Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 We live in Farmingville, New York (Long Island) My daughter is 7 years old. ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 We live about 45 Minutes west of Philly PA. Darlene - Mom to and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 We live in Huntingtown, land; about 45 minutes from D.C. Sharon (mother of Matt 6 MDS, 8) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 We live in Raleigh, NC (very close to Durham) ... On Sun, 25 Feb 2001 17:30:02 EST, MosaicDS wrote: > Hi all, > I just want to go on the record in support of the convention. I'll be > happy to help if I can be of service in helping organizing the event. Have > we gotten so far as to possible locations? Would it be a good idea to poll > everyone as to where they live? Then we could pick the most central > location. What do you think? I'll start....I live in Durham, North > Carolina. My daughter, Annie, is almost 19 years old. I, for one, would > love to meet other families with MDS or DS children. > > > > > Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com > ************************************************* > NEW MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus > ************************************************* > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 We live in Eau , Wisconsin - 90 miles east of Minneapolis. is 7. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 We live in Eau , Wisconsin - 90 miles east of Minneapolis. is 7. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2001 Report Share Posted February 27, 2001 Hi , My dad lives in Lampasas Tex, we come down every easter from West Texas! Misty Re: Convention > For the Poll I live in Copperas Cove, Texas and my daughter is 21 years > old, name is . > Mayo. > At 05:30 PM 2/25/01 -0500, you wrote: > >Hi all, > > I just want to go on the record in support of the convention. I'll be > >happy to help if I can be of service in helping organizing the event. Have > >we gotten so far as to possible locations? Would it be a good idea to poll > >everyone as to where they live? Then we could pick the most central > >location. What do you think? I'll start....I live in Durham, North > >Carolina. My daughter, Annie, is almost 19 years old. I, for one, would > >love to meet other families with MDS or DS children. > > > > > > > > > >Won't you please consider adding your personal story on the MDS website > >today? http://www.mosaicdownsyndrome.com > >************************************************* > >NEW MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus > >************************************************* > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 Then we could pick the most central location. Knoxville, TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 For the poll: We live in Connecticut, our daughter who has MDS is Naomi, almost 4 yr old. Nathalie, mom to (6 1/2), Naomi (almost 4), and Anne (almost 2) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 For the Poll: We are in Western Pennsylvania, 60 miles north of Pittsburgh. Our son is Jonas 4 mo. old MDS, and 5y.o.(precocious)! Barb & Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Hi Judy, my name is Sharon Wilt and my 14 year old daughter has MDS. I am finally registered with the group so I would like to be part of the next chat. Also I maybe able to get you some very good advise on convention holding matters and sponsors as my son has a birth defect called Cornelia de Lange Syndrome and that syndrome group is very well organized and holds regional and national and international conventions yearly so I would be glad to ask them for help. They are a great group of people so I'm sure they will pass on info to help us. Let me know if you want me to call them for help/advise. Take care and I'll wait to hear from you. Sharon Wilt slwiltjmj@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Judy... About the $500 needed in the U.S.... just a thought, but, if we have 100 families (which i think i read in one of your previous posts), and we need $500 dollars... how might everyone feel about donating $5 dollars? I think most of us could manage that! Just a thought, Angel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 I believe there will be more than the $500.00 involved. There probably will be lawyer fees and some, etc., fees. Other organizations like ours have a membership fee for a year like $20.00. With that amount from each family it should cover everything. Just an idea for Judy and Bree to consider. Yours truly, Sharon Wilt from Pa. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Just a thought. I know that most of the people I talk to: Doctors, School Guidance Counselors, etc. don't know much, if anything about MDS. I was wondering about a way to get our information to these resources. For example: publish something in one of the professional Journals? Even an ad to let them know where to find us. Just a thought. Sharon (mother to Matt 6, MDS and 8) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 hey this is Sherri's mom, (14 MDS). hope to hear from you soon. Where are you from? Mississippi here! glenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 yes, I'd donate $5 Re: Convention Judy... About the $500 needed in the U.S.... just a thought, but, if we have 100 families (which i think i read in one of your previous posts), and we need $500 dollars... how might everyone feel about donating $5 dollars? I think most of us could manage that! Just a thought, Angel Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com*************************************************NEW MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus************************************************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 Hi Judy, our family info for convention is 2 adults and 3 children so we will need one room with 2 double beds and a cot. Tommy is on tube feeding so if we could get refrig. in room that would be great. God Bless, Sharon Wilt and family Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 Hi this is Angie Spicer. Family of 6 3 adults, and 3 children no cribs no dietary specifications all atractions will be willing to pay if needed also > Thanks, Angie Spicer > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 Kristy, I was thinking, maybe Hershey Chocolate Company in PA should be considered as an "Official Sponsor of the 2003 IMDSA Convention"!! Barb Convention Can't wait for this convention!!! My info is asfollows.Family of 4. 2 adults 2 childrenno cribsno dietary specials (wait, is chocolate concidered? Ilove chocolate! lol)interested in extra attractionswill be willing to pay if neededKristy Colvin__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Thanks for that update Kristy...lol... Judy, we're interested, too. With Jaymie's folks in Delray Beach, it might be all 5 of us or just 3... we might leave the two younger girls with Grammie & Poppie and just bring to the convention. We have no dietary restraints -- and depending on the day, it seems, no constraints either...lol.. We're interested in EVERYthing, but will be limited by the co$t, of course.... We're expecting to pay our own way unless one of us has an ailing rich relative we don't know about. ;-) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 hello; I read al your mails about the convention.We also like to come but I think it cost to must to fly from Belgium to Orlando .And my husband is afraid of it .If you now more about it we love the ear about it . Marina mom of Arianne 3 years and MDS__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Barb, LOL Now you are talking! Kristy --- Martz wrote: > Kristy, > I was thinking, maybe Hershey Chocolate Company > in PA should be considered as an " Official Sponsor > of the 2003 IMDSA Convention " !! > > Barb > > Convention > > Can't wait for this convention!!! My info is as > follows. > Family of 4. 2 adults 2 children > no cribs > no dietary specials (wait, is chocolate concidered? > I > love chocolate! lol) > interested in extra attractions > will be willing to pay if needed > Kristy Colvin > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2002 Report Share Posted February 8, 2002 oh oh forgot to send in mine didnt I ..... debi strauss..... 2 adults 3 kids nothing special needed 1 room is fine two double beds ..... disney OH YEAH!!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2002 Report Share Posted February 8, 2002 Hi Judy- Didnt see my name on the list- I know you made the announcement at the same time was born so I probably forgot to e-mail my response. Those first few months are a killer on the brain cells! Anyway- count the Kugel family in. 2 adults, 4 children - we'll need two rooms, one with a crib- intersted in Disney and attractions and will pay if needed. Just a thought if your looking for corportate sponsors- we work for MetLife and they do sponsor the Special Olympics- in fact we are sponsoring a soccer tournament for Spec. Olymp tonight at the Providence Civic Center. Ellen Kugel - Walpole, Massachusetts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2002 Report Share Posted February 8, 2002 Question about mine. Where is saids cot required is that the same thing as a crib?? Because that's what we'll need since the new one will be 1 yr old by then. I was just making sure. I can't wait to see everyone there. Judy let me know what type of things you need help with. and I will try to help as much as a possible. Thanx a Phipps > Hi Judy- > Didnt see my name on the list- I know you made the announcement at the same time was born so I probably forgot to e-mail my response. Those first few months are a killer on the brain cells! > Anyway- count the Kugel family in. > 2 adults, 4 children - we'll need two rooms, one with a crib- intersted in Disney and attractions and will pay if needed. > Just a thought if your looking for corportate sponsors- we work for MetLife and they do sponsor the Special Olympics- in fact we are sponsoring a soccer tournament for Spec. Olymp tonight at the Providence Civic Center. > Ellen Kugel - Walpole, Massachusetts Quote Link to comment Share on other sites More sharing options...
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