Re: just a note/and a message for Jeanne's daughter

[Guest guest]

God Speed Abijan. I wish you well, I know Jeanne thought the world

of you. As you were in her prayers, so will you be in mine.

And what you say is true. All of you on this list who have this

illness must be informed of what your lab results mean and have an

advocate for your care. Do not take NO for an answer. This is YOUR

LIFE and only you can be adamant enough to get what you need. Never

be afraid to push and be pushy. There is too much apathy in health

care today. Too many people work in this field who should not be

there. They no longer care and no longer have any compassion. When

it gets to this point, they should seek another line of work. Health

care is about PEOPLE...OTHER PEOPLE...they may just be a condition to

them but they mean the world to someone else. When the people

working in health care fail to realize this, it is time for them to

move on before they do serious harm.

My dear friend Jeanne is dead because of apathy and negligence. She

did not have to die. A nurse, who lacked a sense of urgency about

her latest turn of events, is the one I look to for personal

responsibility in this situation. She did not consult the doctor as

she was supposed to do, she did not follow through in a timely manner

in an urgent situation, she chastized Jeanne's husband for not going

through the " channels " , all the time she was lying in an ICU fighting

for her life. Should this woman be in health care? I say

emphatically NO! And I swear on the memory of my dear friend that I

will not rest until I see her license pulled.

If you run into these types in your travels through the health care

maze, do not sit back and allow them to perpetuate their inepitude.

DO SOMETHING. People like this should be serving Happy meals at

Mc's. They should not be entrusted with the care and welfare

of you or your loved ones. And if I can in any way effect her

dismissal from the health care system, I will have done another

patient a great service.

I pray that all of you who are ill will find kind, compassionate and

competent medical care. It is your right.

In closing I have a note here to Jeanne's daughter. , I know you

read at this site. And I say to you SHAME! You lived an hour from

your mother and yet you could not find the time in your busy life to

visit her and let her see her granddaughters. You put yourself and

everyone else before her always and now it is too late. I hope you

can live with yourself. And I hope you experience the same thing

from your children one day. You deserve that. You broke her heart

every time you said you were coming and never showed...and never even

bothered to call. I have no sympathy for you at all. You made you

bed now you can lie in it.

To the rest of you, I wish you the best of luck and pray that God has

a miracle in His pocket for you.

>

> I wish all of you the best.

>

> We had cirrhosis, liver failure, biliary sclerosing, Legionnaire

> Pneumonia, had to be rehabiliated because of laying in bed without

> being able to even sit up by ourselves, had many infections and

> abscesses, and other operations for other medical conditions.

>

> We had problems with a secretary who would not put us through to

> the doctor when we saw that the lab work said the sodium level

> was in " CRITICAL range " . Even though we told her the doctor

> wanted us to call in, that it was an emergency, and asked to

> have her paged...she would not do it. Said the doctor was in

> clinic and we would have to wait. Because of her, we would have

> died...the liver was in failure, the kidneys were starting to

> shut down because of toxins, and the heart beat was out of rhythm.

> This is why I ask everyone to learn what their blood work means.

> (At that time we had no idea) We got in touch with the lady who

told

> us our MELD score was the highest and that we should not be talking

> but in a coma. She tooked the copies of the lab work results we

faxed

> her directly to the doctor. In minutes we were called to go to the

> emergency room stat. It was our local hospital. We live 3 to 4

hours

> away from the Transplant hospital. We were transported down there

> from our home hospital.

>

> I want other to be informed...the more you know, the more you

> can participate in and have a say in what they do to you.

> It helps in communication with the doctors. Doctors will

> show you more respect if they know you are truly taking a part

> in your own care.

>

> I hope everyone will take a moment to remember Jeanne and her

> lovely friend and family. I miss her very much. I wish more

> of you could of gotten to know her. Take Care everyone...

> When I feel better, I will be back on.