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Thank you all for your kind words and prayers for . We will find

out next Friday (15th June) whether the surgeons in Belfast will be

going for surgery or not, we will let you know how we get on. We

looked up the internet and found out that adults with Marfan's can

have this heart defect and many have had successful surgery. It did

say that there were no documented cases of this surgery on children

but it did give us a lot of hope for . We are grateful for all

your support especially because you all know what it is like to worry

for your little ones too.

Thanks Again. Take Care,

Gail and .

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