D I take is in oil. My brain MRI with and without contrast was clear – so no MS. Glad to have that ruled out! The thyroid ultrasound showed a tiny (6mm x 4mm x 3mm) nodule and a borderline enlarged thyroid. She was not even remotely concerned about it and thought it was nothing to be worried about. But based on my family history (mom had goiter, both aunts and mom had low thyroid, one of those aunts died of thyroid cancer) she wants to do a scan just to see how my thyroid is functioning and such. We’ll see how that goes. She is at least doing some research on the Reverse T3 issue I have, so that’s good. The Igenex Western Blot was not back, but the Quest one was and of course it was all negative. Before sh figured out it was the Quest one and had ‘ruled out’ Lyme, I mentioned STARI to her. She had never heard of it. Shouldn’t a LLMD at least have heard of STARI? Maybe not, but it concerned me that she hadn’t. But, not sure about Lyme yet… All in all I got some good info, but am still frustrated at some of the things she said. I didn’t have the energy to dispute her, so I just listened to her spill and went about my business. Ugh. The main thing that bothered me was she said that diseases/health problems can be idiopathic (have no known cause). I completely disagree with that. There is a reason my thyroid doesn’t work right – maybe it’s the nodule, maybe it’s an underlying infection, maybe Lyme, maybe it’s bad genes… But there IS a reason. An ‘idiopathic’ disease is nonsense to me. I’m just about in tears because I want to know what is causing all of this. How can it NOT be Lyme? I have so many Lyme symptoms! Oh, she does want me to get tested for Parvo. Yep, Parvo. She says my symptoms sound like that to her. Just something else to rule in/out, which is fine. I want to get to the bottom of this. Don’t get me wrong here… I know that finding the true cause may be futile. Even if I found the true cause, my treatment won’t be much different than what I’m doing now. I do salt/C, CS, some MMS sometimes, and a whole host of supplements. So, I’m fixing whatever is wrong regardless by giving my body what it needs. If I knew I had some other specific issue, I’d just add what I needed to my regimen. Anyway, just wanted to vent a bit. If anyone has some thoughts, I’d love to hear them. Thanks for listening, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 Where do you live? I have a friend that is a SCIO practitioner in Minnesota and she does do distanct work. > > > > > > From: <vegasmomof3@> > > Subject: OT: doc follow up > > To: Lyme_and_Rife > > Date: Tuesday, September 1, 2009, 9:24 AM > > > > > > > > > > > > So, I had my follow up with my ‘LLMD’ doc yesterday. I’m still very frustrated. The first appt went pretty well and I was encouraged. Not that I’m completely discouraged now, but definitely not as hopeful this time. > > > > > > > > Not all of my labs were back, but there wasn’t much to say about what was. My thyroid levels are quite odd †" all very low, despite the fact that I take thyroid meds! They didn’t do the right tests, so it’s hard to say what my Reverse T3 ratio is. But just using what they do have, it’s still too high or at least borderline. She wants me to lower my dose of T3, which I’m just not sure I want to do. I’ll be asking on my thyroid board what to do about all of that! > > > > > > > > The only other thing with my labs was my Vit D levels were very low †" low enough that she was concerned about it and told me to supplement. Of course, we had the whole discussion about how much to take and they thought me taking 5000 IU was too much. I haven’t taken any Vit D in about a month because of that diet I was on †" no oils and the Vit D I take is in oil. > > > > > > > > My brain MRI with and without contrast was clear †" so no MS. Glad to have that ruled out! > > > > > > > > The thyroid ultrasound showed a tiny (6mm x 4mm x 3mm) nodule and a borderline enlarged thyroid. She was not even remotely concerned about it and thought it was nothing to be worried about. But based on my family history (mom had goiter, both aunts and mom had low thyroid, one of those aunts died of thyroid cancer) she wants to do a scan just to see how my thyroid is functioning and such. We’ll see how that goes. She is at least doing some research on the Reverse T3 issue I have, so that’s good. > > > > > > > > The Igenex Western Blot was not back, but the Quest one was and of course it was all negative. Before sh figured out it was the Quest one and had ‘ruled out’ Lyme, I mentioned STARI to her. She had never heard of it. Shouldn’t a LLMD at least have heard of STARI? Maybe not, but it concerned me that she hadn’t. But, not sure about Lyme yet… > > > > > > > > All in all I got some good info, but am still frustrated at some of the things she said. I didn’t have the energy to dispute her, so I just listened to her spill and went about my business. Ugh. The main thing that bothered me was she said that diseases/health problems can be idiopathic (have no known cause). I completely disagree with that. There is a reason my thyroid doesn’t work right †" maybe it’s the nodule, maybe it’s an underlying infection, maybe Lyme, maybe it’s bad genes… But there IS a reason. An ‘idiopathic’ disease is nonsense to me. > > > > > > > > I’m just about in tears because I want to know what is causing all of this. How can it NOT be Lyme? I have so many Lyme symptoms! Oh, she does want me to get tested for Parvo. Yep, Parvo. She says my symptoms sound like that to her. Just something else to rule in/out, which is fine. I want to get to the bottom of this. > > > > > > > > Don’t get me wrong here… I know that finding the true cause may be futile. Even if I found the true cause, my treatment won’t be much different than what I’m doing now. I do salt/C, CS, some MMS sometimes, and a whole host of supplements. So, I’m fixing whatever is wrong regardless by giving my body what it needs. If I knew I had some other specific issue, I’d just add what I needed to my regimen. > > > > > > > > Anyway, just wanted to vent a bit. If anyone has some thoughts, I’d love to hear them. > > > > > > > > Thanks for listening, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 , What city does your friend work in? Thane Subject: Re: gina- OT: doc follow upTo: Lyme_and_Rife Date: Tuesday, September 1, 2009, 8:14 PM Where do you live? I have a friend that is a SCIO practitioner in Minnesota and she does do distanct work.> > > > > > From: <vegasmomof3@ >> > Subject: OT: doc follow up> > To: Lyme_and_Rife@ yahoogroups. com> > Date: Tuesday, September 1, 2009, 9:24 AM> > > > > > > > > > > > So, I had my follow up with my ‘LLMD’ doc yesterday. I’m still very frustrated. The first appt went pretty well and I was encouraged. Not that I’m completely discouraged now, but definitely not as hopeful this time.> > > > > > > > Not all of my labs were back, but there wasn’t much to say about what was. My thyroid levels are quite odd â€" all very low, despite the fact that I take thyroid meds! They didn’t do the right tests, so it’s hard to say what my Reverse T3 ratio is. But just using what they do have, it’s still too high or at least borderline. She wants me to lower my dose of T3, which I’m just not sure I want to do. I’ll be asking on my thyroid board what to do about all of that! > > > > > > > > The only other thing with my labs was my Vit D levels were very low â€" low enough that she was concerned about it and told me to supplement. Of course, we had the whole discussion about how much to take and they thought me taking 5000 IU was too much. I haven’t taken any Vit D in about a month because of that diet I was on â€" no oils and the Vit D I take is in oil. > > > > > > > > My brain MRI with and without contrast was clear â€" so no MS. Glad to have that ruled out! > > > > > > > > The thyroid ultrasound showed a tiny (6mm x 4mm x 3mm) nodule and a borderline enlarged thyroid. She was not even remotely concerned about it and thought it was nothing to be worried about. But based on my family history (mom had goiter, both aunts and mom had low thyroid, one of those aunts died of thyroid cancer) she wants to do a scan just to see how my thyroid is functioning and such. We’ll see how that goes. She is at least doing some research on the Reverse T3 issue I have, so that’s good. > > > > > > > > The Igenex Western Blot was not back, but the Quest one was and of course it was all negative. Before sh figured out it was the Quest one and had ‘ruled out’ Lyme, I mentioned STARI to her. She had never heard of it. Shouldn’t a LLMD at least have heard of STARI? Maybe not, but it concerned me that she hadn’t. But, not sure about Lyme yet… > > > > > > > > All in all I got some good info, but am still frustrated at some of the things she said. I didn’t have the energy to dispute her, so I just listened to her spill and went about my business. Ugh. The main thing that bothered me was she said that diseases/health problems can be idiopathic (have no known cause). I completely disagree with that. There is a reason my thyroid doesn’t work right â€" maybe it’s the nodule, maybe it’s an underlying infection, maybe Lyme, maybe it’s bad genes… But there IS a reason. An ‘idiopathic’ disease is nonsense to me. > > > > > > > > I’m just about in tears because I want to know what is causing all of this. How can it NOT be Lyme? I have so many Lyme symptoms! Oh, she does want me to get tested for Parvo. Yep, Parvo. She says my symptoms sound like that to her. Just something else to rule in/out, which is fine. I want to get to the bottom of this. > > > > > > > > Don’t get me wrong here… I know that finding the true cause may be futile. Even if I found the true cause, my treatment won’t be much different than what I’m doing now. I do salt/C, CS, some MMS sometimes, and a whole host of supplements. So, I’m fixing whatever is wrong regardless by giving my body what it needs. If I knew I had some other specific issue, I’d just add what I needed to my regimen. > > > > > > > > Anyway, just wanted to vent a bit. If anyone has some thoughts, I’d love to hear them. > > > > > > > > Thanks for listening, > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 I’m in Las Vegas, NV.  A bit of a drive to Minnesota!  My understanding is I need to be ‘hooked up’ for at least a couple of sessions to start, right? From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of sueblanton Sent: Tuesday, September 01, 2009 6:14 PM To: Lyme_and_Rife Subject: Re: gina- OT: doc follow up Where do you live? I have a friend that is a SCIO practitioner in Minnesota and she does do distanct work. > > > > > > From: <vegasmomof3@> > > Subject: OT: doc follow up > > To: Lyme_and_Rife > > Date: Tuesday, September 1, 2009, 9:24 AM > > > > > > > > > > > > So, I had my follow up with my ‘LLMD’ doc yesterday. I’m still very frustrated. The first appt went pretty well and I was encouraged. Not that I’m completely discouraged now, but definitely not as hopeful this time. > > > > > > > > Not all of my labs were back, but there wasn’t much to say about what was. My thyroid levels are quite odd †" all very low, despite the fact that I take thyroid meds! They didn’t do the right tests, so it’s hard to say what my Reverse T3 ratio is. But just using what they do have, it’s still too high or at least borderline. She wants me to lower my dose of T3, which I’m just not sure I want to do. I’ll be asking on my thyroid board what to do about all of that! > > > > > > > > The only other thing with my labs was my Vit D levels were very low †" low enough that she was concerned about it and told me to supplement. Of course, we had the whole discussion about how much to take and they thought me taking 5000 IU was too much. I haven’t taken any Vit D in about a month because of that diet I was on †" no oils and the Vit D I take is in oil. > > > > > > > > My brain MRI with and without contrast was clear †" so no MS. Glad to have that ruled out! > > > > > > > > The thyroid ultrasound showed a tiny (6mm x 4mm x 3mm) nodule and a borderline enlarged thyroid. She was not even remotely concerned about it and thought it was nothing to be worried about. But based on my family history (mom had goiter, both aunts and mom had low thyroid, one of those aunts died of thyroid cancer) she wants to do a scan just to see how my thyroid is functioning and such. We’ll see how that goes. She is at least doing some research on the Reverse T3 issue I have, so that’s good. > > > > > > > > The Igenex Western Blot was not back, but the Quest one was and of course it was all negative. Before sh figured out it was the Quest one and had ‘ruled out’ Lyme, I mentioned STARI to her. She had never heard of it. Shouldn’t a LLMD at least have heard of STARI? Maybe not, but it concerned me that she hadn’t. But, not sure about Lyme yet… > > > > > > > > All in all I got some good info, but am still frustrated at some of the things she said. I didn’t have the energy to dispute her, so I just listened to her spill and went about my business. Ugh. The main thing that bothered me was she said that diseases/health problems can be idiopathic (have no known cause). I completely disagree with that. There is a reason my thyroid doesn’t work right †" maybe it’s the nodule, maybe it’s an underlying infection, maybe Lyme, maybe it’s bad genes… But there IS a reason. An ‘idiopathic’ disease is nonsense to me. > > > > > > > > I’m just about in tears because I want to know what is causing all of this. How can it NOT be Lyme? I have so many Lyme symptoms! Oh, she does want me to get tested for Parvo. Yep, Parvo. She says my symptoms sound like that to her. Just something else to rule in/out, which is fine. I want to get to the bottom of this. > > > > > > > > Don’t get me wrong here… I know that finding the true cause may be futile. Even if I found the true cause, my treatment won’t be much different than what I’m doing now. I do salt/C, CS, some MMS sometimes, and a whole host of supplements. So, I’m fixing whatever is wrong regardless by giving my body what it needs. If I knew I had some other specific issue, I’d just add what I needed to my regimen. > > > > > > > > Anyway, just wanted to vent a bit. If anyone has some thoughts, I’d love to hear them. > > > > > > > > Thanks for listening, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 A few questions… I got the Heb B shot when I was 24. My major symptoms started when I was 18 – actually when I was under 10 when the symptoms started, but pain and ‘arthralgias’ by the time I was 18. Got the scar when I was 29 – don’t have other significant scars. Didn’t have kids until I was 33 and 36. All this started WAY before them. I did take lots of abx and psych meds, but it was after all the symptoms started. I don’t remember taking a bunch of stuff like that as a teenager. Well, I did take birth control pills starting at 17 years old because of my horrible TOM’s – prior to that I took Naproxen Sodium starting at 15 (when it was rx - which is what Aleve is) for my horrible TOM cramps (I’d miss 1-2 days of school because of it). But even before then, I had lots of symptoms – lack of stamina (even at 13 years old), stiff muscles/not flexible even though I was an ‘athlete’ of sorts, some issues dealing with people/psych issues (depression/anxiety). Gonna look at the sites you sent and find a SCIO pract in my area… From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of RRM Sent: Tuesday, September 01, 2009 2:21 PM To: Lyme_and_Rife Subject: gina- OT: doc follow up find someone with a SCIO. look into the hep b shot toxins !! scar tissue can hold/block in toxins & bugs. cipro can cause nerve problems. a lot or rx meds used with/in birth problems can be very toxic. abx can cause a lot of damage to the gut & brain as do vaccines. most of this the dr. miss !! too http://iansvoice.org/ianslife.aspx http://vactruth.com/2009/08/03/vaccinations-are-causing-impaired-blood-flow-ischemia-chronic-illness-disease-and-death-for-us-all-hp/ http://vactruth.com/2009/06/26/dr-andrew-moulden-answers-to-autism-and-vaccine-damage/ http://vactruth.com/2009/07/21/dr-andrew-moulden-interview-what-you-were-never-told-about-vaccines/ roger From: < vegasmomof3@ cox.net > Subject: OT: doc follow up To: Lyme_and_Rife@ yahoogroups. com Date: Tuesday, September 1, 2009, 9:24 AM So, I had my follow up with my ‘LLMD’ doc yesterday. I’m still very frustrated. The first appt went pretty well and I was encouraged. Not that I’m completely discouraged now, but definitely not as hopeful this time. Not all of my labs were back, but there wasn’t much to say about what was. My thyroid levels are quite odd – all very low, despite the fact that I take thyroid meds! They didn’t do the right tests, so it’s hard to say what my Reverse T3 ratio is. But just using what they do have, it’s still too high or at least borderline. She wants me to lower my dose of T3, which I’m just not sure I want to do. I’ll be asking on my thyroid board what to do about all of that! The only other thing with my labs was my Vit D levels were very low – low enough that she was concerned about it and told me to supplement. Of course, we had the whole discussion about how much to take and they thought me taking 5000 IU was too much. I haven’t taken any Vit D in about a month because of that diet I was on – no oils and the Vit D I take is in oil. My brain MRI with and without contrast was clear – so no MS. Glad to have that ruled out! The thyroid ultrasound showed a tiny (6mm x 4mm x 3mm) nodule and a borderline enlarged thyroid. She was not even remotely concerned about it and thought it was nothing to be worried about. But based on my family history (mom had goiter, both aunts and mom had low thyroid, one of those aunts died of thyroid cancer) she wants to do a scan just to see how my thyroid is functioning and such. We’ll see how that goes. She is at least doing some research on the Reverse T3 issue I have, so that’s good. The Igenex Western Blot was not back, but the Quest one was and of course it was all negative. Before sh figured out it was the Quest one and had ‘ruled out’ Lyme, I mentioned STARI to her. She had never heard of it. Shouldn’t a LLMD at least have heard of STARI? Maybe not, but it concerned me that she hadn’t. But, not sure about Lyme yet… All in all I got some good info, but am still frustrated at some of the things she said. I didn’t have the energy to dispute her, so I just listened to her spill and went about my business. Ugh. The main thing that bothered me was she said that diseases/health problems can be idiopathic (have no known cause). I completely disagree with that. There is a reason my thyroid doesn’t work right – maybe it’s the nodule, maybe it’s an underlying infection, maybe Lyme, maybe it’s bad genes… But there IS a reason. An ‘idiopathic’ disease is nonsense to me. I’m just about in tears because I want to know what is causing all of this. How can it NOT be Lyme? I have so many Lyme symptoms! Oh, she does want me to get tested for Parvo. Yep, Parvo. She says my symptoms sound like that to her. Just something else to rule in/out, which is fine. I want to get to the bottom of this. Don’t get me wrong here… I know that finding the true cause may be futile. Even if I found the true cause, my treatment won’t be much different than what I’m doing now. I do salt/C, CS, some MMS sometimes, and a whole host of supplements. So, I’m fixing whatever is wrong regardless by giving my body what it needs. If I knew I had some other specific issue, I’d just add what I needed to my regimen. Anyway, just wanted to vent a bit. If anyone has some thoughts, I’d love to hear them. Thanks for listening, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 Thanks for the info . I hadn't realized that scar tissue could 'hold/block in toxins & bugs'. This is good to know. I have a few large scars - well they were very large but I have been taking Systemic Enzymes now for about 1 & 1/2 years and the scars are less then a third the size they were...but most of them are still there so it is good to know that they 'help' the bugs to hide. It sounds as if it is a good thing health wise to get rid of scars, and here I thought it was only a 'vanity' thing wanting to get rid of scars. blessings Shan > > > From: < vegasmomof3@ cox.net > > Subject: OT: doc follow up > To: Lyme_and_Rife@ yahoogroups. com > Date: Tuesday, September 1, 2009, 9:24 AM > >  > > So, I had my follow up with my ‘LLMD’ doc yesterday.  I’m still very frustrated. The first appt went pretty well and I was encouraged. Not that I’m completely discouraged now, but definitely not as hopeful this time. >  > Not all of my labs were back, but there wasn’t much to say about what was.  My thyroid levels are quite odd †" all very low, despite the fact that I take thyroid meds!  They didn’t do the right tests, so it’s hard to say what my Reverse T3 ratio is. But just using what they do have, it’s still too high or at least borderline. She wants me to lower my dose of T3, which I’m just not sure I want to do.  I’ll be asking on my thyroid board what to do about all of that! >  > The only other thing with my labs was my Vit D levels were very low †" low enough that she was concerned about it and told me to supplement.  Of course, we had the whole discussion about how much to take and they thought me taking 5000 IU was too much.  I haven’t taken any Vit D in about a month because of that diet I was on †" no oils and the Vit D I take is in oil. >  > My brain MRI with and without contrast was clear †" so no MS.  Glad to have that ruled out! >  > The thyroid ultrasound showed a tiny (6mm x 4mm x 3mm) nodule and a borderline enlarged thyroid.  She was not even remotely concerned about it and thought it was nothing to be worried about.  But based on my family history (mom had goiter, both aunts and mom had low thyroid, one of those aunts died of thyroid cancer) she wants to do a scan just to see how my thyroid is functioning and such.  We’ll see how that goes. She is at least doing some research on the Reverse T3 issue I have, so that’s good. >  > The Igenex Western Blot was not back, but the Quest one was and of course it was all negative.  Before sh figured out it was the Quest one and had ‘ruled out’ Lyme, I mentioned STARI to her.  She had never heard of it. Shouldn’t a LLMD at least have heard of STARI?  Maybe not, but it concerned me that she hadn’t. But, not sure about Lyme yet… >  > All in all I got some good info, but am still frustrated at some of the things she said.  I didn’t have the energy to dispute her, so I just listened to her spill and went about my business.  Ugh. The main thing that bothered me was she said that diseases/health problems can be idiopathic (have no known cause). I completely disagree with that. There is a reason my thyroid doesn’t work right †" maybe it’s the nodule, maybe it’s an underlying infection, maybe Lyme, maybe it’s bad genes… But there IS a reason. An ‘idiopathic’ disease is nonsense to me. >  > I’m just about in tears because I want to know what is causing all of this.  How can it NOT be Lyme? I have so many Lyme symptoms!  Oh, she does want me to get tested for Parvo.  Yep, Parvo. She says my symptoms sound like that to her.  Just something else to rule in/out, which is fine. I want to get to the bottom of this. >  > Don’t get me wrong here… I know that finding the true cause may be futile.  Even if I found the true cause, my treatment won’t be much different than what I’m doing now.  I do salt/C, CS, some MMS sometimes, and a whole host of supplements.  So, I’m fixing whatever is wrong regardless by giving my body what it needs. If I knew I had some other specific issue, I’d just add what I needed to my regimen. >  > Anyway, just wanted to vent a bit.  If anyone has some thoughts, I’d love to hear them. >  > Thanks for listening, > >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 She is in International Falls Minnesota. > > > > > > > > > From: <vegasmomof3@ > > > > Subject: OT: doc follow up > > > To: Lyme_and_Rife@ yahoogroups. com > > > Date: Tuesday, September 1, 2009, 9:24 AM > > > > > > > > > > > > > > > > > > So, I had my follow up with my ‘LLMD’ doc yesterday. I’m still very frustrated. The first appt went pretty well and I was encouraged. Not that I’m completely discouraged now, but definitely not as hopeful this time. > > > > > > > > > > > > Not all of my labs were back, but there wasn’t much to say about what was. My thyroid levels are quite odd †" all very low, despite the fact that I take thyroid meds! They didn’t do the right tests, so it’s hard to say what my Reverse T3 ratio is. But just using what they do have, it’s still too high or at least borderline. She wants me to lower my dose of T3, which I’m just not sure I want to do. I’ll be asking on my thyroid board what to do about all of that! > > > > > > > > > > > > The only other thing with my labs was my Vit D levels were very low †" low enough that she was concerned about it and told me to supplement. Of course, we had the whole discussion about how much to take and they thought me taking 5000 IU was too much. I haven’t taken any Vit D in about a month because of that diet I was on †" no oils and the Vit D I take is in oil. > > > > > > > > > > > > My brain MRI with and without contrast was clear †" so no MS. Glad to have that ruled out! > > > > > > > > > > > > The thyroid ultrasound showed a tiny (6mm x 4mm x 3mm) nodule and a borderline enlarged thyroid. She was not even remotely concerned about it and thought it was nothing to be worried about. But based on my family history (mom had goiter, both aunts and mom had low thyroid, one of those aunts died of thyroid cancer) she wants to do a scan just to see how my thyroid is functioning and such. We’ll see how that goes. She is at least doing some research on the Reverse T3 issue I have, so that’s good. > > > > > > > > > > > > The Igenex Western Blot was not back, but the Quest one was and of course it was all negative. Before sh figured out it was the Quest one and had ‘ruled out’ Lyme, I mentioned STARI to her. She had never heard of it. Shouldn’t a LLMD at least have heard of STARI? Maybe not, but it concerned me that she hadn’t. But, not sure about Lyme yet… > > > > > > > > > > > > All in all I got some good info, but am still frustrated at some of the things she said. I didn’t have the energy to dispute her, so I just listened to her spill and went about my business. Ugh. The main thing that bothered me was she said that diseases/health problems can be idiopathic (have no known cause). I completely disagree with that. There is a reason my thyroid doesn’t work right †" maybe it’s the nodule, maybe it’s an underlying infection, maybe Lyme, maybe it’s bad genes… But there IS a reason. An ‘idiopathic’ disease is nonsense to me. > > > > > > > > > > > > I’m just about in tears because I want to know what is causing all of this. How can it NOT be Lyme? I have so many Lyme symptoms! Oh, she does want me to get tested for Parvo. Yep, Parvo. She says my symptoms sound like that to her. Just something else to rule in/out, which is fine. I want to get to the bottom of this. > > > > > > > > > > > > Don’t get me wrong here… I know that finding the true cause may be futile. Even if I found the true cause, my treatment won’t be much different than what I’m doing now. I do salt/C, CS, some MMS sometimes, and a whole host of supplements. So, I’m fixing whatever is wrong regardless by giving my body what it needs. If I knew I had some other specific issue, I’d just add what I needed to my regimen. > > > > > > > > > > > > Anyway, just wanted to vent a bit. If anyone has some thoughts, I’d love to hear them. > > > > > > > > > > > > Thanks for listening, > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 Thanks ! Dont' think i'll get that far right now but if I get a chance later i'll try get some details from you. Thane Subject: Re: gina- OT: doc follow upTo: Lyme_and_Rife Date: Wednesday, September 2, 2009, 3:41 PM She is in International Falls Minnesota.> > > > > > > > > From: <vegasmomof3@ >> > > Subject: OT: doc follow up> > > To: Lyme_and_Rife@ yahoogroups. com> > > Date: Tuesday, September 1, 2009, 9:24 AM> > > > > > > > > > > > > > > > > > So, I had my follow up with my ‘LLMD’ doc yesterday. I’m still very frustrated. The first appt went pretty well and I was encouraged. Not that I’m completely discouraged now, but definitely not as hopeful this time.> > > > > > > > > > > > Not all of my labs were back, but there wasn’t much to say about what was. My thyroid levels are quite odd â€" all very low, despite the fact that I take thyroid meds! They didn’t do the right tests, so it’s hard to say what my Reverse T3 ratio is. But just using what they do have, it’s still too high or at least borderline. She wants me to lower my dose of T3, which I’m just not sure I want to do. I’ll be asking on my thyroid board what to do about all of that! > > > > > > > > > > > > The only other thing with my labs was my Vit D levels were very low â€" low enough that she was concerned about it and told me to supplement. Of course, we had the whole discussion about how much to take and they thought me taking 5000 IU was too much. I haven’t taken any Vit D in about a month because of that diet I was on â€" no oils and the Vit D I take is in oil. > > > > > > > > > > > > My brain MRI with and without contrast was clear â€" so no MS. Glad to have that ruled out! > > > > > > > > > > > > The thyroid ultrasound showed a tiny (6mm x 4mm x 3mm) nodule and a borderline enlarged thyroid. She was not even remotely concerned about it and thought it was nothing to be worried about. But based on my family history (mom had goiter, both aunts and mom had low thyroid, one of those aunts died of thyroid cancer) she wants to do a scan just to see how my thyroid is functioning and such. We’ll see how that goes. She is at least doing some research on the Reverse T3 issue I have, so that’s good. > > > > > > > > > > > > The Igenex Western Blot was not back, but the Quest one was and of course it was all negative. Before sh figured out it was the Quest one and had ‘ruled out’ Lyme, I mentioned STARI to her. She had never heard of it. Shouldn’t a LLMD at least have heard of STARI? Maybe not, but it concerned me that she hadn’t. But, not sure about Lyme yet… > > > > > > > > > > > > All in all I got some good info, but am still frustrated at some of the things she said. I didn’t have the energy to dispute her, so I just listened to her spill and went about my business. Ugh. The main thing that bothered me was she said that diseases/health problems can be idiopathic (have no known cause). I completely disagree with that. There is a reason my thyroid doesn’t work right â€" maybe it’s the nodule, maybe it’s an underlying infection, maybe Lyme, maybe it’s bad genes… But there IS a reason. An ‘idiopathic’ disease is nonsense to me. > > > > > > > > > > > > I’m just about in tears because I want to know what is causing all of this. How can it NOT be Lyme? I have so many Lyme symptoms! Oh, she does want me to get tested for Parvo. Yep, Parvo. She says my symptoms sound like that to her. Just something else to rule in/out, which is fine. I want to get to the bottom of this. > > > > > > > > > > > > Don’t get me wrong here… I know that finding the true cause may be futile. Even if I found the true cause, my treatment won’t be much different than what I’m doing now. I do salt/C, CS, some MMS sometimes, and a whole host of supplements. So, I’m fixing whatever is wrong regardless by giving my body what it needs. If I knew I had some other specific issue, I’d just add what I needed to my regimen. > > > > > > > > > > > > Anyway, just wanted to vent a bit. If anyone has some thoughts, I’d love to hear them. > > > > > > > > > > > > Thanks for listening, > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.