Re: does anyone else have this??

January 7, 2001

In a message dated 1/7/01 12:56:46 PM Pacific Standard Time,

rxlb@... writes:

<< tt>

Hi I am a 48 year old female who has been recently diagnosed with MS, I have

had symptoms for years, nothing horrid just some odd things that would

happen to me , and I thought it was 'just me & quot;. One of the things and I

find

this very distressing is that it feels like I have at times, electric shocks

going through my entire head, face etc.

It makes me dizzy and it will be constant when I have a bout of this, I have

noticed nothing that is a common factor it simply hapens and goes away on

its own.

I was just curious about others regarding this odd occirance.

Thanks

Elaine

>>

Elaine,

I get the same thing, but it's pretty isolated. I mean, I'll have that all

day sometimes - just those sharp 'jolts' periodically through the day, and

then it will go away for weeks or even months. But, I've gotten these all my

life, or at least all my adult life - long before I got MS. I DO think it's

a nerve thing, though.

Carol

January 7, 2001

In a message dated 1/7/01 4:04:21 PM Eastern Standard Time, Cah819@...

writes:

> << tt>

> Hi I am a 48 year old female who has been recently diagnosed with MS, I

> have

> had symptoms for years, nothing horrid just some odd things that would

> happen to me , and I thought it was 'just me & quot;. One of the things and

I

>

> find

> this very distressing is that it feels like I have at times, electric

> shocks

> going through my entire head, face etc.

> It makes me dizzy and it will be constant when I have a bout of this, I

> have

> noticed nothing that is a common factor it simply hapens and goes away on

> its own.

> I was just curious about others regarding this odd occirance.

> Thanks

> Elaine

> >>

> Elaine,

> I get the same thing, but it's pretty isolated. I mean, I'll have that

all

> day sometimes - just those sharp 'jolts' periodically through the day, and

> then it will go away for weeks or even months. But, I've gotten these all

> my

> life, or at least all my adult life - long before I got MS. I DO think

it's

>

> a nerve thing, though.

> Carol

>

> .

>Hi,

What you are describing sound s like typical trigeminal neuralgia. or tic

dela rue ( not the right spelling)or L'hermites Sharp lightning bolt pain. I

have had a constant type which is called atypical TN. Part of MS ???

sometimes. Or maybe from injury or some other thing-----????????

Kaye

>

January 7, 2001

In a message dated 1/7/01 1:31:42 PM Pacific Standard Time, kayeelder@...

writes:

<< What you are describing sound s like typical trigeminal neuralgia. or tic

dela rue ( not the right spelling)or L'hermites Sharp lightning bolt pain. I

have had a constant type which is called atypical TN. Part of MS ???

sometimes. Or maybe from injury or some other thing-----????????

Kaye >>

Kaye,

It's not L'hermites. From what I've read, that is triggered by bending the

neck as if to put ones chin on your chest, and the people I know who have it,

say it's not really painful. I thought trigeminal neuralgia was constant

pain and over a larger surface. I don't know what the other one is that you

mentioned. What I get is the sharpest paid I've ever had. It literally

jolts my body, because of the pain, but the pain is localized to the

particular point it hits on the head. And I've only had it on the back of

the head, never on the face. Typically it will be just a little ways behind

the ear. I know several MSers who have the same thing as me. We call it

" The pencil guy. " (A friend said it felt like a guy with a sharp pencil was

occasionally jabbing her with it.)

Carol

January 7, 2001

In a message dated 1/7/01 4:18:09 PM Pacific Standard Time,

elaineannkelly@... writes:

<< <tt>

I ued to get this, I AM type B BLOOD GROUP, SINCE GIVING UP CHICKEN

ALSO A THEAT TO AB BLOOD GROUPS,i AM A LOT BETTER. >>

So am I. I gave up chicken for a year or so, but I can't remember if it made

those 'jabs' go away or not. How do you deal with no chicken? I got so I

didn't want to eat at all, because I won't eat beef (saturated fat, for one),

got sick to death of dry white turkey breast, don't like fish enough to eat

it every day and can't stomach venison, rabbit or lamb. And, of course, I

can't eat dairy on my diet and I'm allergic to milk. I pretty much had to

drop the blood type diet, or at least most of it, because I have too many

other restrictions on my diet already. As it is, chicken is my main meat and

I eat fish here and there.

Carol

January 7, 2001

While we are comparing symptoms, I have a question for the group. I was

diagnosed with MS a year ago. My symptoms are numbness in my right hand that

changes in intensity according to what I eat. At one point the numbness

spread up my arm across my chest and into my other hand. Mostly it is just

on the right side, but has never gone away completely since September 1999.

My questions:

1. Does anyone else have numbness that changes according to your diet?

2. Does the fact that my symptoms started in September of 99 and haven't

disappeared completely necessarily mean anything (like I have primary

progressive)?

I have loads of other questions, but these are my top two. Any input would

be greatly appreciated.

Thanks. Margie

January 7, 2001

GREAT to hear someone else knows of this besides me, now do you or your

doctors feel that this is MS related? What do you do for this if anything?

thanks for answering me!!

Elaine

PS I am sorry that YOU have this it is just nice to hear that someomne knows

of it and can relate , NOT happy you have it!!!

> In a message dated 1/7/01 12:56:46 PM Pacific Standard Time,

> rxlb@... writes:

>

> << tt>

> Hi I am a 48 year old female who has been recently diagnosed with MS, I

have

> had symptoms for years, nothing horrid just some odd things that would

> happen to me , and I thought it was 'just me & quot;. One of the things and

I

> find

> this very distressing is that it feels like I have at times, electric

shocks

> going through my entire head, face etc.

> It makes me dizzy and it will be constant when I have a bout of this, I

have

> noticed nothing that is a common factor it simply hapens and goes away on

> its own.

> I was just curious about others regarding this odd occirance.

> Thanks

> Elaine

> >>

> Elaine,

> I get the same thing, but it's pretty isolated. I mean, I'll have that

all

> day sometimes - just those sharp 'jolts' periodically through the day, and

> then it will go away for weeks or even months. But, I've gotten these all

my

> life, or at least all my adult life - long before I got MS. I DO think

it's

> a nerve thing, though.

> Carol

>

> .

>

January 7, 2001

Elaine,

I have never told a doctor about it. I never even think about it to tell one, I guess because it's so long between 'attacks' of it, and I've never been having them near the time I have seen a doctor. Mine are only sudden quick jolts, that happen maybe 6 times in a day and then I don't have them again for quite awhile. They are very painful and jolting, but so fast to disappear, it doesn't seem worth it to do anything about them. I don't think there is much that can be done, unless you wanted to be quite drugged all the time.

Carol

GREAT to hear someone else knows of this besides me, now do you or yourdoctors feel that this is MS related? What do you do for this if anything?thanks for answering me!!ElainePS I am sorry that YOU have this it is just nice to hear that someomne knowsof it and can relate , NOT happy you have it!!!> >> << tt>> Hi I am a 48 year old female who has been recently diagnosed with MS, Ihave> had symptoms for years, nothing horrid just some odd things that would> happen to me , and I thought it was 'just me & quot;. One of the things andI> find> this very distressing is that it feels like I have at times, electricshocks> going through my entire head, face etc.> It makes me dizzy and it will be constant when I have a bout of this, Ihave> noticed nothing that is a common factor it simply hapens and goes away on> its own.> I was just curious about others regarding this odd occirance.> Thanks> Elaine> >>> Elaine,> I get the same thing, but it's pretty isolated. I mean, I'll have thatall> day sometimes - just those sharp 'jolts' periodically through the day, and> then it will go away for weeks or even months. But, I've gotten these allmy> life, or at least all my adult life - long before I got MS. I DO thinkit's> a nerve thing, though.> Carol>> .>

January 7, 2001

> Hi I am a 48 year old female who has been recently diagnosed with MS, I have

> had symptoms for years, nothing horrid just some odd things that would

> happen to me , and I thought it was 'just me " . One of the things and I find

> this very distressing is that it feels like I have at times, electric shocks

> going through my entire head, face etc.

> It makes me dizzy and it will be constant when I have a bout of this, I have

> noticed nothing that is a common factor it simply hapens and goes away on

> its own.

> I was just curious about others regarding this odd occirance.

> Thanks

> Elaine

>

> .

>

January 7, 2001

I ued to get this, I AM type B BLOOD GROUP, SINCE GIVING UP CHICKEN

ALSO A THEAT TO AB BLOOD GROUPS,i AM A LOT BETTER.

It also helps to avoid synthetic clothes and bedding!

Elaine K.

see EAT RIGHT DIET BY Dr.D,Adamo,CENTURY BOOKS , WOLDWIDE DISTribution