gina- OT: doc follow up

[Guest guest]

find a good SCIO practioner the machine can scan the body for 30,000 different things.

were you vaccinated?

ever work around chemicals-farm-lawn-industrial?

heavy metals,dental,rootcanals,cavations,

scar tissue?

rx medications? child birth on & on.

roger

Subject: OT: doc follow upTo: Lyme_and_Rife Date: Tuesday, September 1, 2009, 9:24 AM

So, I had my follow up with my ‘LLMD’ doc yesterday. I’m still very frustrated. The first appt went pretty well and I was encouraged. Not that I’m completely discouraged now, but definitely not as hopeful this time.

Not all of my labs were back, but there wasn’t much to say about what was. My thyroid levels are quite odd – all very low, despite the fact that I take thyroid meds! They didn’t do the right tests, so it’s hard to say what my Reverse T3 ratio is. But just using what they do have, it’s still too high or at least borderline. She wants me to lower my dose of T3, which I’m just not sure I want to do. I’ll be asking on my thyroid board what to do about all of that!

The only other thing with my labs was my Vit D levels were very low – low enough that she was concerned about it and told me to supplement. Of course, we had the whole discussion about how much to take and they thought me taking 5000 IU was too much. I haven’t taken any Vit D in about a month because of that diet I was on – no oils and the Vit D I take is in oil.

My brain MRI with and without contrast was clear – so no MS. Glad to have that ruled out!

The thyroid ultrasound showed a tiny (6mm x 4mm x 3mm) nodule and a borderline enlarged thyroid. She was not even remotely concerned about it and thought it was nothing to be worried about. But based on my family history (mom had goiter, both aunts and mom had low thyroid, one of those aunts died of thyroid cancer) she wants to do a scan just to see how my thyroid is functioning and such. We’ll see how that goes. She is at least doing some research on the Reverse T3 issue I have, so that’s good.

The Igenex Western Blot was not back, but the Quest one was and of course it was all negative. Before sh figured out it was the Quest one and had ‘ruled out’ Lyme, I mentioned STARI to her. She had never heard of it. Shouldn’t a LLMD at least have heard of STARI? Maybe not, but it concerned me that she hadn’t. But, not sure about Lyme yet…

All in all I got some good info, but am still frustrated at some of the things she said. I didn’t have the energy to dispute her, so I just listened to her spill and went about my business. Ugh. The main thing that bothered me was she said that diseases/health problems can be idiopathic (have no known cause). I completely disagree with that. There is a reason my thyroid doesn’t work right – maybe it’s the nodule, maybe it’s an underlying infection, maybe Lyme, maybe it’s bad genes… But there IS a reason. An ‘idiopathic’ disease is nonsense to me.

I’m just about in tears because I want to know what is causing all of this. How can it NOT be Lyme? I have so many Lyme symptoms! Oh, she does want me to get tested for Parvo. Yep, Parvo. She says my symptoms sound like that to her. Just something else to rule in/out, which is fine. I want to get to the bottom of this.

Don’t get me wrong here… I know that finding the true cause may be futile. Even if I found the true cause, my treatment won’t be much different than what I’m doing now. I do salt/C, CS, some MMS sometimes, and a whole host of supplements. So, I’m fixing whatever is wrong regardless by giving my body what it needs. If I knew I had some other specific issue, I’d just add what I needed to my regimen.

Anyway, just wanted to vent a bit. If anyone has some thoughts, I’d love to hear them.

Thanks for listening,