Re: Re: Mast cell histamine release enhanced by phosph/serine

[Guest guest]

Mandi, Yes definitely something to celebrate, thanks. You know, too often we get caught up in the now. We easily forget what progress our children have made because we are with them every minute of the day. I have to go back periodically for motivation and read my daily diary just so I remember just how far he's come. xHi Isobel,The two experiences sound quite similar. Did you start the neuro protek before the ketotifen drops? Is that how you noticed the hyperactivity? Just wondering as I have been looking at the neuro protek but some others have also said they've had increased hyperactivity. I don't know if it would be just a phase in the beginning and I suppose the only way is to try it but we definitely don't need any more hyperactivity around here. If you wouldn't mind, could you keep me posted on how it goes with the hyperactivity and if it subsides?Thanks, xTo: Autism-Biomedical-Europe Sent: Wednesday, June 29, 2011 10:53 AMSubject: Re: Mast cell histamine release enhanced by phosph/serine

hello

we had a massive fever with ketotoifen lasted 3 days he was constipated, not autistic at all during the fever and dehydrated, he came down off the fever yesterday morning woke up at 11am [late] and just like you we had more focus, carrying portable dvd in from roof garden and rushing around with a bit of hyper activity,and it was as if nothing had happenned he was his normal self again, but as far as I can see, although the fever was worrying at 1 in the morning this was a really good sign.The hyper activity is from the neuro protek I think, but we are just going to keep going. we are doing 1mg tabs of ketotifen, and 2 neuroproteks daily, he is 21 kg aged 8.

Isobel

> >

> > Natasa - is that just normal dose inositol (c600mg) or much higher as

> per OCD.

> > Also, how do you find out if you are histamine sensitive (my son has

> raised

> > levels as a reaction to something). C

> >

> >

> >

> > ________________________________

> > From: natasa778 neno@

> > To: Autism-Biomedical-Europe

> > Sent: Mon, 27 June, 2011 20:10:59

> > Subject: Mast cell histamine release

> enhanced by

> > phosph/serine

> >

> >

> > there is a discussion on this on other board, if you kid is

> > histamine-sensitive or suspected to be you may need to go carefully

> > about giving ph/serine. Not much data on other phospholipids, choline

> > does not appear to have that effect but some indications that Inositol

> > might... just something to be aware of.

> >

> > Natasa

> >

>

[Guest guest]

Hi Isobel,Thanks for the link to the neuro protek site. I had a read of it when (I think) posted it last week.We are already giving 5HTP and LTheanine an hour before bed so I really don't want to push it. He's about to start a new school too so I don't want him bouncing of the walls straight away. But we'll see, the only way is to try it.It was interesting what you said about allergies and liver life. We use to use 10 drops 2 x daily but am now giving only 5 drops. Perhaps that's too low and I should increase again.OK Isobel, keep us posted on the hyperactivity :-) xTo: Autism-Biomedical-Europe Sent: Wednesday, June 29, 2011 4:09 PMSubject: Re: Mast cell histamine release enhanced by phosph/serine

Hi i started the neuroprotek the week before the TA conference but had to stop for that weekend for obvious reasons, I think this causes slight hyper activity, i gave inosotol and 5htp and he calmed down, he is generally not hyper at all, so for us it was easy, you could maybe only give a dose neuroprotek at night this might help or in the am only and school could deal with it and give inosotol 5htp at same time, just a suggestion, i thought he was dying during the fever but he came out the other side today is his first day back at school,all I know is its definately working and zach has some allergies, which halved with liverlife but he still has a lower allergy level now [insensitivity]. there is a video from dr theorides i'll find it later and post it it talks about doasges side effects etc and ingredients... Isobel

> >

> > Thanks for posting this, I just watched this this morning (bit slow here).ÂÂ

> > We've been giving the ketotifen drops now for a few weeks and last week started dosing twice a day. I don't know if it's related but our son went totally off the rails on the weekend (I freaked) and then a 39 degree fever hit hard. Then after less then 12 hours of  fever and lethargy,he had a good long sleep and then woke up as if nothing had happened and ate like a horse. He's been more focused doing loads of puzzles and his awareness is right up there, he knows exactly what is going on and can do what ever he wants to do only as usual I see the frustration when he can't have something or can't talk and express himself. Then it's all hell to pay, there's no change there, BUT after giving me a hard time for something yesterday he did sit down on the table, look me straight in the eye and say sorry!ÂÂ

> > So I guess what I'm trying to say is that I think something is happening with these drops but I guess only time will tell.

> > ÂÂ

> > x

> >

> >

> > ________________________________

> > From: natasa778 <neno@>

> > To: Autism-Biomedical-Europe

> > Sent: Tuesday, June 28, 2011 12:37 AM

> > Subject: Re: Mast cell histamine release enhanced by phosph/serine

> >

> >

> > ÂÂ

> > not sure about what dosage etc, just posted as something to be aware of.

> >

> > re histamine sensitivities try watching this for clues

> > http://www.autismmedia.org/media3.html

> > also

> > http://allergy.medicalassistanthq.com/mast-cell-activation-symptomatology-part-1-of-3/

> > http://allergy.medicalassistanthq.com/mast-cell-activation-symptomatolog |

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[Guest guest]

Channa,Here are some links for you which will explain why we've been talking about ketotifen and neuro protek,http://drbradstreet.org/2011/04/07/ketotifen-tnf-alpha-more-than-allergy-important-to-heart-disease-autism-alzheimers-and-more/http://www.autismmedia.org/media3.html xTo: Autism-Biomedical-Europe Sent: Friday, July 1, 2011 5:38 AMSubject: Re: Mast cell histamine release enhanced by phosph/serine

sorry to sound stupid, but can anyone tell me what is ketotoifen? and how it helps autism?

thanks guys!

channa

> > >

> > > Thanks for posting this, I just watched this this morning (bit slow here).ÂÂÂ

> > > We've been giving the ketotifen drops now for a few weeks and last week started dosing twice a day. I don't know if it's related but our son went totally off the rails on the weekend (I freaked) and then a 39 degree fever hit hard. Then after less then 12 hours of  fever and lethargy,he had a good long sleep and then woke up as if nothing had happened and ate like a horse. He's been more focused doing loads of puzzles and his awareness is right up there, he knows exactly what is going on and can do what ever he wants to do only as usual I see the frustration when he can't have something or can't talk and express himself. Then it's all hell to pay, there's no change there, BUT after giving me a hard time for something yesterday he did sit down on the table, look me straight in the eye and say sorry!ÂÂÂ

> > > So I guess what I'm trying to say is that I think something is happening with these drops but I guess only time will tell.

> > > ÂÂÂ

> > > x

> > >

> > >

> > > ________________________________

> > > From: natasa778 <neno@>

> > > To: Autism-Biomedical-Europe

> > > Sent: Tuesday, June 28, 2011 12:37 AM

> > > Subject: Re: Mast cell histamine release enhanced by phosph/serine

> > >

> > >

> > > ÂÂÂ

> > > not sure about what dosage etc, just posted as something to be aware of.

> > >

> > > re histamine sensitivities try watching this for clues

> > > http://www.autismmedia.org/media3.html

> > > also

> > > http://allergy.medicalassistanthq.com/mast-cell-activation-symptomatology-part-1-of-3/

> > > http://allergy.medicalassistanthq.com/mast-cell-activation-symptomatolog | Reply to group | Reply via web post | Start a New Topic Messages in this topic (7)

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