Information needed on starting program....

[Guest guest]

Hello: I recall that Dr. McCandless wrote recently that it would be

so helpful if parents were able to organize and provide education to

newly diagnosed families.

Does anyone know of any location where this is being done in an

organized way.. through a clinic or business or non profit

organization?? I have been asked to serve on a new Advisory Board

for Autism in our state and it is due to my interest and I'm sure

vocalization about biomedical interventions... I would love to

see any models or have any ideas of how education about biomedical

programs have been promoted. There is a new autism clinic in our

major Univeristy town and at this time it's focus is the educational

piece.. but they are very open to considering providing information

on different treatment options so that parents are not left to " fend

for themselves " as many of us have had to do. I'd like to support

this commitment and feel it is so much a step in the right direction

by a new and very dedicated group of people.

Please share any ideas you might have on how to phase in such a

program and any bits of wisdom you may have learned through your own

experiences.

Thanks! Have a blessed week!

[Guest guest]

Dear ,

I just want to send " CONGRATULATIONS! " your way on your achievement of being

asked to serve on the new Advisory Board for Autism! And, I sure hope it was

due to your " vocalization " about biomedical interventions - YEA!!!! I wish you

tremendous success and applaud your efforts so that parents aren't left to fend

for themselves, as was the case for so many of us. Please keep us posted on all

that happens with this endeavor!

Congratulations,

Information needed on starting program....

Hello: I recall that Dr. McCandless wrote recently that it would be

so helpful if parents were able to organize and provide education to

newly diagnosed families.

Does anyone know of any location where this is being done in an

organized way.. through a clinic or business or non profit

organization?? I have been asked to serve on a new Advisory Board

for Autism in our state and it is due to my interest and I'm sure

vocalization about biomedical interventions... I would love to

see any models or have any ideas of how education about biomedical

programs have been promoted. There is a new autism clinic in our

major Univeristy town and at this time it's focus is the educational

piece.. but they are very open to considering providing information

on different treatment options so that parents are not left to " fend

for themselves " as many of us have had to do. I'd like to support

this commitment and feel it is so much a step in the right direction

by a new and very dedicated group of people.

Please share any ideas you might have on how to phase in such a

program and any bits of wisdom you may have learned through your own

experiences.

Thanks! Have a blessed week!

------------------------------------------------------------------------------

[Guest guest]

> Hello: I recall that Dr. McCandless wrote recently that it would

be

> so helpful if parents were able to organize and provide education

to

> newly diagnosed families.

> Does anyone know of any location where this is being done in an

> organized way.. through a clinic or business or non profit

> organization??

Dear ,

Well, I somehow don't think this is quite what you are

looking for, but I'll throw it in--- I think it is a

SMALL example of what you are hoping to do (or find) in

a bigger way. This is the page on the Unlocking Autism

site that is for parents w/ newly diagnosed kids. I

post this link when it seems appropriate, and what I

LIKE about this page is that they include biomed stuff

FROM THE VERY BEGINNING. Why go through the " normal "

route and waste time?

http://www.unlockingautism.org/whatnext.asp

I think it is hard/confusing, because there are many

levels and kinds of support needed for newly diagnosed.

I also usually post Dana's website because it is good

for having a range of alternatives, and simple presentation.

http://www.danasview.net/

good wishes,

Moria

[Guest guest]

- you might want to look at Developmental Delay Resources.

www.devdelay.org

This non-profit org. offers a wealth of links and information, as well as a

wonderful quarterly newsletter. Also, they sell ALL the best

books/CD/s/videos that relate to ASD - dealing with biomedical,OT, vision

therapy, cookbooks; the works and they put on wonderful seminars. Members

receive a directory of predominantly DAN-savvy parents and practitioners

listed by state. Feel free to contact me directly if you'd like any more

info. I'm on their Board of Directors.