Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 I greatly enjoy reading the digest each day. Seldom have you heard from me because I have not felt that I have anything to contribute --save an extremely positive outlook on life. There is so much for me to learn. Although I have had MS for more than twentyfive years, I did not receive my diagnosis until March. Since then, I have been engaged in a non-stop quest for knowledge which will point me in the right direction for appropriate treatment. Colloidal silver sounds interesting. Can anyone explain in brief terms how it is supposed to work? Without explanations, it sounds almost like snake oil or chicken soup. You know, it may not help but it couldn't hurt. I don't have time to read lengthy research or diatribes on the subject, but I am interested in knowing more. Also, are there cautions about certain medications or medical conditions which might preclude someone from taking CS? I've got a neuro who doesn't seem very knowledgeable on MS so I am on a waiting list to see another on or before Dec. 4. This neuro would not be the one to ask about CS.' Also, please do me an important favor. When you post, please delete the old messages. I receive this in digest form and have a difficult time getting through the lengthy posts with page after page of >>>>s. It is easy for me to miss messages as I try to get through them to locate the next new one. Thank you on both accounts. Most Sincerely, Gay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2000 Report Share Posted September 28, 2000 Gay: You inquired about Collidial Silver - it is a natural antibiotic as I understand it and took it for one month. Since I did not know it was an antibiotic, I didn't take any ascidophilis (sp) to keep the good bacteria in the intestines, so it stirred up my colitis. So be careful and ask a Naturopath or some that is knowledgable with supplements and any of your other problems. Take care, Colleen Re: Digest Number 281 I greatly enjoy reading the digest each day. Seldom have you heard from me because I have not felt that I have anything to contribute --save an extremely positive outlook on life. There is so much for me to learn. Although I have had MS for more than twentyfive years, I did not receive my diagnosis until March. Since then, I have been engaged in a non-stop quest for knowledge which will point me in the right direction for appropriate treatment.Colloidal silver sounds interesting. Can anyone explain in brief terms how it is supposed to work? Without explanations, it sounds almost like snake oil or chicken soup. You know, it may not help but it couldn't hurt. I don't have time to read lengthy research or diatribes on the subject, but I am interested in knowing more. Also, are there cautions about certain medications or medical conditions which might preclude someone from taking CS? I've got a neuro who doesn't seem very knowledgeable on MS so I am on a waiting list to see another on or before Dec. 4. This neuro would not be the one to ask about CS.'Also, please do me an important favor. When you post, please delete the old messages. I receive this in digest form and have a difficult time getting through the lengthy posts with page after page of >>>>s. It is easy for me to miss messages as I try to get through them to locate the next new one.Thank you on both accounts.Most Sincerely,Gay . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2000 Report Share Posted September 28, 2000 Colleen, At the web site I just found on it, it said it wouldn't do that. In fact they stressed how good it was to use, because it didn't have that effect like regular antibiotics. Here'e a link: http://chetday.com/colloidalsilver.htm Let me know if you have any problems with the link. Carol Gay: You inquired about Collidial Silver - it is a natural antibiotic as I understand it and took it for one month. Since I did not know it was an antibiotic, I didn't take any ascidophilis (sp) to keep the good bacteria in the intestines, so it stirred up my colitis. So be careful and ask a Naturopath or some that is knowledgable with supplements and any of your other problems. Take care, Colleen Re: Digest Number 281 I greatly enjoy reading the digest each day. Seldom have you heard from me because I have not felt that I have anything to contribute --save an extremely positive outlook on life. There is so much for me to learn. Although I have had MS for more than twentyfive years, I did not receive my diagnosis until March. Since then, I have been engaged in a non-stop quest for knowledge which will point me in the right direction for appropriate treatment.Colloidal silver sounds interesting. Can anyone explain in brief terms how it is supposed to work? Without explanations, it sounds almost like snake oil or chicken soup. You know, it may not help but it couldn't hurt. I don't have time to read lengthy research or diatribes on the subject, but I am interested in knowing more. Also, are there cautions about certain medications or medical conditions which might preclude someone from taking CS? I've got a neuro who doesn't seem very knowledgeable on MS so I am on a waiting list to see another on or before Dec. 4. This neuro would not be the one to ask about CS.'Also, please do me an important favor. When you post, please delete the old messages. I receive this in digest form and have a difficult time getting through the lengthy posts with page after page of >>>>s. It is easy for me to miss messages as I try to get through them to locate the next new one.Thank you on both accounts.Most Sincerely,Gay . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2000 Report Share Posted September 29, 2000 Gay, Have you ever looked into Hyperbaric Oxygen Treatments for your MS. I have been treating myself for 6 years and it keeps me walking. take care, kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2000 Report Share Posted October 1, 2000 Hi Glenna, I will get back to you tomorrow. Its late and I am a bit tired, but would like to share my story with you. take care kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 Kim , Please expand on you treatment with hyperbaric oxygen. Do you have your own unit? And what do you notice that it does and how long does it last and cost? Thanks, Kaye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2000 Report Share Posted October 12, 2000 Hi Kaye, Sorry it took so long to respond. My computer keeps crashing on me. To answer your questions; It took about 2 weeks visiting every day to even get me in the same room with this thing. It scared me to even look inside knowing the door was going to be closed. I finally got passed that. I knew it was all i had left to try and if anything was going to help me it would be this huge hyperbaric tank. Keep in mind, I was not walking, could not speak very well, my husband had to feed me, bathe me, dress me, etc... all of the dr's told me i had to endure chemo and other toxic chemicals in my body, of which i knew i would not survive. i was much too weak. All the research that my family had done showed other contries using hyperbaric oxygen routenely for ms, and in fact i was booked for a flight to europe the next day. Anyway, the very first few treatments i noticed some strength coming back in my legs and sort of a clarity in my brain. I knew this was for me. No side effects and it was helping my quality of life. my vision started to return and within 6 months of daily treatments i was able to drive myself to the treatments. there is alot more, but my computer screen keeps blinking off and i am afraid i am going to loose my connection again. will try later tonight. take care kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2000 Report Share Posted October 12, 2000 Hi Kaye, Sorry it took so long to respond. My computer keeps crashing on me. To answer your questions; It took about 2 weeks visiting every day to even get me in the same room with this thing. It scared me to even look inside knowing the door was going to be closed. I finally got passed that. I knew it was all i had left to try and if anything was going to help me it would be this huge hyperbaric tank. Keep in mind, I was not walking, could not speak very well, my husband had to feed me, bathe me, dress me, etc... all of the dr's told me i had to endure chemo and other toxic chemicals in my body, of which i knew i would not survive. i was much too weak. All the research that my family had done showed other contries using hyperbaric oxygen routenely for ms, and in fact i was booked for a flight to europe the next day. Anyway, the very first few treatments i noticed some strength coming back in my legs and sort of a clarity in my brain. I knew this was for me. No side effects and it was helping my quality of life. my vision started to return and within 6 months of daily treatments i was able to drive myself to the treatments. there is alot more, but my computer screen keeps blinking off and i am afraid i am going to loose my connection again. will try later tonight. take care kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2000 Report Share Posted October 12, 2000 Hi Kaye, I will try again... i had to dump alot of old mail and will have to defragemate my files when i am done this evening. when i first started treatments (10 years ago) i paid $300.00 per.. as the years have gone by i have noticed many clinics opening up and the prices have come way down. some are as low as 50 or 60 per treatment. some clinics will work with you and specifically state they take hardship cases. anyway, i will never give up my treatments. it keeps me walking and my quality of life is acceptable most of the time. i have to wait for my husband to come home from work and fishing to treat met. i am training a very dear friend accross the street to run my chamber so i can get my treatments more regularly. i had to attend school this week to keep my license for hyperbaric medicine up and it about killed me. actually, i dont have to do it, i recert every few years to be sure i am keeping up with everything. my life depends on it. i truly wish everyone with ms had thier own chamber. i know alot of us do and keep it quiet, due to the attention it draws. 5 years ago the cost of purchasing your own chamber increased 100 fold. it is crazy the amounts these idiots charge. God led me to a man with a bare tank and my husband and i, along with alot of professionals, put together my chamber. if i could i would treat everyone because i know it works. not everyone reacts the same with thier treatments. you have to level off, and you will be able to feel that, and then it becomes a maintanance type thing. it is part of my life. take care kim ' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2000 Report Share Posted October 12, 2000 Hi Kaye, I have a question for you please. Do you have alot of pain? Specifically in hips, knees, ankles, feet and back? What do you take for it. I want to try the Procarin but am scared to try anything new. My body is so sensitive to chemicals or changes i get really sick. I would like to try it in conjunction with my hyperbarics but want more feedback on others before i jump into anything. Most of my pain is in my hips and back and left leg. take care kim' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 Hi Kim, YES, I have a lot of pain. Mine is varied?????? I used to get achy all over which was really helped by H2O2 IV's. Amazing. I have spasms and pain from the right side of my face to the sole of my right foot. I guess we call it dystonia --New label for me -- old symptom. I blamed it on whip lash. My doctor says it is part of the MS. I don't personally know of others with this pain and spamming. What kind of pain do you have? Stabing,twisting, spasms, aching? I too react to drugs and don't like taking things that I'm not sure are going to be good for me. In the long run I feel safer with healthful treatments.(After a lot of bad decisions). Do you know of anyone who has taken the Procarin? Have you used a chiropractor? OR acupuncture? These are my favorite ways to feel better without doing any harm to myself. Kaye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 Kim, Thanks for the info on the hyperbaric oxygen. How much do you think one costs? IF I try a treatment will I know if it will help me. OR how many do you have to do before you know? Who often do you do it? I guess it puts oxygen into your blood? Is that right? Just like the H2O2 IV's. I did feel better with that but at $100/ it is expensive and I am scaring my veins with so many IV's Kaye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 I have a great Chiropractor. There are also massage therapists available when I can afford it, but for this wonderful man, money is not an obstical. He knows I will pay him. I have been with him since 1993. Helps a great deal with pain. I have my own hyperbaric chamber that keeps me walking and takes the pain away so i can function. The pain is mostly on my left side from neck all the way down to foot. Sort of like a rope being tightened and twisted constantly. I do no know of anyone on Procarin. I am still educating myself on it. However, I do have a good friend who is much worse off than I am. I treat her in my chamber when she is strong enough to get to the car. I pick her up treat her and take her home. she shakes so much she cannot get food to her mouth. she is literally starving to death. she is down to 93 pounds. I hand feed her, give her supplements she desperately needs, etc. Her father wants her to try Procarin of which I am more than happy to help her obtain. She cannot write anymore and has a difficult time speaking. Her only reprieve is when she is in my chamber at depth, she stops shaking! When her treatment is over and i start to bring her up she starts to shake but it gets better each time. She has a long way to go. I would like to film it for my neurologist so he can see what it does for ms. Anyway, i am on as little pain medication as possible, but dont get me wrong, if i am in pain i take the meds... i do what ever it takes. constant charlie horse cramps in my legs.. feels like i have 50lb weights attached to each leg... but i walk and drive and i am greatful for that. take care kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 Hi Kaye, I was really fortunate in that I discovered this 10 years ago before the prices went out of control. You cannot get one for under $100,000 - installed $110,000 - compressor $10,000. These prices make it impossible for the average person to purchase thier own. They have little chambers for about $25,000 made of some sort of material that you lay in and they zip it up and turn on the o2. Crazy!!!! First of all, it does you no good at all. You cannot get to the pressure you need to stablize the brain blood barrier and saturate to do repair to the brain. I am pretty sure they stopped making them, but be careful, there are still a few idiots out there trying to sell them. My chamber is 10 feet long by 4 foot wide solid steel. 3 port holes and believe me, I have had it checked by the Navy and everyone else to be sure it is safe. I had to educate myself, this is my life!! I lay there for an hour and watch TV through one of the port holes and my husband (bless his sole) runs the chamber while I am in then goes off to work. I treat a few of my friends then go home to colapse. take care, kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 Kim, Thanks. Wow $100,000 for the tank! If you don't use it regularly you know it-is that right. You have to be a millionaire to be sick. Sounds like you have the same thing on you right side that I have on the left. I am starting to contort in my neck. It had always been spasmed and painful but now it looks funny. Any way I asked the DR if this is dystonia .. He said yes. I don't know of other MS ers with this problem. He says there are others with this. Am I understanding you right that you have spasm and pain down the left side? Mine goes from my right eye down the neck around the scapula -- and now down my arm--thats the worst then milder down to the foot. But now all this shakes when I stretch any of my limbs. And it's hard to write and get out of the car. I'm scheduled for shoulder surgery as I am told I have impingement there in the right. My neuro says surgery will make the MS worse! Would love to hear that the O2 helps this! And I guess want to know if this dystonia type thing that I've had for years and blamed on whip lash is really MS. Thanks, Kaye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 Kaye, I wonder if what you are talking about in your neck is the same problem I have. It was just off and on for a couple of years - just felt like sore muscles on the back left side of my neck. Now it's 'on' most of the time, and seems to be in the back on either side of the middle, of my neck. It feels like sore, stiff muscles. Is that the same? Carol Kim,Thanks. Wow $100,000 for the tank! If you don't use it regularly you know it-is that right. You have to be a millionaire to be sick.Sounds like you have the same thing on you right side that I have on the left. I am starting to contort in my neck. It had always been spasmed and painful but now it looks funny. Any way I asked the DR if this is dystonia . He said yes. I don't know of other MS ers with this problem. He says there are others with this. Am I understanding you right that you have spasm and pain down the left side? Mine goes from my right eye down the neck around the scapula -- and now down my arm--thats the worst then milder down to the foot. But now all this shakes when I stretch any of my limbs. And it's hard to write and get out of the car.I'm scheduled for shoulder surgery as I am told I have impingement there in the right. My neuro says surgery will make the MS worse! Would love to hear that the O2 helps this! And I guess want to know if this dystonia type thing that I've had for years and blamed on whip lash is really MS.Thanks,Kaye . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2000 Report Share Posted October 19, 2000 Kim, I really know nothing about them. Are you just in there with oxygen? Carol Hi Kaye, I was really fortunate in that I discovered this 10 years ago before the prices went out of control. You cannot get one for under $100,000 - installed $110,000 - compressor $10,000. These prices make it impossible for the average person to purchase thier own. They have little chambers for about $25,000 made of some sort of material that you lay in and they zip it up and turn on the o2. Crazy!!!! First of all, it does you no good at all. You cannot get to the pressure you need to stablize the brain blood barrier and saturate to do repair to the brain. I am pretty sure they stopped making them, but be careful, there are still a few idiots out there trying to sell them. My chamber is 10 feet long by 4 foot wide solid steel. 3 port holes and believe me, I have had it checked by the Navy and everyone else to be sure it is safe. I had to educate myself, this is my life!! I lay there for an hour and watch TV through one of the port holes and my husband (bless his sole) runs the chamber while I am in then goes off to work. I treat a few of my friends then go home to colapse.take care,kim. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2000 Report Share Posted October 19, 2000 Hi Kaye, Surgery will make your ms worse... always has for me and i avoid it when i can.... have you ever figured out what the causation of your ms is??? have you ever done a hair sample test? it can find if you have high levels of heavy metals such as tooth fillings leaching and other nutrients you might be missing or causing your exacerbations.... i did it about 10 years ago and at that time there was only one dr locally that knew what the heck he was doing... turned out i had toxic levels of mercury etc.... corrected the problem and when on to the next obstacle... obviously i downsized when i purchased my chamber, but i had no other choice.. the quality of life i had was not acceptable to me... and i am greatful i have a close supportive family or i would not have survived.... i hope you can find one in your area that will treat you free or at a reasonable price... it is a long fight but you will know within the first 10 treatments or so.... kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2000 Report Share Posted October 19, 2000 I always feared surgery. Then I had no choice. A lump was found on my thyroid. I had half removed (along with my gall bladder) because it was so small they couldn't tell here what it was. It went to Mayo Clinic and it was found to be minimally noninvasive cancer. So 2 weeks after the first surgery I got to go back in and have the rest removed. I had no problems at all. I was afraid I'd wake up and not be able to walk. I have Secondary Chronic Progressive MS. Pam Spokane WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2000 Report Share Posted October 21, 2000 In a message dated 10/19/00 10:32:07 PM Eastern Daylight Time, gmkmoore@... writes: > > > Hi Kaye, > Surgery will make your ms worse... always has for me and i avoid it when i > > can.... have you ever figured out what the causation of your ms is??? have > > you ever done a hair sample test? it can find if you have high levels of > heavy metals such as tooth fillings leaching and other nutrients you might > be > missing or causing your exacerbation's.... Yep, I have had 12 crowns and 3 amalgams removed in the last 18 months and one root canal pulled to get rid of any possible long term infection. Then I have been doing DMPS IV's (3) to chelate , along with oral ones too. I can't take too much chelation. I am really toxic. I did a 24 hour urine and found very high levels of lead and mercury. I get real sick-pain, skin break down, red eyes,yuky feeling with it. So, I go slow. But I feel I have to get rid of this stuff if I am going to be well. Just getting the dental work done and in the middle of an abcess having my neuro put me in the hospital for solumedrol because he believed I was getting worse and I was scared of loosing more brain cells, so I did it -- really stupid! (Great sentence) I got worse than ever. Of course. And weak. Stress of any kind is a risk for all of us. The dental work and the trauma of all the pain I had with it due to 20 years of facial pain being stirred up from it,etc,plus steroids when I needed healthy support ,just broke me phisically and financiallyl did it about 10 years ago and > at that time there was only one dr locally that knew what the heck he was > doing... turned out i had toxic levels of mercury etc.... corrected the > problem and when on to the next obstacle... > obviously i downsized when i purchased my chamber, but i had no other > choice.. the quality of life i had was not acceptable to me... Me either. This stinks and I will not just accept it > > hope you can find one in your area that will treat you free or at a > reasonable price... it is a long fight but you will know within the first 10 > > treatments or so.... > kim Kim ,it is just so good to hear and to hear that it has helped you so much. I'd really like to have some right now . The H2O2 iv's really made me feel better. And last time I did the dmps with vit c ,I was a mess for 2 days but then felt great-.It was wonderful. Feel like I got a little bit of my brain back . BUT then I did too much sooooooo. Too bad you live in CA. I'm in VA. I'd love to rent your machine I started to read Malcolms book. It's wonderful! As far as surgery goes ,it is a gamble for me . It is sceduled . But I figure if things improve by then I can cancel. The pain I have on the right side is really bad. That is stress too.And constant. Just need to be as sure as possible that surgery will releive it and not make it worse. But maybe I'll get better from it !!!!!!! All the doctors agree that I have a problem with my shoulder and that i shoul get rid of the problem.(except the neuro) That doesn't make it so .It could be my neck or MS. Dr Rind is going to do prolotherapy on me next time .We'll see. Sorry to write so much--ON and On Thanks for your corespondence Kaye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2000 Report Share Posted October 21, 2000 In a message dated 10/19/00 11:12:58 PM Eastern Daylight Time, YaprDaprDo@... writes: > 2 weeks after the first surgery > I got to go back in and have the rest removed. I had no problems at all. I > was afraid I'd wake up and not be able to walk. I have Secondary Chronic > Progressive MS. > Pam > Spokane WA Thanks Pam, So good to hear that. I want to get fixed! I've probably had MS for 30 years .Just found out about it 2 years ago. I've been just getting worse since the dx. so I guess I probably have the same label you do but I am not willing to take it --. I am going for the cure! At least I am getting energy back with the adrenal support! Yeah!!!! I figure if I can eliminate this pain ,that will stop draning my adrenals too and maybe i can get a lot better - Kaye Springfield ,Va Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 Hi Kaye, I enjoyed your response... it was not long at all... Do you take anything for the depression??? kim Quote Link to comment Share on other sites More sharing options...
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