Re: Jonas to Cardiologist, you will love this!

[Guest guest]

Barb, all that and you claim little strength?

Hmmmmm....... you must be a true dynamo when fully

healthy......

Sometimes its God's " little miracles " who have the

biggest impact on those who are not secure in their

own faith or any faith. Hopefully your little miracle

will have such an impact on the doctor.

Hopefully you'll return to full strength soon (egads,

does that mean LONGER emails?!?!). ;-)

Our prayers and thoughts are with you both.

husband of Jaymie and stepdad to (11 MDS),

Jordan (almost 9) & Sydney (6)

IMDSA Nat. VP

__________________________________________________

[Guest guest]

Barb,

Boy, I would just like to slap that doctor! I am so proud of you for saying all that you did! I continue to pray for Jonas daily. I can not wait to tell Garrett that we got another email from God! (LOL) I think that each of us has our breaking points where something small happens and it turns out to be the last straw! Lord knows I certainly have those moments! You did great, Barb! I will pray even harder (if that is possible!) for complete healing. Jonas WILL be healed and will be a witness to the doctors and everyone involved! I encourage you to read Hebrews 11. You may have already read it, but it is wonderful and encouraging!

Praying for Jonas,

Kristy

Martz wrote:

Dear Friends,

I have been pretty quiet for some days here because I am in the midst of finding out if I have pneumonia, mono, or if I was hit with two different viruses which have taken all my strength and left me a coughing shell of a mother and wife. Had the chest X-ray and blood work today and will be finding out in a day or so.) I'm on lots of meds in the meantime. Anyway, I am using what strength I do feel I have this evening to write you guys and tell you what happened on 11/19/01 when we took Jonas to his cardiologist for his 6 month check up.

When we went into the office with the doctor, he had two "shadows", or interns watching and learning from him that day. He presented Jonas' case to them by saying that he "is a classic ASD" (you may know how I love it when people say my son "is" a disease). He never mentioned that he was born with atrioventricular septal defect and that the VSD had healed itself spontaneously. I held my tongue for the time. He proceeded to say to the interns that Jonas has been doing so well, that at this time there is certainly more risk in doing the surgery than in just letting him grow and wait until the heart is larger and easier to operate on. Things looked good as he was doing the echocardiogram and the interns were watching. Again, he did not take the opportunity to show the interns where the other hole had been. He had told me on that first day I met him that there was, "no physical possibility of either hole closing without surgery!" Now he was pretending that the second one never even existed! When he was done with the ultrasound of Jonas' heart, he told us he would recommend that Jonas wait and continue growing stronger and bigger. I said, "Well, Doc, that just gives me more time to pray that this hole closes just like the other one did." He stood up and looked me in the face and said, "You can pray all you want to, but this hole is NOT going to close without open heart surgery! " I countered with, "Doctor, with all due respect, I remember every word you said to us on that first day we met you, and you said neither hole could possibly close on it's own and one clearly has! Nothing you can say or do will ever stop me from praying for his total healing." He did have to concede that one hole had closed, but he trivialized it and said that there was a flap of tissue there, that ahh....blah blah. " Then that doctor said the worst thing he could have said to Barb Martz, prayer warrior, believer in miracles and answers to prayer... HE SAID, "I THINK THAT GOD HAS BIGGER THINGS TO WORRY ABOUT RIGHT NOW THAN LITTLE OLD JONAS HERE! " I could have gone ballistic, but I kept pretty cool as I reminded him that God has every hair on Jonas' head counted and that the faith of a mustard seed is enough to move mountains." I told him that Jonas' problem was small to some people in the greater scope of things, but that none of God's children are unimportant to Him who is also their creator. I told him that Jonas could be healed in a wink of God's eye, and I still believe he can be.

So, the news for Jonas' condition was great. Still no heart failure, no meds, and for right now, we are returning for our next check up in 6 - 8 months if nothing comes up. I want to say that this doctor is incredibly intelligent and I do not doubt his discretion for the good of my son. However, I would not let a man of so little faith operate on him, and he indeed is NOT the surgeon, or even on the surgical staff. I think it is partly because he is so intellectual that he does not want to rely on something he can't see. He does not want to give me false hopes and is interested in seeing that I do not give myself any false hopes. He told me that he was not knocking my faith and that all my prayers would only serve to make the operation a greater success. So, I ask all of you to once again to please pray with me in asking for a total healing on Jonas' heart. Please believe with me. It is a rare thing to have happen, but not unheard of. My greatest hope continues to be that Jonas helps his heart doctor to believe in miracles. Wouldn't that be a great thing for a small baby to do!

I also have to share today's experience at the local hospital. I had to have the chest x-ray and blood work done for myself and had been putting off Jonas' need for a thyroid test, so we thought while we were at the lab we would get both my work done and Jonas' as well. I went in and sat in the chair for blood drawing. There were two gals there to do the draw for Jonas and asked only that I hold him tightly so he could not squirm much and they held his arm and so on. The first thing, they could not feel or see a vein. They switched arms, still could not see or feel a vein. Finally they tried to go in blind, and got no blood. By now, Jonas is screaming louder and longer than he ever has in his whole first year of life combined. They pulled the first stick and tried the other arm with a new clean needle set up. The second time they stuck him, they decided to dig around awhile and Bob who was pretty far away from us in a waiting room with was going crazy. I got tears in my eyes so unexpectantly. Just then, the "old woman of the lab" came in and she took command. I knew her in an instant as the type who can draw blood with her eyes shut. She told me not to cry because it was not hurting Jonas as much as scaring him. She was kind and just slipped the needle in his arm and that was it, she was done. I told her truthfully that I was just feeling so awful for what he was currently going through and that I had no real choice but to put him through it. I told them that he may have to have open heart surgery and I was just thinking that this little blood drawing was nothing compared to what he would go through for that. You never know when that fear is going to hit you and when something will just set you off feeling sad for a child that is generally so happy and always such a joy and blessing. I felt ashamed in a way, and mad that the woman who could do the draw so easily was not there for the first two sticks. Truly I tell you, the moment they were done, Jonas smiled so big at them and showed off his first tooth, they nearly melted. What a day, I am beat!

As usual, I have been long winded here. I no longer apologize. I know you can delete me with a keystroke if you are thinking I am an old windbag! (Which you know I am)... Also, I have come across religious here, and for that, I do not apologize. I can't separate myself from my faith. It would be like cutting off my tongue! Imagine that dear husband! :-)

Have a great day one and all!

With Love,

Barb Martz

Mom to Jonas 1 (MDS) & 6 years

Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com*************************************************MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus*************************************************

[Guest guest]

Kristy, Thank You, I will fall to sleep tonight with Hebrews 11 as the last thing I see. Your prayers are very much appreciated, as is your friendship! Barb Martz Re: Jonas to Cardiologist, you will love this! Barb, Boy, I would just like to slap that doctor! I am so proud of you for saying all that you did! I continue to pray for Jonas daily. I can not wait to tell Garrett that we got another email from God! (LOL) I think that each of us has our breaking points where something small happens and it turns out to be the last straw! Lord knows I certainly have those moments! You did great, Barb! I will pray even harder (if that is possible!) for complete healing. Jonas WILL be healed and will be a witness to the doctors and everyone involved! I encourage you to read Hebrews 11. You may have already read it, but it is wonderful and encouraging! Praying for Jonas, Kristy Martz wrote: Dear Friends, I have been pretty quiet for some days here because I am in the midst of finding out if I have pneumonia, mono, or if I was hit with two different viruses which have taken all my strength and left me a coughing shell of a mother and wife. Had the chest X-ray and blood work today and will be finding out in a day or so.) I'm on lots of meds in the meantime. Anyway, I am using what strength I do feel I have this evening to write you guys and tell you what happened on 11/19/01 when we took Jonas to his cardiologist for his 6 month check up. When we went into the office with the doctor, he had two "shadows", or interns watching and learning from him that day. He presented Jonas' case to them by saying that he "is a classic ASD" (you may know how I love it when people say my son "is" a disease). He never mentioned that he was born with atrioventricular septal defect and that the VSD had healed itself spontaneously. I held my tongue for the time. He proceeded to say to the interns that Jonas has been doing so well, that at this time there is certainly more risk in doing the surgery than in just letting him grow and wait until the heart is larger and easier to operate on. Things looked good as he was doing the echocardiogram and the interns were watching. Again, he did not take the opportunity to show the interns where the other hole had been. He had told me on that first day I met him that there was, "no physical possibility of either hole closing without surgery!" Now he was pretending that the second one never even existed! When he was done with the ultrasound of Jonas' heart, he told us he would recommend that Jonas wait and continue growing stronger and bigger. I said, "Well, Doc, that just gives me more time to pray that this hole closes just like the other one did." He stood up and looked me in the face and said, "You can pray all you want to, but this hole is NOT going to close without open heart surgery! " I countered with, "Doctor, with all due respect, I remember every word you said to us on that first day we met you, and you said neither hole could possibly close on it's own and one clearly has! Nothing you can say or do will ever stop me from praying for his total healing." He did have to concede that one hole had closed, but he trivialized it and said that there was a flap of tissue there, that ahh....blah blah. " Then that doctor said the worst thing he could have said to Barb Martz, prayer warrior, believer in miracles and answers to prayer... HE SAID, "I THINK THAT GOD HAS BIGGER THINGS TO WORRY ABOUT RIGHT NOW THAN LITTLE OLD JONAS HERE! " I could have gone ballistic, but I kept pretty cool as I reminded him that God has every hair on Jonas' head counted and that the faith of a mustard seed is enough to move mountains." I told him that Jonas' problem was small to some people in the greater scope of things, but that none of God's children are unimportant to Him who is also their creator. I told him that Jonas could be healed in a wink of God's eye, and I still believe he can be. So, the news for Jonas' condition was great. Still no heart failure, no meds, and for right now, we are returning for our next check up in 6 - 8 months if nothing comes up. I want to say that this doctor is incredibly intelligent and I do not doubt his discretion for the good of my son. However, I would not let a man of so little faith operate on him, and he indeed is NOT the surgeon, or even on the surgical staff. I think it is partly because he is so intellectual that he does not want to rely on something he can't see. He does not want to give me false hopes and is interested in seeing that I do not give myself any false hopes. He told me that he was not knocking my faith and that all my prayers would only serve to make the operation a greater success. So, I ask all of you to once again to please pray with me in asking for a total healing on Jonas' heart. Please believe with me. It is a rare thing to have happen, but not unheard of. My greatest hope continues to be that Jonas helps his heart doctor to believe in miracles. Wouldn't that be a great thing for a small baby to do! I also have to share today's experience at the local hospital. I had to have the chest x-ray and blood work done for myself and had been putting off Jonas' need for a thyroid test, so we thought while we were at the lab we would get both my work done and Jonas' as well. I went in and sat in the chair for blood drawing. There were two gals there to do the draw for Jonas and asked only that I hold him tightly so he could not squirm much and they held his arm and so on. The first thing, they could not feel or see a vein. They switched arms, still could not see or feel a vein. Finally they tried to go in blind, and got no blood. By now, Jonas is screaming louder and longer than he ever has in his whole first year of life combined. They pulled the first stick and tried the other arm with a new clean needle set up. The second time they stuck him, they decided to dig around awhile and Bob who was pretty far away from us in a waiting room with was going crazy. I got tears in my eyes so unexpectantly. Just then, the "old woman of the lab" came in and she took command. I knew her in an instant as the type who can draw blood with her eyes shut. She told me not to cry because it was not hurting Jonas as much as scaring him. She was kind and just slipped the needle in his arm and that was it, she was done. I told her truthfully that I was just feeling so awful for what he was currently going through and that I had no real choice but to put him through it. I told them that he may have to have open heart surgery and I was just thinking that this little blood drawing was nothing compared to what he would go through for that. You never know when that fear is going to hit you and when something will just set you off feeling sad for a child that is generally so happy and always such a joy and blessing. I felt ashamed in a way, and mad that the woman who could do the draw so easily was not there for the first two sticks. Truly I tell you, the moment they were done, Jonas smiled so big at them and showed off his first tooth, they nearly melted. What a day, I am beat! As usual, I have been long winded here. I no longer apologize. I know you can delete me with a keystroke if you are thinking I am an old windbag! (Which you know I am)... Also, I have come across religious here, and for that, I do not apologize. I can't separate myself from my faith. It would be like cutting off my tongue! Imagine that dear husband! :-) Have a great day one and all! With Love, Barb Martz Mom to Jonas 1 (MDS) & 6 years Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com*************************************************MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus*************************************************

[Guest guest]

Dear , Never underestimate the power of a God fearing woman! Thank You so much for your prayers and for always giving me a smile. Even if God does not mean for Jonas to have a complete healing, he is already an incredible miracle! And yet, I still feel in my heart that healing is coming. (relatively brief, no?) Barb Martz Re: Jonas to Cardiologist, you will love this! Barb, all that and you claim little strength?Hmmmmm....... you must be a true dynamo when fullyhealthy......Sometimes its God's "little miracles" who have thebiggest impact on those who are not secure in theirown faith or any faith. Hopefully your little miraclewill have such an impact on the doctor.Hopefully you'll return to full strength soon (egads,does that mean LONGER emails?!?!). ;-)Our prayers and thoughts are with you both.husband of Jaymie and stepdad to (11 MDS),Jordan (almost 9) & Sydney (6)IMDSA Nat. VP__________________________________________________

[Guest guest]

Way to go Barb. I am so glad that you stood up to the Doc and shared your beliefs. Many times it seems that Dr's like to intimidate. I was just watching the news yesterday about on dying and his dr said " He was a very religious man", He said it with such respect. Then I read about how your DR reacted and it just doesn;'t make any sense. Sometimes they just aren't willing to give God any credit for the miracles He performs. I was telling my daughter 18 about your dr and she said she just knows that Jonas is going to be healed. We will continue to pray for his complete healing. Nothing is to difficult for God!

mom to Josh20, 18, Hannah13, Caleb4 , Kaelah 14mos ds and love of my life!

[Guest guest]

Dear , Thank you so much for the prayer and please tell that I really like the way she thinks! One of my friends told me I should have complained about the doctor and really stormed out of there. I think that is what the devil would have wanted. I am trying to stay out of the way and let God show this very smart, fellow child of God, a way of faith he does not yet know. I am praying for the doctor as well as my son. After all, we are all just trying to make our way through this life, and we hold onto those things we know to be true. I read a similar tribute to on today in which they quoted him as saying that God comes first. Who would have thought that about him at various points in his public life? He was working on finding his way too. How wonderful it is to know that there really is NOTHING too difficult for God. I hope that one day I will see a mountain move, but I hope I am safely in heaven when it happens! Have a great day , and lots of love to your 5 dear ones! Blessings to you, Barb Martz Mommy to Jonas 1 (MDS) & 6 Re: Jonas to Cardiologist, you will love this! Way to go Barb. I am so glad that you stood up to the Doc and shared your beliefs. Many times it seems that Dr's like to intimidate. I was just watching the news yesterday about on dying and his dr said " He was a very religious man", He said it with such respect. Then I read about how your DR reacted and it just doesn;'t make any sense. Sometimes they just aren't willing to give God any credit for the miracles He performs. I was telling my daughter 18 about your dr and she said she just knows that Jonas is going to be healed. We will continue to pray for his complete healing. Nothing is to difficult for God!mom to Josh20, 18, Hannah13, Caleb4 , Kaelah 14mos ds and love of my life! Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com*************************************************MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus*************************************************

[Guest guest]

Hi Barb, Know I will be praying for Jonas and you dear. God Bless. love and

prayers, Sharon W

[Guest guest]

Hey Barb:

I sent you a private e-mail reply but it wouldn't go...I tried the Jonas

address but wanted to make sure you got it. Talk to you soon.

Sharon