Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 Hi Carie, Welcome and I'm glad you are sharing your concerns. If your child has a virus, it's best to take care of it because it is slowly eating away at him and taking energy away from his cells and potentially causing inflamation in his brain. These things could be causing or play a causal role in your child's autism. If your child does not have a virus or is a non-responder to this therapy... nothing happens. No regression, no illness... nothing. Either way, is actually win-win in my opinion. I would rather kick up and kill something that is hurting my child than leave it slowly attack him under his immune system's radar. That's my view. - Stan > > I started my child on valtrex today. After reading through the stuff here I > am very afraid to continue with it. I do not think I can go through these > symptoms with him. It sounds like it never even really gets rid of the > virus only represses it. I do not know what I should do now. > > That which does not kill you will only make you stronger. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 And remember, Valtrex isn't causing a fever... the virus the Valtrex kicked up and the immune system response is. It's all good. And as far as repress vs. kill. My son and others have recovered through this therapy and he isn't on any antiviral or medication any more. Valtex is a real solution for some of our kids. - Stan > > I started my child on valtrex today. After reading through the stuff here I > am very afraid to continue with it. I do not think I can go through these > symptoms with him. It sounds like it never even really gets rid of the > virus only represses it. I do not know what I should do now. > > That which does not kill you will only make you stronger. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 Hi , If you have gone through the symptoms of a bad cold/flu with your child, I'm sure you will do it with these. They regress and/or have these things becasue they feel tired and sick, but the results can be great. That is my thinking. Keep going. Rafa.- > > I started my child on valtrex today. After reading through the stuff here I > am very afraid to continue with it. I do not think I can go through these > symptoms with him. It sounds like it never even really gets rid of the > virus only represses it. I do not know what I should do now. > > That which does not kill you will only make you stronger. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 I started valtrex last night, and my child woke up very whiny and appeared to be sick. He refused to eat, and just cried. This is certainly not what I had bargained for! That which does not kill you will only make you stronger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 Hi Carie, It is just the same thing my son had, but he is doing better now (no fever). My son has been always a good eater so we are not having that problem. Try to keep the fluids intake like you do when they get the flu. I wish you the best. Rafa.- > > > > I started valtrex last night, and my child woke up very whiny and appeared > to be sick. He refused to eat, and just cried. This is certainly not what > I had bargained for! > > That which does not kill you will only make you stronger. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 good question! i unfortunately dont know the scientific answer but, i can only share my son's experience with rx anti virals (valtrex and famvir). he was on famvir and then was switched to valtrex. he was on these for three yrs. (only hhv6 testing done prior and throughout). levels went down some. however, didnt notice much of any improvements. anyway, changed protocols. weaned him off the rx antivirals. went along with life (did other stuff but no antivirals). close to a yr later, did the "premier autism panel" with immunosciences lab. results showed viruses everywhere! (sort of exaggerating but it was intense). now, back on valtrex and added monolaurin/lauricidin (i have both in cubbard) and soon to add OLE and possibly virastop. doc wants to hit the viruses hard. so, for me, the testing is what told me my son still had viral issues. my son is basically non verbal (apraxic). the only "sign" of possibly viral issues was the fact he never got sick. that's it. of course, now that we are back on anti virals, he has the traditional "cold" symptoms, esp runny nose and lots of mucus that he just LOVES to play with! vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 My short answer is to do it as long as you see gains. In my son's case it was for 9 months. - Stan > > just a thought? if one was treating just for the viruses that were > known to exsist,what length of time would one use valtrex or other > viral medication? would there be any signs that it was no longer > needed or is it only through testing? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 My son has these same symptoms but we just got started as well and not sure if this is the norm for this med or not. > > My 11 year old son has been taking 500mg 2 times per day valtrex for 7 > days. His speech seems to be clearer since day 4. Today, when he woke > up he had some very small red pimples in a circle on his chin. I > wasn't concerned and sent him to school. The school nurse called to > report that his cheeks kept turning bright red and then he would turn > pale. In addition, he had 2 bad bouts with diarrhea. He also seems a > little over sensitive and lethargic. Since this is all new to me, is > this a sign of die off? I would appreciate any thoughts. Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 My gut feeling is you may be overthinking a bit. It's hard to predict what will happen to any child with any therapy. If you have a cold sore and autism you have a child with probable metabolic issues, toxicity of sorts and a herpes virus. That said, you won't know what will happen until you try. My son did not have cold sores or any hard viral sign or test marker. I didn't know how long I was going to keep him on until I tried it, saw his response and made my decision as I went. There is no way that any of us can predict the response. You may even want a strong response because that would mean you are kicking up an underlying issue that has not been drawn out by your other biomed therapies. You asked about my son. We did biomed for about 6 months prior to Valtrex with some success. The Valtrex is what brought him from a functioning autistic chile to what you might call nerotypical functioning. It sounds like that is what you are looking for as well. It's been my experience that trying to predict all the details of what will happen is more stressful than the therapy itself. I encourage people to think logically about the decision to do a trial and then stop thinking and focus on observation and the results before deciding what to do next, in this case deciding when to stop the therapy. With motor issues and residual effects from autism along with a cold sore, I would certainly do a trial of Valtrex and see what happens. Respectfully, Stan > > > > > > just a thought? if one was treating just for the viruses that > were > > > known to exsist,what length of time would one use valtrex or other > > > viral medication? would there be any signs that it was no longer > > > needed or is it only through testing? > Stan, i think this would be hard to gauge for my son as he is mostly > recovered so the signs may be so subtle or maybe not i am just > speculating. but i know he has coldsore virus so i may want to use > treating for the virus only as a indication to the length of time on > this treatment. are you doing other things with your child? we did > biomed stuff 5 years ago for about 1.5 years and have done nothing > since but i am greedy wanting him not only recovered but cured so i > just took the plunge and started mb12 and forsee valtrex for june so i > can monitor his progress and have the regression session not affect > him in school. are you still searching for further interventions to > further improve/help your child? i know i should be happy to have him > mostly recovered but i would feel negligent to not do all in my power > to further his progress and ability to have higher education or trades > school skills if he choose that route. but right now we are a far way > off struggling scholastically about 1.5 years behind in reading and > math plus some fine motor issues that remain making writing hard and > challenging. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 For what it's worth, my definition of where will be when I consider her " NT " is " fully capable of meeting her natural potential, " i.e. what her potential would have been had she not accumulated toxins. To my husband, that's Harvard -- LOL! Dawn > > > > > > > > > > > > just a thought? if one was treating just for the viruses that > > > > were > > > > > > known to exsist,what length of time would one use valtrex or > > other > > > > > > viral medication? would there be any signs that it was no longer > > > > > > needed or is it only through testing? > > > > Stan, i think this would be hard to gauge for my son as he is mostly > > > > recovered so the signs may be so subtle or maybe not i am just > > > > speculating. but i know he has coldsore virus so i may want to use > > > > treating for the virus only as a indication to the length of time on > > > > this treatment. are you doing other things with your child? we did > > > > biomed stuff 5 years ago for about 1.5 years and have done nothing > > > > since but i am greedy wanting him not only recovered but cured so i > > > > just took the plunge and started mb12 and forsee valtrex for june > > so i > > > > can monitor his progress and have the regression session not affect > > > > him in school. are you still searching for further interventions to > > > > further improve/help your child? i know i should be happy to have him > > > > mostly recovered but i would feel negligent to not do all in my power > > > > to further his progress and ability to have higher education or > > trades > > > > school skills if he choose that route. but right now we are a far way > > > > off struggling scholastically about 1.5 years behind in reading and > > > > math plus some fine motor issues that remain making writing hard and > > > > challenging. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Yes. Autism. For my son, RDI was helpful. RDI is good at helping kids relate to others. It breaks down social nuances to a learnable form and reinforces the value of human connection. It also focuses on the frontal lobes of the brain where we often see impairment in autism. RDI is not for all children on the spectrum. If you have a totally nonverbal child, it might be best to start with ABA. - Stan > > > > > > > > > > > > > > just a thought? if one was treating just > > for the viruses that > > > > > were > > > > > > > known to exsist,what length of time would > > one use valtrex or > > > other > > > > > > > viral medication? would there be any signs > > that it was no longer > > > > > > > needed or is it only through testing? > > > > > Stan, i think this would be hard to gauge for > > my son as he is mostly > > > > > recovered so the signs may be so subtle or > > maybe not i am just > > > > > speculating. but i know he has coldsore virus > > so i may want to use > > > > > treating for the virus only as a indication to > > the length of time on > > > > > this treatment. are you doing other things > > with your child? we did > > > > > biomed stuff 5 years ago for about 1.5 years > > and have done nothing > > > > > since but i am greedy wanting him not only > > recovered but cured so i > > > > > just took the plunge and started mb12 and > > forsee valtrex for june > > > so i > > > > > can monitor his progress and have the > > regression session not affect > > > > > him in school. are you still searching for > > further interventions to > > > > > further improve/help your child? i know i > > should be happy to have him > > > > > mostly recovered but i would feel negligent to > > not do all in my power > > > > > to further his progress and ability to have > > higher education or > > > trades > > > > > school skills if he choose that route. but > > right now we are a far way > > > > > off struggling scholastically about 1.5 years > > behind in reading and > > > > > math plus some fine motor issues that remain > > making writing hard and > > > > > challenging. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Barb Katsaros > barbkatsaros@... > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Stan, you said your son had learning disabilities at one time, and now does not? At what age, or over what time period, did you see the ld resolve? What treatment/treatments do you feel resolved the ld? Is he able to remember and apply fact? That is my dream for my son. Barb --- Stan Kurtz wrote: > Yes. Autism. > > For my son, RDI was helpful. RDI is good at helping > kids relate to others. It breaks down > social nuances to a learnable form and reinforces > the value of human connection. It also > focuses on the frontal lobes of the brain where we > often see impairment in autism. > > RDI is not for all children on the spectrum. If you > have a totally nonverbal child, it might > be best to start with ABA. > > - Stan > > > > > > > > > > > > > > > > > > just a thought? if one was treating > just > > > for the viruses that > > > > > > were > > > > > > > > known to exsist,what length of time > would > > > one use valtrex or > > > > other > > > > > > > > viral medication? would there be any > signs > > > that it was no longer > > > > > > > > needed or is it only through testing? > > > > > > Stan, i think this would be hard to gauge > for > > > my son as he is mostly > > > > > > recovered so the signs may be so subtle or > > > maybe not i am just > > > > > > speculating. but i know he has coldsore > virus > > > so i may want to use > > > > > > treating for the virus only as a > indication to > > > the length of time on > > > > > > this treatment. are you doing other things > > > with your child? we did > > > > > > biomed stuff 5 years ago for about 1.5 > years > > > and have done nothing > > > > > > since but i am greedy wanting him not only > > > recovered but cured so i > > > > > > just took the plunge and started mb12 and > > > forsee valtrex for june > > > > so i > > > > > > can monitor his progress and have the > > > regression session not affect > > > > > > him in school. are you still searching for > > > further interventions to > > > > > > further improve/help your child? i know i > > > should be happy to have him > > > > > > mostly recovered but i would feel > negligent to > > > not do all in my power > > > > > > to further his progress and ability to > have > === message truncated === Barb Katsaros barbkatsaros@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 That sounds good to me Dawn. I often think about this and I find it difficult to figure out where my son would be today if his brain wan't locked up for a couple of years. I'm not sure if we can really know. I'm obviously very grateful for his recovery but at the same time it's a bit haunting to think about questions like. 1. Is he fully clear (I mean 100%!) from his biological issue? When will I know for sure? 2. What, if anything, is the residual damage? Is there residual damage that I'm not smart or aware enough to recognize? My conclusion is (which is what generally keeps me sane when I think about this for too long) all we can do is do the best we can and learn as much as we can and keep an eye on our children as best as we can and let time time and life work out the details. Basically, we do the best we can... and then we wait and see. Maybe throw in a little prayer and good karma here and there as well. - Stan > > > > > > > > > > > > > > just a thought? if one was treating just for the > viruses that > > > > > were > > > > > > > known to exsist,what length of time would one use > valtrex or > > > other > > > > > > > viral medication? would there be any signs that it was > no longer > > > > > > > needed or is it only through testing? > > > > > Stan, i think this would be hard to gauge for my son as he > is mostly > > > > > recovered so the signs may be so subtle or maybe not i am > just > > > > > speculating. but i know he has coldsore virus so i may want > to use > > > > > treating for the virus only as a indication to the length of > time on > > > > > this treatment. are you doing other things with your child? > we did > > > > > biomed stuff 5 years ago for about 1.5 years and have done > nothing > > > > > since but i am greedy wanting him not only recovered but > cured so i > > > > > just took the plunge and started mb12 and forsee valtrex for > june > > > so i > > > > > can monitor his progress and have the regression session not > affect > > > > > him in school. are you still searching for further > interventions to > > > > > further improve/help your child? i know i should be happy to > have him > > > > > mostly recovered but i would feel negligent to not do all in > my power > > > > > to further his progress and ability to have higher education > or > > > trades > > > > > school skills if he choose that route. but right now we are > a far way > > > > > off struggling scholastically about 1.5 years behind in > reading and > > > > > math plus some fine motor issues that remain making writing > hard and > > > > > challenging. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Barb, autism is quite a significant learning disability. Maybe if you tell us more detail about your son we can offer some suggestions on what you might want to try. I would also take a peek at my son's recovery video on www.recoveryvideos.com I think it's called " Ethan's Recovery - Short " - Stan > > > > > > > > > > > > > > > > > > just a thought? if one was treating > > just > > > > for the viruses that > > > > > > > were > > > > > > > > > known to exsist,what length of time > > would > > > > one use valtrex or > > > > > other > > > > > > > > > viral medication? would there be any > > signs > > > > that it was no longer > > > > > > > > > needed or is it only through testing? > > > > > > > Stan, i think this would be hard to gauge > > for > > > > my son as he is mostly > > > > > > > recovered so the signs may be so subtle or > > > > maybe not i am just > > > > > > > speculating. but i know he has coldsore > > virus > > > > so i may want to use > > > > > > > treating for the virus only as a > > indication to > > > > the length of time on > > > > > > > this treatment. are you doing other things > > > > with your child? we did > > > > > > > biomed stuff 5 years ago for about 1.5 > > years > > > > and have done nothing > > > > > > > since but i am greedy wanting him not only > > > > recovered but cured so i > > > > > > > just took the plunge and started mb12 and > > > > forsee valtrex for june > > > > > so i > > > > > > > can monitor his progress and have the > > > > regression session not affect > > > > > > > him in school. are you still searching for > > > > further interventions to > > > > > > > further improve/help your child? i know i > > > > should be happy to have him > > > > > > > mostly recovered but i would feel > > negligent to > > > > not do all in my power > > > > > > > to further his progress and ability to > > have > > > === message truncated === > > > Barb Katsaros > barbkatsaros@... > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Thanks, Stan. Yes, I did view the video. It was wonderful! My son did not appear autistic in the usual ways. His problem was mostly auditory processing, and an immune system which has caused numerous problems for him. He had horrible constipation which resolved when on the Pfeiffer tx. He never closed himself off from us or the world, but he appeared much less mature than his age, and he just did not catch what was going on around him and has missed so much along the way. We are trying very hard to fill in the " holes " in his learning with the help of Dr. Silton and Dr. Fosnot, but his storage and retrieval of info cont. to be a big problem. I have been working with him for about a year and a half to remember multiplication facts. Addition and subtraction are not down yet, either. Add to this adolescense/puberty, and it all becomes even more difficult. I've been told that a lot of the problem lies with psychological issues, but I really don't think that is all of it. It seems that something is missing medically in his treatment. Note: I wrote another email to you updating briefly on his tx hx. thanks for you time and advice. I am so happy for you that you had so much success in saving your son. Barb --- Stan Kurtz wrote: > > Barb, autism is quite a significant learning > disability. Maybe if you tell us more detail > about your son we can offer some suggestions on what > you might want to try. > > I would also take a peek at my son's recovery video > on www.recoveryvideos.com > > I think it's called " Ethan's Recovery - Short " > > - Stan > > > > > > > > > > > > > > > > > > > > My short answer is to do it as long > as > > > you > === message truncated === Barb Katsaros barbkatsaros@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Thanks . I usually respond with my gut feeling and I know sometimes it can hit people a little too hard. I'm glad it helped you. - Stan > THANK YOU SO MUCH STAN! A REAL DOWN TO EARTH APPROACH AND OUTLOOK AS > I AM A WORRY WART BY NATURE AND DO OVER THINK AND STRATEGIZE AS IT > COMES WITH MY LIFE LONG(WELL ALMOST)PROFESSION OF COMPETITIVE FIGURE > SKATING.I REALLLY APPLAUD YOU OF YOUR MESSAGE HERE AND ADVICE TO ALL > ON THE BOARD TO MOVING FORWARD INTO THIS UNKNOWN. THANKS...LISA > > > > Stan > > > > > > > > > > just a thought? if one was treating just for the viruses > that > > > were > > > > > known to exsist,what length of time would one use valtrex or > other > > > > > viral medication? would there be any signs that it was no > longer > > > > > needed or is it only through testing? > > > Stan, i think this would be hard to gauge for my son as he is > mostly > > > recovered so the signs may be so subtle or maybe not i am just > > > speculating. but i know he has coldsore virus so i may want to > use > > > treating for the virus only as a indication to the length of > time on > > > this treatment. are you doing other things with your child? we > did > > > biomed stuff 5 years ago for about 1.5 years and have done > nothing > > > since but i am greedy wanting him not only recovered but cured > so i > > > just took the plunge and started mb12 and forsee valtrex for > june so i > > > can monitor his progress and have the regression session not > affect > > > him in school. are you still searching for further interventions > to > > > further improve/help your child? i know i should be happy to > have him > > > mostly recovered but i would feel negligent to not do all in my > power > > > to further his progress and ability to have higher education or > trades > > > school skills if he choose that route. but right now we are a > far way > > > off struggling scholastically about 1.5 years behind in reading > and > > > math plus some fine motor issues that remain making writing hard > and > > > challenging. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 Stan, I read a couple of people suggesting to peel the valtrex but I don't seem to be able to do that. I am able to scrap off the blue coating but it takes some time.My son is 17 so I would have alot of extra work and I can't imagine doing this everyday. My pharmacist suggested another antiviral that does not have the coating, zovirex-sp?. We just started today. What do you do? Thanks, Regina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 Regina, Rub the capsule while you are running it under water. It takes a little bit of time for the coating to come off, but probably much less than trying to scrape it off. Zovirax is acyclovir. Valtrex is valacyclovir, which gets converted in the body to acyclovir. I don't remember the exact stats, but to get as much acyclovir using Zovirax as you do with Valtrex, you have to take something like 8 or 16 times as much. Whatever it is, it is significant. Hope that helps. Anne > > Stan, > I read a couple of people suggesting to peel the valtrex but I don't > seem to be able to do that. I am able to scrap off the blue coating > but it takes some time.My son is 17 so I would have alot of extra work > and I can't imagine doing this everyday. My pharmacist suggested > another antiviral that does not have the coating, zovirex-sp?. > We just started today. What do you do? > > Thanks, > Regina > Quote Link to comment Share on other sites More sharing options...
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