Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 , I don't get sick of your emails. I thought this was interesting, particularly about the body sock. I think that is something that would have worked wonderfully; instead, we used a blanket. There is logic behind using the same one at school and at home because he will be conditioned to relax with that blanket. Pat K On Fri I finally gor Miss Jenna to respond to me and say I could call her about 2 and she would have about 20 minutes to talk. So I did! I told her some ideas I had about what to do for meltdowns with that I learned at Little Friends when I went for the training and also Kathy told me about it too and said I could use a blanket to swaddle to help calm him and it helps with sensory etc! the same blanket needs to be used though and where goes it should go! There is this thing called a body sock that is for this! If you google it or look on Ebay you will see what I am talking about! Kathy said I could just use a blanket! Anyhow I believe the reason I got a response from her is because of my wording of the email! So she says she has to ask Mrs Lotito about this because they were trained to use restraining and she took a CIS class a couple weeks ago on this! And she said you can use this at home but I will have to see if I can use it here! And I told her that I think it is very important for both of us to be doing the exact same thing and being on the same page with everything! She said ya! So she asked me how my apt with Little Friends went that day and I was telling her about it and that the report is almost done and hopefully it will be for the staffing! I was saying how Dr B said last week that is low functioning! See Miss Jenna has said she believes he is high functioning. She asked after she said hmmm, what exactly does she mean by low functioning? I was shocked she asked this and said well in my opinion and the dr agreed looks to be higher functioning because he is verbal but we need to look at the whole and not just that! Then I was telling her that Patty, the director of Little Friends and the person I had the appt with was looking at his report while we talked and she said this little guy is pretty severe! He has some severe things going on! Again another hmmm! Then she said she would like to talk to Little Friends if it was ok with me before the staffing and not thinking I said ok and she said she would have to send something home with on Mon to give her permission that I had to sign/fill out! So we get off the phone and again I got a bit uncomfortable and treid calling her back because I wanted to know why she wanted to call etc! She was gone so I emailed her about it. I got a note from her in the notebook yesterday saying that she wanted to talk to them because like I said on Fri we should all be on the same page and work together! Jim says don't sign it, Kathy says don't I am uncomfortable because of everything that has happened and been twisted and I don't know what to do! I am trying to get in touch with Dr B there and Patty but so far nothing! I thought about signing it only if I am allowed to be in on the call like a conference call! I don't know? What do you all think about that? She had also asked before all thiss what Little Friends thought of the body sock? I told her they showed us about it! Sorry this is so long and I know some of you must be getting sick of hearing about all this!Stacie Sent via BlackBerry by AT & T AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 I am happy to hear you don't get sick of my emails Pat! Thanks! And thanks for the validation in what I said too!StacieSent via BlackBerry by AT&TFrom: pkuenstler@...Date: Tue, 11 Nov 2008 11:28:55 ESTTo: <AutismBehaviorProblems >Subject: Re: What I was going to post about Friday , I don't get sick of your emails. I thought this was interesting, particularly about the body sock. I think that is something that would have worked wonderfully; instead, we used a blanket. There is logic behind using the same one at school and at home because he will be conditioned to relax with that blanket. Pat K In a message dated 11/11/2008 10:02:53 A.M. Central Standard Time, hawkie6aol writes: On Fri I finally gor Miss Jenna to respond to me and say I could call her about 2 and she would have about 20 minutes to talk. So I did! I told her some ideas I had about what to do for meltdowns with that I learned at Little Friends when I went for the training and also Kathy told me about it too and said I could use a blanket to swaddle to help calm him and it helps with sensory etc! the same blanket needs to be used though and where goes it should go! There is this thing called a body sock that is for this! If you google it or look on Ebay you will see what I am talking about! Kathy said I could just use a blanket! Anyhow I believe the reason I got a response from her is because of my wording of the email! So she says she has to ask Mrs Lotito about this because they were trained to use restraining and she took a CIS class a couple weeks ago on this! And she said you can use this at home but I will have to see if I can use it here! And I told her that I think it is very important for both of us to be doing the exact same thing and being on the same page with everything! She said ya! So she asked me how my apt with Little Friends went that day and I was telling her about it and that the report is almost done and hopefully it will be for the staffing! I was saying how Dr B said last week that is low functioning! See Miss Jenna has said she believes he is high functioning. She asked after she said hmmm, what exactly does she mean by low functioning? I was shocked she asked this and said well in my opinion and the dr agreed looks to be higher functioning because he is verbal but we need to look at the whole and not just that! Then I was telling her that Patty, the director of Little Friends and the person I had the appt with was looking at his report while we talked and she said this little guy is pretty severe! He has some severe things going on! Again another hmmm! Then she said she would like to talk to Little Friends if it was ok with me before the staffing and not thinking I said ok and she said she would have to send something home with on Mon to give her permission that I had to sign/fill out! So we get off the phone and again I got a bit uncomfortable and treid calling her back because I wanted to know why she wanted to call etc! She was gone so I emailed her about it. I got a note from her in the notebook yesterday saying that she wanted to talk to them because like I said on Fri we should all be on the same page and work together! Jim says don't sign it, Kathy says don't I am uncomfortable because of everything that has happened and been twisted and I don't know what to do! I am trying to get in touch with Dr B there and Patty but so far nothing! I thought about signing it only if I am allowed to be in on the call like a conference call! I don't know? What do you all think about that? She had also asked before all thiss what Little Friends thought of the body sock? I told her they showed us about it! Sorry this is so long and I know some of you must be getting sick of hearing about all this!Stacie Sent via BlackBerry by AT & T AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 If it makes you uncomfortable listen to your gut....Do not sign it, but rather have Little Friends fax/send something to you...you tell Little Friends that you would like for his teacher to be on the same page as you...and that you would like for them to fax you their ideas and then YOU fax or bring it to her... The School and Miss Jenna does NOT need to have this much control over his life. You are his mom, his advocate, his voice, you are doing a terrific job at relaying precisely what his doctors want the school to know. Tell Miss Jenna that you are most comfortable getting Little Friends (and or the neurologist in the future) to make some suggestions ( have them put it on medical letterhead paper) ---Little Friends can either fax it to you or mail it to you and you will give it to Miss Jenna to have in her files, 's file what have you. Blessings, e To: AutismBehaviorProblems Sent: Tuesday, November 11, 2008 9:59:48 AMSubject: What I was going to post about Friday On Fri I finally gor Miss Jenna to respond to me and say I could call her about 2 and she would have about 20 minutes to talk. So I did! I told her some ideas I had about what to do for meltdowns with that I learned at Little Friends when I went for the training and also Kathy told me about it too and said I could use a blanket to swaddle to help calm him and it helps with sensory etc! the same blanket needs to be used though and where goes it should go! There is this thing called a body sock that is for this! If you google it or look on Ebay you will see what I am talking about! Kathy said I could just use a blanket! Anyhow I believe the reason I got a response from her is because of my wording of the email! So she says she has to ask Mrs Lotito about this because they were trained to use restraining and she took a CIS class a couple weeks ago on this! And she said you can use this at home but I will have to see if I can use it here! And I told her that I think it is very important for both of us to be doing the exact same thing and being on the same page with everything! She said ya! So she asked me how my apt with Little Friends went that day and I was telling her about it and that the report is almost done and hopefully it will be for the staffing! I was saying how Dr B said last week that is low functioning! See Miss Jenna has said she believes he is high functioning. She asked after she said hmmm, what exactly does she mean by low functioning? I was shocked she asked this and said well in my opinion and the dr agreed looks to be higher functioning because he is verbal but we need to look at the whole and not just that! Then I was telling her that Patty, the director of Little Friends and the person I had the appt with was looking at his report while we talked and she said this little guy is pretty severe! He has some severe things going on! Again another hmmm! Then she said she would like to talk to Little Friends if it was ok with me before the staffing and not thinking I said ok and she said she would have to send something home with on Mon to give her permission that I had to sign/fill out! So we get off the phone and again I got a bit uncomfortable and treid calling her back because I wanted to know why she wanted to call etc! She was gone so I emailed her about it. I got a note from her in the notebook yesterday saying that she wanted to talk to them because like I said on Fri we should all be on the same page and work together! Jim says don't sign it, Kathy says don't I am uncomfortable because of everything that has happened and been twisted and I don't know what to do! I am trying to get in touch with Dr B there and Patty but so far nothing! I thought about signing it only if I am allowed to be in on the call like a conference call! I don't know? What do you all think about that? She had also asked before all thiss what Little Friends thought of the body sock? I told her they showed us about it! Sorry this is so long and I know some of you must be getting sick of hearing about all this!StacieSent via BlackBerry by AT & T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 don't know if I made what to say to Jenna clear: Tell her that you are most comfortable with you and your husband being the lisason between his doctors and the school. You will get Little Friends, and or the Neurologist to write these helpful suggestions down, and once you get them you'll give the school a copy. Until then you'd like for her to work with you. Make sense? Check it out with Jim and see what he thinks.... Go with your gut! Hugs, J To: AutismBehaviorProblems Sent: Tuesday, November 11, 2008 1:19:34 PMSubject: Re: What I was going to post about Friday If it makes you uncomfortable listen to your gut....Do not sign it, but rather have Little Friends fax/send something to you...you tell Little Friends that you would like for his teacher to be on the same page as you...and that you would like for them to fax you their ideas and then YOU fax or bring it to her... The School and Miss Jenna does NOT need to have this much control over his life. You are his mom, his advocate, his voice, you are doing a terrific job at relaying precisely what his doctors want the school to know. Tell Miss Jenna that you are most comfortable getting Little Friends (and or the neurologist in the future) to make some suggestions ( have them put it on medical letterhead paper) ---Little Friends can either fax it to you or mail it to you and you will give it to Miss Jenna to have in her files, 's file what have you. Blessings, e From: stacie <hawkie6aol (DOT) com>To: AutismBehaviorProbl emsyahoogroups (DOT) comSent: Tuesday, November 11, 2008 9:59:48 AMSubject: What I was going to post about Friday On Fri I finally gor Miss Jenna to respond to me and say I could call her about 2 and she would have about 20 minutes to talk. So I did! I told her some ideas I had about what to do for meltdowns with that I learned at Little Friends when I went for the training and also Kathy told me about it too and said I could use a blanket to swaddle to help calm him and it helps with sensory etc! the same blanket needs to be used though and where goes it should go! There is this thing called a body sock that is for this! If you google it or look on Ebay you will see what I am talking about! Kathy said I could just use a blanket! Anyhow I believe the reason I got a response from her is because of my wording of the email! So she says she has to ask Mrs Lotito about this because they were trained to use restraining and she took a CIS class a couple weeks ago on this! And she said you can use this at home but I will have to see if I can use it here! And I told her that I think it is very important for both of us to be doing the exact same thing and being on the same page with everything! She said ya! So she asked me how my apt with Little Friends went that day and I was telling her about it and that the report is almost done and hopefully it will be for the staffing! I was saying how Dr B said last week that is low functioning! See Miss Jenna has said she believes he is high functioning. She asked after she said hmmm, what exactly does she mean by low functioning? I was shocked she asked this and said well in my opinion and the dr agreed looks to be higher functioning because he is verbal but we need to look at the whole and not just that! Then I was telling her that Patty, the director of Little Friends and the person I had the appt with was looking at his report while we talked and she said this little guy is pretty severe! He has some severe things going on! Again another hmmm! Then she said she would like to talk to Little Friends if it was ok with me before the staffing and not thinking I said ok and she said she would have to send something home with on Mon to give her permission that I had to sign/fill out! So we get off the phone and again I got a bit uncomfortable and treid calling her back because I wanted to know why she wanted to call etc! She was gone so I emailed her about it. I got a note from her in the notebook yesterday saying that she wanted to talk to them because like I said on Fri we should all be on the same page and work together! Jim says don't sign it, Kathy says don't I am uncomfortable because of everything that has happened and been twisted and I don't know what to do! I am trying to get in touch with Dr B there and Patty but so far nothing! I thought about signing it only if I am allowed to be in on the call like a conference call! I don't know? What do you all think about that? She had also asked before all thiss what Little Friends thought of the body sock? I told her they showed us about it! Sorry this is so long and I know some of you must be getting sick of hearing about all this!StacieSent via BlackBerry by AT & T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 Yep, makes perfect sense and that is what I am going to do. Thanks! Stacie don't know if I made what to say to Jenna clear: Tell her that you are most comfortable with you and your husband being the lisason between his doctors and the school. You will get Little Friends, and or the Neurologist to write these helpful suggestions down, and once you get them you'll give the school a copy. Until then you'd like for her to work with you. Make sense? Check it out with Jim and see what he thinks.... Go with your gut! Hugs, J From: Two Blessings <ljdjd1234>To: AutismBehaviorProblems Sent: Tuesday, November 11, 2008 1:19:34 PMSubject: Re: What I was going to post about Friday If it makes you uncomfortable listen to your gut....Do not sign it, but rather have Little Friends fax/send something to you...you tell Little Friends that you would like for his teacher to be on the same page as you...and that you would like for them to fax you their ideas and then YOU fax or bring it to her... The School and Miss Jenna does NOT need to have this much control over his life. You are his mom, his advocate, his voice, you are doing a terrific job at relaying precisely what his doctors want the school to know. Tell Miss Jenna that you are most comfortable getting Little Friends (and or the neurologist in the future) to make some suggestions ( have them put it on medical letterhead paper) ---Little Friends can either fax it to you or mail it to you and you will give it to Miss Jenna to have in her files, 's file what have you. Blessings, e From: stacie <hawkie6aol (DOT) com>To: AutismBehaviorProbl emsyahoogroups (DOT) comSent: Tuesday, November 11, 2008 9:59:48 AMSubject: What I was going to post about Friday On Fri I finally gor Miss Jenna to respond to me and say I could call her about 2 and she would have about 20 minutes to talk. So I did! I told her some ideas I had about what to do for meltdowns with that I learned at Little Friends when I went for the training and also Kathy told me about it too and said I could use a blanket to swaddle to help calm him and it helps with sensory etc! the same blanket needs to be used though and where goes it should go! There is this thing called a body sock that is for this! If you google it or look on Ebay you will see what I am talking about! Kathy said I could just use a blanket! Anyhow I believe the reason I got a response from her is because of my wording of the email! So she says she has to ask Mrs Lotito about this because they were trained to use restraining and she took a CIS class a couple weeks ago on this! And she said you can use this at home but I will have to see if I can use it here! And I told her that I think it is very important for both of us to be doing the exact same thing and being on the same page with everything! She said ya! So she asked me how my apt with Little Friends went that day and I was telling her about it and that the report is almost done and hopefully it will be for the staffing! I was saying how Dr B said last week that is low functioning! See Miss Jenna has said she believes he is high functioning. She asked after she said hmmm, what exactly does she mean by low functioning? I was shocked she asked this and said well in my opinion and the dr agreed looks to be higher functioning because he is verbal but we need to look at the whole and not just that! Then I was telling her that Patty, the director of Little Friends and the person I had the appt with was looking at his report while we talked and she said this little guy is pretty severe! He has some severe things going on! Again another hmmm! Then she said she would like to talk to Little Friends if it was ok with me before the staffing and not thinking I said ok and she said she would have to send something home with on Mon to give her permission that I had to sign/fill out! So we get off the phone and again I got a bit uncomfortable and treid calling her back because I wanted to know why she wanted to call etc! She was gone so I emailed her about it. I got a note from her in the notebook yesterday saying that she wanted to talk to them because like I said on Fri we should all be on the same page and work together! Jim says don't sign it, Kathy says don't I am uncomfortable because of everything that has happened and been twisted and I don't know what to do! I am trying to get in touch with Dr B there and Patty but so far nothing! I thought about signing it only if I am allowed to be in on the call like a conference call! I don't know? What do you all think about that? She had also asked before all thiss what Little Friends thought of the body sock? I told her they showed us about it! Sorry this is so long and I know some of you must be getting sick of hearing about all this!StacieSent via BlackBerry by AT & T AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 Yep! That is for sure. And, I posted about this, but the dr said that she can read everything in the report that I went to pick up today so that I would have it so I can send it tomorrow, and in there, is all kinds of suggestions that they wrote down for him at school. I mean two pages worth. I did not know there was going to be that much to this report. Right now, I am on page 15 and there is about 15 more to go. I mean they wrote and wrote and wrote etc. So, I will send this to school tomorrow, I will send a note stating that I talked to the nurse on Mon night when she called me, and a real short description of what she said and leave it at that. I am not mentioning the signing of the paper and I know she will ask later because she wants to talk to Little Friends the Dr there said that anything she needs to know should be in the reprort and after reading it, if she has any questions/concerns, she can contact her and we can set something up, but I will be part of that conversation she said. I mentioned the conference call and how that would be the only way to go and she said she could not do it this week anyhow but we wil lfigure something out and again she stressed and You will be part of that conversation. Stacie If it makes you uncomfortable listen to your gut....Do not sign it, but rather have Little Friends fax/send something to you...you tell Little Friends that you would like for his teacher to be on the same page as you...and that you would like for them to fax you their ideas and then YOU fax or bring it to her... The School and Miss Jenna does NOT need to have this much control over his life. You are his mom, his advocate, his voice, you are doing a terrific job at relaying precisely what his doctors want the school to know. Tell Miss Jenna that you are most comfortable getting Little Friends (and or the neurologist in the future) to make some suggestions ( have them put it on medical letterhead paper) ---Little Friends can either fax it to you or mail it to you and you will give it to Miss Jenna to have in her files, 's file what have you. Blessings, e From: stacie <hawkie6aol>To: AutismBehaviorProblems Sent: Tuesday, November 11, 2008 9:59:48 AMSubject: What I was going to post about Friday On Fri I finally gor Miss Jenna to respond to me and say I could call her about 2 and she would have about 20 minutes to talk. So I did! I told her some ideas I had about what to do for meltdowns with that I learned at Little Friends when I went for the training and also Kathy told me about it too and said I could use a blanket to swaddle to help calm him and it helps with sensory etc! the same blanket needs to be used though and where goes it should go! There is this thing called a body sock that is for this! If you google it or look on Ebay you will see what I am talking about! Kathy said I could just use a blanket! Anyhow I believe the reason I got a response from her is because of my wording of the email! So she says she has to ask Mrs Lotito about this because they were trained to use restraining and she took a CIS class a couple weeks ago on this! And she said you can use this at home but I will have to see if I can use it here! And I told her that I think it is very important for both of us to be doing the exact same thing and being on the same page with everything! She said ya! So she asked me how my apt with Little Friends went that day and I was telling her about it and that the report is almost done and hopefully it will be for the staffing! I was saying how Dr B said last week that is low functioning! See Miss Jenna has said she believes he is high functioning. She asked after she said hmmm, what exactly does she mean by low functioning? I was shocked she asked this and said well in my opinion and the dr agreed looks to be higher functioning because he is verbal but we need to look at the whole and not just that! Then I was telling her that Patty, the director of Little Friends and the person I had the appt with was looking at his report while we talked and she said this little guy is pretty severe! He has some severe things going on! Again another hmmm! Then she said she would like to talk to Little Friends if it was ok with me before the staffing and not thinking I said ok and she said she would have to send something home with on Mon to give her permission that I had to sign/fill out! So we get off the phone and again I got a bit uncomfortable and treid calling her back because I wanted to know why she wanted to call etc! She was gone so I emailed her about it. I got a note from her in the notebook yesterday saying that she wanted to talk to them because like I said on Fri we should all be on the same page and work together! Jim says don't sign it, Kathy says don't I am uncomfortable because of everything that has happened and been twisted and I don't know what to do! I am trying to get in touch with Dr B there and Patty but so far nothing! I thought about signing it only if I am allowed to be in on the call like a conference call! I don't know? What do you all think about that? She had also asked before all thiss what Little Friends thought of the body sock? I told her they showed us about it! Sorry this is so long and I know some of you must be getting sick of hearing about all this!StacieSent via BlackBerry by AT & T AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 I didn't realize I wrote three times back to back... LOL. I guess I'm passionate about you being Mom, and them listening to you! I'm glad you are following your gut --- and God. Goodnight Stacie. e To: AutismBehaviorProblems Sent: Tuesday, November 11, 2008 10:05:02 PMSubject: Re: What I was going to post about Friday Yep! That is for sure. And, I posted about this, but the dr said that she can read everything in the report that I went to pick up today so that I would have it so I can send it tomorrow, and in there, is all kinds of suggestions that they wrote down for him at school. I mean two pages worth. I did not know there was going to be that much to this report. Right now, I am on page 15 and there is about 15 more to go. I mean they wrote and wrote and wrote etc. So, I will send this to school tomorrow, I will send a note stating that I talked to the nurse on Mon night when she called me, and a real short description of what she said and leave it at that. I am not mentioning the signing of the paper and I know she will ask later because she wants to talk to Little Friends the Dr there said that anything she needs to know should be in the reprort and after reading it, if she has any questions/concerns, she can contact her and we can set something up, but I will be part of that conversation she said. I mentioned the conference call and how that would be the only way to go and she said she could not do it this week anyhow but we wil lfigure something out and again she stressed and You will be part of that conversation. Stacie In a message dated 11/11/2008 11:28:57 A.M. Pacific Standard Time, ljdjd1234yahoo (DOT) com writes: If it makes you uncomfortable listen to your gut....Do not sign it, but rather have Little Friends fax/send something to you...you tell Little Friends that you would like for his teacher to be on the same page as you...and that you would like for them to fax you their ideas and then YOU fax or bring it to her... The School and Miss Jenna does NOT need to have this much control over his life. You are his mom, his advocate, his voice, you are doing a terrific job at relaying precisely what his doctors want the school to know. Tell Miss Jenna that you are most comfortable getting Little Friends (and or the neurologist in the future) to make some suggestions ( have them put it on medical letterhead paper) ---Little Friends can either fax it to you or mail it to you and you will give it to Miss Jenna to have in her files, 's file what have you. Blessings, e From: stacie <hawkie6aol (DOT) com>To: AutismBehaviorProbl emsyahoogroups (DOT) comSent: Tuesday, November 11, 2008 9:59:48 AMSubject: What I was going to post about Friday On Fri I finally gor Miss Jenna to respond to me and say I could call her about 2 and she would have about 20 minutes to talk. So I did! I told her some ideas I had about what to do for meltdowns with that I learned at Little Friends when I went for the training and also Kathy told me about it too and said I could use a blanket to swaddle to help calm him and it helps with sensory etc! the same blanket needs to be used though and where goes it should go! There is this thing called a body sock that is for this! If you google it or look on Ebay you will see what I am talking about! Kathy said I could just use a blanket! Anyhow I believe the reason I got a response from her is because of my wording of the email! So she says she has to ask Mrs Lotito about this because they were trained to use restraining and she took a CIS class a couple weeks ago on this! And she said you can use this at home but I will have to see if I can use it here! And I told her that I think it is very important for both of us to be doing the exact same thing and being on the same page with everything! She said ya! So she asked me how my apt with Little Friends went that day and I was telling her about it and that the report is almost done and hopefully it will be for the staffing! I was saying how Dr B said last week that is low functioning! See Miss Jenna has said she believes he is high functioning. She asked after she said hmmm, what exactly does she mean by low functioning? I was shocked she asked this and said well in my opinion and the dr agreed looks to be higher functioning because he is verbal but we need to look at the whole and not just that! Then I was telling her that Patty, the director of Little Friends and the person I had the appt with was looking at his report while we talked and she said this little guy is pretty severe! He has some severe things going on! Again another hmmm! Then she said she would like to talk to Little Friends if it was ok with me before the staffing and not thinking I said ok and she said she would have to send something home with on Mon to give her permission that I had to sign/fill out! So we get off the phone and again I got a bit uncomfortable and treid calling her back because I wanted to know why she wanted to call etc! She was gone so I emailed her about it. I got a note from her in the notebook yesterday saying that she wanted to talk to them because like I said on Fri we should all be on the same page and work together! Jim says don't sign it, Kathy says don't I am uncomfortable because of everything that has happened and been twisted and I don't know what to do! I am trying to get in touch with Dr B there and Patty but so far nothing! I thought about signing it only if I am allowed to be in on the call like a conference call! I don't know? What do you all think about that? She had also asked before all thiss what Little Friends thought of the body sock? I told her they showed us about it! Sorry this is so long and I know some of you must be getting sick of hearing about all this!StacieSent via BlackBerry by AT & T AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 Oh that's OK e! I know you care about me and thanks so much for that! Getting your emails and support and everyone elses really helps so much and means so much to me.StacieSent via BlackBerry by AT&TDate: Tue, 11 Nov 2008 20:34:32 -0800 (PST)To: <AutismBehaviorProblems >Subject: Re: What I was going to post about Friday I didn't realize I wrote three times back to back... LOL. I guess I'm passionate about you being Mom, and them listening to you! I'm glad you are following your gut --- and God. Goodnight Stacie. eFrom: "hawkie6aol" <hawkie6aol>To: AutismBehaviorProblems Sent: Tuesday, November 11, 2008 10:05:02 PMSubject: Re: What I was going to post about FridayYep! That is for sure. And, I posted about this, but the dr said that she can read everything in the report that I went to pick up today so that I would have it so I can send it tomorrow, and in there, is all kinds of suggestions that they wrote down for him at school. I mean two pages worth. I did not know there was going to be that much to this report. Right now, I am on page 15 and there is about 15 more to go. I mean they wrote and wrote and wrote etc. So, I will send this to school tomorrow, I will send a note stating that I talked to the nurse on Mon night when she called me, and a real short description of what she said and leave it at that. I am not mentioning the signing of the paper and I know she will ask later because she wants to talk to Little Friends the Dr there said that anything she needs to know should be in the reprort and after reading it, if she has any questions/concerns, she can contact her and we can set something up, but I will be part of that conversation she said. I mentioned the conference call and how that would be the only way to go and she said she could not do it this week anyhow but we wil lfigure something out and again she stressed and You will be part of that conversation. Stacie In a message dated 11/11/2008 11:28:57 A.M. Pacific Standard Time, ljdjd1234yahoo (DOT) com writes:If it makes you uncomfortable listen to your gut....Do not sign it, but rather have Little Friends fax/send something to you...you tell Little Friends that you would like for his teacher to be on the same page as you...and that you would like for them to fax you their ideas and then YOU fax or bring it to her... The School and Miss Jenna does NOT need to have this much control over his life. You are his mom, his advocate, his voice, you are doing a terrific job at relaying precisely what his doctors want the school to know. Tell Miss Jenna that you are most comfortable getting Little Friends (and or the neurologist in the future) to make some suggestions ( have them put it on medical letterhead paper) ---Little Friends can either fax it to you or mail it to you and you will give it to Miss Jenna to have in her files, 's file what have you. Blessings,eFrom: stacie <hawkie6aol (DOT) com>To: AutismBehaviorProbl emsyahoogroups (DOT) comSent: Tuesday, November 11, 2008 9:59:48 AMSubject: What I was going to post about FridayOn Fri I finally gor Miss Jenna to respond to me and say I could call her about 2 and she would have about 20 minutes to talk. So I did! I told her some ideas I had about what to do for meltdowns with that I learned at Little Friends when I went for the training and also Kathy told me about it too and said I could use a blanket to swaddle to help calm him and it helps with sensory etc! the same blanket needs to be used though and where goes it should go! There is this thing called a body sock that is for this! If you google it or look on Ebay you will see what I am talking about! Kathy said I could just use a blanket! Anyhow I believe the reason I got a response from her is because of my wording of the email! So she says she has to ask Mrs Lotito about this because they were trained to use restraining and she took a CIS class a couple weeks ago on this! And she said you can use this at home but I will have to see if I can use it here! And I told her that I think it is very important for both of us to be doing the exact same thing and being on the same page with everything! She said ya! So she asked me how my apt with Little Friends went that day and I was telling her about it and that the report is almost done and hopefully it will be for the staffing! I was saying how Dr B said last week that is low functioning! See Miss Jenna has said she believes he is high functioning. She asked after she said hmmm, what exactly does she mean by low functioning? I was shocked she asked this and said well in my opinion and the dr agreed looks to be higher functioning because he is verbal but we need to look at the whole and not just that! Then I was telling her that Patty, the director of Little Friends and the person I had the appt with was looking at his report while we talked and she said this little guy is pretty severe! He has some severe things going on! Again another hmmm! Then she said she would like to talk to Little Friends if it was ok with me before the staffing and not thinking I said ok and she said she would have to send something home with on Mon to give her permission that I had to sign/fill out! So we get off the phone and again I got a bit uncomfortable and treid calling her back because I wanted to know why she wanted to call etc! She was gone so I emailed her about it. I got a note from her in the notebook yesterday saying that she wanted to talk to them because like I said on Fri we should all be on the same page and work together! Jim says don't sign it, Kathy says don't I am uncomfortable because of everything that has happened and been twisted and I don't know what to do! I am trying to get in touch with Dr B there and Patty but so far nothing! I thought about signing it only if I am allowed to be in on the call like a conference call! I don't know? What do you all think about that? She had also asked before all thiss what Little Friends thought of the body sock? I told her they showed us about it! Sorry this is so long and I know some of you must be getting sick of hearing about all this!StacieSent via BlackBerry by AT & T AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. Quote Link to comment Share on other sites More sharing options...
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