Double Joints

[Guest guest]

Hi everyone,

Today I had my follow up meeting with my orthopaedic doc about my elbow. But

that is not the interesting thing.

In July he classified my double joints / hypermobility / very flexible joints /

hyperlaxity as the following:

Ehler Danlos Syndrome

Apparently this is the official name given to an assortment of related similar

genetic disorders. In my case, I have class 3 which is hyperlax / hypermobile

joints.

From my basic reading of this, essential it is a problem with collagen (hmmm

another protein disorder) production in the connective tissues (read ligaments).

Ehlers Danlos is categorised by:

.. Very loose joints

.. Joint pain (caused by the nerve encasement in the collagen being

disturbed / not optimal)

.. Easily dislocated joints (esp knees, shoulders, you name it)

.. Muscle lack of response to trauma (meaning muscles are slow to tighten

due to constant hyperlax state - leading to diminished reflexes in some cases)

And lots of other things that made me think of a lot of posts I have read.

This is a hereditary genetic condition too, like CMT. I was diagnosed with this

as I had dislocated my elbow and in a lot of the tests around my high arches in

2004 (when I wanted to walk a marathon and asked for shoe inserts I wound up

seeing way more than an orthotist and walking away with way more than plastic

for my shoes). It is something that I think maybe a lot of people would relate

to.

Check out google, Wikipedia and the medical sites and if you think it

relevant mention it to your doctor too. I wonder how many of us have this as

well?

Best wishes,

Donna from London