Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Hi, I'm glad the panic part is lessening! You're doing a great job handling all this, telling her you're not going to answer OCD every 1/2 hour, etc. (Of course, she won't think so!) I'm wondering, OCD aside for a minute, could any new meds (can't recall what or how many she's on, just one?) have a possible side effect of difficult urination? Of course you did say she'd peed like a racehorse earlier (cute comparison!). If it keeps up, you might ask the pharmacist about this possible side effect. If the answer is " no " you can rule out the med I guess. Hang in there, these first rough weeks will pass. Though I know, for me, I had to remind myself it was harder on than me/family - supposedly! > Mom in Mass again. We are starting to see a little less of the > actual panic/anxiety (last night was bad, tho :-((() > However, now we are starting to see a little more OCD. > My daughter's OCD is definitley related to fears about her body Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 The peeing thing is common believe it or not. It's mentioned specifically in reference to initial onset of PANDAS, the infection-caused type of OCD, in a paper by Dr. Swedo of the NIMH. My daughter has had it, she had I don't know how many urinalyses because this seemed like it could be caused by a bladder infection. She flipped back and forth between not being able to start her stream, to feeling constantly that she had to go, to sitting on the toilet for hours dribbling, worried that there was always more urine that needed to come out. This diminished with an effective SSRI, but comes around to one degree or another still. She can't often tell if she needs to go or not. She'll say no then pee like a racehorse as you say... I have a friend with MS who has the same problem. This is just my opinion, but I've always wondered if the peeing thing could be from some actual swelling in the brain that affects those nerves. I wonder about this because my child has had these symptoms even during times when her OCD is very low, there's no anxiety or worries about peeing, she just can get going or feel whether her bladder is full or not. In any case she's never had an accident or a medical emergency due to this problem, whatever causes it. Tell your daughter to make fists of her hands, place them right above her pubic bone, and then lean forward a bit while seated on the toilet. This is a technique taught to people with MS (whose bladder nerves can be affected by that disease) and did work for my child to get her stream started. I guess this could become compulsive, but never did for my child, as I say, this particular symptom or compulsion or whatever it is has always been " different " than other straight OCD symptoms. Take care, Kathy R. in Indiana ----- Original Message ----- > Mom in Mass again. We are starting to see a little less of the > actual panic/anxiety (last night was bad, tho :-((() > However, now we are starting to see a little more OCD. > My daughter's OCD is definitley related to fears about her body (will > I get shot/go blind/have a heart attack, etc.) > > In the past, (long before dx) we'd reassure constantly. > > Now, what we're dealing with is this: yesterday afternoon she sat on > the toilet and was unable to pee right away (keep in mind, she pee'd > like a racehorse 4 hours earlier). So now this being uable to pee is > consuming her and causing a lot of anxiety, and reassureance > seeking. She will try, but of course is anxious and nothing happens, > gets more anxious.. you know the drill. She will get in a tub of > warm water, and is able to pee. > > But she is so anxious about not being able to pee on the toilet. I > have told her that I love her, but I'm gong to try to stop answering > the OCD when it askes every half hour " is it OK that I can't pee? Is > there nothing wrong with me? " " etc. > > We are trying whatever we can, but since she is still recovering from > her break, I don't know how hard to push. > > Anyone out there have the peeing problem??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Mom in Mass., I meant to say too that at least one of the SSRIs lists a urinary symptom such as your daughter is experiencing as a rare, I believe, side effect. In any case you may want to mention this to her doctor. My daughter's doctor thought this side effect was so rare that it was unlikely to be behind my child's problem, and indeed we did discontinue the SSRI we were trying at that time for other reasons, but the " pee " problem continued. Take care, Kathy R. in Indiana ----- Original Message ----- > The peeing thing is common believe it or not. Quote Link to comment Share on other sites More sharing options...
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