Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 Hi Tammy, Welcome! It is good to know that there are sitters(caregivers) out there that take such an interest in learning more about the disease and it's behaviors. Also, the support here is wonderful and you will learn a lot and find that you are not alone in what you are dealing with........Jan Colello We have two people on this site that actually have LBD and communicate with us about their feelings and everyday frustrations. Despite their dealing with LBD, they are cheerful and helpful in letting us know the other side and what our Loved Ones are possibly feeling. Their names are Patti and Chip, if you should see them on the site. It is so good to have them here, we are very fortunate to hear from them. --- Tammy Castille wrote: > I am looking forward to learning more about LBD and > hopefully that will help me deal with the problems > that arise. I am a sitter who doesn't have alot of > medical experience. But I do know that I need help. > Thanks for allowing me into this group. I am sure I > will get the help I need and the support. > Thanks again > > > --------------------------------- > Start your day with Yahoo! - make it your home page > > > [Non-text portions of this message have been > removed] > > ____________________________________________________ Start your day with Yahoo! - make it your home page http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 Hi Tammy, I am sorry to hear that yesterday was so hard on you. Hopefully, your day went better today. I am an acronym idiot! I have only learned the ones that are common on this site. Could you please explain what RA andCOPD are and Also, please explain Sweets Syndrome. This poor lady is so young and has so many things going on. I am in awe that you can handle all this. I hope that you are getting some relief and able to take care of your own health too. You said that you are the sitter. Are you at the house 24/7? Many of us experience the hallucinating and delusions also. What you said about Ms M and her husband locking her in an appliance store, is similar to some of our experiences with our LOs. Somehow they get things into their heads that aren't true and you can't convince them otherwise. The part about the furniture being moved to another house that looks like hers, is the " Capgras Syndrome " that we have been discussing here. Even though it is her house, she sees it as an identical house, but not hers. They can visualize people, animals and objects as not theirs, but looks the same. It is a losing battle for you to try to convincer her that she is wrong about the things you have mentioned. One lady on this site said that everytime her LO(Loved One) accused her of being another person that did the bad behavior, she would say no I'm the good one, that was the bad one that did that to you. She would repeat it everytime her LO accused her. " Remember, I'm the good one, " so now her LO will say, " oh yeah, that was the bad one and not you. " Sometimes we just have to play along. Most of the time our LOs can't remember what they said a day later. It may make her feel badly if you correct her and make her think she is crazy. They already know something is wrong with them. Remember, it is the disease acting out and not Ms.M. That is why you have good days with her too. Is Ms. M on Seroquel? It is helpful to some of our LOs to calm them. Take Care Tammy and know that you are not alone in most of the things that you are experiencing, with the exception of all the other things that poor Ms. M has been diagnosed with............Jan Colello --- Tammy Castille wrote: > Friday was a very hard day for me. Ms M was in rare > form. I guess I bettter give a little more > background about her. She also has RA wich has made > her almost bed ridden. She has had 3 strokes and has > gone blind in one eye due to a severe eye infection. > She has Sweets Syndrome, and has had a bilateral > mystectomy for breast cancer. She also has COPD > along with asthma. She is a very sick woman. She is > only 58. When she is with it, she is wonderful > person to be around, but lately she seems to be > getting worse. She tells me that her husband broke > her hand, left her in a warehouse down the road, and > she and her husband got locked in an appliance > store. I know she hasn't gone anywhere because I'm > the one that bathes her and gets her dressed. She > thinks she is not in her home, but that men have > come and moverd her furniture to another house that > looks like hers. She is also having conversations > with her deceased mother and father. How do I handle > her? Do I correct her? Sometimes when I do > she gets mad and tells me I'm lying to her. Then in > the next breath she tells me to tell her if she is > crazy. What do I do? Any suggestions would be > welcome. > Tammy > > Close wrote: > What a wonderful person you are! I wish we had a > sitter for my father who wanted to learn more. I > know you will find lots of information here that > will help you care for the patient and be helpful to > the family. Thank you for your caring! > > Tammy Castille wrote:I am looking > forward to learning more about LBD and hopefully > that will help me deal with the problems that arise. > I am a sitter who doesn't have alot of medical > experience. But I do know that I need help. Thanks > for allowing me into this group. I am sure I will > get the help I need and the support. > Thanks again > > > --------------------------------- > Start your day with Yahoo! - make it your home page > > [Non-text portions of this message have been > removed] > > > > Welcome to LBDcaregivers. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 Hey Jan, RA is Rheumatiod Arthritis, She also has Cardio Pulminary Disorder. ( My spelling is horrible). Sweets Syndrome is bruising from barely touching the person ( as far as I know). She is a ververy sick woman. I work from 8 to 5 daily. I do what I can to help her and her husband. He has heart problems and had to go to the hospital to gethis heart schocked back to normal rythem. They do have to children that help when they can,but it is getting more difficult to handle her. She is on nothing but her regular meds for RA, Depression, stomach problems. etc. Her husband is the main caregiver and I think he is scared to find out what is really wrong with her. I have talked with him and his children about getting a complete work up on her to find out the exact cause of her problems. I feel like my hands are tied. I hate to see her like she is, but I know something is wrong. All I can do is keep on talking to him and try to deal with what she gives out. One of her daughters is really trying to help, I am hoping with both of us we can get some answers. Thanks for taking the time to answer me. Tammy Janet Colello wrote: Hi Tammy, I am sorry to hear that yesterday was so hard on you. Hopefully, your day went better today. I am an acronym idiot! I have only learned the ones that are common on this site. Could you please explain what RA andCOPD are and Also, please explain Sweets Syndrome. This poor lady is so young and has so many things going on. I am in awe that you can handle all this. I hope that you are getting some relief and able to take care of your own health too. You said that you are the sitter. Are you at the house 24/7? Many of us experience the hallucinating and delusions also. What you said about Ms M and her husband locking her in an appliance store, is similar to some of our experiences with our LOs. Somehow they get things into their heads that aren't true and you can't convince them otherwise. The part about the furniture being moved to another house that looks like hers, is the " Capgras Syndrome " that we have been discussing here. Even though it is her house, she sees it as an identical house, but not hers. They can visualize people, animals and objects as not theirs, but looks the same. It is a losing battle for you to try to convincer her that she is wrong about the things you have mentioned. One lady on this site said that everytime her LO(Loved One) accused her of being another person that did the bad behavior, she would say no I'm the good one, that was the bad one that did that to you. She would repeat it everytime her LO accused her. " Remember, I'm the good one, " so now her LO will say, " oh yeah, that was the bad one and not you. " Sometimes we just have to play along. Most of the time our LOs can't remember what they said a day later. It may make her feel badly if you correct her and make her think she is crazy. They already know something is wrong with them. Remember, it is the disease acting out and not Ms.M. That is why you have good days with her too. Is Ms. M on Seroquel? It is helpful to some of our LOs to calm them. Take Care Tammy and know that you are not alone in most of the things that you are experiencing, with the exception of all the other things that poor Ms. M has been diagnosed with............Jan Colello --- Tammy Castille wrote: > Friday was a very hard day for me. Ms M was in rare > form. I guess I bettter give a little more > background about her. She also has RA wich has made > her almost bed ridden. She has had 3 strokes and has > gone blind in one eye due to a severe eye infection. > She has Sweets Syndrome, and has had a bilateral > mystectomy for breast cancer. She also has COPD > along with asthma. She is a very sick woman. She is > only 58. When she is with it, she is wonderful > person to be around, but lately she seems to be > getting worse. She tells me that her husband broke > her hand, left her in a warehouse down the road, and > she and her husband got locked in an appliance > store. I know she hasn't gone anywhere because I'm > the one that bathes her and gets her dressed. She > thinks she is not in her home, but that men have > come and moverd her furniture to another house that > looks like hers. She is also having conversations > with her deceased mother and father. How do I handle > her? Do I correct her? Sometimes when I do > she gets mad and tells me I'm lying to her. Then in > the next breath she tells me to tell her if she is > crazy. What do I do? Any suggestions would be > welcome. > Tammy > > Close wrote: > What a wonderful person you are! I wish we had a > sitter for my father who wanted to learn more. I > know you will find lots of information here that > will help you care for the patient and be helpful to > the family. Thank you for your caring! > > Tammy Castille wrote:I am looking > forward to learning more about LBD and hopefully > that will help me deal with the problems that arise. > I am a sitter who doesn't have alot of medical > experience. But I do know that I need help. Thanks > for allowing me into this group. I am sure I will > get the help I need and the support. > Thanks again > > > --------------------------------- > Start your day with Yahoo! - make it your home page > > [Non-text portions of this message have been > removed] > > > > Welcome to LBDcaregivers. > > > > > > Quote Link to comment Share on other sites More sharing options...
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