QUESTION

[Guest guest]

In a message dated 3/6/2003 1:40:25 PM Central Standard Time,

sonofmosiah@... writes:

> Just remember

> the price for going with me is chocolate.

>

> When is your surgery scheduled?

>

> Jim -- who is STILL craving chocolate

>

>

Jim,

With your chocolate cravings you sound like some women I know.....You

know hormonal??....lol.

in Bama

http://hometown.aol.com/mdl1031/myhomepage/profile.html

Surgery- RNY to DS revision on12/6 -377.5

2/17 - 346.5 ( minus 31lbs)

01/15- 338.1 (minus 39.1lbs)

02/12-330.0 (minus 47.5 lbs)

03/02- 325 (minus 52.5 lbs)

[Guest guest]

Lilly, I'll be going over for the April meeting and you are MOST welcome

to go over with me. I mean, you are RIGHT on my way over. Just remember

the price for going with me is chocolate.

When is your surgery scheduled?

Jim -- who is STILL craving chocolate

-----Original Message-----

From: lilmame

Is anyone from the coast going to the Delano support group

[Guest guest]

Jim

the problem with having to pay is chocolate is I'll eat the currency...LOL..

My date with Dr. K is April 30th.

Lillie

If you educate a man , you educate one person. But if you educate a woman,

you educate a family.

------

..

[Guest guest]

Your SURGERY is 30 April?????? WOO HOO.

RE: question

Jim

the problem with having to pay is chocolate is I'll eat the

currency...LOL..

My date with Dr. K is April 30th.

Lillie

If you educate a man , you educate one person. But if you educate a

woman, you educate a family.

------

..

[Guest guest]

Hi, . I think that you are seeing an " extinction burst. " When OCD is

challenged, it becomes worse temporarily. This happens sometimes when

medication and/or ERP is started. It's a lot like what happens when you say

" no " to a

very spoiled child. The child will try all that much harder to get his or

her way. The OCD is trying to make your son give in and do what he is being

told to do. I would explain to your son that it will get worse before it gets

better. Usually, once a peak is reached, the feeling of anxiety goes down

fairly quickly. Let him know that it's a sign that the therapy is working and

that

it won't last. I have a thirteen year old too and when the OCD is really

flaring, if I am sympathetic and ignore some of what she says I am able to keep

her from going too far overboard as far as rudeness to me is concerned. Don't

give up! It's a normal response to the therapy and it will get better. Hang

in there and keep reminding yourself that this is a good sign! Kelley in NV

[Guest guest]

Hi -

I have experienced the same thing with my daughter. To this day, I

need to be thoughtful/diplomatic when it comes to my concern that

something is OCD (she is 13, dx'd OCD in October 2002). She gets

very quiet and somewhat irritable on the way to therapy (although,

just recently she has become more relaxed and open...her therapist

has allowed her to bring her puppy along which has created such a

wonderful degree of gratitude and trust). Usually, if I think

something might be OCD related, I'll just 'plant the seed' by saying

something like...'gee, Anne, I noticed you didn't (...blank...)

today. I was just wondering if OCD was interfereing with your

enjoyment...I sure would hate for that to happen'. Even if she

says 'no' and it was OCD, I've planted the seed for her to think

about. It's seemed to help in the past.

Just a thought-

I'll be praying for continued success in therapy for your guy-

(Ohio)

[Guest guest]

Hi Carie,

This sounds good to me. Keep and eye on that cough, since I know you have had

really

challenging things related to his cough in the past, but besides that it sounds

like you're

looking good.

Keep going, and in your specfic child's case --slow is better.

- Stan

>

> Hi, sorry for all of the question, but my child recently started valtrex

> this week. He is still at a pretty low does. Since on it though he has

> been extremely mellow. This is not how this kid is! Has anyone seen this

> effect? He is not as OCD acting either. He does however have a croupy

> sounding cough. Just thought I would ask thanks.

>

> That which does not kill you will only make you stronger.

>

[Guest guest]

My daughter has been more mellow this week too. I didn't think this might be caused from the Valtrex but may it is????

-- question

Hi, sorry for all of the question, but my child recently started valtrex this week. He is still at a pretty low does. Since on it though he has been extremely mellow. This is not how this kid is! Has anyone seen this effect? He is not as OCD acting either. He does however have a croupy sounding cough. Just thought I would ask thanks.

That which does not kill you will only make you stronger.

[Guest guest]

My son is having this problem too! WE are on day 9 on Vtrx (250 mg

3x/day) and he is complaining of constipation for the ifirst time in

his life! this is a kid who stooled 30 times a day when really sick

(seriously)

Ugh. This regression is kicking my ass and feel like quitting.

> >

> > Since starting valtrex my child is all of sudden constipated and

has a

> > really hard time going to the bathroom. He has NEVER had this

problem, only

> > the opposite. Is this normal with valtrex? From reading all of

the

> > posts(and I went back and read everyone since this group started)

it seems

> > like people are seeing diarrhea but not constipation.

> >

> > That which does not kill you will only make you stronger.

> >

>

[Guest guest]

Hi ,

Some get hyper, I think most get mellow. My son was mellow as am I when I catch

a flu or

cold.

Stan

>

> My daughter has been more mellow this week too. I didn't think this might be

> caused from the Valtrex but may it is????

>

>

[Guest guest]

Hi ,

You emailed me privately too but I'll summarize. I know Baxter's case pretty

well, and I

would, for sure, keep going if he were my child. Just focus on that

constipation.

My son was NEVER WORSE (autistic looking) than those " regressive healing " days

with

Valtrex, and he was NEVER BETTER after day 21, which is when his regressive

healing

ended.

Baxter has those monthly viral infections which leads me to believe he's been

tangling with

something for some time. That's why you went this direction and I believe it

was a good

choice.

No one I have seen or heard of has ever had these symptoms for anything more

than the

first month... ever (to date). Most are better in two weeks, my son was better

in 21 days

and people have told me about ones that lasted up to 30 days, but I have only

heard of a

couple.

I hope that helps.

- Stan

> > >

> > > Since starting valtrex my child is all of sudden constipated and

> has a

> > > really hard time going to the bathroom. He has NEVER had this

> problem, only

> > > the opposite. Is this normal with valtrex? From reading all of

> the

> > > posts(and I went back and read everyone since this group started)

> it seems

> > > like people are seeing diarrhea but not constipation.

> > >

> > > That which does not kill you will only make you stronger.

> > >

> >

>

[Guest guest]

My son mellowed out on the Valtrex. He also made much better eye contact, and imaginative play and actually PLAYED with his twin sister for the first time (not just parallel play).

Kristy

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of carie vercelliSent: Saturday, November 19, 2005 10:12 AMTo: mb12 valtrex Subject: question

Hi, sorry for all of the question, but my child recently started valtrex this week. He is still at a pretty low does. Since on it though he has been extremely mellow. This is not how this kid is! Has anyone seen this effect? He is not as OCD acting either. He does however have a croupy sounding cough. Just thought I would ask thanks.

That which does not kill you will only make you stronger.

[Guest guest]

FWIW: I have extensive experience with antivirals (and antifungals

and many other meds as well). I have had an immune disorder dx'd

since the 70s and have been on many protocols. I would not proceed

with antivirals unless it were to be done under the direction of an

MD experienced in immune dysfunction and/or immunology.

As for Valtrex, the first time I took it, I had extreme stomach

problems and switched to Famvir. It was only later, when my system

was better able to handle it, that I went back on the Valtrex.

Antivirals are not meds to be used lightly. I understand that on

this list many see " DAN " doctors, but frankly, I'd be more inclined

to look for a doc more familiar with CFS/CFIDS/ME. Additionally, in

the treatment of immune dysfunction, it might not be appropriate to

begin first with an antiviral ... an antifungal might be in order

first. A full immune panel really needs to be done to assess what

should be done individually for each pt.

I can say that everything I have seen as " biomed " treatments in ASD

are things that have long-since been used (many abandoned) in the

tx. of CFS/CFIDS/ME. Chelation, for example, was used in the 70s

for all sorts of things and it fell by the wayside for other

treatment modalities.

Just my take.

___________________

> My son is having this problem too! WE are on day 9 on Vtrx (250

mg 3x/day) and he is complaining of constipation for the ifirst time

in his life! this is a kid who stooled 30 times a day when really

sick (seriously)

Ugh. This regression is kicking my ass and feel like quitting.

[Guest guest]

In my opinion ringworm is both fungal and autoimmune related. I see it

sometimes when

we are working on gut issues. I know a child that had sypmtoms of ADHD and

acute

agressive flair ups. When they went on antifungals and started dietary

interventions the

child had a fantastic recovery and was a lovely little child... and then mom

said the diet

was too much of a pain and reintroduced the foods shortly before graduating

Kindergarten

and about two weeks later had ringworm on the scalp. They stopped in the other

day...

now 8 months later and still off the diet and still battling with the ringworm.

I have some other similar stories with happier endings when parents take the

diet more

seriously. The problem with ringworm, like many bacterial/fungal/autoimmine

issues is

that you do not know what other organs are effected (similar to my belief about

eczema).

TAKE RINGWORM SERIOUSLY. I would get OFF antibiotics, ON antifungals, and ON an

SCD

type diet and take out the IGG reactive foods from a IGG Comp 93 (Great Plains,

Doctors

Data, etc).

We have resolved every case of ringworm we've seen except for the ones where

diet is not

taken seriously.

- Stan

>

> About 2 months ago we had to treat my daughter for

> ringworm on her scalp. She was on an antifungal for 6

> weeks (Gris-peg). This week she has it again, and we

> are treating it again, with the same thing.

>

> She is on a maintenance dose of Nizoral, 1/2 tab twice

> a week, and I shampoo her hair with Nizoral shampoo.

> She has always had a very dry flaky scalp.

>

> I have to tell you, the more I read about all of this

> stuff, I'm amazed, enlightenend and confused.

>

> Background info. is 15, has Downs and autism and

> is non-verbal. She was fully vaccinated and had

> frequent ear infections as a child. I had her on a

> GFCF diet a few years ago and noticed a big decrease

> in her aggressiveness. We have gradually let her have

> those foods again and she seems to be ok with them

> now. However, her recent testing did show some yeast

> in the gut. She also has a Gamma Strep of 1+.

>

> We started with a DAN! doc about 5 mos ago. We are

> using CLO, Taurine, GABA, Acetyl-L-Carnitine, 2

> probiotics, Folapro, SNT and MB12. We just started

> using the nasal spray in the last 4 days. Also TD-DMPS

> and LDN.

>

> Because she has Downs, her progress has been slower. I

> haven't noticed any real difference with the MB12

> spray. We give it in each nostril, once a day.

> However, I do think it and the other things we are

> doing ARE making a difference. She has much better

> focus and concentration. We have been teaching her

> sign language for years. We could get her to sign back

> to us, but only when prompted. Now she is signing

> spontaneously (for about 3 mos). When I go through

> drills with her, she is whipping out those signs

> almost as fast as I can turn the cards. She also used

> to have nystagmus, and that has gotten dramatically

> better.

>

> When she was about 3, she did have about a 20 word

> vocabulary. I haven't seen that return, but she is

> making more vocalizations.

>

> She frequently has a fine bumpy rash over her skin,

> which seems to get better when we use antibiotics. Go

> figure.

>

> I don't know if she would be a candidate for Valtrex

> or not. Part of my problem is her father. We are

> divorced and split visitation 50/50. He is not

> consistent with her treatment. Last week I sent over 2

> syringes of MB12 and they both came back at the end of

> the week. It frustrates me immensely. I am afraid even

> if we did try Valtrex, at the first sign of

> regression, he would quit.

>

> She doesn't have diarhea, but he complains she has

> frequent constipation. If he would get the CLO down

> her daily, I'm sure that would go away.

>

> From this info, is there anything anyone would suggest

> that I should be doing or considering? Besides a hit

> man? LOL

>

> Vicki

>

>

>

>

> __________________________________

> Yahoo! Mail - PC Magazine Editors' Choice 2005

> http://mail.yahoo.com

>

[Guest guest]

is valtrex like a chelating agent or is ridding the virals that the

metals may be in excreting the metals? would it be nessecary after

valtrex treatment to do further chelation or is this individual, some

may others dont? i know stan, over thinking again...haha, but i am

just curioius...thanks

[Guest guest]

I started my daughter on Valtrex last Monday. So we are in this about 9 days. What I have noticed is Day 1-More talking. Day 3-continued talking, huge wart next to her right eye (on the bridge) Day 5- Wart on bridge of eye gone fever blister on bottom lip. Day 6- eruption on base of spine. Pimples on front of neck. During this time, I haven't seen major regression but a lot of viral things going on. Could this be because she was so limited with speech to begin with. Thanks for the help. sargeantdriscoll wrote: is valtrex like a chelating agent or is ridding the virals that the metals may be in excreting the metals? would it be nessecary after valtrex treatment to do further chelation or is this individual, some may others dont? i know stan, over

thinking again...haha, but i am just curioius...thanks

Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars.

[Guest guest]

No, I think you raise a good question.

As time has gone on and we see more and more examples of what Valtrex is doing

it

seems that Valtrex is helping some people excrete metals through the skin, out

the stool

and possibly out the urine (seemingly less so out the urine).

How does this happen? My belief is:

1. For some, Valtrex is helping methylation directlly, which is a process that

needs to

happen in order to excrete meals. Valtrex can lower adenosine which when raised

can

impair methylation. We believe Valtrex also effects other areas of methylation

not yet

discovered.

2. Every virus that Valtrex can help kill off can take up residence in the gut.

This is an

interesting thing all in itself considering the liver is quite important in

getting metals out

of the body and plays an important role in intestinal health and digestion.

3. Viruses can drain the body's ability to methylate. I conducted a test on

myself with a

live virus and mercury injection. My body stopped excreting metals while my

body was

adjusting and starting to fight off the virus. What if a virus goes unchecked

by an

impaired immune system... could that create a chonic inability to excrete

metals? I believe

so.

It would seem that Valtrex can help our kids in many different ways. We don't

know all of

them yet, but while we and others figure it out... doing a trial for your child

is a good idea

IMO

- Stan

>

> is valtrex like a chelating agent or is ridding the virals that the

> metals may be in excreting the metals? would it be nessecary after

> valtrex treatment to do further chelation or is this individual, some

> may others dont? i know stan, over thinking again...haha, but i am

> just curioius...thanks

>

[Guest guest]

Hi Pam,

First, obviously we are jazzed about your report.

Clearly there are viral things going on here and you see developmental gains

right away

and that's great. Some children do not go through a regressive period. If you

look at the

" polls " section of the group and checkout the " regression " poll I think you'll

find about 25%

of families that see gains do not see a regressive period. Now what does that

mean? It

means that whatever set of things that cause the regressive-healing stage may

not be

going on with your child.

For example. If you child has certain viruses but not others maybe that causes

gains

without the regressive phase. If others are there maybe it does. If your child

is metals

toxic in a certain way maybe you will see a regressive stage. If there are

certain metabolic

changes needing to happen maybe you will... otherwise maybe not.

I wouldn't base your progress by a regressive stage. I would just base it on

developmental

and physiological growth. If the regression happens then fine, if not then

that's fine too.

Keep us posted.

- Stan

is valtrex like a chelating

agent or is

ridding the virals that the

> metals may be in excreting the metals? would it be nessecary after

> valtrex treatment to do further chelation or is this individual, some

> may others dont? i know stan, over thinking again...haha, but i am

> just curioius...thanks

>

>

>

>

>

>

>

[Guest guest]

Ya, but the thing is, the Risperdal first of all is not really helping so there might be a need to switch meds. But, he is not lethargic or tired acting at home or not wanting to do anything, but instead very wired and his nurse said if it was the meds, that he would be like that at home too since he takes the lowest dose and one in the morning and one at night so it is in his system throughout the day. I am just not liking the fact that I tell the teacher that the nurse said it was not the meds 3 times and then she called her and asked her, like she does not believe me and is questioning me. That is what gets me.

Stacie

Hi Stacie,I know where you are coming from. My son takes thesame med. He is on a very small amount because he hasto be fine tuned to all the meds that he takes. If weincrease the risperdal by one mark on the dropper, hewill have more seizures and behavior problems. Youknow your child better than anybody and if he was notacting like this before he started taking Risperdal,then you know that is what is causing it now. Do asearch on the side effects. These kids are alldifferent in their own way, what might work for somemay not always work for others.--- hawkie6aol wrote:> Hello everyone. OK, I have a question for you all. > How would you feel if > your child who has Autism and a seizure disorder was> put on meds and then > those meds were increased. Then, your child starts> to have different behaviors > at school like not participating, being> noncompliant, defiant and just not > finding the pleasure that he once found in school> and was very tired all the > time and lethargic and practically tripping over his> feet, and having trouble > staying awake. And so, the teacher asked tells you> about it, and you say you > will call the dr and you do, and the dr says it> would not be the risperdal > doing this at all. So, you tell the teacher. You> then tell the teacher 2 other > times when this is brought up that you will call the> dr and you do and tell > the teacher 2 other times that the Nurse and you> talked and she talked to the > dr and the dr said this would not be doing that to> the child. Then, you get > a call from the nurse at the neuro office that just > talked to his teacher > and asked her the same question about the meds and> told her the same things > about the behavior difference? What would you > think? How would you feel? Is > this right or wrong? This happened to me tonight> and I did sign a thing > saying that info on s health, meds etc can be> released and all, so it is not > like she could not call because i have given the> school my permission, but > still! And there is more that happened on Friday> that I am feeling > uncomfortable about, but I will share that later. > I was going to post it today and just > did not get around to it and I am so tired of> thinking about it now, that I > am going to wait for a bit.> Stacie> **************AOL Search: Your one stop for> directions, recipes and all other > Holiday needs. Search Now. >(http://pr.atwola.com/promoclk/100000075x1212792382x1200798498/aol?redir=http://searchblog.aol.com/2008/11/04/happy-holidays-from> -aol-search/?ncid=emlcntussear00000001)> AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now.

[Guest guest]

Thanks Kellie! I noticed s behavior change after all this started with his teacher which makes me wonder if the atmospheere at school has changed at all. The thing is, he does not act like this at home and is running all over before school and is very hyper. He takes it an hour before, or a little longer before he leaves for school and he is on the smallest dose. He used to take just a half of a .25 at night, then it was increased to a full one and then after the restraining incident where I had to go and get him from school on Halloween and he punched the other teacher and left a bruise, they increased it to 1 025 in the am and then one before bed. So, I just dont know because you would think I would see this before school and his nurse told me over and over that the med should not do this to him. I am going to do some research online and check it out. Thanks so much.

Stacie

Hi Stacie,

We started on risperdal .25ml each night about a month ago. It has helped some but we were still having a lot of aggression even though it seems like it would take him longer to work up to it and he would let somethings go without having a fit. The Dr. just upped his to .5ml at night and she said we could give him another .25 in the morning if this isn't enough. I can tell that it makes very tired because he sleeps through the night and about an hour after the dose is really ready for bed so I won't be giving the morning dose to him. The only other side effect I've seen so far is increased saliva production and I only see this at night because during the day the Adderall gives him dry mouth so they seem to even each other out. The side effects listed did include the increased saliva production as well as drowsiness so I'm not sure why the doctor says in couldn't cause him to be tired. It may be rare at a very small dose but I know is very sensitive to meds and small doses can give big reactions. I hope you don't take this wrong because I only wanted to let you know what my Dr. said and how reacts to this particular med. It sounds like you are having such a bad experience with the school and teacher this year and I really feel badly for you. Just remember that you know the best! I will keep you both in my prayers. Kellie

From: hawkie6aol <hawkie6aol>Subject: QuestionTo: AutismBehaviorProblems Date: Tuesday, November 11, 2008, 3:24 AM

Hello everyone. OK, I have a question for you all. How would you feel if your child who has Autism and a seizure disorder was put on meds and then those meds were increased. Then, your child starts to have different behaviors at school like not participating, being noncompliant, defiant and just not finding the pleasure that he once found in school and was very tired all the time and lethargic and practically tripping over his feet, and having trouble staying awake. And so, the teacher asked tells you about it, and you say you will call the dr and you do, and the dr says it would not be the risperdal doing this at all. So, you tell the teacher. You then tell the teacher 2 other times when this is brought up that you will call the dr and you do and tell the teacher 2 other times that the Nurse and you talked and she talked to the dr and the dr said this would not be doing that to the child. Then, you get a call from the nurse at the neuro office that just talked to his teacher and asked her the same question about the meds and told her the same things about the behavior difference? What would you think? How would you feel? Is this right or wrong? This happened to me tonight and I did sign a thing saying that info on s health, meds etc can be released and all, so it is not like she could not call because i have given the school my permission, but still! And there is more that happened on Friday that I am feeling uncomfortable about, but I will share that later. I was going to post it today and just did not get around to it and I am so tired of thinking about it now, that I am going to wait for a bit.

Stacie

AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now.

[Guest guest]

Hi Stacie,

I know where you are coming from. My son takes the

same med. He is on a very small amount because he has

to be fine tuned to all the meds that he takes. If we

increase the risperdal by one mark on the dropper, he

will have more seizures and behavior problems. You

know your child better than anybody and if he was not

acting like this before he started taking Risperdal,

then you know that is what is causing it now. Do a

search on the side effects. These kids are all

different in their own way, what might work for some

may not always work for others.

--- hawkie6@... wrote:

> Hello everyone. OK, I have a question for you all.

> How would you feel if

> your child who has Autism and a seizure disorder was

> put on meds and then

> those meds were increased. Then, your child starts

> to have different behaviors

> at school like not participating, being

> noncompliant, defiant and just not

> finding the pleasure that he once found in school

> and was very tired all the

> time and lethargic and practically tripping over his

> feet, and having trouble

> staying awake. And so, the teacher asked tells you

> about it, and you say you

> will call the dr and you do, and the dr says it

> would not be the risperdal

> doing this at all. So, you tell the teacher. You

> then tell the teacher 2 other

> times when this is brought up that you will call the

> dr and you do and tell

> the teacher 2 other times that the Nurse and you

> talked and she talked to the

> dr and the dr said this would not be doing that to

> the child. Then, you get

> a call from the nurse at the neuro office that just

> talked to his teacher

> and asked her the same question about the meds and

> told her the same things

> about the behavior difference? What would you

> think? How would you feel? Is

> this right or wrong? This happened to me tonight

> and I did sign a thing

> saying that info on s health, meds etc can be

> released and all, so it is not

> like she could not call because i have given the

> school my permission, but

> still! And there is more that happened on Friday

> that I am feeling

> uncomfortable about, but I will share that later.

> I was going to post it today and just

> did not get around to it and I am so tired of

> thinking about it now, that I

> am going to wait for a bit.

> Stacie

> **************AOL Search: Your one stop for

> directions, recipes and all other

> Holiday needs. Search Now.

>

(http://pr.atwola.com/promoclk/100000075x1212792382x1200798498/aol?redir=http://\

searchblog.aol.com/2008/11/04/happy-holidays-from

> -aol-search/?ncid=emlcntussear00000001)

>

[Guest guest]

Sometimes Dr's really make me wonder. I personally would ask for a second

opinion. Every doctor is different and have different opinions/knowlege of meds etc.

I personally have read so many posts on different yahoo groups of kids doing real

well on risperdal and others doing very badly and still others spacing out etc etc..the list

goes on. Is this doctor a neurologist or MD? I would be asking for a refferal to a neurologist

who specializes in ASD kiddos ( sorry just assuming here your son is on the spectrum? )

if not same thing anyways. Hope you find some good answers. Sometimes also you just

have to go with your Mommy instincts...this would be screaming " somethings is off here " to me : )

38 and Mom to threeTasha 23..new Mommy ( means I am a Grammy )Casey-Mae 13..sweet as pieElijah 2.. ASD and beautiful

To: AutismBehaviorProblems Sent: Monday, November 10, 2008 10:24:00 PMSubject: Question

Hello everyone. OK, I have a question for you all. How would you feel if your child who has Autism and a seizure disorder was put on meds and then those meds were increased. Then, your child starts to have different behaviors at school like not participating, being noncompliant, defiant and just not finding the pleasure that he once found in school and was very tired all the time and lethargic and practically tripping over his feet, and having trouble staying awake. And so, the teacher asked tells you about it, and you say you will call the dr and you do, and the dr says it would not be the risperdal doing this at all. So, you tell the teacher. You then tell the teacher 2 other times when this is brought up that you will call the dr and you do and tell the teacher 2 other times that the Nurse and you talked and she talked to the dr and the dr said this would not be doing that to the child. Then, you get a

call from the nurse at the neuro office that just talked to his teacher and asked her the same question about the meds and told her the same things about the behavior difference? What would you think? How would you feel? Is this right or wrong? This happened to me tonight and I did sign a thing saying that info on s health, meds etc can be released and all, so it is not like she could not call because i have given the school my permission, but still! And there is more that happened on Friday that I am feeling uncomfortable about, but I will share that later. I was going to post it today and just did not get around to it and I am so tired of thinking about it now, that I am going to wait for a bit.

Stacie

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[Guest guest]

Stacie,

Wish I would have waited a few more minutes for this post before sending mine. It would really make me upset if the teacher questioned by answers regarding the medications given so many times and I would just flat out ask her why? or in my usual passive aggressive way the next time she asked me a med question I would have the nurse fax me the answer and send it to her with a note that said I just wanted to save us all some time. Not that I'm recommending you do this because I can sometimes get myself in trouble with these passive aggressive tendencies I have. I really hope things can get better for you at the school. Kellie> Hello everyone. OK, I have a question for you all. > How would you feel if > your child who has Autism and a seizure disorder was> put on meds and then > those meds were increased. Then,

your child starts> to have different behaviors > at school like not participating, being> noncompliant, defiant and just not > finding the pleasure that he once found in school> and was very tired all the > time and lethargic and practically tripping over his> feet, and having trouble > staying awake. And so, the teacher asked tells you> about it, and you say you > will call the dr and you do, and the dr says it> would not be the risperdal > doing this at all. So, you tell the teacher. You> then tell the teacher 2 other > times when this is brought up that you will call the> dr and you do and tell > the teacher 2 other times that the Nurse and you> talked and she talked to the > dr and the dr said this would not be doing that to> the child. Then, you get > a call from the nurse at the neuro office that just >

talked to his teacher > and asked her the same question about the meds and> told her the same things > about the behavior difference? What would you > think? How would you feel? Is > this right or wrong? This happened to me tonight> and I did sign a thing > saying that info on s health, meds etc can be> released and all, so it is not > like she could not call because i have given the> school my permission, but > still! And there is more that happened on Friday> that I am feeling > uncomfortable about, but I will share that later. > I was going to post it today and just > did not get around to it and I am so tired of> thinking about it now, that I > am going to wait for a bit.> Stacie> ************ **AOL Search: Your one stop for> directions, recipes and all other > Holiday needs. Search Now.

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[Guest guest]

Stacie...maybe this is just me...but I would never allow any school to be able to call my child's doctor to ask questions they need to be asking me. In my humble opinion I would put a stop to that by taking that privilege away. You are his mom, and you do a great job on your own.

Just my two cents. I'm so sad you are having these issues. You are doing a great job, stay on top of it, and use your voice.

e

To: AutismBehaviorProblems Sent: Monday, November 10, 2008 9:24:00 PMSubject: Question

Hello everyone. OK, I have a question for you all. How would you feel if your child who has Autism and a seizure disorder was put on meds and then those meds were increased. Then, your child starts to have different behaviors at school like not participating, being noncompliant, defiant and just not finding the pleasure that he once found in school and was very tired all the time and lethargic and practically tripping over his feet, and having trouble staying awake. And so, the teacher asked tells you about it, and you say you will call the dr and you do, and the dr says it would not be the risperdal doing this at all. So, you tell the teacher. You then tell the teacher 2 other times when this is brought up that you will call the dr and you do and tell the teacher 2 other times that the Nurse and you talked and she talked to the dr and the dr said this would not be doing that to the child. Then, you get a

call from the nurse at the neuro office that just talked to his teacher and asked her the same question about the meds and told her the same things about the behavior difference? What would you think? How would you feel? Is this right or wrong? This happened to me tonight and I did sign a thing saying that info on s health, meds etc can be released and all, so it is not like she could not call because i have given the school my permission, but still! And there is more that happened on Friday that I am feeling uncomfortable about, but I will share that later. I was going to post it today and just did not get around to it and I am so tired of thinking about it now, that I am going to wait for a bit.

Stacie

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[Guest guest]

That's why their authority over your life needs to be limited to the classroom. No one needs to be given the right to call a doctor on YOUR child's behaf...yuck. Very invasive. OK, I'm rambling...read my other email too Stacie...my money's on you my dear.

e

To: AutismBehaviorProblems Sent: Monday, November 10, 2008 10:03:17 PMSubject: Re: Question

Ya, but the thing is, the Risperdal first of all is not really helping so there might be a need to switch meds. But, he is not lethargic or tired acting at home or not wanting to do anything, but instead very wired and his nurse said if it was the meds, that he would be like that at home too since he takes the lowest dose and one in the morning and one at night so it is in his system throughout the day. I am just not liking the fact that I tell the teacher that the nurse said it was not the meds 3 times and then she called her and asked her, like she does not believe me and is questioning me. That is what gets me.

Stacie

In a message dated 11/10/2008 7:39:20 P.M. Pacific Standard Time, anglebaby362002@ yahoo.com writes:

Hi Stacie,I know where you are coming from. My son takes thesame med. He is on a very small amount because he hasto be fine tuned to all the meds that he takes. If weincrease the risperdal by one mark on the dropper, hewill have more seizures and behavior problems. Youknow your child better than anybody and if he was notacting like this before he started taking Risperdal,then you know that is what is causing it now. Do asearch on the side effects. These kids are alldifferent in their own way, what might work for somemay not always work for others.--- hawkie6aol (DOT) com wrote:> Hello everyone. OK, I have a question for you all. > How would you feel if > your child who has Autism and a seizure disorder was> put on meds and then >

those meds were increased. Then, your child starts> to have different behaviors > at school like not participating, being> noncompliant, defiant and just not > finding the pleasure that he once found in school> and was very tired all the > time and lethargic and practically tripping over his> feet, and having trouble > staying awake. And so, the teacher asked tells you> about it, and you say you > will call the dr and you do, and the dr says it> would not be the risperdal > doing this at all. So, you tell the teacher. You> then tell the teacher 2 other > times when this is brought up that you will call the> dr and you do and tell > the teacher 2 other times that the Nurse and you> talked and she talked to the > dr and the dr said this would not be doing that to> the child. Then, you get > a call from the nurse at

the neuro office that just > talked to his teacher > and asked her the same question about the meds and> told her the same things > about the behavior difference? What would you > think? How would you feel? Is > this right or wrong? This happened to me tonight> and I did sign a thing > saying that info on s health, meds etc can be> released and all, so it is not > like she could not call because i have given the> school my permission, but > still! And there is more that happened on Friday> that I am feeling > uncomfortable about, but I will share that later. > I was going to post it today and just > did not get around to it and I am so tired of> thinking about it now, that I > am going to wait for a bit.> Stacie> ************ **AOL Search: Your one stop for> directions, recipes and all other >

Holiday needs. Search Now. >(http://pr.atwola. com/promoclk/ 100000075x121279 2382x1200798498/ aol?redir= http://searchblo g.aol.com/ 2008/11/04/ happy-holidays- from> -aol-search/ ?ncid=emlcntusse ar00000001)>

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