Guest guest Posted August 27, 2005 Report Share Posted August 27, 2005 Hi Janet, Thank you for your description of " Spells " I'd like to put a spell on this entire disease and toss it into space. But I may be able to help you with this one about your father's " Jolts " where his legs and arms jump when he is sitting. Years ago, my husband's first symptoms were " Restless Leg Syndrome " and whenever he is at rest such as; sitting or laying down his legs and arms jump. We actually joined a RLS Support Group in our community and found out that the arms can jump too, even though it is called, Restless Legs.......Jan --- ladpr6 wrote: > I do declare, Janet, that I just loved your take on > the notion of > Spells! Made me laugh out loud!!! > > > > > Hi Jan- > > This is the first time that I have jumped in here, > but the > seizures struck a chord with me, too. When my > father first got sick > with LBD (7 years ago) it all started for him with > seizures. They > were scary and disorienting for him and he always > seemed to lose a > lot of memory each time. We were all baflled and > terrified and ran > him to the ER each time. Once all was said and done > and he was > finally diagnosed with LBD by the Mayo Clinic in > Rochester MN we > learned that these are actually called Spells. > Sounds very southern > to me. I do declare! Anyway, the doctors at Mayo > were very > interested in him because of the Spells. They put > him in their > research group and boy does he get the works out > there each year. > He was prescribed an anti-seizure drug which really > helped. At this > point we don't think he has them anymore, but he > does have " jolts " > where his arms or legs jump while he is sitting. > Usually when he is > very calm. I don't know if this helps but just > thought that I would > jump in there. > > Janet > > It's 2:30AM! > > > > > > Hi, > > I just need to talk. Jim woke up about an hour > ago and > > was having a bad hallucination that a man leapt > on top > > of him in bed. He was afraid. He said he had to > go to > > the bathroom, so I helped him up out of bed and > > transfered him to his transport chair and when I > > brought him into the bathroom he was having a > hard > > time standing up from his chair, but I managed > to get > > him down on the toilet and then he went into one > of > > those seizures, but it's not a seizure, because > he had > > an eeg and it was negative. His entire body, > arms and > > legs thrash about and his eyes roll back into > his head > > and then he throws his head back and goes > totally > > stiff and into a stare that he can't come out of > for > > awhile, but then slowly comes around. The doctor > > thinks it's fainting, but he hasn't actually > seen it > > and I think it is a TIA. This time when he came > out of > > it, his entire face was drooping down and he > slurred > > his speech. Usually he comes out of these things > > seeming ok and not knowing what happened and > acts as > > if nothing has happened. I am going to keep an > eye on > > him for the next few hours and see how he is. I > hate > > when he goes into a stupor like this, they are > scary > > to me, but I am getting used to seeing them and > don't > > panic as much as I did when they first started > > happening. If it is fainting, what are some of > the > > things that you do to help prevent it from > happening > > for those that are experienced with fainting > LOs. > > There is never a dull moment with this > disease!.........Jan > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2005 Report Share Posted August 27, 2005 Hi Janet, Thank you for your description of " Spells " I'd like to put a spell on this entire disease and toss it into space. But I may be able to help you with this one about your father's " Jolts " where his legs and arms jump when he is sitting. Years ago, my husband's first symptoms were " Restless Leg Syndrome " and whenever he is at rest such as; sitting or laying down his legs and arms jump. We actually joined a RLS Support Group in our community and found out that the arms can jump too, even though it is called, Restless Legs.......Jan --- ladpr6 wrote: > I do declare, Janet, that I just loved your take on > the notion of > Spells! Made me laugh out loud!!! > > > > > Hi Jan- > > This is the first time that I have jumped in here, > but the > seizures struck a chord with me, too. When my > father first got sick > with LBD (7 years ago) it all started for him with > seizures. They > were scary and disorienting for him and he always > seemed to lose a > lot of memory each time. We were all baflled and > terrified and ran > him to the ER each time. Once all was said and done > and he was > finally diagnosed with LBD by the Mayo Clinic in > Rochester MN we > learned that these are actually called Spells. > Sounds very southern > to me. I do declare! Anyway, the doctors at Mayo > were very > interested in him because of the Spells. They put > him in their > research group and boy does he get the works out > there each year. > He was prescribed an anti-seizure drug which really > helped. At this > point we don't think he has them anymore, but he > does have " jolts " > where his arms or legs jump while he is sitting. > Usually when he is > very calm. I don't know if this helps but just > thought that I would > jump in there. > > Janet > > It's 2:30AM! > > > > > > Hi, > > I just need to talk. Jim woke up about an hour > ago and > > was having a bad hallucination that a man leapt > on top > > of him in bed. He was afraid. He said he had to > go to > > the bathroom, so I helped him up out of bed and > > transfered him to his transport chair and when I > > brought him into the bathroom he was having a > hard > > time standing up from his chair, but I managed > to get > > him down on the toilet and then he went into one > of > > those seizures, but it's not a seizure, because > he had > > an eeg and it was negative. His entire body, > arms and > > legs thrash about and his eyes roll back into > his head > > and then he throws his head back and goes > totally > > stiff and into a stare that he can't come out of > for > > awhile, but then slowly comes around. The doctor > > thinks it's fainting, but he hasn't actually > seen it > > and I think it is a TIA. This time when he came > out of > > it, his entire face was drooping down and he > slurred > > his speech. Usually he comes out of these things > > seeming ok and not knowing what happened and > acts as > > if nothing has happened. I am going to keep an > eye on > > him for the next few hours and see how he is. I > hate > > when he goes into a stupor like this, they are > scary > > to me, but I am getting used to seeing them and > don't > > panic as much as I did when they first started > > happening. If it is fainting, what are some of > the > > things that you do to help prevent it from > happening > > for those that are experienced with fainting > LOs. > > There is never a dull moment with this > disease!.........Jan > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
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