Re:Have most members failed with antibiotic regimens?

[Guest guest]

Caryn:

It's about time you came and visited us. (I had invited her a while ago - ok maybe just a few weeks ago). When I figured it out about the lyme-autism connection, I then researched all the different methods to kill lyme and co. I ended up supporting Dr. Cowden, Master Herbalist Buhner, and Dr. Klinghardt's ideas. I chose not do antibiotics due to reports of GI and organ trauma from yeast overgrowth and such from the antibiotics. Minocycline was offered to my son but I researched it and found it stained teeth, bones and thyroid permanently. I have nothing against them for others. I think each needs to choose what is best for them. Many have reported great results with Dr. , so if you have the opportunity to go to him, that is good. I have seen reports that people had their lyme symptoms go away on just 4 months of antibiotics, but I also hear this for Cowden's protocol and Samento. So some are blessed. But, unfortunately, many others struggle for many years on either antibiotics or various alternative methods of killing lyme and co. My goal is to get my family's pathogen and toxin load down a lot, so hopefully they will never relapse, but one can not predict the future.

Heidi N

Hello,I am new here and see most of the posts focusing on alternative treatments to Lyme and coinfection. Have most of you who are pursuing these treatments failed on traditionally antibiotic regimens?My son will be 2 next week and we are treating him for borrelia, babesia and hope soon to add bartonella with antibiotic protocol through Dr . I have been considering supplementing his treatment with alternative treatments, because I believe in being thorough and going the extra mile. What I am wondering if most families here found this approach to fall short?Also, have many of you used Rifampin? I had been on this in the past and felt like a superhero. I am pretty sure this had temporarily knocked out my bartonella. I am hoping to try it again long term and also try it with my son.Thanks in advance for sharing your thoughts.Caryn It's only a deal if it's where you want to go. Find your travel deal here.

[Guest guest]

Hi Heidi,

I have not been online much b/c the screen on my laptop died and needed to be replaced.

Also, now I am up to speed on my reading on antibiotic protocols. I have read Lyme Times, Dr Burascanno's treatment plan, and anything I could find on symptoms for each coinfection. I also read Rosner's book and recognized a couple of my cyberfriends.

I just sent off my and my husband's blood to Fry for photographic detection of pathogens. I like my Lyme practitioner (Ruth Kriz) b/c she uses lots of antibiotics but is into diet and supplements too, she works entirely over the phone, she recognizes every symptom of the coinfections, she treats couples together as she believes all infections are sexually transmitted and best of all, she is cheap as compared to the big names. It would probably be easier if she would treat my son or if Dr would treat me, but at least I am getting 2 opinions.

As you know, we have been working with Dr since March and I do not plan on letting him go. My son's test for Bartonella have been negative so far, but I am hoping Fry Labs will find it in me so that I can get my son on some rifampin or good Bartonella protocol.

I believe that Bartonella is the cause of my son's lack of human interest. His cogntive abilities all returned within a week of treating Borrelia. Suddenly he had receptive language and he was reading again (he started reading at 11 months of age and at 23 months he reads over 200 words.) His physical disabilites magically disappeared within 48 hours of treating Babesia with Mepron. He climbed out of his crib, walked up the stairs, climbed into the high chair, on the furniture, began turning door knobs, allowing us to bounce him on a therapy ball, went on a ride-on toy, etc. Last Fall he was near recovery socially (still had cognitive and physical issues) but then regressed. At that time he was on Septra which is supposed to have some coverage against Bartonella. I think treating Bartonella will be huge for us.

My one other concern for infection is Brucellous. I saw a NAET last Fall in Florida who used to work with Cowden and he muscle tested my son and I for Brucellous. We never did the treatment and my DAN could not confirm this infection on lab reports. I am not sure if this was simply b/c it is closely related to Bartonella or if this is another infection we have. If anyone has an herbal cure for this one, I would probably be inclined to try it as I may have trouble convincing a dr to treat it based on a muscle test.

My plan is to do all of the antibiotic protocols and then begin adding in some of the herbals and then probably use the herbals beyond the duration of the antibiotic therapy. As always, I practice treatments on myself as I have always believed my son has what I have and if it helps me it will help him.

Caryn Reid

[Guest guest]

Caryn:

We sure welcome your success stories. Wow, that's what I am talking

about. So altogether from treating lyme and co, how much of a

percentage of his autism symptoms have disappeared?

Heidi N

>

> Hi Heidi,

>  

> I have not been online much b/c the screen on my laptop died and

needed to be replaced. 

>  

> Also, now I am up to speed on my reading on antibiotic protocols. 

I have read Lyme Times, Dr Burascanno's treatment plan, and anything

I could find on symptoms for each coinfection.  I also read

Rosner's book and recognized a couple of my cyberfriends. 

>

> I just sent off my and my husband's blood to Fry for photographic

detection of pathogens.  I like my Lyme practitioner (Ruth Kriz) b/c

she uses lots of antibiotics but is into diet and supplements too,

she works entirely over the phone, she recognizes every symptom of

the coinfections, she treats couples together as she believes all

infections are sexually transmitted and best of all, she is cheap as

compared to the big names.  It would probably be easier if she would

treat my son or if Dr would treat me, but at least I am getting

2 opinions.

>  

> As you know, we have been working with Dr since March and I

do not plan on letting him go.  My son's test for Bartonella have

been negative so far, but I am hoping Fry Labs will find it in me so

that I can get my son on some rifampin or good Bartonella protocol. 

>  

> I believe that Bartonella is the cause of my son's lack of human

interest.  His cogntive abilities all returned within a week of

treating Borrelia.  Suddenly he had receptive language and he was

reading again (he started reading at 11 months of age and at 23

months he reads over 200 words.)  His physical disabilites magically

disappeared within 48 hours of treating Babesia with Mepron.  He

climbed out of his crib, walked up the stairs, climbed into the high

chair, on the furniture, began turning door knobs, allowing us to

bounce him on a therapy ball, went on a ride-on toy, etc.  Last Fall

he was near recovery socially (still had cognitive and physical

issues) but then regressed.  At that time he was on Septra which is

supposed to have some coverage against Bartonella.  I think treating

Bartonella will be huge for us.

>  

> My one other concern for infection is Brucellous.  I saw a NAET

last Fall in Florida who used to work with Cowden and he muscle

tested my son and I for Brucellous.  We never did the treatment and

my DAN could not confirm this infection on lab reports.  I am not

sure if this was simply b/c it is closely related to Bartonella or if

this is another infection we have.  If anyone has an herbal cure for

this one, I would probably be inclined to try it as I may have

trouble convincing a dr to treat it based on a muscle test.

>  

> My plan is to do all of the antibiotic protocols and then begin

adding in some of the herbals and then probably use the herbals

beyond the duration of the antibiotic therapy.  As always, I practice

treatments on myself as I have always believed my son has what I have

and if it helps me it will help him.

>

> Caryn Reid

>

[Guest guest]

Caryn,

Thank you for sharing your experience with antibiotics.

knowing what your current focuses are, I think that you might be interested in Dr. Horowitz's recent presentation at LIA conference (6/26 - 29, 2008). The title of his presentation is "Herbs, Hormones and Heavy Metals". There is a good portion of his presentation discussing antibiotic strategy such as treating 3 forms (L-form, CWD, spirochetes) simultaneously. He mentions that antibiotics can be effectively when used within 15 to 30 days after a tick bite. For chronic conditions, it might take up years on antibiotic treatment, and in many cases relapses occurs. Because of these reasons, he uses herbal protocols in conjunction with antibiotics in order to shorten the course of treatment and/or prevent relapses. He mostly uses Dr. Lee Cowden's and Dr. Qingcai Zhang's herbal protocols. Here is Dr. Zhang's website: http://www.sinomedresearch.org/. His protocol is described in his book "Lyme disease and Modern Chinese" (http://www.amazon.com/Lyme-Disease-Modern-Chinese-Medicine/dp/0967721318/ref=sr_1_1?ie=UTF8 & s=books & qid=1219382205 & sr=8-1). Dr. Cowden's protocol can be googled online.

Dr. Horowitz has treated 11,000 Lyme patients in the past 20 years. Both of his presentations in New Jersey and in southern CA left me an impression of him being very experienced and intelligent. The DVD of his presentation can be purchased through ZenWorks Productions.

This is just a reminder, if you will be going for the Fry Labs blood smear test. Make sure to explicitly ask to be shown "All malaria-like loops, rings, crescents, 'artifacts', or other remotely possible protozoa findings (Dr. Schaller's recommendation)." This way they might be able to also catch Babesia in addition to Bartonella. However, Bartonella and/or Babesia are not perfectly uniform in the blood. The sample from one blood draw might catch a lower bacteria numbers than another. One might get "no organism's detected" test result with one blood sample, and "positive" when sending in another blood sample.

Limin

Re:Have most members failed with antibiotic regimens?

Hi Heidi,

I have not been online much b/c the screen on my laptop died and needed to be replaced.

Also, now I am up to speed on my reading on antibiotic protocols. I have read Lyme Times, Dr Burascanno's treatment plan, and anything I could find on symptoms for each coinfection. I also read Rosner's book and recognized a couple of my cyberfriends.

I just sent off my and my husband's blood to Fry for photographic detection of pathogens. I like my Lyme practitioner (Ruth Kriz) b/c she uses lots of antibiotics but is into diet and supplements too, she works entirely over the phone, she recognizes every symptom of the coinfections, she treats couples together as she believes all infections are sexually transmitted and best of all, she is cheap as compared to the big names. It would probably be easier if she would treat my son or if Dr would treat me, but at least I am getting 2 opinions.

As you know, we have been working with Dr since March and I do not plan on letting him go. My son's test for Bartonella have been negative so far, but I am hoping Fry Labs will find it in me so that I can get my son on some rifampin or good Bartonella protocol.

I believe that Bartonella is the cause of my son's lack of human interest. His cogntive abilities all returned within a week of treating Borrelia. Suddenly he had receptive language and he was reading again (he started reading at 11 months of age and at 23 months he reads over 200 words.) His physical disabilites magically disappeared within 48 hours of treating Babesia with Mepron. He climbed out of his crib, walked up the stairs, climbed into the high chair, on the furniture, began turning door knobs, allowing us to bounce him on a therapy ball, went on a ride-on toy, etc. Last Fall he was near recovery socially (still had cognitive and physical issues) but then regressed. At that time he was on Septra which is supposed to have some coverage against Bartonella. I think treating Bartonella will be huge for us.

My one other concern for infection is Brucellous. I saw a NAET last Fall in Florida who used to work with Cowden and he muscle tested my son and I for Brucellous. We never did the treatment and my DAN could not confirm this infection on lab reports. I am not sure if this was simply b/c it is closely related to Bartonella or if this is another infection we have. If anyone has an herbal cure for this one, I would probably be inclined to try it as I may have trouble convincing a dr to treat it based on a muscle test.

My plan is to do all of the antibiotic protocols and then begin adding in some of the herbals and then probably use the herbals beyond the duration of the antibiotic therapy. As always, I practice treatments on myself as I have always believed my son has what I have and if it helps me it will help him.

Caryn Reid

[Guest guest]

Heidi,

The crazy part is that my son is really as autistic as ever. He just

shifted from a little bad in a few categories to about the least eye

contact you have ever seen in a kid. I think that you need to treat

every infection at the same time otherwise you are just making the

untreated one worse while the treated ones better. My son used to

have marked physical delays, somewaht poor eye contact and lost all

receptive language. As his receptive language came back (omnicef) he

lost all eye contact (I believe it is bartonella.)

My Lymes practitioner thinks both my husband and I have bartonella,

where I am the only one with Borrelia. This means that you don't

have to have Lyme to have bartonella. As we treat other infections

the bartonella seems to get worse. That is likely why most ASD

parents are afraid of antibiotics. I am pretty sure that this whole

autism thing is just a bartonella epidemic. You can catch it from

ticks, fleas, cats and your lover. You are not likely to treat it by

accident and it is almost impossible to test for.

Caryn

> >

> > Hi Heidi,

> >  

> > I have not been online much b/c the screen on my laptop died and

> needed to be replaced. 

> >  

> > Also, now I am up to speed on my reading on antibiotic

protocols. 

> I have read Lyme Times, Dr Burascanno's treatment plan, and

anything

> I could find on symptoms for each coinfection.  I also read

> Rosner's book and recognized a couple of my cyberfriends. 

> >

> > I just sent off my and my husband's blood to Fry for photographic

> detection of pathogens.  I like my Lyme practitioner (Ruth

Kriz) b/c

> she uses lots of antibiotics but is into diet and supplements too,

> she works entirely over the phone, she recognizes every symptom of

> the coinfections, she treats couples together as she believes all

> infections are sexually transmitted and best of all, she is cheap

as

> compared to the big names.  It would probably be easier if she

would

> treat my son or if Dr would treat me, but at least I am

getting

> 2 opinions.

> >  

> > As you know, we have been working with Dr since March and I

> do not plan on letting him go.  My son's test for Bartonella have

> been negative so far, but I am hoping Fry Labs will find it in me

so

> that I can get my son on some rifampin or good Bartonella

protocol. 

> >  

> > I believe that Bartonella is the cause of my son's lack of human

> interest.  His cogntive abilities all returned within a week of

> treating Borrelia.  Suddenly he had receptive language and he was

> reading again (he started reading at 11 months of age and at 23

> months he reads over 200 words.)  His physical disabilites

magically

> disappeared within 48 hours of treating Babesia with Mepron.  He

> climbed out of his crib, walked up the stairs, climbed into the

high

> chair, on the furniture, began turning door knobs, allowing us to

> bounce him on a therapy ball, went on a ride-on toy, etc.  Last

Fall

> he was near recovery socially (still had cognitive and physical

> issues) but then regressed.  At that time he was on Septra which is

> supposed to have some coverage against Bartonella.  I think

treating

> Bartonella will be huge for us.

> >  

> > My one other concern for infection is Brucellous.  I saw a NAET

> last Fall in Florida who used to work with Cowden and he muscle

> tested my son and I for Brucellous.  We never did the treatment and

> my DAN could not confirm this infection on lab reports.  I am not

> sure if this was simply b/c it is closely related to Bartonella or

if

> this is another infection we have.  If anyone has an herbal cure

for

> this one, I would probably be inclined to try it as I may have

> trouble convincing a dr to treat it based on a muscle test.

> >  

> > My plan is to do all of the antibiotic protocols and then begin

> adding in some of the herbals and then probably use the herbals

> beyond the duration of the antibiotic therapy.  As always, I

practice

> treatments on myself as I have always believed my son has what I

have

> and if it helps me it will help him.

> >

> > Caryn Reid

> >

>

[Guest guest]

Caryn:

I agree that Bartonella is a very big problem, getting tossed aside by mainstream medical. I believe Dr. Burrascano recently said that he feels that Bartonella is causing most of the symptoms and that he's thinking its some different strain that isn't in the medical books yet. He's working on this issue; prayerfully, he is able to help us all with whatever he discovers. Knowing the answer is one thing, getting the world to accept that answer is another. Bartonella is definitely a big problem for my family.

Heidi N

Heidi, The crazy part is that my son is really as autistic as ever. He just shifted from a little bad in a few categories to about the least eye contact you have ever seen in a kid. I think that you need to treat every infection at the same time otherwise you are just making the untreated one worse while the treated ones better. My son used to have marked physical delays, somewaht poor eye contact and lost all receptive language. As his receptive language came back (omnicef) he lost all eye contact (I believe it is bartonella.)My Lymes practitioner thinks both my husband and I have bartonella, where I am the only one with Borrelia. This means that you don't have to have Lyme to have bartonella. As we treat other infections the bartonella seems to get worse. That is likely why most ASD parents are afraid of antibiotics. I am pretty sure that this whole autism thing is just a bartonella epidemic. You can catch it from ticks, fleas, cats and your lover. You are not likely to treat it by accident and it is almost impossible to test for. CarynIt's only a deal if it's where you want to go. Find your travel deal here.

[Guest guest]

Hi Limin, I noticed that yesterday. I am not running out for a new dr just yet, but certainly considering it. )

Caryn Reid