9 year old with tethered cord

[Guest guest]

I'm not sure of the ages of the folks here or how old you were when

you were diagnosed. I am wondering if there is anyone who has been

down a similar road that we are on now. My daughter was diagnosed

with tethered cord when she was being checked for Chiari and

Syringomyelia which tend to run in our family. She had neither of

those but was diagnosed with the tethered cord. It was found by

accident and so the neurosurgeons says that rather than operate he'd

rather wait to see if symptoms develop as she may never have any.

(She only has occasional leg pain now if she over does it).

What do you all think of this from personal experience?

Thanks for any help,

Frances