Re: New Member: Forest, Virginia

[Guest guest]

Hi, ...welcome to the group. I'm e...have a 26 month old on the spectrum. He is so darling too...I know what you mean about yours being sweet...mine is too...he has his moments, but he is a doll, and much less "intense" then my 5 yr old little girl. LOL...

Anyhow...there are others who can help more, as their kiddos are older. I do understand the ins and outs of getting a home therapy group going...but I'm not at the IEP time as of yet. receives ABA, OT, and Speech...if you ever have any questions relating to those things, I might be able to help you!

Welcome, Welcome.

e

To: AutismBehaviorProblems Sent: Friday, January 9, 2009 7:52:30 PMSubject: New Member: Forest, Virginia

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[Guest guest]

Hi welcome to the group. My son is 33 months so very close

in age. My son is on the Gf/CF diet and its been great for him. Not

all children do well or need it, but if you would like any help with

it just ask. It can be very hard at first as gluten is hardly ever

listed in ingredients.

Do you have an advocate or someone to help you during the IEP

proccess? Other than the early intervention staff? This can be a very

tricky thing. So may laws and fine print type things. All the horror

stories i hear..I am scared to pieces..so we hired an advocate..which

we cannot afford but ...we will somehow...lol..

My best advice for starters is getting Stanley Greenspans book "

Engaging Autism " It is a treasure of information on how us parents

can work with our kids in a beautiful and very beneficial way. It

also helped me decide what my childs needs were and we added on some

other important therapies... does your daughter have sensory needs or

show tactile defensiveness or need lots of input?

e can pipe in on this one also... She has a great program set

up for her son ..somewhat similar to what I do also. Every child has

some different needs that you as a mom will figure out as you read

and become more educated etc...you will feel much more empowered.With

Stanley Greenspans Floortime..it does help with non verbal

communication..which imho is important to have before functional

verbal communication can happen. Thats how typical children progress

through language.

My son is apraxic so he has a very hard time with articulation. He is

pretty strong in non verbal now..so once his articulation is better (

working on it ) we think this foundation will really shine through.

Have you looked into pecs type communication? My son did the program

and it worked out great. I was worried it would become easier for him

to use than speech but this has not been the case. It actually got

him speaking more. We put small photos 2 inch by 2 inch of his 3

favorite tv shows, velcro to the tv stand and he can give us the one

he wants to watch ( limited times though ) We also put foods and

drinks velcro to the fridge which he can get and bring to us when he

wants something. He will use the word now, when he gives it to us.

This gave him some " power of choice " in an appropriate way and

took away some of his frustration.

I love that you call your children flowers. What a great expression

of your love for them..welcome and hope you find some of this helpful

>

> Hello all. My name is and my 34 month old daughter,

> Rebekah, was confirmed autism spectrum December. I am all too

> familiar what to expect as my nephew who is 6 was diagnosed several

> years ago. Rebekah seems to be high functioning yet is at a 14

> month old level on her social & communication. Her diagnosis was

> more of a confirmation as I had already seen the signs and have

been

> working with my local school system through their assessment now

> evalution process for early intervention services. We meet next

> Thursday re: her IEP eligibility.

>

> I also have a 6 year old, Hannah, & 1 year old, . Hannah is

if

> anything possibly ADHD and thus far although taken emergency

c-

> sec 2 1/2 months early blossoming well. I am leary about her

> immunizations and taking that a step at a time.

>

> Rebekah is out of our 3 flowers, the most content, loving child.

> She is beautiful and special. My husband & I are having a hard

time

> dealing with her non-verbal communication and I have tried to work

> with her & learn baby sign language but she has no interest. She

> normally just has a fit until we either figure it out & get her

what

> she wants or needs or give up & let her scream. The past 2 weeks

> she has started saying open, up and down which is a big progress in

> her communication.

>

> I am interested in starting a GF diet and wish to find a way to

> communicate. I am open to any & all suggestions.

>

> Thanks for listening.

>

[Guest guest]

Hi

My son is 32/m..I just wrote a huge long reply to your post and it

somehow got lost. Welcome. lol...I do GF/CF with my son. It has

helped alot. Its not beneficial to every child but for some, its

amazing. If you would like any help with it i would be happy to help.

e has very good advice on therapies and ideas that are so very

helpful...she doesnt think she is all that knowledgable....but she

is!!!

>

> Hello all. My name is and my 34 month old daughter,

> Rebekah, was confirmed autism spectrum December. I am all too

> familiar what to expect as my nephew who is 6 was diagnosed several

> years ago. Rebekah seems to be high functioning yet is at a 14

> month old level on her social & communication. Her diagnosis was

> more of a confirmation as I had already seen the signs and have

been

> working with my local school system through their assessment now

> evalution process for early intervention services. We meet next

> Thursday re: her IEP eligibility.

>

> I also have a 6 year old, Hannah, & 1 year old, . Hannah is

if

> anything possibly ADHD and thus far although taken emergency

c-

> sec 2 1/2 months early blossoming well. I am leary about her

> immunizations and taking that a step at a time.

>

> Rebekah is out of our 3 flowers, the most content, loving child.

> She is beautiful and special. My husband & I are having a hard

time

> dealing with her non-verbal communication and I have tried to work

> with her & learn baby sign language but she has no interest. She

> normally just has a fit until we either figure it out & get her

what

> she wants or needs or give up & let her scream. The past 2 weeks

> she has started saying open, up and down which is a big progress in

> her communication.

>

> I am interested in starting a GF diet and wish to find a way to

> communicate. I am open to any & all suggestions.

>

> Thanks for listening.

>

[Guest guest]

So sweet ! Thanks! Welcome again ...I too love that you call your children flowers!!! Love it, love it!

Blessings,

e

To: AutismBehaviorProblems Sent: Friday, January 9, 2009 9:02:26 PMSubject: Re: New Member: Forest, Virginia

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