Re: Question for Bob

[Guest guest]

During the lap-chole, the surgeon saw what he reported to be 'macronodular

cirrhosis' and he took a biopsy. When I saw

the PCP to follow up, she had talked directly to the pathologist and asked him

to give it a number, and he said 'im sorry to

say, but it's a definate four.' At that point we cried. So my PCP said " well

maybe he took the biopsy from the worst spot "

So when I was at the surgeon's office getting the stiches out, I asked him, and

he said no, the liver looks the same all over.

Question for Bob

Bob,

Did you say you had a biopsy? If you did, did they tell you what stage

of cirrhosis? Or did they assume this because of the gallbladder

surgery? I was reading an article and remembered you said they saw it

during your surgery but couldn't remember if they ever biopsied it.

If not, do your doctors plan too?

MaC

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[Guest guest]

Man, that's tough. Did they say if it was compensated or not? I don't mean to

pry or anything. When I read articles about cirrhosis,and do a little

researching, I can't help but think about you and others here. I always hope I

will come across something that may help. And besides... your a brethren of

sorts.

MaC

Bob Aragon wrote:

During the lap-chole, the surgeon saw what he reported to be 'macronodular

cirrhosis' and he took a biopsy. When I saw

the PCP to follow up, she had talked directly to the pathologist and asked him

to give it a number, and he said 'im sorry to

say, but it's a definate four.' At that point we cried. So my PCP said " well

maybe he took the biopsy from the worst spot "

So when I was at the surgeon's office getting the stiches out, I asked him, and

he said no, the liver looks the same all over.

Question for Bob

Bob,

Did you say you had a biopsy? If you did, did they tell you what stage

of cirrhosis? Or did they assume this because of the gallbladder

surgery? I was reading an article and remembered you said they saw it

during your surgery but couldn't remember if they ever biopsied it.

If not, do your doctors plan too?

MaC

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[Guest guest]

I hate to hear that news Bob. I truly hope you get hooked up with a decent

doctor soon. Make sure you get those biopsy results and that they say the stage

to SSI and you should get the disability in pretty quick order.

What are they saying about a liver transplant ? Can you get on a list ?

Question for Bob

Bob,

Did you say you had a biopsy? If you did, did they tell you what stage

of cirrhosis? Or did they assume this because of the gallbladder

surgery? I was reading an article and remembered you said they saw it

during your surgery but couldn't remember if they ever biopsied it.

If not, do your doctors plan too?

MaC

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[Guest guest]

My hepatologist says that it's compensated, I have a very low meld score, But

what I don't understand and neither does my new

pain doctor, who is a physiologist, how the clinic notes say 'well compensated'

' portal hypertension' 'end stage liver disease'

'hepatic encephalopathy', 'no danger of dying currently' all in the same

sentence.Everything I've read says that

compensated liver disease means asymptomatic , no complications, and that portal

hypertension is a serious complication,

and that encephalopathy is a sign of decompensation. Whats your oppinion?

Question for Bob

Bob,

Did you say you had a biopsy? If you did, did they tell you what stage

of cirrhosis? Or did they assume this because of the gallbladder

surgery? I was reading an article and remembered you said they saw it

during your surgery but couldn't remember if they ever biopsied it.

If not, do your doctors plan too?

MaC

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[Guest guest]

Hi . I kinda don't know what to do at this point. I don't think My

hepatologist is a bad doctor, in fact I think he

is probably a very good one, But I think that he thinks that because I watched

my best friend die from cirrhosis

that I'm expecting everything that happened to her to happen to me. I'm not. She

continued to drink, and was in some

stage of liver failure most of last year. I have a meld 9 and cp 6. The thing

I'm afraid of is that I'm on pain medication

now, I couldnt live with the pain anymore, and I have some clinical signs that

things arent as rosey as this doctor would want me to

believe. And I want to live. So I want to take Abijanns advice and get on the

list as soon as possible. Maybe I'll go visit

another state after Sharon's surgery, and get a second oppinion.

Question for Bob

Bob,

Did you say you had a biopsy? If you did, did they tell you what stage

of cirrhosis? Or did they assume this because of the gallbladder

surgery? I was reading an article and remembered you said they saw it

during your surgery but couldn't remember if they ever biopsied it.

If not, do your doctors plan too?

MaC

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[Guest guest]

If your biopsy came back macronodular then that would confirm cirrhosis.

It is possible to be at end stage liver disease and be compenstated. All that

means is that your liver is functioning well for the stage it's in. No jaundice,

PT time normal, other test close to normal.

The portal hypertension is probably causing your encephalopathy. And that can be

reversable with diet and medication. If you don't have varices, that's a good

sign as well.

If your liver is postnecrotic cirrhosis (macronodular) and is compensated, that

is a good sign. It means that the liver is still functioning.

But we both know that can change in an instant. So, I would want to be evaluated

now by a transplant center, especially if I had signs of encephalopathy.

MaC

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[Guest guest]

I was very glad to hear " compensated " , but I'm not very trusting after the pcp

said " trust me , you DONT have cirrhosis.

This is the same for me. At CU, at least, INR is from 0.9 to 1.1 and I was 1.1,

and platelets are from 150 to 400

and I'm 150 and have hard to control nosebleeds. My BUN is consistently low at 3

and that minicourse in liver disease

said low BUN equals high ammonia and I have high ammonia. The lactulose works

when it gives me lose stools

but sometimes it doesnt give me lose stools, so they upped it to 45ml 3x a day.

the encephalopathy still waxes and wanes.

So I was wondering why I have encephalopathy if my liver function is so good,

and then I discovered something

on my CT scan report. The appearance of small collaterals, so I looked it up and

all of a sudden I'm seeing the word collaterals all

over the place, and these collaterals form when the portal pressure is a 10 or

12 or something like that

and how that portion of the blood doesnt get filtered, so It's starting to make

some sense, but I have a

suspision that these small collaterals are possibily the beginnings of

varicies, and I'm scared to death, cause my

spleen is definately enlarged to 16cm so I just don't understand how this is

considered to be totally compensated.

Besides, the doctors are supposed to tell me that i have portal hypertension,

not I ask him and he says " yes, you do " .

oh, well...

Re: Question for Bob

If your biopsy came back macronodular then that would confirm cirrhosis.

It is possible to be at end stage liver disease and be compenstated. All that

means is that your liver is functioning well for the stage it's in. No jaundice,

PT time normal, other test close to normal.

The portal hypertension is probably causing your encephalopathy. And that can be

reversable with diet and medication. If you don't have varices, that's a good

sign as well.

If your liver is postnecrotic cirrhosis (macronodular) and is compensated, that

is a good sign. It means that the liver is still functioning.

But we both know that can change in an instant. So, I would want to be evaluated

now by a transplant center, especially if I had signs of encephalopathy.

MaC

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[Guest guest]

I associate decompensated with actual liver failure and compensated as a damaged

liver that's still functioning. And portal hypertension happens in almost all

cases of cirrhosis. If you start developing ascites, that's a poor sign and may

be an indicator to liver failure.

MaC

Bob Aragon wrote: I

was very glad to hear " compensated " , but I'm not very trusting after the pcp

said " trust me , you DONT have cirrhosis.

This is the same for me. At CU, at least, INR is from 0.9 to 1.1 and I was

1.1, and platelets are from 150 to 400

and I'm 150 and have hard to control nosebleeds. My BUN is consistently low at

3 and that minicourse in liver disease

said low BUN equals high ammonia and I have high ammonia. The lactulose works

when it gives me lose stools

but sometimes it doesnt give me lose stools, so they upped it to 45ml 3x a day.

the encephalopathy still waxes and wanes.

So I was wondering why I have encephalopathy if my liver function is so good,

and then I discovered something

on my CT scan report. The appearance of small collaterals, so I looked it up

and all of a sudden I'm seeing the word collaterals all

over the place, and these collaterals form when the portal pressure is a 10 or

12 or something like that

and how that portion of the blood doesnt get filtered, so It's starting to

make some sense, but I have a

suspision that these small collaterals are possibily the beginnings of

varicies, and I'm scared to death, cause my

spleen is definately enlarged to 16cm so I just don't understand how this is

considered to be totally compensated.

Besides, the doctors are supposed to tell me that i have portal hypertension,

not I ask him and he says " yes, you do " .

oh, well...

Re: Question for Bob

If your biopsy came back macronodular then that would confirm cirrhosis.

It is possible to be at end stage liver disease and be compenstated. All that

means is that your liver is functioning well for the stage it's in. No jaundice,

PT time normal, other test close to normal.

The portal hypertension is probably causing your encephalopathy. And that can

be reversable with diet and medication. If you don't have varices, that's a good

sign as well.

If your liver is postnecrotic cirrhosis (macronodular) and is compensated, that

is a good sign. It means that the liver is still functioning.

But we both know that can change in an instant. So, I would want to be

evaluated now by a transplant center, especially if I had signs of

encephalopathy.

MaC

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