Re: Re: lost eye contact after SSRI/calming

[Guest guest]

Forgive me if this is obvious, but we've had great results with removing

artificial ingredients and colors a la Feingold diet. Nitrites are a

big-time problem for him as well. All of these result in hyperactivity and

poor focus. He reacts to this stuff more than anything else.

My son is still on Concerta, which works great, but has a small amount of

casein. He is not reacting to it, but he's not a big reactor to small

amounts of casein and gluten. I plan on taking a doctor-supervised break

from the stimulants this summer, to see if we can eventually go

pharmaceutical-free.

Liz

>

> Reply-To: csb-autism-rx

> Date: Mon, 31 May 2004 21:39:28 -0000

> To: csb-autism-rx

> Subject: Re: lost eye contact after SSRI

>

> Have you tried Ojibwa Tea? My son says this tea helped him feel so

> much better from the toxins. Since he is on SCD to gain weight and

> Ojibwa Tea is not allowed, I am waiting until he gains about 15 more

> pounds before I put him back on this wonderful tea. For him, it took

> about 3 months to really help his behavioral symptoms.

>

> Rose

>

>

>> Our daughter was prescribed Strattera - SSRI . She started having

> cold

>> sweats, cold clammy hands. After a few weeks she became lethargic.

> Her eyes

>> were glassy. We removed the Strattera and she's fine. We are having

> her

>> blood tested now to see if she has a weak enzyme that metabolizes

> the

>> Strattera. doctor is testing three pathways which certain medicines

> are

>> metabolized in the liver. I believe Paxil is one of the medicines

> tested. We

>> don't have the results, yet. I would just be very careful and if

> the mother

>> feels strongly that this medicine is adversely affecting her son

> then she

>> should speak to the doctor about removing it. It's really a shame

> because I

>> thought the Starttera might work for our daughter. We have removed

> Ritalin

>> and we can't find anything to calm her. We are trying so hard, but

> her brain

>> seems to whirl constantly. It must be so frustrating to be in her

> world. The

>> school wants us to put her back on it, but I just can't help but

> think that

>> there is something that could calm her besides Ritalin. I ordered

> BeCalmed

>> and that didn't work. If anyone has any thoughts- I would

> appreciate it.

>> Shari

>>>

>>>

>

>

>

>

> Many frequently asked questions and answers can be found at

> <http://forums.autism-rxguidebook.com>

>

[Guest guest]

Well, we've tried removing different foods, dyes, etc. We know that corn

makes her cry, but I just can't get a handle on which foods make her hyper -

I think it could be more than that. The Ritalin was wonderful. We used it 6

years, but you have to gradually remove them from it. It took us about three

weeks of reducing the dosage until she was off. She told me that she hated

it, too. I don't know - maybe I'm the one who needs to be medicated!! ha I

guess I just hate to start her back on Ritain when it took us a while to get

her off of it. Our doctor said that we could try Provigil which doesn't have

the side effects of Ritalin. It's used for narcolepsy - I think. Anyway,

it's a CNS stimulant. I have it here at the house - I guess I'll try it.

I've just been waiting to see if she could well on her own. Do you like the

concerta?

Shari

Re: lost eye contact after SSRI

> >

> > Have you tried Ojibwa Tea? My son says this tea helped him feel so

> > much better from the toxins. Since he is on SCD to gain weight and

> > Ojibwa Tea is not allowed, I am waiting until he gains about 15 more

> > pounds before I put him back on this wonderful tea. For him, it took

> > about 3 months to really help his behavioral symptoms.

> >

> > Rose

> >

> >

> >> Our daughter was prescribed Strattera - SSRI . She started having

> > cold

> >> sweats, cold clammy hands. After a few weeks she became lethargic.

> > Her eyes

> >> were glassy. We removed the Strattera and she's fine. We are having

> > her

> >> blood tested now to see if she has a weak enzyme that metabolizes

> > the

> >> Strattera. doctor is testing three pathways which certain medicines

> > are

> >> metabolized in the liver. I believe Paxil is one of the medicines

> > tested. We

> >> don't have the results, yet. I would just be very careful and if

> > the mother

> >> feels strongly that this medicine is adversely affecting her son

> > then she

> >> should speak to the doctor about removing it. It's really a shame

> > because I

> >> thought the Starttera might work for our daughter. We have removed

> > Ritalin

> >> and we can't find anything to calm her. We are trying so hard, but

> > her brain

> >> seems to whirl constantly. It must be so frustrating to be in her

> > world. The

> >> school wants us to put her back on it, but I just can't help but

> > think that

> >> there is something that could calm her besides Ritalin. I ordered

> > BeCalmed

> >> and that didn't work. If anyone has any thoughts- I would

> > appreciate it.

> >> Shari

> >>>

> >>>

> >

> >

> >

> >

> > Many frequently asked questions and answers can be found at

> > <http://forums.autism-rxguidebook.com>

> >

[Guest guest]

We like the Concerta, but I can't emphasize enough how everyone is

different. My brother, with severe ADHD, hates Concerta.

The only other piece of advice with meds I can offer is to change only one

thing at a time. It's easy to get caught up in trying to do everything at

once, and then you don't know what is causing changes and what is not.

Also, it might be worthwhile for your daughter to do the SCD instead of

gfcfsf. With SCD, you start out with very few foods and add them back in one

at a time. This could be what you need to do the detective work on what your

daughter is reacting to.

Liz

>

> Reply-To: csb-autism-rx

> Date: Mon, 31 May 2004 19:06:52 -0500

> To: <csb-autism-rx >

> Subject: Re: Re: lost eye contact after SSRI/calming

>

> Well, we've tried removing different foods, dyes, etc. We know that corn

> makes her cry, but I just can't get a handle on which foods make her hyper -

> I think it could be more than that. The Ritalin was wonderful. We used it 6

> years, but you have to gradually remove them from it. It took us about three

> weeks of reducing the dosage until she was off. She told me that she hated

> it, too. I don't know - maybe I'm the one who needs to be medicated!! ha I

> guess I just hate to start her back on Ritain when it took us a while to get

> her off of it. Our doctor said that we could try Provigil which doesn't have

> the side effects of Ritalin. It's used for narcolepsy - I think. Anyway,

> it's a CNS stimulant. I have it here at the house - I guess I'll try it.

> I've just been waiting to see if she could well on her own. Do you like the

> concerta?

> Shari

> Re: lost eye contact after SSRI

>>>

>>> Have you tried Ojibwa Tea? My son says this tea helped him feel so

>>> much better from the toxins. Since he is on SCD to gain weight and

>>> Ojibwa Tea is not allowed, I am waiting until he gains about 15 more

>>> pounds before I put him back on this wonderful tea. For him, it took

>>> about 3 months to really help his behavioral symptoms.

>>>

>>> Rose

>>>

>>>

>>>> Our daughter was prescribed Strattera - SSRI . She started having

>>> cold

>>>> sweats, cold clammy hands. After a few weeks she became lethargic.

>>> Her eyes

>>>> were glassy. We removed the Strattera and she's fine. We are having

>>> her

>>>> blood tested now to see if she has a weak enzyme that metabolizes

>>> the

>>>> Strattera. doctor is testing three pathways which certain medicines

>>> are

>>>> metabolized in the liver. I believe Paxil is one of the medicines

>>> tested. We

>>>> don't have the results, yet. I would just be very careful and if

>>> the mother

>>>> feels strongly that this medicine is adversely affecting her son

>>> then she

>>>> should speak to the doctor about removing it. It's really a shame

>>> because I

>>>> thought the Starttera might work for our daughter. We have removed

>>> Ritalin

>>>> and we can't find anything to calm her. We are trying so hard, but

>>> her brain

>>>> seems to whirl constantly. It must be so frustrating to be in her

>>> world. The

>>>> school wants us to put her back on it, but I just can't help but

>>> think that

>>>> there is something that could calm her besides Ritalin. I ordered

>>> BeCalmed

>>>> and that didn't work. If anyone has any thoughts- I would

>>> appreciate it.

>>>> Shari

>>>>>

>>>>>

>>>

>>>

>>>

>>>

>>> Many frequently asked questions and answers can be found at

>>> <http://forums.autism-rxguidebook.com>

>>>

[Guest guest]

Thanks.

Shari

Re: lost eye contact after SSRI

> >>>

> >>> Have you tried Ojibwa Tea? My son says this tea helped him feel so

> >>> much better from the toxins. Since he is on SCD to gain weight and

> >>> Ojibwa Tea is not allowed, I am waiting until he gains about 15 more

> >>> pounds before I put him back on this wonderful tea. For him, it took

> >>> about 3 months to really help his behavioral symptoms.

> >>>

> >>> Rose

> >>>

> >>>

> >>>> Our daughter was prescribed Strattera - SSRI . She started having

> >>> cold

> >>>> sweats, cold clammy hands. After a few weeks she became lethargic.

> >>> Her eyes

> >>>> were glassy. We removed the Strattera and she's fine. We are having

> >>> her

> >>>> blood tested now to see if she has a weak enzyme that metabolizes

> >>> the

> >>>> Strattera. doctor is testing three pathways which certain medicines

> >>> are

> >>>> metabolized in the liver. I believe Paxil is one of the medicines

> >>> tested. We

> >>>> don't have the results, yet. I would just be very careful and if

> >>> the mother

> >>>> feels strongly that this medicine is adversely affecting her son

> >>> then she

> >>>> should speak to the doctor about removing it. It's really a shame

> >>> because I

> >>>> thought the Starttera might work for our daughter. We have removed

> >>> Ritalin

> >>>> and we can't find anything to calm her. We are trying so hard, but

> >>> her brain

> >>>> seems to whirl constantly. It must be so frustrating to be in her

> >>> world. The

> >>>> school wants us to put her back on it, but I just can't help but

> >>> think that

> >>>> there is something that could calm her besides Ritalin. I ordered

> >>> BeCalmed

> >>>> and that didn't work. If anyone has any thoughts- I would

> >>> appreciate it.

> >>>> Shari

> >>>>>

> >>>>>

> >>>

> >>>

> >>>

> >>>

> >>> Many frequently asked questions and answers can be found at

> >>> <http://forums.autism-rxguidebook.com>

> >>>