Re: Now what?

[Guest guest]

:

Your case is very similar to mine ,although up today there is no single

prove I have MS the Doctors say I have and right now I do not care,I

just know something for sure I have something that damaged my myelin and

I have to prevent from getting more damage, but since 4 years ago I

decided to do whatever I could do help me avoid more agression from the

MS or else and quit everything that might be harmfull to me.

I thing :

first step stop progression

second step is recover from the damages (I am working on this part now )

and I thing there is nothing but to find a way to rebuild our

myelin,nevertheless stopping progression has let my body start a slow

recovery.I am doing hard with therapy.I go to a therapist twice a week

and do some exercises at home .Theratec gave me the push to start with

it,now I feel in better shape.

It is better to go as soon a possible to avoid more damages.

But first we need to gain time to be able to wait for it(

Remyelinization )..I am also started trying another Rife device :EMEM2+

for trying to kill the bacteria ( related to MS and I have it) the

treatment in Theratec was not able to kill ( this I know for sure since

I have been sending my blood saples to Dr. Lindner,who relates MS with a

bacteria and as a matter of fact they are developing a new diagnose

method for MS by detecting this bacteria).You can find more detail at :

www.roads.to/fernando Sorry it is no updated.

I started last august walking/staying in cold water for 1hour for

myelin regeneration,and I believe I am beeing able to gain some more

capabilities.With is and my exercises/therapies I am gaining little

steps but going backwards (that it is the way I was before losing them.

I still not able to run but walk better and longer ,can stay longer ,now

I do not feel exhausted and feel myself much better.

Best regards and good luck to you .

> -----Mensaje original-----

> De: Eastwood [sMTP:cindy.eastwood@...]

> Enviado el: Miércoles 13 de Diciembre de 2000 10:05 AM

> Para: mscuredegroups; about-MSegroups

> Asunto: Now what?

>

> <<Archivo: ATT00005.htm>> <<Archivo: cindy.eastwood.vcf>>

[Guest guest]

,

Try looking into Hyperbaric Therapy. The oxygen underpressure (more than just that, but dont have time to type everything) stimulates the oliogodendrites to re-grow mylen. It works for me for the the past 10 years. Good luck in your search.

take care

kim

[Guest guest]

,

When I was in your position, without a diagnosis, I researched on the web until I was pretty darn sure of my diagnosis myself. (Finally got one 2 or 3 years later.) I wanted to get started on whatever I could to try and stop whatever it was. When I decided it was MS, I launched into researching what to do for it. That was how I developed my diet etc. I've done well on it. Very little progression once I got well started and then this last year, I started seeing definite improvements. Here are two addresses to my web site, if you'd like to see what I did:

http://ourworld.cs.com/cah819

http://members.xoom.com/chanson2/

Carol

Okay....frustration time. I have had a contrast MRI, which came outnormal. My neuro also ran blood tests to check for other things likeHIV, Lupus Lyme disease, etc... and all were normal. So now he tells methat there is nothing wrong with me. But, there is....I have balanceproblems, diagnosed with Optic Neuritis, vision problems, incontinence,tingling burning in some extremities, pain in my left calf almost everynight, fatigue (especially when overheated).So now what do I do? Do I sit and what for another extreme flare-up? Iam 37 years old, single, 6 children, and a full time job. Normally Iwould put one of those symptoms as stress induced...but all of them?I could really use some help as I am not sure where to turn, and thereis no one I can talk to.Thanks.

[Guest guest]

, have you had evoked potentials or a spinal tap done yet?

Many neuros and HMO's require two positive tests in order to give a

definitive diagnosis. And you probably already know that a dx of ON is

almost always in conjunction with MS, even though it doesn't always show up

for another few years. VEP (Visual evoked potentials) will very frequently

show up positive for MS when the person has ON. VEP is about the easiest,

most non-invasive test there is, it's little more than watching a

checkerboard pattern while wearing electrodes. The lumbar puncture isn't

pleasant, but it's a good (albeit not 100% consistent) dx tool; if you have

oligiclonal bands present in your spinal fluid AND a positive VEP, that would

be enough to get a dx of MS, regardless of the MRI results.

Rani