Guest guest Posted May 16, 2004 Report Share Posted May 16, 2004 Mae Lynn: You are sooo right about it all being a puzzle! Our 16 yr old struggles with OCD also. Lots of folinic acid (not folic) and magnesium malate have been good for him, as has the Kirkman GABA (containing inositol and niacinimide) which helps him sleep and, in turn, lessens OCD tendencies. I learned from " annagrammy " that some of the kids don't tolerate the Bs in a comprehensive formula, but need to take things separately instead. (She knows how to explain it better than I do!) I just know Clayton doesn't tolerate a multi-vitamin at this point, yet taking separate vits/mins is okay. Removing the NuThera might be an option til more healing takes place. Cheryl > Hi Everyone, > > I have been working on a puzzle for a while now, and thought I would > toss it out to all of you, because I know that often others have > dealt with similar issues. I have written before about my son Henry, > who is 8 and ASD. He has OCD that tends to fluctuate in severity. > Right now it is pretty bad(ritualistic touching has now extended to > touching others, and his usually tolerant classmates are not happy > about this). I recall that once there was a post on another list > about B vitamin imbalances leading to worsening of OCD. I know that > the best way to ensure that the Bs are balanced is to give a B > complex, but I cannot do that because he already is taking Nu Thera > which contains a lot of P5P (50 mg). He also gets 1000mcg. oral > Methyl B-12, 400 mcg. Folinic Acid, as well as some extra regular B6 > (about 25 mg per day)and Niacinamide (100 mg perday) with meals. I > added in the Niacinamide and the B6 after reading an article in VRP's > newsletter about ways to help the body metabolize tryptophan to > serotonin. These amounts are the low end of the suggested amounts for > children. I felt that this was necessary because he is now on a > relatively high protein diet due to his " restricted carbohydrate > diet " – this is a long story for another post. Owens had also > suggested to me that the Niacinamide would help with B12 metabolism, > back when Henry was waking after even a small shot of MB12 (500mcg). > He is currently on the oral and seems to be tolerating it. Anyway, > you can see that adding a B complex would give him too much of some > Bs, especially the folic acid. Should I just get some B2, B5, Biotin > and B1? But how much would balance him out? He gets a small amount of > these in the NuThera. He does grind his teeth a great deal, and I > know that the B5 is good for that. The amounts are what have me > stumped. > > I hope someone can share their experiences, or offer suggestions. > Thank you. > > Mae Lynn > Mom to Henry, 8, ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 When I hear OCD these days, I first want to rule out strep, then yeast and clostridia, then do an OAT at Meta-Metrix to see which B's might be necessary. Dr. JM Re: Balancing B Vitamins/OCD Mae Lynn: You are sooo right about it all being a puzzle! Our 16 yr old struggles with OCD also. Lots of folinic acid (not folic) and magnesium malate have been good for him, as has the Kirkman GABA (containing inositol and niacinimide) which helps him sleep and, in turn, lessens OCD tendencies. I learned from " annagrammy " that some of the kids don't tolerate the Bs in a comprehensive formula, but need to take things separately instead. (She knows how to explain it better than I do!) I just know Clayton doesn't tolerate a multi-vitamin at this point, yet taking separate vits/mins is okay. Removing the NuThera might be an option til more healing takes place. Cheryl > Hi Everyone, > > I have been working on a puzzle for a while now, and thought I would > toss it out to all of you, because I know that often others have > dealt with similar issues. I have written before about my son Henry, > who is 8 and ASD. He has OCD that tends to fluctuate in severity. > Right now it is pretty bad(ritualistic touching has now extended to > touching others, and his usually tolerant classmates are not happy > about this). I recall that once there was a post on another list > about B vitamin imbalances leading to worsening of OCD. I know that > the best way to ensure that the Bs are balanced is to give a B > complex, but I cannot do that because he already is taking Nu Thera > which contains a lot of P5P (50 mg). He also gets 1000mcg. oral > Methyl B-12, 400 mcg. Folinic Acid, as well as some extra regular B6 > (about 25 mg per day)and Niacinamide (100 mg perday) with meals. I > added in the Niacinamide and the B6 after reading an article in VRP's > newsletter about ways to help the body metabolize tryptophan to > serotonin. These amounts are the low end of the suggested amounts for > children. I felt that this was necessary because he is now on a > relatively high protein diet due to his " restricted carbohydrate > diet " - this is a long story for another post. Owens had also > suggested to me that the Niacinamide would help with B12 metabolism, > back when Henry was waking after even a small shot of MB12 (500mcg). > He is currently on the oral and seems to be tolerating it. Anyway, > you can see that adding a B complex would give him too much of some > Bs, especially the folic acid. Should I just get some B2, B5, Biotin > and B1? But how much would balance him out? He gets a small amount of > these in the NuThera. He does grind his teeth a great deal, and I > know that the B5 is good for that. The amounts are what have me > stumped. > > I hope someone can share their experiences, or offer suggestions. > Thank you. > > Mae Lynn > Mom to Henry, 8, ASD Many frequently asked questions and answers can be found at <http://forums.autism-rxguidebook.com> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 My 4 year old son struggles with OCD also... he regressed initially after a strep infection. His ASO test was negative (I thought he had Pandas), but it's strange... he first had strep at 3.5 yrs (and regressed - he was fine before), and has had strep 4 more times in the year since then. His behavior worsens significantly after strep (though this may be a result of the antibiotics... I feel I must give them since my MIL 's heart valve gave out due to untreated strep)... he stims much more and is much more obsessive and compulsive and withdrawn for weeks or months after a strep infection. Treating for yeast both preventatively during the antibiotics and afterwards doesn't seem to affect the regression and increased behaviors. Have we missed something with the strep? Thanks, > > Hi Everyone, > > > > I have been working on a puzzle for a while now, and thought I > would > > toss it out to all of you, because I know that often others have > > dealt with similar issues. I have written before about my son > Henry, > > who is 8 and ASD. He has OCD that tends to fluctuate in severity. > > Right now it is pretty bad(ritualistic touching has now extended to > > touching others, and his usually tolerant classmates are not happy > > about this). I recall that once there was a post on another list > > about B vitamin imbalances leading to worsening of OCD. I know that > > the best way to ensure that the Bs are balanced is to give a B > > complex, but I cannot do that because he already is taking Nu Thera > > which contains a lot of P5P (50 mg). He also gets 1000mcg. oral > > Methyl B-12, 400 mcg. Folinic Acid, as well as some extra regular > B6 > > (about 25 mg per day)and Niacinamide (100 mg perday) with meals. I > > added in the Niacinamide and the B6 after reading an article in > VRP's > > newsletter about ways to help the body metabolize tryptophan to > > serotonin. These amounts are the low end of the suggested amounts > for > > children. I felt that this was necessary because he is now on a > > relatively high protein diet due to his " restricted carbohydrate > > diet " - this is a long story for another post. Owens had > also > > suggested to me that the Niacinamide would help with B12 > metabolism, > > back when Henry was waking after even a small shot of MB12 > (500mcg). > > He is currently on the oral and seems to be tolerating it. Anyway, > > you can see that adding a B complex would give him too much of some > > Bs, especially the folic acid. Should I just get some B2, B5, > Biotin > > and B1? But how much would balance him out? He gets a small amount > of > > these in the NuThera. He does grind his teeth a great deal, and I > > know that the B5 is good for that. The amounts are what have me > > stumped. > > > > I hope someone can share their experiences, or offer suggestions. > > Thank you. > > > > Mae Lynn > > Mom to Henry, 8, ASD > > > > Many frequently asked questions and answers can be found at <http://forums.autism-rxguidebook.com> > > > Quote Link to comment Share on other sites More sharing options...
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