- 5-7 years

[Guest guest]

Hi -

I was always told and was under the perception that the 5-7

year timeline was upon diagnosis. My dad fit it perfectly.

Of course he had had symptoms before diagnosis, hence

the need to be tested.

I do believe that upon diagnosis our loved ones are far enough

advanced that it would be a bit easier to put into a 'stage' so

to speak as opposed to only seeing a sign or symptom from

time to time before there is a real need for caregiving.

Hope this make sense, I am still up, have to work tomorrow

and I am tired...zzzzzzz

Good night-

Sandie

-- Causes of LBD

While I was constructing a message to you all about my Dad for the list

of

possible common denominators of LBD, I couldn't help but think

something

was missing (for me anyway).

Forgive me for this .. but my Dad is still alive and I can't help but

wonder

how much longer we may have with him. Could we add a question to the

survey

that looks at the length of the disease? In otherwords, for those who

have

lost their LO's could you tell us the time period from diagnosis to the

end?

Also, I would surely appreciate knowing what, if anything, struck you

at or

near the end that would be helpful to those of us still in the midst of

this.

I live in Missouri and my Dad is in Michigan. I want to be with him

every

minute but can't. But, I sure want a chance to say goodbye and would

like

to be with him at the end. If I knew of any warning signs I could jump

in

the car and be there in 12 hours....

Thanks for understanding.