Guest guest Posted August 2, 2010 Report Share Posted August 2, 2010 HCS providers - any recommendations?? All,My son's name has finally been called from the HCS waiting list we have been on for 8+ years and I am needing any recommendations for some providers if anyone would be willing to send me some information please email me I would really appreciate it. Thanks! Trina Galindomy son has Autism but Autism does not have himemail: thapgalindo2@... Date: Mon, 2 Aug 2010 11:12:25 +0000From: Texas-Autism-Advocacy To: Texas-Autism-Advocacy Subject: Digest Number 6257 Advocacy issues regarding autism treatment in Texas Messages In This Digest (9 Messages) 1a. Re: Thyroid problems? From: melony overton 2a. College Info From: louisgeigerman2002 2b. College Info From: louisgeigerman2002 3a. Re: Dentists in Austin, Waco and in between From: allrpossible@... 4. (no subject) From: Tussey 5. Fwd: Our Children Left Behind on an Important Issue From: RM10@... 6a. Re: Blog From: Les 7. Special Education Parent/teacher trainings From: Lindsey Bianchin 8. A School District That Takes the Isolation Out of Autism From: JimmyKilpatrick View All Topics | Create New Topic Messages 1a. Re: Thyroid problems? Posted by: "melony overton" bryceayden@... bryceayden Sun Aug 1, 2010 8:28 am (PDT) My son is 10 and he is hypothyroid and on the spectrum. I am also hypothyroid. When he was nine, his TSH was a 9. We tried Naturethroid and it made him vomit every time he took it, even when we reduced the dose. He is on Synthroid now. His TSH went up from a 1 to a 2.5. So we upped his dose of Synthoid, not by much. His crying, anxiety have seemed to go down, but if it shoots up again, I will try Armour. Great to know you can get it in liquid form. My son doesn't swallow pills, so he chews the synthroid. Not bad, just chalky.Have any of your physicians mentioned autoimmunity in your kids and maybe a link to their gutt, or are they saying it's hereditary? I'm trying to figure that one out. Many ASD kids have thyroid issues. I have hypothyroidism and so does my 10-year old ASD son. Dr. Pothuluri in Humble (www.clinicforautism .com) diagnosed my son after a blood test and prescribed Armour (which is what I take through another VERY mainstream doctor, Dr. S. Bond off S. Kirkwood). You can get Armour in liquid format at a compounding pharmacy like Katy Pharmacy, but the pills are very small if he can swallow pills. The problem with pills for us is that you need to take the medication away from food so you can't hide it in there. Let me just also add that I tried Synthroid and it is horrible compared to Armour. Synthroid, as the name implies, is a synthetic and only regulates T4 (or it could be just T3) while Armour regulates both T3 and T4. It is a night and day difference between the two for me. Definitely go for Armour or Nature-throid. Most doctors want to prescribe Synthroid and like said, most mainstream doctors don't think it's an issue if the numbers aren't too far out of range. You need a doctor that is a bit more cutting edge/alternative. Try this site to find a doctor: http://www.thyroid- info.com/ topdrs/armour. htm Thanks,Sandy H.From: starsrocket <LAUC174aol (DOT) com>To: Texas-Autism- Advocacy@ yahoogroups. comSent: Thu, July 22, 2010 5:43:17 AMSubject: [Texas-Autism- Advocacy] Re: Thyroid problems? Hi,Yes my son has thyroid issues, diagnosed when age 4, he is now 12. Are you sure the TSH is low? That would indicate an overactive thyroid (hyperthyroid) . A high TSH would indicate an underactive thyroid (hypOthyroid) . My son is hypo and responded well to treatment ( we use natural dessicated thyroid called Armour Thyroid ). It will be difficult to find a doctor to treat if it is not too far out of range. Get the labs checked again with a full panel(free T4 and free T3 along with autoantibodies. ) Feel free to write me offline for more info - I am running out the door right now! He probably needs treatment if he has nodules.>> Doesanyone else here in the Houston area have a kiddo on the spectrum and has thyroid problems?> > Just got labs back on DS: low TSH and low Vitamin D. He also has a slightly enlarged thyroid. Docs have found the slightly enlarged thyroid for the past two years but no one would do the labs until now. Doc forgot to ask for T3 (T4 is within normal limits). I'm thinking about getting the T3 done on my own before next labs are ordered for three months from now. This might explain some problems with school....> > We are taking the methylated vitamin B6, B12 and Vitamin D. > > On a side note, DS has a lump on his leg times about 2 weeks that really isn't resolving. Ortho doc is watching it, and I'm concerned that it's related to the thyroid issues.> > We're going on day 2 where he's up til about 2 in the morning pratically vibratingall day long. > > If anyone has any experience, suggestions, or doc recommendations here in Houston I'd appreciate it.> > Thanks> > ~Crystal> Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (6) 2a. College Info Posted by: "louisgeigerman2002" louis@... louisgeigerman2002 Sun Aug 1, 2010 8:59 am (PDT) While The College Living Experience (CLE) does a great job, the cost is out of the reach for most families as it costs approximately $33,500(2009 rates) a year for their services plus the cost of attendance to the individual institution. The CLE is not a DARS provider(The Texas Department of Assistive and Rehabilitative Services) consequently, there are no outside funding opportunities to pay for their program. As a start, I would suggest reading the book "Realizing the College Dream with Autism or Asperger's Syndrome", A Parents Guide to Student Success by Ann Palmer ISBN-13: 978-I-84310-801-6 ISBN 10: 84310-801I would look at the following college programs and review the support services that they provide:Midwestern State-Wichita FallsTexas State University-San MarcosMarshall University Huntington, West VirginiaMidwestern State provides many of the support services without additional fees charged by Marshall and the CLE program so I would check them out first. Be certain to do an intake with DARS right away as they can assist in tuition, books and room and board if the program is a specialized program to help a student obtain employment. Midwestern State's program would qualify for this scenario. That does not mean that if you opt for another institution, DARS is off the hook. If you have problems with this agency Advocacy Inc, will assist. You should start the intake process with DARS including assessments when the student attains his 17th birthday. I would also look into joining AHEAD IN Texas http://www.ahead.org/affiliates/texas\ which is an organization of the staff members of the colleges office of disability services. These are the individuals that your child will ultimately have to work with once he is in the respective university. One other thing to keep in mind. Your child has been protected under IDEIA for programming while in the public schools. Once he graduates, he will be protected under either 504 (public) or ADAAA (private). The requirements are much different in that the institutions may not discriminate and must provide "reasonable accommodations" for individuals with a disability. If he encounters problems with the institution in obtaining a reasonable accommodation, feel free to contact me for assistance. I wish you well.Louis H. Geigermanlouiscollegedisabilityadvocateshttp://www.collegedisabilityadvocates.com Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (2) 2b. College Info Posted by: "louisgeigerman2002" louis@... louisgeigerman2002 Sun Aug 1, 2010 9:55 am (PDT) Below you will find two articles from Education News (ednews.org) that I have either been interviewed or have written to on the subject of transition:http://tinyurl.com/27unpqphttp://tinyurl.com/r4sj6aLouis H. Geigermanhttp://www.narda.orghttp://www.collegedisabilityadvocates.com Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (2) 3a. Re: Dentists in Austin, Waco and in between Posted by: "allrpossible@..." allrpossible@... faithiseverything Sun Aug 1, 2010 9:03 am (PDT) I looked over the website, and I really like the idea of air abrasion filling preparation and there are lots of good testimonials, but they say they don't like the parent to come back with the child. I need to be there because of the horrendously horrid past dental care my child received. I have no trust now. What do you all think of this policy? Do you accompany your children?Love and prayers,Heidi NWe also go to Dr Sherwood. He and the entire staff are really good with kids who have a range of special needs and sensory issues. Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (5) 4. (no subject) Posted by: " Tussey" spectrummart@... spectrummart Sun Aug 1, 2010 10:22 am (PDT) http://sharonzarzuela8887.t35.com/ Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (1) 5. Fwd: Our Children Left Behind on an Important Issue Posted by: "RM10@..." RM10@... spec.ed1962 Sun Aug 1, 2010 10:53 am (PDT) Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (1) 6a. Re: Blog Posted by: "Les" lesburleson@... lesburleson Sun Aug 1, 2010 5:18 pm (PDT) Thank you for making me feel understood and perhaps a little less crazy;) I love this blog! Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (4) 7. Special Education Parent/teacher trainings Posted by: "Lindsey Bianchin" lindseybianchin@... lindseybianchin Sun Aug 1, 2010 8:10 pm (PDT) Hey Listmates!! It's been forever since Ive been on a listserve or checked them!! Looks like there are TONS of new folks on each one since I was last on.... Bittersweet! Great for the new families who have found support! Bad that Autism has hit more of us!! I wanted to send a shout out/ save-the-date for training opportunities!! Frisco SAGE is hosting some amazing speakers in the fall. We welcome all who would like to attend... you do not have to be a Frisco family to benefit from our parent/teacher trainings sponsored by Frisco SAGE! We want to share with you all this great knowledge! We have a Facebook page, "like" for more info.... Sept 14 - Meet-n-Greet... Come meet the Special Education & Gifted and Talented Administration and learn about SAGE Sept 28- Crone MEd, PhD, BCBA - Teaching Early Reading Strategies to Special Education Students Oct 12- Kerbow MEd, Part 1; Overcoming Hurdles; Empowering the Gifted Student Nov 4- Neneitte Tabani, OTR, McAlpine PhD, Elissa Woods SLP-CCC; Sensory Processing Disorder/ Brain Training/ Language Acquisition at Home and in the Classroom!! Nov 9- Part 2- Overcoming Hurdles; Empowering the Gifted Student Come join us!!! Will post more info closer to dates! Questions- email Lindsey Bianchin at;lindseybianchin Hugs to ALL!! xoxo Lindsey Bianchin c The extra mile is never crowded... Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (1) 8. A School District That Takes the Isolation Out of Autism Posted by: "JimmyKilpatrick" JimmyKilpatrick@... jimmyk52000 Mon Aug 2, 2010 3:36 am (PDT) A School <http://www.educationnews.org/ednews_today/97317.html> DistrictThat Takes the Isolation Out of Autism8.2.10 - MADISON, Wis. - Garner Moss has autism and when he was finishingfifth grade, his classmates made a video about him, so the new...Jimmy KilpatrickSpecial Education Advocate and ConsultantSenior Fellow is de Tocqueville Institution<http://www.specialedadvocate.org/> SpecialEdAdovcate.orgPhone: 832 814-7463Email: infoSpecialEdAdvocate (DOT) org Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (1) Recent Activity 2 New LinksVisit Your Group Stay on topof your groupactivity withYahoo! Toolbar Drive TrafficSponsored Searchcan help increaseyour site traffic. 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