Just Clearing some things up!

[Guest guest]

Hi All!

I just wanted to clear up some things just in case

anyone is confused about these things. Also, if you

are not sure about anything else, let me know, so that

I can clear it up as well!

First of all, I spoke with Bree. She said that she

checked into how much space she had left on her

website, and she said that out of 50mb she has used

17mb. So, we have plenty of space on her site to do

what ever we want to do! I can't imagine at this time

that we will need to put a whole lot of info anyway.

As we are just starting out.

Secondly, It seems that some may be confused on the

discription of the

New Parent Contact Chairperson/Country Representitive.

We will need a person to fill this position from each

country. They will be in charge of communicating with

doctors, hospitals, clinics, and genetists in their

country only. Also, the new parent contact chairperson

will organize new parent contacts in thier country,

and give them the nessasary information needed, so

when they speak to a new parent they will be educated

and have a new parent packet to give out. This will

make them thier countries representitive.Thus, they

will be in charge of thier country. This will cause us

to have one chair for each country. If there are other

things that you feel are important to do in your

country like media coverage,or anything that you can

think of that I have not included, then by all means

do it! We are all in this together, and I am sure that

I have not covered all areas for each position.

Third,

I really think that one of the Conference Chair

Assistants should be in the states,we can have more

than one, as I know that Judy could use all the help

she can get with this. The reason I think this, is

because, if we are having our Convention in the US

then there should be one assistant here so that they

can get the info needed. I imagine that it would be

hard to do it all from other countries. But please,

concider several assistants for this.

Finally, when the nominations are in,(Saturday is your

last day) I will take just a few days for everyone to

except their nomintations, then we will take the vote.

=====

mom to Arron 19, 16, Tim 15(mds), Stevan 14, and Garrett 5. The only

handicap a person has, are the people around them!

__________________________________________________

[Guest guest]

Thanks Kristy for clearing some things up.

I was going to ask for some helpers for the convention (if I am voted in

that is) and I notice that Sharon (who lives in Pa) has already been

proposed as an assistant.

I would like more helpers from the US if people would like to put their

names forward. Glenda in Mississipi has let me know that the crop is in now

and she has time available until Spring so I would like to nominate her as a

Convention assistant as well.

You're doing a good job Kristy !!

Judy (Mum to 8yrs mds)

[Guest guest]

I will except my nomination for New Parent contact Chairperson/Country

Rep., And New parent contact for the State of Michigan. Thanks Judy for

the nomination.

Angie Spicer

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_____|_____Have a Chili Pepper day! The Spicer's

[Guest guest]

Hello Everyone,

I know I am a recent addition to the group, but I'd

like to nominate my wife, Jaymie, as the newsletter

editor. I know Sharon, Sussan and have all

been nominated, so if there is need for an assistant,

Jaymie (jaymiejay@...) has a ton of experience

doing newsletters.

I'd also like to nominate her as a new parent contact

for Michigan. Jaymie suffers from 'volunteeritis' so i

figured I might as well nominate her for one of the

officer positions before she volunteers for something

else.

[husband to Jaymie and stepdad to (11 MDS)

Jordan (8) & Sydney (6)]

[Guest guest]

Hi Kristy:

Could you explain something to me. How many new parent contacts are we

looking for? Is it one representative from each country, and also a new

parent contact from each state in the US? I'm a bit confused. Thanks.

ann (Mom to , 7 yrs old, mds and brave enough to get her ears

pierced last night!)