CMT 2

[Guest guest]

good morning RUTH

thank you.l understand you very good. did you diagnoses to cmt 2 ??? certain..

what did they do??ın the ray, are you 76 in year old.this very beatiful.

absolutey CMT when did start? and excuse me.. english very good meanıng.

are you married?ıs the child?but important to good friend.

running isnt important. ıt is sufficient to walk.the life is going on..the

diagnosis didn't place me. genetik test get out to cmt 1 for this reason l

think ı have cmt 2.the hope must not lose. because the medicine is rapidly to

advance.

cmt2 sypmstoms are worse??? are you using wheelchair? god to become help. you

understand but ı not to tell complete.

l have gone to private college.l have learn some english. l am working in the

ray.l am living in the my famliy. and l am engegad. he is a soldier.

thanks again. good bye

Emine

[Guest guest]

HELLO GRETCHEN,

how are you been? have you got cmt 2? really? stems cell or c vit. there are

study? Is there the hope? I dont read complete e-mails.the summer resulted

shortly please. good bye

Emine

[Guest guest]

Hello Emine,

Yes, according to my last EMG, which I asked for a copy of the testing

doctor's findings, all Nerve Conduction Velocities are in the " normal "

range, he said this suggests reinnervation, which is indicative of CMT

Type 2. I have not had any genetic testing, however.

Stem cell research for many neuromuscular diseases is going on mostly

in parts of Europe and Asia, with some starting in the US. Vitamin C

trials for CMT 1A are going on all over the world now - Europe, USA,

Australia. It will take a few years for the research to be complete

and for us to hear about it.

Summer is not really over where I live, but the evening light is

growing darker earlier, but still I have candles for meditation in my

garden.

~ Gretchen in Southern California