Re: Update on changing from SCD to GF/CF..

[Guest guest]

I was wondering if you started from step 1, with the soup and all.

That is the major turn off for us, because my son does not eat with

utensils and I know that he would not touch soup. He has an problem

with liquid and soft foods. I took him off of Rice milk after being

on it for over 1.5 years and he seemed to start being more aware of

his surroundings......I know that he needs diet intervention but the

whole eating with hands is killing every effort we make at it. He

has loose stools 2-3 times a day and they have undigested food and

are grainy in consistancy. The only thing he has going for him is

that he is NOT a small guy. He is a big eater of the things he

likes and he packs on the lbs. easy! If anyone can help with any

information that would be great.

Thanks

Dena

Mother of Hayden (3.9 years old, 45 #)

[Guest guest]

Hi and good luck.. Slater too had major sensory issues and he didn't

eat with utensils yet either so we just fed him the soup.

We did do the intro diet twice.. one at beginning and then again

later on. We stayed primarily on the stage 1 and then some stage 2

foods since I didn't feel enough gut healing had occurred to add

other foods yet. When we added in more foods later on to try to add

weight, we did venture into other groups though. BTW, the undigested

food and loose stools were a signal to me that he was not absorbing

the nutrients/foods I was putting into him. Doesn't matter how

healthy it is if they do not absorb it and that is what I finally

realized and we began to adapt the diet and meds to fix this.

Good luck and have a blessed week!

> I was wondering if you started from step 1, with the soup and

all.

> That is the major turn off for us, because my son does not eat

with

> utensils and I know that he would not touch soup. He has an

problem

> with liquid and soft foods. I took him off of Rice milk after

being

> on it for over 1.5 years and he seemed to start being more aware

of

> his surroundings......I know that he needs diet intervention but

the

> whole eating with hands is killing every effort we make at it. He

> has loose stools 2-3 times a day and they have undigested food and

> are grainy in consistancy. The only thing he has going for him is

> that he is NOT a small guy. He is a big eater of the things he

> likes and he packs on the lbs. easy! If anyone can help with any

> information that would be great.

>

> Thanks

> Dena

> Mother of Hayden (3.9 years old, 45 #)

[Guest guest]

My son cannot use a spoon and is learning to use a fork but is not

consistent with using it. I did the intro for 2 days with him which

I think was really worth it. I made the soup but cut the carrots in

cubes so I was able to give my son chicken and carrots out of the

soup as finger foods. I saw at the time that pecanbread website

suggested putting banana slices in the jello so I asked Elaine if

spotted bananas are OK for the intro. She responded that it is OK so

I gave that to my son during that time too.

In addition to the jumpstart in healing, I found two benefits from

doing the intro at the beginning. First, my son did not eat much

during these two days since the intro food is not necessarily his

favorite food. After two days of an extremely limited diet, he was

more willing to eat the foods I allowed him afterwards. Second, his

taste buds had changed by not having the complex carbs. I know this

because it happened to me also. My family of 6 went on the diet.

Before the diet I gave each member an almond cookie from Digestive

Wellness. My daughter spit it out while the rest of us kinda choked

it down. In my opinion it was like cardboard. After the intro I

offered everyone cookies from the same package. We all loved them.

Even my daughter asked for more. My autistic son would not eat

veggies before diet. Now he will eat cooked carrots over any dessert

I offer him!

My son has completely liquid stools before GFCFSF. That diet gave it

more consistency but was still diarrhea. Zinc made them a bit more

firm as did enzymes. Within a week of SCD, diarrhea became a thing

of the past. He has nicely formed little turds. He has been on the

diet for over 4 months and the only diarrhea he has had is when he

had the flu.

Size is another issue you brought up. Most people that talk about

SCD talk about how it helped their child gain weight. This is coming

from those that were concerned about their underweight child. In my

family we have experienced both. Three of us are overweight and

three are underweight. Those that are overweight have lost alot of

weight early on (I lost 10 lbs in 2 weeks) which slowed down to a

consistent weight loss. Those that are underweight initially lost a

little but are gaining again. It seems to me that this diet tends to

normalize whatever weight someone is at.

> I was wondering if you started from step 1, with the soup and all.

> That is the major turn off for us, because my son does not eat with

> utensils and I know that he would not touch soup. He has an

problem

> with liquid and soft foods. I took him off of Rice milk after being

> on it for over 1.5 years and he seemed to start being more aware of

> his surroundings......I know that he needs diet intervention but

the

> whole eating with hands is killing every effort we make at it. He

> has loose stools 2-3 times a day and they have undigested food and

> are grainy in consistancy. The only thing he has going for him is

> that he is NOT a small guy. He is a big eater of the things he

> likes and he packs on the lbs. easy! If anyone can help with any

> information that would be great.

>

> Thanks

> Dena

> Mother of Hayden (3.9 years old, 45 #)

[Guest guest]

No, he will run and hide in the laundry room if he sees you coming

at him with anything on a spoon or fork. He will chew on a spoon if

it is left on the table with nothing on it. I think I will try the

approach you mentioned. He is on Houston's enzymes (AFP and No

Fenol) for the last year to year and ahalf. He only has undigested

food from time to time not every stool, but the stools are loose to

semi-formed (only one formed stool in the last week and that was

after I forced him to swollow a probiotic pearl). I hate making him

cry and almost vomiting in order to get it down him...... I also

have Klaire Therabiotics in my fridge but I can't get them down him

as well. I have just upped him primal defense to 2 scoops and it

seems to lessen his stools....but no form. Just keep try to get

things into him as he is really oral defensive.

Thanks for all the suggestions and I will try it all.

Dena

Mother of Hayden (3.9 years old, 45 lbs.)

[Guest guest]

Hi ,

I've been following your posts with great interest, especially as our

sons are close in age. We've been GFCFSF for 10 months and on a

modified SCD for about the last 2. Yeast and bacteria are our two

biggest issues. Noah was a champion eater before we went SCD - he'd

eat anything you put in front of him, but now he's self-limited to

meat, eggs, peas, and pork skins.

I know that you've been doing tons of research and that Slater also

has a yeast issue and that you just took him off pears and put him

back on some grains. Have you found that perhaps fruits feed yeast

more so than carbs (like potatoes, rice, and corn)? That's our big

debate. We've completely given up on all fruits except for pear juice

for supplements, so giving up fruit won't be hard except for the

juice. Do you sweeten Slater's cranberry juice with stevia? Also,

does Slater do any ABA or have his results been purely from

biodmedical intervention? We've reached a point, financially, where

we have to choose between ABA and biomed. We're choosing biomed and

are cutting the ABA from 30 hours a week to 8 and we're dropping the

consultant. We're terrified of making a mistake, but he's made so

much progress since we started the supplements and the diet. We've

had only 2 mushy stools in 2 weeks! (Which means the rest have been

firm. Whoohoo!)

:-)

Mom to Noah Partha, 29 months

[Guest guest]

Hi. Just curious, why are you leaving SCD? We are currently going

from GFCFSF very low sugar to SCD (with CFSF). does better

every day. Our biggest problem is going to be thee illegal

supplements which I hope to get some help with next week at DAN!.

Anyway, just curious. Boy, what I woudn't do to have a clear cut

plan for my son! I'll do anything, its just the fear that I'm

MISSING something that terrifies me.

Kate D.

> Hi... just wanted to jot a quick note to the list with an update.

> Several people wrote again and asked me how it was going with

> changing from SCD to GF/CR.. or whatever we are currently doing. not

> sure it actually has a name.

>

[Guest guest]

Hi .. Thanks for your note and I have followed your posts too.

Maybe we can get these two little guys together one day at one of

these gatherings.

Honestly I attribute Slater's improvement to the biomedical. We are

not doing ABA and never have. We will start Verbal Behavior next

week through our University and I am anxious to see how that will

complement what we are doing. If I were choosing there is no doubt

that biomedical would be the route I would go. I do think the

education piece is important but honestly after seeing Slater's

progress.. and he is the first child in any of the early

intervention programs here to do biomedical, I have had the head of

the programs at the Univeristy tell me that they now feel the

biomedical should come first.. and they are an educational program.

I have so much faith in Dr. McCandless treatment protocol and feel

it has really made a difference for Slater that nothing else could

match. In my opinion you made the best choice.

On the food.. please know this is just my opinion from working just

with this child. For us, cutting out the fruit and using some grains

is working quite well. We still have gut issues that we are working

on that worsened before I made the diet changes but they are getting

better.. no doubt about that. I don't know that one sugar is worse

than any other for Slater.. but right now he is responding to no

fruit and has done better with the starches. It does appear that he

tolerates the starches much better than the fruits. Though it may

make no sense, he is a different child. I understand that this may

be contrary to SCD which I believe is very valuable for some

children, but this is what is working for Slater. And yes, I do

sweeten Slater Cranberry juice still.. and it is VERY diluted too.

Good luck and please keep us posted.. I'd love to hear what is

working for you!

PS .. one thing I found out was when Slater self limited, it was

usually something his body did not need any longer! This is

certainly not the case with all children of course but for us it was

true every single time.. he was addicted to eggs and tested as

highly allergic to them.. perhaps from having so many but who

knows.. also loved peas and when we cut them out, his yeast got

better. I found that when I took those foods away that he was

craving that he would balk, but then would begin to eat many more

different things. He doesn't have any foods now that he will not

eat.. just lots that I am still limiting. It really has been amazing

since he would only touch about 3 things a few months ago! He eats a

varied and balanced diet now and is just doing better overall. I'd

love to know more of what you are doing now.

> Hi ,

>

> I've been following your posts with great interest, especially as

our

> sons are close in age. We've been GFCFSF for 10 months and on a

> modified SCD for about the last 2. Yeast and bacteria are our two

> biggest issues. Noah was a champion eater before we went SCD -

he'd

> eat anything you put in front of him, but now he's self-limited to

> meat, eggs, peas, and pork skins.

>

> I know that you've been doing tons of research and that Slater

also

> has a yeast issue and that you just took him off pears and put him

> back on some grains. Have you found that perhaps fruits feed yeast

> more so than carbs (like potatoes, rice, and corn)? That's our big

> debate. We've completely given up on all fruits except for pear

juice

> for supplements, so giving up fruit won't be hard except for the

> juice. Do you sweeten Slater's cranberry juice with stevia? Also,

> does Slater do any ABA or have his results been purely from

> biodmedical intervention? We've reached a point, financially,

where

> we have to choose between ABA and biomed. We're choosing biomed

and

> are cutting the ABA from 30 hours a week to 8 and we're dropping

the

> consultant. We're terrified of making a mistake, but he's made so

> much progress since we started the supplements and the diet. We've

> had only 2 mushy stools in 2 weeks! (Which means the rest have

been

> firm. Whoohoo!)

>

> :-)

> Mom to Noah Partha, 29 months