Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Another thing you should know about statins and this can be found it the Physicians desk reference....statins will decrease the natural coenzyme q10 in the body and therefore can contribute to future heart deficiencies. It is recommended that a supplementation be taken at the same time as statins. For your information, coenzyme Q10 is a prescription drug in Japan for heart problems and high cholesterol and high blood pressure. e DrSc, MSc, Bsc rheumatic statins Rabdomyolysis which is a severe breakdown of muscle tissue that may be toxic to the kidneys, resulting in kidney failure and possibly death. Shortness of breath can be an indicator of muscle problems. Other adverse reactions are decrease in cognitive function, gastrointestinal (GI) problems, neurological, immune system(lupus-like syndrome), rash, sleep problems etc... Contraindicated during pregnancy. HTH Pray the ry www.Jmichaelstyle.com ---------- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.405 / Virus Database: 268.11.7/437 - Release Date: 9/4/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 Dear friends, My doctor has recommended that I take a statin drug to reduce my cholesterol. I notice that one of the possible side effects is leg pain (and I already have plenty of that!). Have any of you taken statins, and what has your experience been, either positive or negative. Ruth Be kind. Everyone you meet is struggling with something. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 Ruth, I got very,very sick from them. It bothered my muscles and made me sore. weak, cold and tired.. Thought I was dieing! Perhaps I was! Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 Hello Ruth, My doctor tried to get me to take it. I didn't because my mother (who has CMT) had taken the statin drug which caused her much muscle damage. I gave my doctor information why I shouldn't take it. I also told him what happened to my mother, and other members here on this site. This made my doctor so mad he refused to be my doctor any longer. So, I now have a new doctor...;-) I suggest a change in diet, and exercise. Kay~Oregon Coast Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 Thank you Gretchen, , Kay, , all who answered my question about statins. I'll pass the information on to my doctor and tell her that I'll find other ways to reduce my cholesterol if necessary. (I had blood drawn for a test today, don't have the results yet). Isn't it frustrating - our doctors should be telling us what is & isn't safe for us, instead of us having to tell them! Ruth Be kind. Everyone you meet is struggling with something. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 I went to my doctor (GP) who prescribed Vytorin and showed him articles showing that statins can cause muscle weakness. Since he had no idea what CMT was he said to continue taking it and talk to my nuerologist. I have an apt.with my nuerologist tomorrow and plan to give her the same information. I'll see what she says to do. I have tried red rice yeast with no results. Sell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 Hi and friends, I am having symptoms of CMT and will be tested on Friday but seeing this thread, I must tell you what I know as a Pharmacist. It is true that all statins may cause muscle weakness. Some patients of mine in the past have, some patients have not had this. Physiologically, statins, ie. Lipitor,Zocor,Crestor,Mevacor,Vytorin(combo drug of statin plus Zetia), Pravachol, etc. reduce levels of Co-enzyme Q-10 which is a key component in mitochondrial energy production in the cell, hence the fatigue and muscle weakness some people feel. Co-enzyme Q-10 has other beneficial effects as an anti-oxidant as well. For some people, it may be a legitamate additional therapy. Red Yeast Rice(contains natural lovastatin) and for this reason drug companies don't want Pharmacies and Health Food stores to carry it. Red Yeast Rice works best with polisocanol and obviously diet. Take these at bedtime as your body produces the most of your cholesterol around 1 to 2 a.m. Some people make more than others, so it may be bad genes. my mother and best friend have been taking these two for years with very good results. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Thank you, , for this information. I have an appointment with my doc on Nov. 2, and I'll add your comments to the hefty packet of info that I've copied from this site to give her. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 , thanks for the information. I have been doing some research since I used to take Lipitor and do not any more. My levels are still up and I try and watch my diet as much as possible now. I also have Diabeties so my food choices are becoming smaller and smaller. The research I have done so far points to the fact that Red Yeast Rice (RYR) contains Lovastain, just like you state in your email. I am trying to figure out what the difference is between taking the drug and the RYR. Some articles also go on to say that the FDA has banned RYR from containing Lovastatin since it is considered a drug. The article below states that RYR that is made today does not contain Lovastatin. I am not trying to rebut what you are saying. Just trying to figure out if this is a valid choice for myself. Thought? Thanks http://altmedicine.about.com/od/herbsupplementguide/a/redyeastrice.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 If I may butt in here ...I have posted before on my the trouble with the meds. that I was on. I was a mess I was also on Lipitor, Acadia and other meds too.I'm now going to another doctor that practices complementary meds along with traditional. Had a problem at first..things that " I " had to watch out for..Like to much Vit.B! The doc. is more receptive now and while it had taken some time I feel like a new person. The supplements I take are working for me. Blood sugars 135..weight loss 20+ lbs.As I said reg. meds were killing me(from my old doc)I was also on ACE Inhibiters.Statins, seven different pills in all...all caused weight gain but one and that was a water pill that was giving my kidneys problems. My legs looked like logs and I only went to the bathroom a few time with in a twenty-four hour period..instead of getting rid of water I was retaining it, my heart just pounded all the time.One of the pills caused me to be cold...not just cold hands and feet as the warning said but I was bone cold everywhere, I could not get warm.Another pill caused breathing problems..I thought it was my CMT..IT WASN'T! I had to sleep sitting up.The pills were making my body TOXIC...I can't stress or warn [people enough to be very watchful, and look out for your own health. I felt I was the only person that cared about me and I was getting very sick and depressed...I decided I not anyone else had to take control of me and my health!My small 5 " frame blossomed to 170lbs.+..no matter how little I ate.Even the (old)doctor told me it would be next to impossible..unless I really exercised..Ya right I'm in a w.chair/CMT! My new doctor also recommend and web sight for diabetics...I hope this helps and that you like the site..Here is hoping and praying my health is now on the right track.......Blessings to ya... Geri www.mendosa.com PS...he has a list of free foods for diabedics and other info. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2008 Report Share Posted January 1, 2008 Hi , I am not certain * exactly * why statin use is not good for people with CMT (meaning the mechanism that makes it so,) but according to the most recent medical alert, statins like (Lovastatin, Prevastatin, Simvastatin) may aggravate or exacerbate CMT and HNPP, causing muscle fatigue and weakness; also muscle damage, upper motor neuron lesions, and rhabdomyolysis (an acute, fulminant, potentially fatal disease that destroys skeletal muscle and is often accompanied by the excretion of myoglobin in the urine.) Have you tried Oatmeal or vitamin therapy? Somewhere in the back of my brain I seem to recall something about Vitamin B3 (Niacin) for lowering cholesterol. You might want to peruse our archived posts on this too. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Thank you, Gretchen, for the information. I did look at the information posted and found it consistent with Elinor and 's post. As for Niacin, it doesn't help my cholesterol, but it does help the triglycerides. I take it and my triglycerides are well within the normal range. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 I think there is disagreement among the 'experts' as to whether statins are necessarily bad. Some CMTers may be able to tolerate them. Elinor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 I don't know if this guy is a kook or not. Elinor _http://articles.mercola.com/sites/articles/archive/2008/2/19/how-statin-drugs -wreck-your-muscles.aspx_ (http://articles.mercola.com/sites/articles/archive/2008/2/19/how-statin-drugs-w\ reck-your-muscles.aspx) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Elinor, All I can say is " Buyer Beware " . He's trying to SELL. As for statins wrecking muscles, it has been known in the CMT community for some time and statins can cause muscle problems, and therefore, should be avoided. Why make CMT muscles worse when there are other ways of lowering cholesterol? Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Hi Elinor, The data initially quoted appears to be accurate. Here's the study he is quoting: http://www.sciencedaily.com/releases/2007/11/071127105528.htm As for increased cancer risk, a study released in January 2008 suggests different results: http://www.sciencedaily.com/releases/2008/01/080108183110.htm And, as Gretchen mentioned, he is trying to sell something, so it's wise to be cautious. As for statins, there are published benefits and risks associated with using them. Statins do not reduce mortality rates by simply lowering cholesterol. There is more involved and much more yet to be learned. http://www.sciencedaily.com/releases/2007/08/070827161231.htm http://www.sciencedaily.com/releases/2006/10/061024010733.htm For those of us with CMT, the risk of muscle-wasting is a very serious concern. It's a risk that must weighed against other risk factors in one's personal health history. In some cases, the risk associated with taking a statin may be less than the risks associated with not taking it. The information published on the Internet is confusing. In my opinion, since this site is not in the business of giving medical advice, it's best that a person weigh the risks with the help of a trusted physician. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 I think there's a bit of hyperbole going on here. I looked at the Mercola article, and didn't find him hawking anything, per se. The link was to a referenced article, followed by his professional comments as a doctor. He sells things on his web site, but that's irrelevant. But, yes, always consider carefully everything you read, and hear. ;-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2008 Report Share Posted August 1, 2008 Holli, Are you on statin drugs by any chance? Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2008 Report Share Posted August 1, 2008 Geri, Interesting that you should ask. I was taking Mevacor for 6 months - 1 year, during the time I started having numbness and burning on my left face. It was that that finally got neurologists looking for something and diagnosed the CMT. I went off the Mevacor when I had elective surgery for gastric reflux and never got around to getting it restarted. After reading up on CMT I decided not to get back on it and wonder if it didn't accelerate things a bit for me. Why do you ask? Holli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 Look into statins ..I think there is some info on this site in fact..I can't take them as well as many others I have talked to...was just a big write up in my mothers paper..Not a good thing...I reached a point where I couldn't even comb my hair...my dad could hardly feed himself...We could hardly breath. It can cause muscle damage I understand.....and I truly believe it does...I can't use my shoulders now...but it took time to get out of my system and I became toxic. Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 Uhoops....ment to say....I CAN use my shoulders now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2010 Report Share Posted June 26, 2010 I agree with the view on statins, having just read the book " Trick and Treat " by Barry Groves (No, I don't make money from advertising it, I was just so impressed by the information about the food and drug industries and the false tests and smudged results, that I want to mention it.) Statins are a goldmine for the pharmaceutical industry and often a killer for the average person. And the way the accepted cholesterol level was set had a heck of a lot to do with profits and not with concerns for our health. Silvia > > From: MoonwingDonna@... <MoonwingDonna@...> > Subject: [low dose naltrexone] Statins > low dose naltrexone > Date: Saturday, June 26, 2010, 9:57 AM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Can you take LDN with a low dose statin for elevated cholesterol? I > have been trying a variety of supplements plus I eat healthy, but the numbers > still keep creeping up. Iam beginning to think that it might be > genetic. >  > I am taking LDN for MS with good results. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2010 Report Share Posted June 27, 2010 dr. murphree, may i ask what you think a "safe" level is? mine is huge, genetic on my dad's side--he was a marathon runner but his cholesterol was high even though he ate a nonfat diet!--but i've refused to take a statin... having been in pain for 14 years w/ fibro, i'm scared to death of more pain. and brain atrophy. thanks ~LT http://moineauenfrance.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2010 Report Share Posted June 27, 2010 Dr murphree did not place it.i did,from his e-mails that i get.not eating fat is the biggest mistake you can make.you should eat the good fats like extra virgins coconut oil ,extra virgin olive oil ,fish oil and real butter. Cholesterol is usually a problem of thyroid and if you have fibro,it is almost sure that you thyroid problems and adrenal problems. Watch these videos of dr murphree about fibro http://www.youtube.com/watch?v=vPGdqpMxU24 & translated=1 he also has this book Treating and Beating Fibromyalgia and Chronic Fatigue Syndrome: A Step-by-step Program Proven to Help You Get Well! (Cgronic Fatigue Syndrome) I am using the Free version of SPAMfighter.SPAMfighter has removed 220 of my spam emails to date.Do you have a slow PC? Try free scan! Quote Link to comment Share on other sites More sharing options...
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