Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Darlene, we will keep in our prayers and I'll have her put on our prayer line at church. CHOP is a wonderful hospital and they make everything easy for the children. My and Tommy have both had surgery or procedures there. She is in great hands-be at peace mom. God Bless, Sharon Wilt mom to 15mds, ds 14 today and Tommy 10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Darlene Your and your family will be in my prayers. Let us know how the surgery goes. Take care of yourself. a Mom to Brannon 2 yrs old w/mds and le 2 mths > > > Hello All - > I have been so busy lately that I have not had a chance to write. However, > is going in for surgery on Monday 5/6 and I wanted to tell you. The > surgery is going to be performed on her small intestine, the Doctor said > that it is a common surgery (they do it 4 or 6 times a year) and that they > see this problem in children with DS. Usually it is seen in infants (and > is now 3). The reason for the surgery is either an annular pancreas > (where the pancreas wraps itself around the small intestine and cuts off the > flow of food) or duodenum banding or webbing (where something else > (partially) blocks the small intestine). The surgery will be the same > procedure. They are going to put in a " bypass " to help the food along in > addition to the normal route that food normally goes > is eating and gaining some weight, but she usually vomits about > once or twice a month - we tracked her food intake and it doesn't seem to be > anything in particular that triggers the vomiting - however it usually > happens at night but the last time was in the morning. We had a Upper GI > done and they found that until the small intestine her digestion is fine - > but food enters the small intestine and doesn't seem to go anywhere - The > Doctor said that the top of the small intestine is stretched to three times > the normal size. > After they do the surgery they will tell us what they found. I am a > little nervous about the surgery - I trust the hospital - CHOP was very good > when was only 4 months old and she was there for 2 weeks. Now she is > much older, bigger, and stronger. And I trust the Doctor, he does this > usually on infants. It is the anesthesia I worry about - has never > been under anesthesia before even during an MRI she laid on the table and > didn't move while held onto her. I worry about how it will affect her. > > Well, just wanted to let you know. > > Darlene > Mom to (5) and (3)MDS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Hi Darlene went through something similar hers was a 2 inch blockage in her bowel, (duodenal atresia ) had surgery 1 day old , no problems at all then or now , got well very quick, I'll be thinking of you and hope makes a speedy recovery, Judy mum to 9 mds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Darlene, Thank You so much for letting us know about ! I am praying for her and for your whole family. Hopefully this surgery will help her to be able to have better health, and be able to eat better and not get sick and to gain any weight she needs to gain. I absolutely know what you mean when you say you are worried about the anesthesia. I can get myself in that same place of worry about the heart surgery the doctor's propose at some time for Jonas. I pray for peace of mind for you, and for God's hands to be on 's surgeons. Let us know how she is doing when you have a chance. God's Blessings on Your Family! Barb Martz Mom to Jonas 18 mo (MDS) & 7 Surgery for Hello All - I have been so busy lately that I have not had a chance to write. However, is going in for surgery on Monday 5/6 and I wanted to tell you. The surgery is going to be performed on her small intestine, the Doctor said that it is a common surgery (they do it 4 or 6 times a year) and that they see this problem in children with DS. Usually it is seen in infants (and is now 3). The reason for the surgery is either an annular pancreas (where the pancreas wraps itself around the small intestine and cuts off the flow of food) or duodenum banding or webbing (where something else (partially) blocks the small intestine). The surgery will be the same procedure. They are going to put in a "bypass" to help the food along in addition to the normal route that food normally goes is eating and gaining some weight, but she usually vomits about once or twice a month - we tracked her food intake and it doesn't seem to be anything in particular that triggers the vomiting - however it usually happens at night but the last time was in the morning. We had a Upper GI done and they found that until the small intestine her digestion is fine - but food enters the small intestine and doesn't seem to go anywhere - The Doctor said that the top of the small intestine is stretched to three times the normal size. After they do the surgery they will tell us what they found. I am a little nervous about the surgery - I trust the hospital - CHOP was very good when was only 4 months old and she was there for 2 weeks. Now she is much older, bigger, and stronger. And I trust the Doctor, he does this usually on infants. It is the anesthesia I worry about - has never been under anesthesia before even during an MRI she laid on the table and didn't move while held onto her. I worry about how it will affect her. Well, just wanted to let you know. Darlene Mom to (5) and (3)MDSWon't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com*************************************************MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus************************************************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 is in my prayers as well... also had an intestinal blockage at birth, something called Hirschsprung's Disease. It affected his large intestine though (no nerve cells in the last several inches of his bowel, so no bowel movement) and had operations at 3 days old, 5 months old and 6 months old. Not exactly the best of times, but we all got through it!! Prayers for you as well... I'm not sure who this is harder on sometimes, the kids or the parents! Angel, Mom to 9 MDS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Hi Darlene: We will keep in our prayers. Best of luck with the surgery and recovery. Sharon (mother of Matt 7, MDS and 9) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Hi Darlene, We will keep all of you in our daily prayers, and please let us know how she is doing. Give a big hug from us. Take care! (Mom to Jakob, 7) Surgery for Hello All - I have been so busy lately that I have not had a chance to write. However, is going in for surgery on Monday 5/6 and I wanted to tell you. The surgery is going to be performed on her small intestine, the Doctor said that it is a common surgery (they do it 4 or 6 times a year) and that they see this problem in children with DS. Usually it is seen in infants (and is now 3). The reason for the surgery is either an annular pancreas (where the pancreas wraps itself around the small intestine and cuts off the flow of food) or duodenum banding or webbing (where something else (partially) blocks the small intestine). The surgery will be the same procedure. They are going to put in a "bypass" to help the food along in addition to the normal route that food normally goes is eating and gaining some weight, but she usually vomits about once or twice a month - we tracked her food intake and it doesn't seem to be anything in particular that triggers the vomiting - however it usually happens at night but the last time was in the morning. We had a Upper GI done and they found that until the small intestine her digestion is fine - but food enters the small intestine and doesn't seem to go anywhere - The Doctor said that the top of the small intestine is stretched to three times the normal size. After they do the surgery they will tell us what they found. I am a little nervous about the surgery - I trust the hospital - CHOP was very good when was only 4 months old and she was there for 2 weeks. Now she is much older, bigger, and stronger. And I trust the Doctor, he does this usually on infants. It is the anesthesia I worry about - has never been under anesthesia before even during an MRI she laid on the table and didn't move while held onto her. I worry about how it will affect her. Well, just wanted to let you know. Darlene Mom to (5) and (3)MDS Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com*************************************************MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus************************************************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2002 Report Share Posted May 3, 2002 Dear Darlene: We'll be praying for your 's speedy recovery, and you and your family will be in our thoughts on Monday- Ellen Kugel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 We will definately be praying for a successful surgery & a very speedy recovery for precious . Please let us know how she is doing as soon as you can afterwards. Hope mom to (15) (11) & (4mo. w/mds) Darlene Benoit wrote: Hello All - I have been so busy lately that I have not had a chance to write. However, is going in for surgery on Monday 5/6 and I wanted to tell you. The surgery is going to be performed on her small intestine, the Doctor said that it is a common surgery (they do it 4 or 6 times a year) and that they see this problem in children with DS. Usually it is seen in infants (and is now 3). The reason for the surgery is either an annular pancreas (where the pancreas wraps itself around the small intestine and cuts off the flow of food) or duodenum banding or webbing (where something else (partially) blocks the small intestine). The surgery will be the same procedure. They are going to put in a "bypass" to help the food along in addition to the normal route that food normally goes is eating and gaining some weight, but she usually vomits about once or twice a month - we tracked her food intake and it doesn't seem to be anything in particular that triggers the vomiting - however it usually happens at night but the last time was in the morning. We had a Upper GI done and they found that until the small intestine her digestion is fine - but food enters the small intestine and doesn't seem to go anywhere - The Doctor said that the top of the small intestine is stretched to three times the normal size. After they do the surgery they will tell us what they found. I am a little nervous about the surgery - I trust the hospital - CHOP was very good when was only 4 months old and she was there for 2 weeks. Now she is much older, bigger, and stronger. And I trust the Doctor, he does this usually on infants. It is the anesthesia I worry about - has never been under anesthesia before even during an MRI she laid on the table and didn't move while held onto her. I worry about how it will affect her. Well, just wanted to let you know. Darlene Mom to (5) and (3)MDS Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com ************************************************* MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus ************************************************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 I am praying for . Please let us know how the surgery goes. na has been put to sleep 3 times before she was 2 and everything went great!!!!! I'll be praying. mom to sydney 3 and brianna 2 mds --- Ronnie Sikes wrote: > We will definately be praying for a successful > surgery & a very speedy > recovery for precious . Please let us > know how she is doing > as soon as you can afterwards. > Hope mom to (15) (11) & (4mo. > w/mds) > > Darlene Benoit wrote: > > > > > Hello All - > > > > I have been so busy lately that I have not had a > chance to write. > > However, is going in for surgery on Monday > 5/6 and I wanted > > to tell you. The surgery is going to be performed > on her small > > intestine, the Doctor said that it is a common > surgery (they do it 4 > > or 6 times a year) and that they see this problem > in children with > > DS. Usually it is seen in infants (and is > now 3). The reason > > for the surgery is either an annular pancreas > (where the pancreas > > wraps itself around the small intestine and cuts > off the flow of food) > > or duodenum banding or webbing (where something > else (partially) > > blocks the small intestine). The surgery will be > the same procedure. > > They are going to put in a " bypass " to help the > food along in addition > > to the normal route that food normally goes > > > > is eating and gaining some weight, but > she usually vomits > > about once or twice a month - we tracked her food > intake and it > > doesn't seem to be anything in particular that > triggers the vomiting - > > however it usually happens at night but the last > time was in the > > morning. We had a Upper GI done and they found > that until the small > > intestine her digestion is fine - but food enters > the small intestine > > and doesn't seem to go anywhere - The Doctor said > that the top of the > > small intestine is stretched to three times the > normal size. > > > > After they do the surgery they will tell us > what they found. I am > > a little nervous about the surgery - I trust the > hospital - CHOP was > > very good when was only 4 months old and > she was there for 2 > > weeks. Now she is much older, bigger, and > stronger. And I trust the > > Doctor, he does this usually on infants. It is > the anesthesia I worry > > about - has never been under anesthesia > before even during an > > MRI she laid on the table and didn't move while > held onto her. I > > worry about how it will affect her. > > > > > > > > Well, just wanted to let you know. > > > > > > Darlene > > > > Mom to (5) and (3)MDS > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.