Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Hello Stan I started using MB12 nasal spray last week to treat my ME/CFS and am now on day 7 and have felt no beneficial effect. In fact I have been slightly worse but that may be part of the normal ebb and flow of the illness. From your experience of adults with ME/CFS do they usually experience the rapid results that you have referred to? The pharmacist said that parents of autistic children report to him that they see changes on the 4th or 5th day. Dr Neubrander talks about a 5 week trial but obviously he is using shots not spray. I am feeling rather disheartened by this and am not sure what to do next. Would you recommend increasing the dose? I am using 2 x 1.25ml sprays/day. Or adding folinic acid - when and how much? I think you said that it is not well absorbed orally; is it available as a spray by itself (as I have a 2nd MB12 spray in the fridge)? Or maybe adding DMG? To help this chemistry along I am taking B6 + P5P, taurine, Mg malate, selenium as well as with multi vits and minerals , fish oils etc. I have tested low for glutathione and glutathione peroxidase. Worst symptom is fatigue (mostly housebound) followed by gut problems -I am GF, sometimes CF but doesn't seem to help.Pain is minor. I would be grateful for any suggestions. Thank you Quote Link to comment Share on other sites More sharing options...
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