Re: Rubeola Secretory IgA Study

[Guest guest]

Ellen: I need your e-mail address to send you the questionnaire and your home

address to send you the kit. Please reply to JMcCandless@.... Thanks

for participating! Dr. JM

Re: Rubeola Secretory IgA Study

I would like to have my son participate. What do I do?

Ellen

>

> Listmates: The saliva and blood samples already sent in for the

Rubeola study are sitting in the freezer at the lab awaiting enough

to make a statistically valid study, and we don't quite have enough

yet. We are waiting to do them all at once. I have to ask all of

you who are still wanting to be in the study to please make the

effort to get the samples, though I know it is hard with some of our

kids. I have been informed that a little salt or lemon juice to

stimulate saliva will not hurt the sample. I have also learned that

1/2 to 1 ml 4 X a day will be enough, as long as total sent comes to

2 ml. Please keep the test tube in the freezer between

collections. (BTW, the preservative is penicillin in the tube). We

very much need this research, and are very grateful to all of you

who are willing to participate. It is looking more and more like a

significant number of our kids do actually have live measles in

their gut from the MMR. Since we are having a hard time getting the

saliva samples, if there are any of you out there who still want to

be in the study and are pretty sure you can collect some saliva from

your children, please let me know today or tomorrow, and we will

send you the kit. Particularly for those who have already had the

Rubeola IgG serum test at ISL in the last few months, you only have

to procure the saliva sample, otherwise we ask you to get the saliva

first before getting your blood sample. The cost to you is any

drawing fee charged for the blood sample and mailing costs to get it

back to the lab.

> As soon as the lab studies are done, I will be reporting the

results (by initials) on the lists. Thank you! Jaquelyn McCandless

>

>

>

[Guest guest]

Abby: Unless you have already accomplished a serum IgG rubeola, the task of

getting that from England may prohibit you from participating. (Another mom

from England just wrote me saying since she was in UK, she could do the saliva

but not the serum). You might try to clarify that with Immunosciences; I would

like to have you in the study if possible. Thanks! Dr. JM

Rubeola Secretory IgA Study

Listmates: The saliva and blood samples already sent in for the Rubeola

study are sitting in the freezer at the lab awaiting enough to make a

statistically valid study, and we don't quite have enough yet. We are waiting

to do them all at once. I have to ask all of you who are still wanting to be in

the study to please make the effort to get the samples, though I know it is

hard with some of our kids. I have been informed that a little salt or lemon

juice to stimulate saliva will not hurt the sample. I have also learned that

1/2 to 1 ml 4 X a day will be enough, as long as total sent comes to 2 ml.

Please keep the test tube in the freezer between collections. (BTW, the

preservative is penicillin in the tube). We very much need this research, and

are very grateful to all of you who are willing to participate. It is looking

more and more like a significant number of our kids do actually have live

measles in thei! r gut from the MMR. Since we are having a hard time getting

the saliva samples, if there are any of you out there who still want to be in

the study and are pretty sure you can collect some saliva from your children,

please let me know today or tomorrow, and we will send you the kit.

Particularly for those who have already had the Rubeola IgG serum test at ISL in

the last few months, you only have to procure the saliva sample, otherwise we

ask you to get the saliva first before getting your blood sample. The cost to

you is any drawing fee charged for the blood sample and mailing costs to get it

back to the lab.

As soon as the lab studies are done, I will be reporting the results (by

initials) on the lists. Thank you! Jaquelyn McCandless

[Guest guest]

Dr. McCandless,

Yes, I'd like to be in the syudy and I believe we can get the saliva. We do

live in England, though - can you get the kit to us or is the distance too

difficult? I'll look forward to hearing from you.

Abigail Floe

Rubeola Secretory IgA Study

Listmates: The saliva and blood samples already sent in for the Rubeola study

are sitting in the freezer at the lab awaiting enough to make a statistically

valid study, and we don't quite have enough yet. We are waiting to do them all

at once. I have to ask all of you who are still wanting to be in the study to

please make the effort to get the samples, though I know it is hard with some of

our kids. I have been informed that a little salt or lemon juice to stimulate

saliva will not hurt the sample. I have also learned that 1/2 to 1 ml 4 X a day

will be enough, as long as total sent comes to 2 ml. Please keep the test tube

in the freezer between collections. (BTW, the preservative is penicillin in the

tube). We very much need this research, and are very grateful to all of you who

are willing to participate. It is looking more and more like a significant

number of our kids do actually have live measles in their gut from the MMR.

Since we are having a hard time getting the saliva samples, if there are any of

you out there who still want to be in the study and are pretty sure you can

collect some saliva from your children, please let me know today or tomorrow,

and we will send you the kit. Particularly for those who have already had the

Rubeola IgG serum test at ISL in the last few months, you only have to procure

the saliva sample, otherwise we ask you to get the saliva first before getting

your blood sample. The cost to you is any drawing fee charged for the blood

sample and mailing costs to get it back to the lab.

As soon as the lab studies are done, I will be reporting the results (by

initials) on the lists. Thank you! Jaquelyn McCandless

[Guest guest]

I would like to have my son participate. What do I do?

Ellen

>

> Listmates: The saliva and blood samples already sent in for the

Rubeola study are sitting in the freezer at the lab awaiting enough

to make a statistically valid study, and we don't quite have enough

yet. We are waiting to do them all at once. I have to ask all of

you who are still wanting to be in the study to please make the

effort to get the samples, though I know it is hard with some of our

kids. I have been informed that a little salt or lemon juice to

stimulate saliva will not hurt the sample. I have also learned that

1/2 to 1 ml 4 X a day will be enough, as long as total sent comes to

2 ml. Please keep the test tube in the freezer between

collections. (BTW, the preservative is penicillin in the tube). We

very much need this research, and are very grateful to all of you

who are willing to participate. It is looking more and more like a

significant number of our kids do actually have live measles in

their gut from the MMR. Since we are having a hard time getting the

saliva samples, if there are any of you out there who still want to

be in the study and are pretty sure you can collect some saliva from

your children, please let me know today or tomorrow, and we will

send you the kit. Particularly for those who have already had the

Rubeola IgG serum test at ISL in the last few months, you only have

to procure the saliva sample, otherwise we ask you to get the saliva

first before getting your blood sample. The cost to you is any

drawing fee charged for the blood sample and mailing costs to get it

back to the lab.

> As soon as the lab studies are done, I will be reporting the

results (by initials) on the lists. Thank you! Jaquelyn McCandless

>

>

>

[Guest guest]

Dear Dr. McCandless,

I am willing to have my son, Isaac, particpate in the Rubeola Secretory IgA

Study.

HE is 5 yrs old and was diagnosed with PDD about a year ago. His birthdate

is 9-9-98. His behavoir problems (head banging, pulling out hair, biting

himself, extremely rageful tantrums, etc.) began in the spring of 2000, at

approx

1-1/2 yrs of age. He received the MMR and Diptheria tetanus vaccinations on

2-7-2000. At age 3 he was tested developmentally and was w/in normal range for

all areas of development w/some small lag in fine motor and self help skills.

He was tested again at age four and was found to have significant

developmental delays in adaptive/social skills, fine and gross motor and

developed a

speech stutter which has only worsened despite speech therapy 3 times/wk. There

is also family history of immune problems (shingles, severe allergies). Isaac

also has a rash on the back of his upper arms and the front of his thighs.

His pediatrician told me it was just dry skin, but I've tried moisturizers w/o

success. The rash consists of tiny red bumps. Isaac had many, many ear

infections, which were treated w/antibiotics, starting from infancy and now only

has

one occasionally. He is extremely constipated most of the time. Absolutely

ANY feedback you can give me on any of this would be extremely helpful.

Isaac's psychiatrist is very interested in learning the DAN! protocol.

Isaac has not had the Rubeola IgG serum test at ISL you mentioned in your

email and I hope this won't exclude him from your study.

Sincerely,

Lynne

[Guest guest]

: Your niece can participate, though you will need to give them the

results which are posted on the list. I tried to e-mail you the questionnaire

but it was returned. Please email me personally, and that way I can reply to

send you the questionnaire. I will send two, one for your niece, and I need to

have the same info for her as I requested from you. Dr. JM

Rubeola Secretory IgA Study

Listmates: The saliva and blood samples already sent in for the Rubeola

study are sitting in the freezer at the lab awaiting enough to make a

statistically valid study, and we don't quite have enough yet. We are waiting

to do them all at once. I have to ask all of you who are still wanting to be in

the study to please make the effort to get the samples, though I know it is

hard with some of our kids. I have been informed that a little salt or lemon

juice to stimulate saliva will not hurt the sample. I have also learned that

1/2 to 1 ml 4 X a day will be enough, as long as total sent comes to 2 ml.

Please keep the test tube in the freezer between collections. (BTW, the

preservative is penicillin in the tube). We very much need this research, and

are very grateful to all of you who are willing to participate. It is looking

more and more like a significant number of our kids do actually have live

measles in thei! r gut from the MMR. Since we are having a hard time getting

the saliva samples, if there are any of you out there who still want to be in

the study and are pretty sure you can collect some saliva from your children,

please let me know today or tomorrow, and we will send you the kit.

Particularly for those who have already had the Rubeola IgG serum test at ISL in

the last few months, you only have to procure the saliva sample, otherwise we

ask you to get the saliva first before getting your blood sample. The cost to

you is any drawing fee charged for the blood sample and mailing costs to get it

back to the lab.

As soon as the lab studies are done, I will be reporting the results (by

initials) on the lists. Thank you! Jaquelyn McCandless

[Guest guest]

Yes, she certainly would, and she already has the blood work done and the

questionnaire done. I will send you the saliva kit. I will also be sending out

your supplements hopefully tomorrow (I came home to a mountain of work, of

course!) Dr. JM

Re: Rubeola Secretory IgA Study

Any requirements? Would qualify?

Joyce M. Dávila

Mamá de Verónica Marie

Puerto Rico

----- Original Message -----

From: Jaquelyn McCandless

[Guest guest]

Yes, they will be in the package. JM

Re: Rubeola Secretory IgA Study

Any requirements? Would qualify?

Joyce M. Dávila

Mamá de Verónica Marie

Puerto Rico

----- Original Message -----

From: Jaquelyn McCandless

[Guest guest]

Winona: The first study was only saliva, but this one is both blood and saliva.

Sorry! Dr. JM

Re: Rubeola Secretory IgA Study

Dr. McCandless,

I had expressed interest right when this was announced, but have

never received anything and honestly, kept forgetting to email you

privately about it. I'm sorry! Can we try again?

I know for sure I can get the saliva (spitting phase but we will

not be able to get the blood. But I didn't think this was about

getting blood, am I wrong?

thanks!

Winona

------------------------------------------------------------------------------

[Guest guest]

Hi, I am new to the list. Is this test you are wanting done for people on this

list only? My niece is autistic, moderate functioning, and they are pretty sure

she has the measles in her gut. She has been to a gastro doc and had the scope

done and her intestines are very inflamed and she has the asophigal (spelling?)

reflux.

I think she would be an excellent candidate for this test.

I would be willing to do this for my son also, who I am not sure has it or not.

What do we need to do?

Rubeola Secretory IgA Study

Listmates: The saliva and blood samples already sent in for the Rubeola study

are sitting in the freezer at the lab awaiting enough to make a statistically

valid study, and we don't quite have enough yet. We are waiting to do them all

at once. I have to ask all of you who are still wanting to be in the study to

please make the effort to get the samples, though I know it is hard with some of

our kids. I have been informed that a little salt or lemon juice to stimulate

saliva will not hurt the sample. I have also learned that 1/2 to 1 ml 4 X a day

will be enough, as long as total sent comes to 2 ml. Please keep the test tube

in the freezer between collections. (BTW, the preservative is penicillin in the

tube). We very much need this research, and are very grateful to all of you who

are willing to participate. It is looking more and more like a significant

number of our kids do actually have live measles in their gut from the MMR.

Since we are having a hard time getting the saliva samples, if there are any of

you out there who still want to be in the study and are pretty sure you can

collect some saliva from your children, please let me know today or tomorrow,

and we will send you the kit. Particularly for those who have already had the

Rubeola IgG serum test at ISL in the last few months, you only have to procure

the saliva sample, otherwise we ask you to get the saliva first before getting

your blood sample. The cost to you is any drawing fee charged for the blood

sample and mailing costs to get it back to the lab.

As soon as the lab studies are done, I will be reporting the results (by

initials) on the lists. Thank you! Jaquelyn McCandless

[Guest guest]

Dr. McCandless, my personal email address is

awsomecremellos@...

I know that we can get the saliva.

Rubeola Secretory IgA Study

Listmates: The saliva and blood samples already sent in for the Rubeola study

are sitting in the freezer at the lab awaiting enough to make a statistically

valid study, and we don't quite have enough yet. We are waiting to do them all

at once. I have to ask all of you who are still wanting to be in the study to

please make the effort to get the samples, though I know it is hard with some of

our kids. I have been informed that a little salt or lemon juice to stimulate

saliva will not hurt the sample. I have also learned that 1/2 to 1 ml 4 X a day

will be enough, as long as total sent comes to 2 ml. Please keep the test tube

in the freezer between collections. (BTW, the preservative is penicillin in the

tube). We very much need this research, and are very grateful to all of you who

are willing to participate. It is looking more and more like a significant

number of our kids do actually have live measles in their gut from the MMR.

Since we are having a hard time getting the saliva samples, if there are any of

you out there who still want to be in the study and are pretty sure you can

collect some saliva from your children, please let me know today or tomorrow,

and we will send you the kit. Particularly for those who have already had the

Rubeola IgG serum test at ISL in the last few months, you only have to procure

the saliva sample, otherwise we ask you to get the saliva first before getting

your blood sample. The cost to you is any drawing fee charged for the blood

sample and mailing costs to get it back to the lab.

As soon as the lab studies are done, I will be reporting the results (by

initials) on the lists. Thank you! Jaquelyn McCandless

[Guest guest]

Dr. McCandless,

I had expressed interest right when this was announced, but have

never received anything and honestly, kept forgetting to email you

privately about it. I'm sorry! Can we try again?

I know for sure I can get the saliva (spitting phase but we will

not be able to get the blood. But I didn't think this was about

getting blood, am I wrong?

thanks!

Winona

[Guest guest]

Any requirements? Would qualify?

Joyce M. Dávila

Mamá de Verónica Marie

Puerto Rico

----- Original Message -----

From: Jaquelyn McCandless

[Guest guest]

Thanks. Please also remember to send the prescriptions. ;-)

Joyce M. Dávila

Mamá de Verónica Marie

Puerto Rico

Re: Rubeola Secretory IgA Study

Any requirements? Would qualify?

Joyce M. Dávila

Mamá de Verónica Marie

Puerto Rico

----- Original Message -----

From: Jaquelyn McCandless

[Guest guest]

Dear Dr. McC: If Clayton (15yo, HFA/OCD/Tourette's/blahblahblah) can

help w/the saliva study, plz let us know. He just did ISL serum

panel at Dr. Weirsema's office a couple wks ago; awaiting results.

Quick update: Last few months show great cognitive gains! With

TdGSH/MB12/TTFD trio he's ornary, sleep quality down, and OCD

increased (i assume it's from moving metals); however, several hrs

after MB12 injections (2x/wk) his language and processing is clearly

elevated. Thank you for guiding parents and teaching our doctors!

Sincerely,

Cheryl

>

> Listmates: The saliva and blood samples already sent in for the

Rubeola study are sitting in the freezer at the lab awaiting enough

to make a statistically valid study, and we don't quite have enough

yet. We are waiting to do them all at once. I have to ask all of

you who are still wanting to be in the study to please make the

effort to get the samples, though I know it is hard with some of our

kids. I have been informed that a little salt or lemon juice to

stimulate saliva will not hurt the sample. I have also learned that

1/2 to 1 ml 4 X a day will be enough, as long as total sent comes to

2 ml. Please keep the test tube in the freezer between collections.

(BTW, the preservative is penicillin in the tube). We very much need

this research, and are very grateful to all of you who are willing to

participate. It is looking more and more like a significant number

of our kids do actually have live measles in their gut from the MMR.

Since we are having a hard time getting the saliva samples, if there

are any of you out there who still want to be in the study and are

pretty sure you can collect some saliva from your children, please

let me know today or tomorrow, and we will send you the kit.

Particularly for those who have already had the Rubeola IgG serum

test at ISL in the last few months, you only have to procure the

saliva sample, otherwise we ask you to get the saliva first before

getting your blood sample. The cost to you is any drawing fee

charged for the blood sample and mailing costs to get it back to the

lab.

> As soon as the lab studies are done, I will be reporting the

results (by initials) on the lists. Thank you! Jaquelyn McCandless

>

>

>

[Guest guest]

Wanda: I'm impressed with your creativity, and really appreciate the efforts.

We have an absolute minimum of 2 ml total, so even if you could get 1/2 ml each

time that would work. If you got 1 ml one time and only a tiny bit the next I

think that's OK, too. We just want their whole cycle to be represented. Greg

at ISL said keep it cold (fridge or freezer) once you have sample in the tube.

Thanks for participating! Dr. JM

Rubeola Secretory IgA Study

Good morning, Listmates!

I haven't turned in my child's samples yet. For the life of me, I couldn't

get him to spit -- no matter how much energy, excitement and enthusiam

(Son-Rise) I used. Discouraged, I put off trying for awhile. After reading

Dr. M's post, I decided to try yet again. I read the instructions which

give a timeline to get the saliva sample. This morning MJ woke up in a bad

mood. He said he didn't sleep well because it was very windy last night.

Anyway, prior to brushing his teeth before school, I got two glasses and

suggested we play a spitting game. Of course, he refused to play, closing

his eyes and turning his head away. MJ loves Scooby Doo and Shaggy. So as

a last resort, I pretended to be Scooby Doo and in a Scooby-like voice asked

" Shaggy " to play the spitting game (I was panting, licking, etc.) Well,

I'll be darned if this didn't work! I got nearly 1ml (after three tries).

MJ is competitive at the games he plays. While eating breakfast I

challenged him to another spitting game after school (for the 4pm sample) ,

the " Mom " vs. the " son. " I asked my " audience, " who do you think will win?

MJ yells, I'll win. I'll win the spitting game! I'm learning firsthand I

must try harder to find a way to use his love or obsessions to motivate him

to participate more. It just may work!

Question: What is the very least amount ml's of saliva we can submit for

testing? Also, should we freeze the saliva if it takes a couple of days to

collect or just keep the test tube in the frig?

Thanks,

Wanda

------------------------------------------------------------------------------

[Guest guest]

Thanks, Cheryl! Yes, I think parents who have already done the serum IgG

rubeola should try to get the correlation we suspect with the secretory IgA.

Please give me Clayton's date of birth, address, phone number, and e-mail

address, so I can get the kit out right away. You will need to fill out the

questionnaire again for this study. I'm so happy to hear how well he's doing -

improvement in the older kids is enormously gratifying, helping us to see it's

never too late for our kids! Dr. JM

Re: Rubeola Secretory IgA Study

Dear Dr. McC: If Clayton (15yo, HFA/OCD/Tourette's/blahblahblah) can

help w/the saliva study, plz let us know. He just did ISL serum

panel at Dr. Weirsema's office a couple wks ago; awaiting results.

Quick update: Last few months show great cognitive gains! With

TdGSH/MB12/TTFD trio he's ornary, sleep quality down, and OCD

increased (i assume it's from moving metals); however, several hrs

after MB12 injections (2x/wk) his language and processing is clearly

elevated. Thank you for guiding parents and teaching our doctors!

Sincerely,

Cheryl

>

> Listmates: The saliva and blood samples already sent in for the

Rubeola study are sitting in the freezer at the lab awaiting enough

to make a statistically valid study, and we don't quite have enough

yet. We are waiting to do them all at once. I have to ask all of

you who are still wanting to be in the study to please make the

effort to get the samples, though I know it is hard with some of our

kids. I have been informed that a little salt or lemon juice to

stimulate saliva will not hurt the sample. I have also learned that

1/2 to 1 ml 4 X a day will be enough, as long as total sent comes to

2 ml. Please keep the test tube in the freezer between collections.

(BTW, the preservative is penicillin in the tube). We very much need

this research, and are very grateful to all of you who are willing to

participate. It is looking more and more like a significant number

of our kids do actually have live measles in their gut from the MMR.

Since we are having a hard time getting the saliva samples, if there

are any of you out there who still want to be in the study and are

pretty sure you can collect some saliva from your children, please

let me know today or tomorrow, and we will send you the kit.

Particularly for those who have already had the Rubeola IgG serum

test at ISL in the last few months, you only have to procure the

saliva sample, otherwise we ask you to get the saliva first before

getting your blood sample. The cost to you is any drawing fee

charged for the blood sample and mailing costs to get it back to the

lab.

> As soon as the lab studies are done, I will be reporting the

results (by initials) on the lists. Thank you! Jaquelyn McCandless

>

>

>

[Guest guest]

Sharon: Unfortunately this is a question I cannot answer. Though the Vit A

high dose will definitely affect the measles in the gut, I don't think the

titers will change instantly, so the sooner the better. Greg just said it has

to stay cold, either fridge or freezer. Dr. JM

Rubeola Secretory IgA Study

>

>

> Good morning, Listmates!

>

> I haven't turned in my child's samples yet. For the life of me,

I couldn't

> get him to spit -- no matter how much energy, excitement and

enthusiam

> (Son-Rise) I used. Discouraged, I put off trying for awhile.

After reading

> Dr. M's post, I decided to try yet again. I read the

instructions which

> give a timeline to get the saliva sample. This morning MJ woke

up in a bad

> mood. He said he didn't sleep well because it was very windy

last night.

> Anyway, prior to brushing his teeth before school, I got two

glasses and

> suggested we play a spitting game. Of course, he refused to

play, closing

> his eyes and turning his head away. MJ loves Scooby Doo and

Shaggy. So as

> a last resort, I pretended to be Scooby Doo and in a Scooby-like

voice asked

> " Shaggy " to play the spitting game (I was panting, licking,

etc.) Well,

> I'll be darned if this didn't work! I got nearly 1ml (after

three tries).

>

> MJ is competitive at the games he plays. While eating breakfast I

> challenged him to another spitting game after school (for the 4pm

sample) ,

> the " Mom " vs. the " son. " I asked my " audience, " who do you think

will win?

> MJ yells, I'll win. I'll win the spitting game! I'm learning

firsthand I

> must try harder to find a way to use his love or obsessions to

motivate him

> to participate more. It just may work!

>

> Question: What is the very least amount ml's of saliva we can

submit for

> testing? Also, should we freeze the saliva if it takes a couple

of days to

> collect or just keep the test tube in the frig?

>

> Thanks,

> Wanda

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

: The study does require both blood and saliva. If you are willing,

give me your son's name, birthdate, address, phone and e-mail and I will send

you the kit and the questionnaire. Thanks! Dr. JM

Re: Rubeola Secretory IgA Study

Hi Dr. McCandless

My name is Hume. My son has not had the bloodwork done but

I could get the saliva sample. I would be happy to participate if

you tell me what you need. My email address is jhumeva@....

My son was adopted from Ukraine in Sept 2000 at 20 months with known

serious delays and I am sorry to say has had all of his vacinations

to date. I don't know if thiis makes any difference. Just let me

know.

Hume

>

> Listmates: The saliva and blood samples already sent in for the

Rubeola study are sitting in the freezer at the lab awaiting enough

to make a statistically valid study, and we don't quite have enough

yet. We are waiting to do them all at once. I have to ask all of

you who are still wanting to be in the study to please make the

effort to get the samples, though I know it is hard with some of our

kids. I have been informed that a little salt or lemon juice to

stimulate saliva will not hurt the sample. I have also learned that

1/2 to 1 ml 4 X a day will be enough, as long as total sent comes to

2 ml. Please keep the test tube in the freezer between

collections. (BTW, the preservative is penicillin in the tube). We

very much need this research, and are very grateful to all of you

who are willing to participate. It is looking more and more like a

significant number of our kids do actually have live measles in

their gut from the MMR. Since we are having a hard time getting the

saliva samples, if there are any of you out there who still want to

be in the study and are pretty sure you can collect some saliva from

your children, please let me know today or tomorrow, and we will

send you the kit. Particularly for those who have already had the

Rubeola IgG serum test at ISL in the last few months, you only have

to procure the saliva sample, otherwise we ask you to get the saliva

first before getting your blood sample. The cost to you is any

drawing fee charged for the blood sample and mailing costs to get it

back to the lab.

> As soon as the lab studies are done, I will be reporting the

results (by initials) on the lists. Thank you! Jaquelyn McCandless

>

>

>

[Guest guest]

Dr. McCandless -- we have our first saliva sample (pre high dose

vitamin A) in the fridge. It's been there for about 3 weeks, is that

okay? Should I move it to the freezer?

We did the vitamin A (one time 400,000 IU -- he got sick the next day

so we never gave the second dose) a week and a half ago.

How long should I wait to collect the post vitamin A sample?

Sharon

-- In csb-autism-rx , " Jaquelyn McCandless "

<JMcCandless@p...> wrote:

>

> Wanda: I'm impressed with your creativity, and really appreciate

the efforts. We have an absolute minimum of 2 ml total, so even if

you could get 1/2 ml each time that would work. If you got 1 ml one

time and only a tiny bit the next I think that's OK, too. We just

want their whole cycle to be represented. Greg at ISL said keep it

cold (fridge or freezer) once you have sample in the tube. Thanks

for participating! Dr. JM

>

>

> Rubeola Secretory IgA Study

>

>

> Good morning, Listmates!

>

> I haven't turned in my child's samples yet. For the life of me,

I couldn't

> get him to spit -- no matter how much energy, excitement and

enthusiam

> (Son-Rise) I used. Discouraged, I put off trying for awhile.

After reading

> Dr. M's post, I decided to try yet again. I read the

instructions which

> give a timeline to get the saliva sample. This morning MJ woke

up in a bad

> mood. He said he didn't sleep well because it was very windy

last night.

> Anyway, prior to brushing his teeth before school, I got two

glasses and

> suggested we play a spitting game. Of course, he refused to

play, closing

> his eyes and turning his head away. MJ loves Scooby Doo and

Shaggy. So as

> a last resort, I pretended to be Scooby Doo and in a Scooby-like

voice asked

> " Shaggy " to play the spitting game (I was panting, licking,

etc.) Well,

> I'll be darned if this didn't work! I got nearly 1ml (after

three tries).

>

> MJ is competitive at the games he plays. While eating breakfast I

> challenged him to another spitting game after school (for the 4pm

sample) ,

> the " Mom " vs. the " son. " I asked my " audience, " who do you think

will win?

> MJ yells, I'll win. I'll win the spitting game! I'm learning

firsthand I

> must try harder to find a way to use his love or obsessions to

motivate him

> to participate more. It just may work!

>

> Question: What is the very least amount ml's of saliva we can

submit for

> testing? Also, should we freeze the saliva if it takes a couple

of days to

> collect or just keep the test tube in the frig?

>

> Thanks,

> Wanda

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

Hi Dr. McCandless

My name is Hume. My son has not had the bloodwork done but

I could get the saliva sample. I would be happy to participate if

you tell me what you need. My email address is jhumeva@....

My son was adopted from Ukraine in Sept 2000 at 20 months with known

serious delays and I am sorry to say has had all of his vacinations

to date. I don't know if thiis makes any difference. Just let me

know.

Hume

>

> Listmates: The saliva and blood samples already sent in for the

Rubeola study are sitting in the freezer at the lab awaiting enough

to make a statistically valid study, and we don't quite have enough

yet. We are waiting to do them all at once. I have to ask all of

you who are still wanting to be in the study to please make the

effort to get the samples, though I know it is hard with some of our

kids. I have been informed that a little salt or lemon juice to

stimulate saliva will not hurt the sample. I have also learned that

1/2 to 1 ml 4 X a day will be enough, as long as total sent comes to

2 ml. Please keep the test tube in the freezer between

collections. (BTW, the preservative is penicillin in the tube). We

very much need this research, and are very grateful to all of you

who are willing to participate. It is looking more and more like a

significant number of our kids do actually have live measles in

their gut from the MMR. Since we are having a hard time getting the

saliva samples, if there are any of you out there who still want to

be in the study and are pretty sure you can collect some saliva from

your children, please let me know today or tomorrow, and we will

send you the kit. Particularly for those who have already had the

Rubeola IgG serum test at ISL in the last few months, you only have

to procure the saliva sample, otherwise we ask you to get the saliva

first before getting your blood sample. The cost to you is any

drawing fee charged for the blood sample and mailing costs to get it

back to the lab.

> As soon as the lab studies are done, I will be reporting the

results (by initials) on the lists. Thank you! Jaquelyn McCandless

>

>

>

[Guest guest]

Dr. McCandless

Hi. I am new to your group and have discusssed this with my husband

just now. We would be willing to have our son, , participate if

it will help. He is 3 years old and about to start chelation. He is

on supplements, gfcfsf, etc. If you want us to participate I will

send you our address. Do we need any specific instructions?

Thank you for all of your devotion to us.

Kate D.

>

> Listmates: The saliva and blood samples already sent in for the

Rubeola study are sitting in the freezer at the lab awaiting enough

to make a statistically valid study, and we don't quite have enough

yet. We are waiting to do them all at once. I have to ask all of

you who are still wanting to be in the study to please make the

effort to get the samples, though I know it is hard with some of our

kids. I have been informed that a little salt or lemon juice to

stimulate saliva will not hurt the sample. I have also learned that

1/2 to 1 ml 4 X a day will be enough, as long as total sent comes to

2 ml. Please keep the test tube in the freezer between collections.

(BTW, the preservative is penicillin in the tube). We very much need

this research, and are very grateful to all of you who are willing to

participate. It is looking more and more like a significant number

of our kids do actually have live measles in their gut from the MMR.

Since we are having a hard time getting the saliva samples, if there

are any of you out there who still want to be in the study and are

pretty sure you can collect some saliva from your children, please

let me know today or tomorrow, and we will send you the kit.

Particularly for those who have already had the Rubeola IgG serum

test at ISL in the last few months, you only have to procure the

saliva sample, otherwise we ask you to get the saliva first before

getting your blood sample. The cost to you is any drawing fee

charged for the blood sample and mailing costs to get it back to the

lab.

> As soon as the lab studies are done, I will be reporting the

results (by initials) on the lists. Thank you! Jaquelyn McCandless

>

>

>

[Guest guest]

Yes, I am willing to draw the blood and get the saliva. Do I need

to send the blood somewhere other than to you? If so, please

forward that information at the same time please.

Name - Hume (called )

DOB - 04-19-1999

Address - 7401 Long Point Road, Exmore, VA 23350

ph# -

email - jhumeva@...

> >

> > Listmates: The saliva and blood samples already sent in for

the

> Rubeola study are sitting in the freezer at the lab awaiting

enough

> to make a statistically valid study, and we don't quite have

enough

> yet. We are waiting to do them all at once. I have to ask all

of

> you who are still wanting to be in the study to please make the

> effort to get the samples, though I know it is hard with some of

our

> kids. I have been informed that a little salt or lemon juice to

> stimulate saliva will not hurt the sample. I have also learned

that

> 1/2 to 1 ml 4 X a day will be enough, as long as total sent

comes to

> 2 ml. Please keep the test tube in the freezer between

> collections. (BTW, the preservative is penicillin in the

tube). We

> very much need this research, and are very grateful to all of

you

> who are willing to participate. It is looking more and more

like a

> significant number of our kids do actually have live measles in

> their gut from the MMR. Since we are having a hard time getting

the

> saliva samples, if there are any of you out there who still want

to

> be in the study and are pretty sure you can collect some saliva

from

> your children, please let me know today or tomorrow, and we will

> send you the kit. Particularly for those who have already had

the

> Rubeola IgG serum test at ISL in the last few months, you only

have

> to procure the saliva sample, otherwise we ask you to get the

saliva

> first before getting your blood sample. The cost to you is any

> drawing fee charged for the blood sample and mailing costs to

get it

> back to the lab.

> > As soon as the lab studies are done, I will be reporting

the

> results (by initials) on the lists. Thank you! Jaquelyn

McCandless

> >

> >

> >