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Hi everyone!

I wanted to make an introduction. My name is Marina (or you can call me

either one of those names - most people just use ) and I'm 20 years old,

from England. In the last few months I've been noticing small sounds more and

more often. These include the dreaded eating noises, high heels, flip flops,

tapping, clicking...(though not of keyboards and mice, because that would be a

nightmare at work...I'm an ICT Apprentice!).

I am pleased to say that I have made an appointment to go to Audiology and

E.N.T. in my local NHS hospital, after being referred by my GP's practice nurse.

It has been rearranged several times but as of today, it's on the 5th of

February.

I wondered what experiences anyone has with diagnosis and treatment under NHS

care? My family doesn't have a private healthcare plan (we have always been

treated very well by the NHS!) so I can't really afford to go to anywhere

private if I need to. I did hear tales of a man getting diagnosed properly at an

NHS hospital and they even provided him with in-ear noise generators. So, if

anyone has any experiences with the NHS they can share with me, that would be

great.

My biggest problem is with my Dad, at mealtimes. I love him very much, but I

find it very hard to deal with his noises. I think he has a problem with his

sinuses, and has in the last year lost the last of his back teeth in one side of

his mouth, and he keeps eating with his mouth slightly open, breathing heavily,

and smacking his lips. I find it very frustrating and sometimes it makes me feel

very nauseous. However I don't feel I can talk to him about it because I don't

want to upset him. This is a massive character flaw of mine! I am always putting

other peoples' feelings first.

Today, I went quite mad because I was sat next to a friend on our helpdesk, and

he clicks his pen all day, clicks his tongue and at one point started playing

with a large boardmarker pen lid, which makes a tremendous snapping noise when

pulled off and put back on. I flinched each time he did that, and with the

others I just found myself cramming my fingers in my ears. I did ask him to stop

after about an hour of pen clicking this morning, and he apologised, but it

seems it's second nature to him and he doesn't notice he's doing it.

I seem to have a very high tolerance of annoyances when I need to, unless it's

someone I can open up to that vaguely appreciates my situation. My mother and my

boyfriend are two of these people, though the latter has tried to convince me I

am just easily annoyed on more than one occasion, or that I have read too much

about 4S and convinced myself I have it. I think he's starting to get it now,

watching me freak out and cry when he eats next to me, and he's told me he's

making a conscious effort not to make any noises that will annoy me.

When we discussed it before, too, he helped me find a free 20-minute MP3 of pink

noise, which is nice to listen to while I can hear my Dad breathing loudly or

snoring, or other people eating. It makes me feel very relaxed. I also like

listening to the kettle as it boils!

I don't know if it's relevant, but I have a skin condition which is part of the

eczema family that gets worse around my fingers when I am stressed, and so does

my hearing problem. Does anyone else have similarly aggravated medical

complaints? Additionally, the only other thing I can think of that has changed

recently is that I have started using a new contraceptive pill to treat my bad

(teenage!) skin. I can't imagine hormonal treatment is affecting my ears,

though.

Another thing that a lady pointed out to me on a forum is if I have underlying

mental health problems, they are sometimes associated. I am certainly very

paranoid and have an amazingly overactive imagination (the tiniest noise at

night makes me panic someone else might be in the house) and sometimes I worry

too much about trivial things.

I'm just trying to pick out things that might be related to 4S, and see if

anyone else has similar situations, I suppose. I'm sorry if any of it is

completely irrelevant!

I hope I can soon start offering helpful thoughts and suggestions to the rest of

you members. =)

Take care!

Marina x

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Wow, you say you just started getting it this year? That's a really late onset, but it is interesting that you recently started the pill. We always wonder if it has something to do with hormones.

You sound like you have classic 4s. Don't be bummed if the doctors there don't know what it is, or say you have an anxiety disorder or something. Or maybe an OCD or phobia.

We have been trying to get research done, but otherwise the medical community doesn't seem to have any answers for us.

Take care!

-----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of Marina GreeningSent: Monday, January 11, 2010 3:51 PMTo: Soundsensitivity Subject: New to this!

Hi everyone!I wanted to make an introduction. My name is Marina (or you can call me either one of those names - most people just use ) and I'm 20 years old, from England. In the last few months I've been noticing small sounds more and more often. These include the dreaded eating noises, high heels, flip flops, tapping, clicking...(though not of keyboards and mice, because that would be a nightmare at work...I'm an ICT Apprentice!).I am pleased to say that I have made an appointment to go to Audiology and E.N.T. in my local NHS hospital, after being referred by my GP's practice nurse. It has been rearranged several times but as of today, it's on the 5th of February.I wondered what experiences anyone has with diagnosis and treatment under NHS care? My family doesn't have a private healthcare plan (we have always been treated very well by the NHS!) so I can't really afford to go to anywhere private if I need to. I did hear tales of a man getting diagnosed properly at an NHS hospital and they even provided him with in-ear noise generators. So, if anyone has any experiences with the NHS they can share with me, that would be great.My biggest problem is with my Dad, at mealtimes. I love him very much, but I find it very hard to deal with his noises. I think he has a problem with his sinuses, and has in the last year lost the last of his back teeth in one side of his mouth, and he keeps eating with his mouth slightly open, breathing heavily, and smacking his lips. I find it very frustrating and sometimes it makes me feel very nauseous. However I don't feel I can talk to him about it because I don't want to upset him. This is a massive character flaw of mine! I am always putting other peoples' feelings first.Today, I went quite mad because I was sat next to a friend on our helpdesk, and he clicks his pen all day, clicks his tongue and at one point started playing with a large boardmarker pen lid, which makes a tremendous snapping noise when pulled off and put back on. I flinched each time he did that, and with the others I just found myself cramming my fingers in my ears. I did ask him to stop after about an hour of pen clicking this morning, and he apologised, but it seems it's second nature to him and he doesn't notice he's doing it.I seem to have a very high tolerance of annoyances when I need to, unless it's someone I can open up to that vaguely appreciates my situation. My mother and my boyfriend are two of these people, though the latter has tried to convince me I am just easily annoyed on more than one occasion, or that I have read too much about 4S and convinced myself I have it. I think he's starting to get it now, watching me freak out and cry when he eats next to me, and he's told me he's making a conscious effort not to make any noises that will annoy me.When we discussed it before, too, he helped me find a free 20-minute MP3 of pink noise, which is nice to listen to while I can hear my Dad breathing loudly or snoring, or other people eating. It makes me feel very relaxed. I also like listening to the kettle as it boils!I don't know if it's relevant, but I have a skin condition which is part of the eczema family that gets worse around my fingers when I am stressed, and so does my hearing problem. Does anyone else have similarly aggravated medical complaints? Additionally, the only other thing I can think of that has changed recently is that I have started using a new contraceptive pill to treat my bad (teenage!) skin. I can't imagine hormonal treatment is affecting my ears, though.Another thing that a lady pointed out to me on a forum is if I have underlying mental health problems, they are sometimes associated. I am certainly very paranoid and have an amazingly overactive imagination (the tiniest noise at night makes me panic someone else might be in the house) and sometimes I worry too much about trivial things.I'm just trying to pick out things that might be related to 4S, and see if anyone else has similar situations, I suppose. I'm sorry if any of it is completely irrelevant!I hope I can soon start offering helpful thoughts and suggestions to the rest of you members. =)Take care! Marina x

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> > Hi everyone!> > I wanted to make an introduction. My name is Marina (or you can call me either one of those names - most people just use ) and I'm 20 years old, from England. In the last few months I've been noticing small sounds more and more often. These include the dreaded eating noises, high heels, flip flops, tapping, clicking...(though not of keyboards and mice, because that would be a nightmare at work...I'm an ICT Apprentice!).

Hi ,

This is going to be a long reply.

You are not the only UK resident on here - although we do seem to be in a bit of a minority. Most of the members are from the US - not surprising given the relative size of the countries - and there are a few from elsewhere as well.

> I am pleased to say that I have made an appointment to go to Audiology and E.N.T. in my local NHS hospital, after being referred by my GP's practice nurse. It has been rearranged several times but as of today, it's on the 5th of February.> > I wondered what experiences anyone has with diagnosis and treatment under NHS care? My family doesn't have a private healthcare plan (we have always been treated very well by the NHS!) so I can't really afford to go to anywhere private if I need to. I did hear tales of a man getting diagnosed properly at an NHS hospital and they even provided him with in-ear noise generators. So, if anyone has any experiences with the NHS they can share with me, that would be great.

I might be that man! I saw my GP when I first became aware of annoying noises back in the mid-80s (after a few months of trying to struggle through without saying anything because it is such a weird thing to try to explain to people - espcially those closest to you). They had no idea and I was sent for hearing tests, brain scans and appointments with a child psychologist. My parents even paid for some private appointments to see if that could show anything - nothing.

That was in Southampton - I moved away to university in Cardiff in 1990 and thought I'd try with a new doctor. Again he didn't really know anything, and I had an appointment at the local psychiatric hospital as well before they managed to pass me on to the Welsh Hearing Institute at the local hospital. At about the same time my uncle in Canada found an article about hyperacusis in the Toronto Star and sent it across to me - I took it along to my next appointment and we went on from there; I was given some sound generators and I have been using them ever since. I have an appointment for some new ones and a review next Monday in Hull (where I now live).

As time has gone on I became more aware that this was not hyperacusis, but something different and eventually I found this group. From what you have read of my story you will probably notice that the NHS doctors don't really know anything about this - I was moved from pillar to post and when I did get somewhere it was through chance - an article seen by my uncle that I passed on. Don't let this discourage you - it is more to do with the lack of knowledge rather than a poor NHS. All doctors I saw wanted to help, but the knowledge isn't there.

Print off some articles from this site (and a very good one that could also be used is Dr 's at http://audiology.advanceweb.com/Article/Selective-Sound-Sensitivity-Syndrome.aspx?zz=0) to take with you when you have your appointment. And good luck.

> My biggest problem is with my Dad, at mealtimes. I love him very much, but I find it very hard to deal with his noises. I think he has a problem with his sinuses, and has in the last year lost the last of his back teeth in one side of his mouth, and he keeps eating with his mouth slightly open, breathing heavily, and smacking his lips. I find it very frustrating and sometimes it makes me feel very nauseous. However I don't feel I can talk to him about it because I don't want to upset him. This is a massive character flaw of mine! I am always putting other peoples' feelings first.

It is always difficult to raise this issue - especially with your family.A lot of people have their father as their main trigger. You do need to talk to him about it - but make sure that you let him know that it isn't just him. He will probably try to understand, but I think it is impossible for people to really understand unless they live with this.

And being aware of the feelings of others is NOT a character flaw :)

> Today, I went quite mad because I was sat next to a friend on our helpdesk, and he clicks his pen all day, clicks his tongue and at one point started playing with a large boardmarker pen lid, which makes a tremendous snapping noise when pulled off and put back on. I flinched each time he did that, and with the others I just found myself cramming my fingers in my ears. I did ask him to stop after about an hour of pen clicking this morning, and he apologised, but it seems it's second nature to him and he doesn't notice he's doing it.

Work situations can be a nightmare. I am currently unemployed - a long story in itself - but in my last post I was in an office environment, and keyboards are a bit of a problem to me. More to the point for me was that several people in the office are habitual whistlers - I could be faced with hours of whistling to put up with each day. So in a way was glad to get out - my only problem now is finding something else and managing to pay the mortgage!

Hope this helps a bit

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Actually, I had been on this pill for quite some time (since June, perhaps?).

I've been on some sort of pill for two or three years, anyway!

If you were interested, I've been on Microgynon (Lessina), Cerazette (Organon),

and now Dianette (co-cyprindiol - banned in the US I think!).

And now I think about it, I believe I've always been a little bit sound

sensitive...I can't stand music as loud as my friends and boyfriend do (but I

did do okay at a concert with my best friend :D ...apart from the support bands

whose sound system vibrated like you wouldn't believe) and I used to be

sensitive to atmospheric pressure. Not the headachey kind of sensitive, but I

used to be able to tell something was not quite right.

I can also hear things like the whine of CRT TVs, and I could tell my Wii power

supply was faulty, even though nobody else can hear it. I also flinch when my

Dad scrapes his knife on his plate (he doesn't know his own strength - he

manages to do this even cutting carrots or something just as soft), and when

someone's got very squeaky car brakes.

In other news, do you think it's a good idea that I take some printouts from

soundsensitive.org to my Audiology/E.N.T. appointment? It is an extremely good

hospital, but I am aware that this is not a very well known medical complaint,

and I want to give myself the best chance for them to help me out!

Take care

Marina x

>

> Wow, you say you just started getting it this year? That's a really late

onset, but it is interesting that you recently started the pill. We always

wonder if it has something to do with hormones.

>

> You sound like you have classic 4s. Don't be bummed if the doctors there

don't know what it is, or say you have an anxiety disorder or something. Or

maybe an OCD or phobia.

>

> We have been trying to get research done, but otherwise the medical community

doesn't seem to have any answers for us.

>

> Take care!

>

> New to this!

>

>

> Hi everyone!

>

> I wanted to make an introduction. My name is Marina (or you can call me

either one of those names - most people just use ) and I'm 20 years old,

from England. In the last few months I've been noticing small sounds more and

more often. These include the dreaded eating noises, high heels, flip flops,

tapping, clicking...(though not of keyboards and mice, because that would be a

nightmare at work...I'm an ICT Apprentice!).

>

> I am pleased to say that I have made an appointment to go to Audiology and

E.N.T. in my local NHS hospital, after being referred by my GP's practice nurse.

It has been rearranged several times but as of today, it's on the 5th of

February.

>

> I wondered what experiences anyone has with diagnosis and treatment under NHS

care? My family doesn't have a private healthcare plan (we have always been

treated very well by the NHS!) so I can't really afford to go to anywhere

private if I need to. I did hear tales of a man getting diagnosed properly at an

NHS hospital and they even provided him with in-ear noise generators. So, if

anyone has any experiences with the NHS they can share with me, that would be

great.

>

> My biggest problem is with my Dad, at mealtimes. I love him very much, but I

find it very hard to deal with his noises. I think he has a problem with his

sinuses, and has in the last year lost the last of his back teeth in one side of

his mouth, and he keeps eating with his mouth slightly open, breathing heavily,

and smacking his lips. I find it very frustrating and sometimes it makes me feel

very nauseous. However I don't feel I can talk to him about it because I don't

want to upset him. This is a massive character flaw of mine! I am always putting

other peoples' feelings first.

>

> Today, I went quite mad because I was sat next to a friend on our helpdesk,

and he clicks his pen all day, clicks his tongue and at one point started

playing with a large boardmarker pen lid, which makes a tremendous snapping

noise when pulled off and put back on. I flinched each time he did that, and

with the others I just found myself cramming my fingers in my ears. I did ask

him to stop after about an hour of pen clicking this morning, and he apologised,

but it seems it's second nature to him and he doesn't notice he's doing it.

>

> I seem to have a very high tolerance of annoyances when I need to, unless it's

someone I can open up to that vaguely appreciates my situation. My mother and my

boyfriend are two of these people, though the latter has tried to convince me I

am just easily annoyed on more than one occasion, or that I have read too much

about 4S and convinced myself I have it. I think he's starting to get it now,

watching me freak out and cry when he eats next to me, and he's told me he's

making a conscious effort not to make any noises that will annoy me.

>

> When we discussed it before, too, he helped me find a free 20-minute MP3 of

pink noise, which is nice to listen to while I can hear my Dad breathing loudly

or snoring, or other people eating. It makes me feel very relaxed. I also like

listening to the kettle as it boils!

>

> I don't know if it's relevant, but I have a skin condition which is part of

the eczema family that gets worse around my fingers when I am stressed, and so

does my hearing problem. Does anyone else have similarly aggravated medical

complaints? Additionally, the only other thing I can think of that has changed

recently is that I have started using a new contraceptive pill to treat my bad

(teenage!) skin. I can't imagine hormonal treatment is affecting my ears,

though.

>

> Another thing that a lady pointed out to me on a forum is if I have underlying

mental health problems, they are sometimes associated. I am certainly very

paranoid and have an amazingly overactive imagination (the tiniest noise at

night makes me panic someone else might be in the house) and sometimes I worry

too much about trivial things.

>

> I'm just trying to pick out things that might be related to 4S, and see if

anyone else has similar situations, I suppose. I'm sorry if any of it is

completely irrelevant!

>

> I hope I can soon start offering helpful thoughts and suggestions to the rest

of you members. =)

>

> Take care!

>

> Marina x

>

>

>

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It couldn't hurt to take some info, but don't be surprised if they roll

their eyes and say the usual " you can't believe everything you read on the

internet. " Doctors don't like it when we try to inform or research for

ourselves. It somehow offends them.

Good luck!

New to this!

>

>

> Hi everyone!

>

> I wanted to make an introduction. My name is Marina (or you can call

me either one of those names - most people just use ) and I'm 20 years

old, from England. In the last few months I've been noticing small sounds

more and more often. These include the dreaded eating noises, high heels,

flip flops, tapping, clicking...(though not of keyboards and mice, because

that would be a nightmare at work...I'm an ICT Apprentice!).

>

> I am pleased to say that I have made an appointment to go to Audiology and

E.N.T. in my local NHS hospital, after being referred by my GP's practice

nurse. It has been rearranged several times but as of today, it's on the 5th

of February.

>

> I wondered what experiences anyone has with diagnosis and treatment under

NHS care? My family doesn't have a private healthcare plan (we have always

been treated very well by the NHS!) so I can't really afford to go to

anywhere private if I need to. I did hear tales of a man getting diagnosed

properly at an NHS hospital and they even provided him with in-ear noise

generators. So, if anyone has any experiences with the NHS they can share

with me, that would be great.

>

> My biggest problem is with my Dad, at mealtimes. I love him very much, but

I find it very hard to deal with his noises. I think he has a problem with

his sinuses, and has in the last year lost the last of his back teeth in one

side of his mouth, and he keeps eating with his mouth slightly open,

breathing heavily, and smacking his lips. I find it very frustrating and

sometimes it makes me feel very nauseous. However I don't feel I can talk to

him about it because I don't want to upset him. This is a massive character

flaw of mine! I am always putting other peoples' feelings first.

>

> Today, I went quite mad because I was sat next to a friend on our

helpdesk, and he clicks his pen all day, clicks his tongue and at one point

started playing with a large boardmarker pen lid, which makes a tremendous

snapping noise when pulled off and put back on. I flinched each time he did

that, and with the others I just found myself cramming my fingers in my

ears. I did ask him to stop after about an hour of pen clicking this

morning, and he apologised, but it seems it's second nature to him and he

doesn't notice he's doing it.

>

> I seem to have a very high tolerance of annoyances when I need to, unless

it's someone I can open up to that vaguely appreciates my situation. My

mother and my boyfriend are two of these people, though the latter has tried

to convince me I am just easily annoyed on more than one occasion, or that I

have read too much about 4S and convinced myself I have it. I think he's

starting to get it now, watching me freak out and cry when he eats next to

me, and he's told me he's making a conscious effort not to make any noises

that will annoy me.

>

> When we discussed it before, too, he helped me find a free 20-minute MP3

of pink noise, which is nice to listen to while I can hear my Dad breathing

loudly or snoring, or other people eating. It makes me feel very relaxed. I

also like listening to the kettle as it boils!

>

> I don't know if it's relevant, but I have a skin condition which is part

of the eczema family that gets worse around my fingers when I am stressed,

and so does my hearing problem. Does anyone else have similarly aggravated

medical complaints? Additionally, the only other thing I can think of that

has changed recently is that I have started using a new contraceptive pill

to treat my bad (teenage!) skin. I can't imagine hormonal treatment is

affecting my ears, though.

>

> Another thing that a lady pointed out to me on a forum is if I have

underlying mental health problems, they are sometimes associated. I am

certainly very paranoid and have an amazingly overactive imagination (the

tiniest noise at night makes me panic someone else might be in the house)

and sometimes I worry too much about trivial things.

>

> I'm just trying to pick out things that might be related to 4S, and see if

anyone else has similar situations, I suppose. I'm sorry if any of it is

completely irrelevant!

>

> I hope I can soon start offering helpful thoughts and suggestions to the

rest of you members. =)

>

> Take care!

>

> Marina x

>

>

>

------------------------------------

PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO

BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR

REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.

ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.

Thank you. MJ

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Hi , It would be a good idea to take a printout of this article by Dr. J to your appointment. They will hopefully recognize this magazine as a credible source as Audiologists. http://audiology. advanceweb. com/Article/ Selective- Sound-Sensitivit y-Syndrome. aspxGood Luck!To:

Soundsensitivity Sent: Thu, January 14, 2010 2:45:44 PMSubject: Re: New to this!

Actually, I had been on this pill for quite some time (since June, perhaps?). I've been on some sort of pill for two or three years, anyway!If you were interested, I've been on Microgynon (Lessina), Cerazette (Organon), and now Dianette (co-cyprindiol - banned in the US I think!).And now I think about it, I believe I've always been a little bit sound sensitive...I can't stand music as loud as my friends and boyfriend do (but I did do okay at a concert with my best friend :D ...apart from the support bands whose sound system vibrated like you wouldn't believe) and I used to be sensitive to atmospheric pressure. Not the headachey kind of sensitive, but I used to be able to tell something was not quite right.I can also hear things like the whine of CRT TVs, and I could tell my Wii power supply was faulty, even though nobody else can hear it. I also flinch when my Dad scrapes his knife on his plate (he doesn't know his own strength -

he manages to do this even cutting carrots or something just as soft), and when someone's got very squeaky car brakes.In other news, do you think it's a good idea that I take some printouts from soundsensitive.org to my Audiology/E.N.T. appointment? It is an extremely good hospital, but I am aware that this is not a very well known medical complaint, and I want to give myself the best chance for them to help me out!Take care Marina x> > Wow, you say you just started getting it this year? That's a really late onset, but it is interesting that you recently started the pill. We always wonder if it has something to do with hormones.> > You sound like you have classic 4s. Don't be bummed if the doctors there don't know what it is, or say you have an anxiety disorder or

something. Or maybe an OCD or phobia. > > We have been trying to get research done, but otherwise the medical community doesn't seem to have any answers for us.> > Take care!> > New to this!> > > Hi everyone!> > I wanted to make an introduction. My name is Marina

(or you can call me either one of those names - most people just use ) and I'm 20 years old, from England. In the last few months I've been noticing small sounds more and more often. These include the dreaded eating noises, high heels, flip flops, tapping, clicking...(though not of keyboards and mice, because that would be a nightmare at work...I'm an ICT Apprentice!).> > I am pleased to say that I have made an appointment to go to Audiology and E.N.T. in my local NHS hospital, after being referred by my GP's practice nurse. It has been rearranged several times but as of today, it's on the 5th of February.> > I wondered what experiences anyone has with diagnosis and treatment under NHS care? My family doesn't have a private healthcare plan (we have always been treated very well by the NHS!) so I can't really afford to go to anywhere private if I need to. I did hear tales of a man getting diagnosed properly at an NHS

hospital and they even provided him with in-ear noise generators. So, if anyone has any experiences with the NHS they can share with me, that would be great.> > My biggest problem is with my Dad, at mealtimes. I love him very much, but I find it very hard to deal with his noises. I think he has a problem with his sinuses, and has in the last year lost the last of his back teeth in one side of his mouth, and he keeps eating with his mouth slightly open, breathing heavily, and smacking his lips. I find it very frustrating and sometimes it makes me feel very nauseous. However I don't feel I can talk to him about it because I don't want to upset him. This is a massive character flaw of mine! I am always putting other peoples' feelings first.> > Today, I went quite mad because I was sat next to a friend on our helpdesk, and he clicks his pen all day, clicks his tongue and at one point started playing with a large boardmarker pen

lid, which makes a tremendous snapping noise when pulled off and put back on. I flinched each time he did that, and with the others I just found myself cramming my fingers in my ears. I did ask him to stop after about an hour of pen clicking this morning, and he apologised, but it seems it's second nature to him and he doesn't notice he's doing it.> > I seem to have a very high tolerance of annoyances when I need to, unless it's someone I can open up to that vaguely appreciates my situation. My mother and my boyfriend are two of these people, though the latter has tried to convince me I am just easily annoyed on more than one occasion, or that I have read too much about 4S and convinced myself I have it. I think he's starting to get it now, watching me freak out and cry when he eats next to me, and he's told me he's making a conscious effort not to make any noises that will annoy me.> > When we discussed it

before, too, he helped me find a free 20-minute MP3 of pink noise, which is nice to listen to while I can hear my Dad breathing loudly or snoring, or other people eating. It makes me feel very relaxed. I also like listening to the kettle as it boils!> > I don't know if it's relevant, but I have a skin condition which is part of the eczema family that gets worse around my fingers when I am stressed, and so does my hearing problem. Does anyone else have similarly aggravated medical complaints? Additionally, the only other thing I can think of that has changed recently is that I have started using a new contraceptive pill to treat my bad (teenage!) skin. I can't imagine hormonal treatment is affecting my ears, though.> > Another thing that a lady pointed out to me on a forum is if I have underlying mental health problems, they are sometimes associated. I am certainly very paranoid and have an amazingly overactive imagination

(the tiniest noise at night makes me panic someone else might be in the house) and sometimes I worry too much about trivial things.> > I'm just trying to pick out things that might be related to 4S, and see if anyone else has similar situations, I suppose. I'm sorry if any of it is completely irrelevant!> > I hope I can soon start offering helpful thoughts and suggestions to the rest of you members. =)> > Take care!> > Marina x> > > ------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

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Thank you to you and Kathy for your replies, I'll print this out and keep both your advice in mind while I'm there!I know how people react when I say I found out about this on the internet, so I will try not to be discouraged.

Hi , It would be a good idea to take a printout of this article by Dr. J to your appointment. They will hopefully recognize this magazine as a credible source as Audiologists. http://audiology. advanceweb. com/Article/ Selective- Sound-Sensitivit y-Syndrome. aspxGood Luck!From: Marina Greening <camisadome>To:

Soundsensitivity Sent: Thu, January 14, 2010 2:45:44 PMSubject: Re: New to this!

Actually, I had been on this pill for quite some time (since June, perhaps?). I've been on some sort of pill for two or three years, anyway!If you were interested, I've been on Microgynon (Lessina), Cerazette (Organon), and now Dianette (co-cyprindiol - banned in the US I think!).And now I think about it, I believe I've always been a little bit sound sensitive...I can't stand music as loud as my friends and boyfriend do (but I did do okay at a concert with my best friend :D ...apart from the support bands whose sound system vibrated like you wouldn't believe) and I used to be sensitive to atmospheric pressure. Not the headachey kind of sensitive, but I used to be able to tell something was not quite right.I can also hear things like the whine of CRT TVs, and I could tell my Wii power supply was faulty, even though nobody else can hear it. I also flinch when my Dad scrapes his knife on his plate (he doesn't know his own strength -

he manages to do this even cutting carrots or something just as soft), and when someone's got very squeaky car brakes.In other news, do you think it's a good idea that I take some printouts from soundsensitive.org to my Audiology/E.N.T. appointment? It is an extremely good hospital, but I am aware that this is not a very well known medical complaint, and I want to give myself the best chance for them to help me out!Take care Marina x> > Wow, you say you just started getting it this year? That's a really late onset, but it is interesting that you recently started the pill. We always wonder if it has something to do with hormones.> > You sound like you have classic 4s. Don't be bummed if the doctors there don't know what it is, or say you have an anxiety disorder or

something. Or maybe an OCD or phobia. > > We have been trying to get research done, but otherwise the medical community doesn't seem to have any answers for us.> > Take care!> > New to this!> > > Hi everyone!> > I wanted to make an introduction. My name is Marina

(or you can call me either one of those names - most people just use ) and I'm 20 years old, from England. In the last few months I've been noticing small sounds more and more often. These include the dreaded eating noises, high heels, flip flops, tapping, clicking...(though not of keyboards and mice, because that would be a nightmare at work...I'm an ICT Apprentice!).> > I am pleased to say that I have made an appointment to go to Audiology and E.N.T. in my local NHS hospital, after being referred by my GP's practice nurse. It has been rearranged several times but as of today, it's on the 5th of February.> > I wondered what experiences anyone has with diagnosis and treatment under NHS care? My family doesn't have a private healthcare plan (we have always been treated very well by the NHS!) so I can't really afford to go to anywhere private if I need to. I did hear tales of a man getting diagnosed properly at an NHS

hospital and they even provided him with in-ear noise generators. So, if anyone has any experiences with the NHS they can share with me, that would be great.> > My biggest problem is with my Dad, at mealtimes. I love him very much, but I find it very hard to deal with his noises. I think he has a problem with his sinuses, and has in the last year lost the last of his back teeth in one side of his mouth, and he keeps eating with his mouth slightly open, breathing heavily, and smacking his lips. I find it very frustrating and sometimes it makes me feel very nauseous. However I don't feel I can talk to him about it because I don't want to upset him. This is a massive character flaw of mine! I am always putting other peoples' feelings first.> > Today, I went quite mad because I was sat next to a friend on our helpdesk, and he clicks his pen all day, clicks his tongue and at one point started playing with a large boardmarker pen

lid, which makes a tremendous snapping noise when pulled off and put back on. I flinched each time he did that, and with the others I just found myself cramming my fingers in my ears. I did ask him to stop after about an hour of pen clicking this morning, and he apologised, but it seems it's second nature to him and he doesn't notice he's doing it.> > I seem to have a very high tolerance of annoyances when I need to, unless it's someone I can open up to that vaguely appreciates my situation. My mother and my boyfriend are two of these people, though the latter has tried to convince me I am just easily annoyed on more than one occasion, or that I have read too much about 4S and convinced myself I have it. I think he's starting to get it now, watching me freak out and cry when he eats next to me, and he's told me he's making a conscious effort not to make any noises that will annoy me.> > When we discussed it

before, too, he helped me find a free 20-minute MP3 of pink noise, which is nice to listen to while I can hear my Dad breathing loudly or snoring, or other people eating. It makes me feel very relaxed. I also like listening to the kettle as it boils!> > I don't know if it's relevant, but I have a skin condition which is part of the eczema family that gets worse around my fingers when I am stressed, and so does my hearing problem. Does anyone else have similarly aggravated medical complaints? Additionally, the only other thing I can think of that has changed recently is that I have started using a new contraceptive pill to treat my bad (teenage!) skin. I can't imagine hormonal treatment is affecting my ears, though.> > Another thing that a lady pointed out to me on a forum is if I have underlying mental health problems, they are sometimes associated. I am certainly very paranoid and have an amazingly overactive imagination

(the tiniest noise at night makes me panic someone else might be in the house) and sometimes I worry too much about trivial things.> > I'm just trying to pick out things that might be related to 4S, and see if anyone else has similar situations, I suppose. I'm sorry if any of it is completely irrelevant!> > I hope I can soon start offering helpful thoughts and suggestions to the rest of you members. =)> > Take care!> > Marina x> > > ------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

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