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dear kandy,

I am a somewhat silent member of this group because i am preoccupied with my

daughter who suffers from a very rare Brain tumor and uncontrollable epilepsy.

however, right now we are in Australia and my daughter just underwent a major

brain operation 11 days ago. the tumor was removed by 98% and she has been

seizure free for 6 days now, the longest in her 6 years of life. we are

overwhelmed with happiness and thankfulness. this little essay you sent out

really hit the spot for me and it is so true. i'm still crying about it.

children must be treasured every minute, and after spending 3 weeks in a

childrens hospital here in melbourne and seeing how many really ill kids there

are, we must thank God for the healthy children we do have.

thank you for sending this out, I will always treasure it and try to live by it.

~ traci {omaha, ne. currently living in melbourne, australia}

----Original Message-----

Subject: (unknown)

Reply-To: mscuredegroups

Date: Saturday, May 27, 2000 4:58 AM

To My Child......

Just for this morning, I am going to smile when I see your face and laugh

when I feel like crying. Just for this morning, I will let you wake up

softly, all rumpled in your sheets and I will hold you until you are ready

for the day. Just for this morning, I will let you choose what you want to

wear, and smile and say how perfect it is. Just for this morning, I am going

to step over the laundry, and pick you up and take you to the park to play.

Just for this morning, I will leave the dishes in the sink, and let you

teach me how to put that puzzle of yours together. Just for this afternoon,

I will unplug the telephone and keep the computer off, and sit with you in

the back yard and blow bubbles. Just for this afternoon, I will not yell

once, not even a tiny grumble when you scream and whine for the ice cream

truck, and I will buy you one if he comes by. Just for this afternoon, I

wont wory about what you are going to be when you grow up, or second guess

every decision I have made where you are concerned. Just for this afternoon,

I will let you help me bake cookies, and I wont stand over you trying to fix

them. Just for this afternoon, I will take you to Mcs to buy us both a

Happy Meal so you can have both toys. Just for this evening, I will hold you

in my arms and tell you a story about how you were born, and how much I love

you. Just for this evening, I will let you splash in the tub and not get

angry. Just for this evening, I will let you stay up late while we sit on

the porch and count all the stars. Just for this evening, I will snuggle

beside you for hours, and miss my favorite TV show. Just for this evening,

when I run my fingers through your hair as you pray, I will simply be

greatful that God has given me the greatest gift ever given. I will think

about the mothers who are searching for their missing children, the mothers

who are visiting their childrens graves instead of their bedrooms, and

mothers who are in hospital rooms watching their children suffer

senselessly, and screaming inside that they cant handle it anymore, and when

I kiss you goodnight, I will hold you a little tighter, a little longer. It

is then that I will thank God for you, and ask him for nothing, except one

more day.

Do you poison YOUR kids??? See this page!

http://www.freeyellow.com/members8/kandyk00/index.html

Kandy - Aspiring Midwife

Wife to a great man,

Mother of six,

Homeschooler/Home-birther

Love is the answer - Give in to God

-----------------------------------------------

FREE! The World's Best Email Address @email.com

Reserve your name now at http://www.email.com

------------------------------------------------------------------------

Accurate impartial advice on everything from laptops to table saws.

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..

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  • 6 months later...

DEAR DHARMA

you could try the EAT RIGHT DIET -SEE www.dadamo.com, it may help some

of your symptoms,I am 56, AND HAVE ONLY RECENTLY become really

dependent on a whelchair.

I know that there are different types out

there.

Beta-interferon sounds promising, also on this website you can see

more interesting substances which people have found to help.

Take Heart, at least more is being found out ABOUT it all the time

after all diabetics have to sometimes have daily injactions of insulin.

and some lead very full lives

Take care now

Elaine

>

>Reply-To: mscuredegroups

>To: mscuredegroups

>Subject: (unknown)

>Date: Wed, 13 Dec 2000 21:09:26

>

>

>Hello out there. I'm a young guy (28) who was tentatively diagnosed with my

>first attack about 2 years ago. Since then, I've been mostly fine, with

>only

>mild symptoms exhibiting themselves now and again. However, about a month

>ago I had another more serious attack, with major numbness in my hands. As

>a

>writer, this isn't a positive symptom for me! My thoughts now -- now that

>I've had two attacks, which neurologists seem to need to " diagnose " --

>center around What now? Drugs? I've been told there's a drug out there for

>people with milder symptoms, and that it's supposed to help limit

>exacerbations. Is this true? Is there anyone out there (maybe even someone

>who's the same age) in a similar situation who can give me some advice?

>

>Sincerely,

> Walton

>

>edwardwalton@...

>_______________________________________________________________________________\

______

>Get more from the Web. FREE MSN Explorer download :

>http://explorer.msn.com

>

________________________________________________________________________________\

_____

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  • 1 month later...

,

The only thing different about lunch for me is that I almost always get tired and sleepy afterwards. I think that has something to do with blood sugar, but I don't eat sugar, so I don't know. The foods that bother me, seem to bother me no matter when I eat them.

Carol

Re: rotation diet/food allergies

>>

,

That's how I feel too - that there must be something to the diet stuff with

MS, because I feel worse not too long after eating, depending on what I eat,

of course. Sugar makes me the worst, I think. Sometimes I just wish I

didn't have to eat at all. It would be so much simpler and, if I could get

energy and nourishment some other way, it seems like I'd feel better

symptom-wise. I have no intentions of trying something like that, however,

because I know we need all the nutrients in a good diet and nothing can

substitute.

Carol

Exactly! I've also noticed that the time of day makes a difference also. I know it sounds weird/crazy but it seems like just about anything I eat at Lunch Time makes me feel worse but I can eat it at breakfast or dinner and I might not have any reaction at all.. Just another twist on things.

..

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  • 3 months later...
Guest guest

Dear Carol and ,

The term BLOOD SUGAR. refers to the amount of food sugars carried in the

blood after a meal,they are the result of the breakdown of all foode eaten,

not just sugar,in fact eating Sugar on it's own can lead to a lowering of

blood sugar , because of the action of insulin being stimulated.

Another food that causes this is bread, because it such a concentrated

food(also anything made from wheatflour, such as puddings.

The best way to keep your blood sugar steady is to eat meals which do

not contain these foods,,,, such as meat and two veg followed by fruit.

IT MAY ALSO be a good idea to look at your environment, GAS FIRED

APPLIANCES may also be affecting your perfomance.

from Elaine s.r.n.

>

>Reply-To: mscuredegroups

>To: <mscuredegroups>

>Subject: Re: (unknown)

>Date: Mon, 22 Jan 2001 18:20:47 -0800

>

>,

>The only thing different about lunch for me is that I almost always get

>tired and sleepy afterwards. I think that has something to do with blood

>sugar, but I don't eat sugar, so I don't know. The foods that bother me,

>seem to bother me no matter when I eat them.

>Carol

> Re: rotation diet/food allergies

>

> >>

>,

>That's how I feel too - that there must be something to the diet stuff with

>MS, because I feel worse not too long after eating, depending on what I

>eat,

>of course. Sugar makes me the worst, I think. Sometimes I just wish I

>didn't have to eat at all. It would be so much simpler and, if I could get

>energy and nourishment some other way, it seems like I'd feel better

>symptom-wise. I have no intentions of trying something like that, however,

>because I know we need all the nutrients in a good diet and nothing can

>substitute.

>Carol

>

>Exactly! I've also noticed that the time of day makes a difference also.

>I

>know it sounds weird/crazy but it seems like just about anything I eat at

>Lunch Time makes me feel worse but I can eat it at breakfast or dinner and

>I

>might not have any reaction at all.. Just another twist on things.

>

>

>

>

>

>

>

>

>

>eGroups Sponsor Get 3 CDs for ONLY $9.99!

>

>

>

>

>

>

>.

>

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  • 2 years later...

Ecological Formulas has two good Amino Acid Supplements that I use; Aminoplex

and Free-Form Aminos (now just called Amino Acid Crystals)

(unknown)

Hi there

Can anyone please share amino acid supplement brand(s) that you have found

useful for your child- my son is low on almost every one - he has been using

MetabolicM for a while and has done well however at this point I am looking

for a comparable reasonably priced (cheaper) alternative.

Thanks

Naseem

_________________________________________________________________

Grab our best dial-up Internet access offer: 6 months @$9.95/month.

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  • 2 months later...

Really, alot of people think that the thimerosal issue is only being

raised as a means for parents to sue the pharmas. I've had quite a

few people over the past few years question if my son was part of

that, and if that's the reason we " claim " vaccines harmed him.

Winona

> > a bunch of crazy parents looking to get rich.

>

> Am I missing something here???

>

>

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I feel like we are trapped in " The Matrix " . It is much easier for

people to drift along in denial or stick their heads in the sand than to

face the horrible truth. I often feel like the village kook. The only

support & comfort I find is from other parents/families of autistic

children. There are many in my area that do not even want to try the

diet (too hard/child has limited diet), do not believe in the vaccine

connection, etc. I will never understand it. You are not alone (at

least online:-)).

~

(unknown)

Someone on a parents group that I'm on just posted this? Does this

sound familiar to anyone, or is this old news? (it's under my post)

Guys, I know this is OT, but I really need some help here. I feel

like I'm fighting the cause all alone. I'm trying as hard as I can

to inform the uninformed. But, all I keep getting is ..... " there are

2 sides to every story " ..... " autism needs money, that's why the

uproar is happening " ...... " doctors don't make money off of giving

vaccines " (that came from a dr.) ..... " can you PROVE everything that

you say " .... " fish mercury is SOOOOO much more toxic than vaccine

mercury " .....on and on and on and on. What do all of you say when

you're up against this. I guess I'm just so green. The only people

I talk to are parents that NEED the info that I have. Then, I run

into an completely different problem of becoming too defensive.

(which I'm trying to take control of)...please advise me, what do all

of you do when people are trying to always prove you wrong? I don't

want us - as a community, because that's what we are - to come off as

a bunch of crazy parents looking to get rich. That's what most

people think. WHERE HAVE I BEEN???? Is this common? I've been up

the butt of my computer trying to find anything out there that'll

help, that's where I've been.

Feel free to email me off list.

thanks guys,

Winona

The Lancet has just revealed in a press release that Wakefield,

champion

of the MMR-causes-autism cause, had a fatal and undeclared conflict of

interest when his research was published.

Many frequently asked questions and answers can be found at

<http://www.autism-rxguidebook.com/forums>

_____

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  • 5 years later...

Hi Ardi, thanks for sharing your experiences. They are so valuable to all of us. If its not too taxing on you I had a question. There is this ongoing debate about whether herxes are necessary to move forward with lyme and if we are not herxing are we killing many bugs. I was wondering during all that time of coiling without herxing...do you think you were killing many bug? Lots? Just a few, or none? Were you making improvements throughout these herxless treatments? Because I still wonder if its possible to kill lots of bugs regularly without herxing if one has a really well functioning detox system. So, just wondering your opinion on that.

Sorry I can't answer your question about whether to carry on treating at the same lengths of time. Your herx did come out of nowhere and thats scary. I know if it was me I would resume treating at the way I'd let off but I know thats not for everyone, i tend to be a little more reckless.

Thane

To: Lyme_and_Rife Sent: Sunday, September 27, 2009 4:00:59 PMSubject: (unknown)

Hi. I haven't posted before because writing is hard for me, but this really got me thinking. I've been on LDN a couple years also. I started taking it because of mis-diagnosed RA but I keep taking it mostly because I swear it keeps me semi-sane.I didn't herx with the coil machine at first either. I started coiling July 19th with 842 for Bart at a few seconds a day, eventually adding 432 for Lyme and by Sept. 23rd - without missing a single day - I had worked up to 30 minutes a day for bart and 25 minutes a day for Lyme. All with no herxing 'til the very last week, then WHAM!! Herx with a capitol H! After about a week of that I got scared and took a break. I'm thinking there are millions of reasons why some of us don't herx as quickly as others. Things

like bio-films, heavy metals, gut issues, etc. Sorry for rambling. Bottom line - I totally believe in the coil machine and won't give up on it. I plan to start coiling again tomorrow. But, I don't know if I should start coiling at the times where I left off or start low and work up again? Any ideas on all that? I'm new to coiling and can use all the help I can get. Thanks for reading. Ardi

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Hi all, I am not sure about the herx's non herx's things but Dr K when talking about Pyrroluria KPU, says that when people get through the treatment they have way lighter or no herx's. I find this interesting and will know down the line if this is true for me or not. Maybe the people that feel no herxing are able to detox well. JoyceSubject: Re: (unknown)To: Lyme_and_Rife Date: Sunday, September 27, 2009, 4:36 PM

Hi Ardi, thanks for sharing your experiences. They are so valuable to all of us. If its not too taxing on you I had a question. There is this ongoing debate about whether herxes are necessary to move forward with lyme and if we are not herxing are we killing many bugs. I was wondering during all that time of coiling without herxing...do you think you were killing many bug? Lots? Just a few, or none? Were you making improvements throughout these herxless treatments? Because I still wonder if its possible to kill lots of bugs regularly without herxing if one has a really well functioning detox system. So, just wondering your opinion on that.

Sorry I can't answer your question about whether to carry on treating at the same lengths of time. Your herx did come out of nowhere and thats scary. I know if it was me I would resume treating at the way I'd let off but I know thats not for everyone, i tend to be a little more reckless.

Thane

From: ardi <ardigirlyahoo (DOT) com>To: Lyme_and_Rife@ yahoogroups. comSent: Sunday, September 27, 2009 4:00:59 PMSubject: (unknown)

Hi. I haven't posted before because writing is hard for me, but this really got me thinking. I've been on LDN a couple years also. I started taking it because of mis-diagnosed RA but I keep taking it mostly because I swear it keeps me semi-sane.I didn't herx with the coil machine at first either. I started coiling July 19th with 842 for Bart at a few seconds a day, eventually adding 432 for Lyme and by Sept. 23rd - without missing a single day - I had worked up to 30 minutes a day for bart and 25 minutes a day for Lyme. All with no herxing 'til the very last week, then WHAM!! Herx with a capitol H! After about a week of that I got scared and took a break. I'm thinking there are millions of reasons why some of us don't herx as quickly as

others. Things

like bio-films, heavy metals, gut issues, etc. Sorry for rambling. Bottom line - I totally believe in the coil machine and won't give up on it. I plan to start coiling again tomorrow. But, I don't know if I should start coiling at the times where I left off or start low and work up again? Any ideas on all that? I'm new to coiling and can use all the help I can get. Thanks for reading. Ardi

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Hi Ardi

Stolar who makes one of the coil machines and who was basically fully functional again after working with the coil for only for 2 years has postulated that the cysts have a tendency to hatch in the spring and fall.

I had a similar experience - went along OK until fall came then WHAM I got blindsided with a HUGE herx. So I think the Spring and Fall is a prime killing season and especially if you've been off antibiotcs for awhile at the time.

I'd start with 1 or 2 minutes per area and see how it goes.

To: Lyme_and_Rife Sent: Sunday, September 27, 2009 7:00:59 PMSubject: (unknown)

Hi. I haven't posted before because writing is hard for me, but this really got me thinking. I've been on LDN a couple years also. I started taking it because of mis-diagnosed RA but I keep taking it mostly because I swear it keeps me semi-sane.I didn't herx with the coil machine at first either. I started coiling July 19th with 842 for Bart at a few seconds a day, eventually adding 432 for Lyme and by Sept. 23rd - without missing a single day - I had worked up to 30 minutes a day for bart and 25 minutes a day for Lyme. All with no herxing 'til the very last week, then WHAM!! Herx with a capitol H! After about a week of that I got scared and took a break. I'm thinking there are millions of reasons why some of us don't herx as quickly as others. Things

like bio-films, heavy metals, gut issues, etc. Sorry for rambling. Bottom line - I totally believe in the coil machine and won't give up on it. I plan to start coiling again tomorrow. But, I don't know if I should start coiling at the times where I left off or start low and work up again? Any ideas on all that? I'm new to coiling and can use all the help I can get. Thanks for reading. Ardi

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Ardi, Supposedly the KPU PKU gets to dumping heavy metals that have been stored in the body along with all the other toxins. I am sure doing that. Hoping I am right about it getting easier with the protocal. Right now its hell. I don't want to scare other's away from doing it though as we are all different. Dr K will not work on anyone that has not had fillings out. One step at a time. Were u tested for KPU? By the time u do the protocal I am sure more things will be added or taken away. Every seminar K does things change. Need to be on LOTS of binders. Take care JoyceSubject: (unknown)To:

Lyme_and_Rife Date: Tuesday, September 29, 2009, 6:03 PM

Thanks for the replies. To answer your question, Thane, I do think I was killing a few bugs from the start. But now, I think why I herxed so bad all of a sudden, after coiling so long without herxing, is because my own personal critters have built some very impressive bio-films for themselves and it took a while to get to them. (My lab results point to having a lot of bio-film.) I think when I finally broke through it I killed off a lot all at once, since I had worked up to such a high amoung or time. (Just a theory.)Because of that theory, I started coiling again yesterday at 1/2 time. Also, Joyce, to comment on the herxing more mildly after doing Dr. K's KPU protocol - I think you're right that we herx lighter if

we're detoxing well. And if we're not so toxic to begin with. Maybe the PKU protocol detoxes some metals, etc. out of the body first so when we do treat we aren't trying to get rid of dead bugs and other junk all at once? I want to do the KPU protocol, but I think I need to finish getting my amalgams removed first? Any thoughts on that? Ardi

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