Re: Re: Notes from Biomed Session

[Guest guest]

I have almost all of my clients on TD-GSH from Coastal Compounding, and find

it excellent. I also give all who have GI problems (most of them) the oral

also (from Klaire, 150mg twice daily), because even though only 20% is

absorbed, that 20% helps the gut's immune function. There has been a lot of

controversy about the IV-GSH, with many docs using it and many patients

getting a great deal of benefit. Some have had bad side effects from it, so

the jury is out. Then some docs started using NAC, but recent reports have

indicated this could be bad for some kids, and since we don't know how to

test which ones may benefit and which ones may have a bad effect, the jury

is out on that too. I think you just have to go along with your doc who

knows your child well for these issues that are controversial. If you don't

have a good doc, I recommend you stay with the transdermal and the oral;

they may not give maximum benefit but they are not harmful, even though some

kids may show some hyperactivity with the transdermal (or even the oral).

After some methylcobalamin injections, many kids who could not tolerate GSH

before do fine with it - they definitely work together, and are two vital

parts of the trio-quintet therapy for methylation defects (which all of our

kids have). What we do know is that glutathione is crucial and is right at

the heart of both chelation and methylcobalamin therapy, both of which may

not work without good levels of GSH. Dr. JM

Notes from Biomed Session

> >

> >

> > > had asked about notes from the biomed session at the

> gathering and I

> > > finally found mine. They are sketchy, but perhaps some of you who

> attended

> > > can fill in the blanks.

> > >

> > > Methylcobalamin: most important supplement for most of our kids.

> THERE

> > HAS BEEN NO TREATMENT BIO-MEDICAL OR BEHAVIORAL THAT I HAVE HEARD OF

> OR USED

> > THAT HAS HAD THE IMMEDIACY OF BENEFITS THAT METHYLCOBALAMIN

> INJECTIONS HAVE

> > HAD, MAYBE WITH THE EXCEPTION OF REMOVING CASEIN AND GLUTEN FROM THE

> DIET.

> > THE SCIENCE IS COMING IN STEADILY THAT THE EARLY VACCINE INJURIES

> DAMAGED

> > THE METHIONINE SYNTHASE SYSTEM FOR OUR SUSCEPTIBLE CHILDREN, PREVENTING

> > METHYLCOBALAMIN FROM ENTERING INTO THE BRAIN TISSUE WHERE IT IS

> VITAL. DR.

> > NEUBRANDER IS DOING IMPORTANT RECORDING OF PATIENTS BEING GIVEN THIS

> > TREATMENT BEFORE HE STARTS ANYTHING ELSE (WHILE WAITING THE SIX

> WEEKS FOR

> > LAB TESTS TO BE COMPLETED) AND IS FINDING ENORMOUS BENEFIT IN MANY

> CHILDREN

> > EVEN BEFORE STARTING ALL THE OTHER INTERVENTIONS (WHICH HE THEN

> IMPLEMENTS

> > ALSO).

> > >

> > > Phosphatidylserine: THIS IS ONE OF THE PREMIER NUTRIENTS FOR MEMORY

> > PROBLEMS IN ADULTS. IT IS HELPFUL FOR CHILDREN TOO, AND IS INCLUDED

> IN MANY

> > " CONCENTRATION " FORMULAS. EXTENSIVE TESTING HAS SHOWN THAT THIS

> COMPOUND

> > WILL REVERSE MEMORY PROBLEMS IN A MATTER OF WEEKS IF ADULTS WILL USE IT

> > BEFORE THINGS HAVE GONE SO FAR THAT THEY CANNOT BE TURNED AROUND.

> ONE 100MG

> > GEL A DAY FOR ADULTS OVER 45 IS HIGHLY RECOMMENDED, OR EARLIER IF MEMORY

> > PROBLEMS COME EARLIER. Fabulous for memory. 100mg per day. But I keep

> > forgetting to order it.

> > >

> > > Recommended for Omega 3s and 6s: FISH OILS ARE THE BEST FOR

> OMEGA-3'S;

> > PLANT SOUCES MUST BE USED IN EXTREMELY LARGE DOSES TO GET THE

> OMEGA-3'S WE

> > NEED. I USE NF FORMULAS' ESKIMO OIL AND NORDIC NATURALS. FOR THE

> > OMEGA-6'S, I LIKE THORNE'S BLACK CURRANT OIL.

> > > --Black currant oil

> > > --Nordic Naturals

> > >

> > > CoQ10: Idebenone is preferred. COQ10 IS A MITOCHONDRIAL NUTRIENT, AND

> > MOST OF OUR KIDS HAVE SOME DEGREE OF MITOCHONDRIAL DAMAGE.

> IDEBENONE IS THE

> > BIOLOGICAL AND TOTALLY SAFE FORM OF COQ10, AND I RECOMMEND ALL KIDS HAVE

> > THIS AT LEAST ONCE AND PREFERABLY TWICE (IF YOU CAN AFFORD IT) A DAY

> - IT IS

> > PRICEY.

> > >

> > > L-Carnitine: good for low muscle tone. L-CARNITINE IS GOOD FOR PROPER

> > GLUCOSE METABOLISM, AND MOST KIDS I TEST ARE DEFICIENT IN IT, ESPECIALLY

> > THOSE WITH LOW MUSCLE TONE. I USE THORNE'S L-CARNITINE, 330MG PER CAP,

> > TWICE DAILY FOR MANY OF MY PATIENTS.

> > >

> > > To a certain degree, all of our kids have a mitochondrial disorder

> > (related

> > > to diet). EARLY INJURY DONE TO THE DIGESTIVE SYSTEM LEAVES THE

> > MITOCHONDRIA DEFICIENT IN NUTRITION, AS THE PRIMARY DAMAGE IS DONE

> TO THE

> > CELL WALL WHICH ALLOWS NUTRIENTS ACCESS. I SPOKE RECENTLY TO DR. BOYD

> > HALEY, WHOM I INVITED (AND HE ACCEPTED) TO SPEAK AT OUR MINI-DAN IN

> ALABAMA

> > IN NOVEMBER. HE SAID, " EVERYTHING IS NOT RELATED TO MERCURY.

> YOU'VE GOT TO

> > GET THE DENDRITES TO GROW. TALK TO DR. PAUL HARCH ABOUT WHAT'S

> HAPPENING IN

> > HYPERBARIC OXYGEN CHAMBER THERAPY WITH AUTISTIC KIDS THESE DAYS. "

> HE GAVE

> > ME DR. HARCH'S NUMBER, AND I SPOKE AT LENGTH TO HIM SEVERAL TIMES.

> HE FEELS

> > THAT IN EARLY BRAIN INJURY THE CELLS ARE NOT ALL " KILLED " , BUT ARE

> " IDLING " .

> > THE INTENSE OXYGEN THERAPY SEEMS TO AWAKEN THEM AND MANY AUTISTIC

> CHILDREN

> > BEING TREATED WITH THIS THERAPY ARE SHOWING BENEFIT. MY

> UNDERSTANDING IS

> > THAT IT SEEMS TO WORK BETTER ON THE KIDS WHO HAVE ALREADY HAD MOST

> OF THE

> > MERCURY CHELATED OUT, AS THEY DON'T WANT TO STIR UP MERCURY IF IT IS

> STILL

> > THERE. HARCH FEELS THAT IT IS THE MITOCHONDRIA THAT ARE THE

> RECEPTORS OF

> > THIS OXYGEN STIMULATION, AND UNTIL THEY START FUNCTIONING THE REST

> OF THE

> > BRAIN REMAINS UNDER-FUNCTIONING. HE ADMITS THE PROBLEM WITH THIS

> THERAPY IS

> > QUALIFIED PEOPLE WHO KNOW WHAT THEY'RE DOING, SO THIS IS SOMETHING THAT

> > NEEDS TO BE RESEARCHED CAREFULLY AND DONE WITH PEOPLE THAT ARE PROPERLY

> > TRAINED. MORE LATER ON THIS AS I FIND OUT MORE.

> > >

> > > N-Acetyl Cysteine: Use IGA Plus from Ecological Formulas, 2 each

> per day.

> > IGA+ HAS GLUTATHIONE PRECURSORS (INCLUDING N-ACETYL CYSTEINE), AND IS AN

> > EXCELLENT COMPOUND TO USE TO PREPARE KIDS FOR CHELATION. WE ARE

> FINDING OUT

> > THAT THE GLUTATHIONE STATUS HAS A LOT TO DO WITH THE EFFECTIVENESS

> OF NOT

> > ONLY CHELATION, BUT METHYLCOBALAMIN THERAPY TOO.

> > >

> > > Alascer: Vit C for adults. ALACER SUPER-GRAM III IS MY FAVORITE

> VITAMIN C

> > COMPOUND FOR ADULTS, ONE 1000MG SUSTAINED RELEASE TABLET DAILY. FOR

> KIDS, I

> > USE NF FORMULAS BUFFERED C WITH LARCH (LARCH ARABINOGALACTANS, A GREAT

> > IMMUNE ENHANCER).

> > >

> > > Recommended Calcium brands: THE FIRST THREE BRANDS LISTED BY

> LYNNE ARE

> > THE ONES I RECOMMEND TO ADULTS, ESPECIALLY WOMEN, WHO NEED VERY HIGH

> LEVELS

> > OF CALCIUM AND MAGNESIUM TO PREVENT OSTEOPOROSIS. FOR SMALL KIDS, I USE

> > ECOLOGICAL FORMULAS CAL-MAG WITHOUT ALUMINUM, BUT FOR BIGGER KIDS I USE

> > KIRKMAN'S EVERYDAY COMPANION.

> > > Bone Max

> > > Bone Up (Jarrow)

> > > Bone Assure (Life Extension)

> > > Kirkman Labs

> > >

> > > Recommended Multi-Vitamins:

> > > Brainchild Nutritionals

> > > Kirkman's Spectrum Complete

> >

> > >

> > > Dr. M hasn't seen toxic levels of zinc. I USUALLY SEE LOW ZINC ON MOST

> > TESTS, AND GIVE ONE MG PER POUND OR ONE MG PER POUND PLUS 20 TO KIDS

> WHO ARE

> > SEVERELY LOW OR WHO ARE CHELATING. I USE TWO DIFFERENT KINDS OF ZINC

> > SIMULTANEOUSLY, VRP'S ZINC MONOMETHIONINE (25MG PER CAP) AND THORNE'S

> > PIC-MINS, A MULTI-MINERAL COMPOUND THAT CONTAINS 15MG OF ZINC

> PICOLINATE, OR

> > THORNE'S ZINC PICOLINATE BY ITSELT. Never seen a reaction to Valtrex.

> > VALTREX IS A VERY SAFE DRUG - I HAVE TESTED COUNTLESS KIDS BEFORE

> GIVING IT

> > TO MAKE SURE LIVER IS OK, AND HAVE NEVER HAD ANY ELEVATION OF LIVER

> ENZYMES

> > ON VALTREX. THAT'S NOT TO SAY IT ALWAYS IS EFFECTIVE; VIRUSES ARE ONLY

> > SO-SO RESPONSIVE TO ANTI-VIRALS. IF VIRAL TITERS ARE HIGH AND I

> DON'T GET A

> > RESPONSE TO VALTREX AFTER TWO MONTHS, I WILL USE FAMVIR, AND ROTATE

> THE TWO

> > SOMETIMES FOR MAXIMUM EFFECTIVENESS. HOWEVER, I ALWAYS USE

> LAURICIDIN, A

> > VERY EFFECTIVE NATURAL ANTI-VIRAL, ON ALL KIDS WITH OR WITHOUT VALTREX.

> > PARENTS SHOULD KNOW THAT THE ANTI-VIRALS DO NOT KILL THE VIRUSES,

> BUT ONLY

> > SUPPRESS THEM SO THEY STOP MULTIPLYING SO RAPIDLY. WE ALL HAVE

> VIRUSES, AND

> > NORMAL IMMUNE SYSTEMS KEEP THEM AT BAY MOST OF THE TIME. OFTEN, AS

> WE USE

> > THE QUINTET AND CHELATE AND OTHER THERAPEUTIC ENDEAVORS, THE VIRUSES

> OFTEN

> > ARE TAKEN CARE OF BY THE IMPROVING IMMUNE SYSTEM.

> > >

> > > TMG: 1000mg 2x daily. LifeExtensions.com THIS IS A POWDER, 750M

> PER TINY

> > SCOOP, AND IS THE COMPOUND DR. JILL JAMES USED ON HER FAMOUS STUDIES

> > DELINEATING THE USEFULNESS OF FOLINIC ACID AND TMG FOR ASD KIDS.

> > >

> > > MethylGuard by Thorne, 1 cap 2x daily ACTUALLY, THE DOSE IS TWO

> CAPS TWICE

> > DAILY TO GET THE REQUIRED 2000MG OF TMG (BETAINE) AND 1600MCG OF FOLINIC

> > ACID DAILY. THIS COMPOUND ALSO CONTAINS METHYLCOBALAMIN; THE

> RECOMMENDED 4

> > CAPS A DAY WILL PROVIDE 2000MG OF METHYLCOBALAMIN (THOUGH I STILL FEEL

> > BECAUSE OF THE ENORMOUS ABSORPTION PROBLEMS MOST OF OUR KIDS HAVE

> PLUS THEIR

> > PROLONGED DEFICIENCY, THEY STILL NEED THE INJECTIONS, BUT IT CERTAINLY

> > DOESN'T HURT TO GET SOME ORALLY ALSO). THE BOTTLES CONTAIN 180

> CAPSULES, A

> > 45-DAY SUPPLY WHEN USED AS RECOMMENDED.

> > >

> > > Lynne, THANKS LYNNE! DR. JM

> > >

> > >

> > >

> > >

> > > Many frequently asked questions and answers can be found at

> > <http://forums.autism-rxguidebook.com>

> > >