back to ped today

[Guest guest]

Well, we went for our check back w/ dr. thing and guess what....he had wheezing in his lungs. We did a breathing treatment and he got better. The Dr. thinks that we need to watch him, this is his 2nd episode doing this. It could be RSV again or Asthma showing up. It is viral what he has.

Thank you for sending me notes and well wishes. We are exhausted. He has been taking a nap and resting pretty good.

We have to do albuterol and a steroid. That is good for me. I am just tired of antibiotics. Tristan just gags himself and throws them up now. Funny how a 2 year old knows what medicine is!

Jen T.

Our Family

Waves of H.O.P.E.

"I believe that all through these dark and silent years God has been using my life for a purpose I do not know, but one day I shall understand and then I will be satisfied" (Helen Keller)

[Guest guest]

has asthma, they think. He's almost 2 with DS or MDS. He's very prone to respiratory infections and compromised breathing. Most days, though, he breathes just fine, but when he gets sick, he quickly goes into a respiratory illness and wheezing. As a baby, he had severe croup. Does anyone have this type of problem with their kiddos? We're torn as to whether give him the albuterol breathing treatments 2-3 times every day or just when he has symptoms.

Thanks.

Beth

back to ped today

Well, we went for our check back w/ dr. thing and guess what....he had wheezing in his lungs. We did a breathing treatment and he got better. The Dr. thinks that we need to watch him, this is his 2nd episode doing this. It could be RSV again or Asthma showing up. It is viral what he has. Thank you for sending me notes and well wishes. We are exhausted. He has been taking a nap and resting pretty good. We have to do albuterol and a steroid. That is good for me. I am just tired of antibiotics. Tristan just gags himself and throws them up now. Funny how a 2 year old knows what medicine is! Jen T. Our Family Waves of H.O.P.E. "I believe that all through these dark and silent years God has been using my life for a purpose I do not know, but one day I shall understand and then I will be satisfied" (Helen Keller) Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com*************************************************MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus*************************************************

[Guest guest]

Beth & Jen,

, now 11, also had asthma when she was younger,

but grew out of it(around 4 yrs old). Our other

daughter, the soccer queen Jordan, used to have the

albuterol treatments and steroids 4-5 times a week due

to her asthma, but when she hit age 7 everything

seemed to improve, she started playing soccer and now

we've done maybe one treatment in the last 6-8 months.

, who is more less likely to be running around

outside anyway hasn't had an asthma attack as long as

I've been involved with the family (6 years).

So, no helpful information from me, I guess, other

than to say that didn't seem to have asthma as

bad as Jordan and she outgrew it quicker; Jordan had

the most severe asthma of the two yet she seems to

have outgrown it, too. You may find that your children

will also grow out of the asthma over time, too.

Husband to Jaymie and stepdad to (11 MDS),

Jordan (almost 9) & Sydney (6)

__________________________________________________

[Guest guest]

Dear Beth & ,

Just to let you know that you will be in our prayers and we hope that everything goes ok for you and the family..Hang in there.....

Sussan & Courteney

[Guest guest]

Beth,

was diagnosed with reactive airway disease. This is the diagnosis they

use when they are not sure whether or not it's asthma. It turned out that he

did not have asthma. We would have several severe bouts of croup a year. We

have grown out of this(fingers crossed, and prayers said). Croup is a spasm

of the larynx. There are things you can try to stop the ER visits. At the

first sign (almost usually during the night) the barking cough starts. Go

into a small bathroom and turn the shower on hot to steam it up. At the same

time, dose your child when Motrin(an anti inflammatory that will help whether

they have fever or not). Robitussin CF ( I always associate the CF with

" croup formula " ), and start on oral prednisone. Prelone is great to have on

hand if this happens frequently. After atleast 15 minutes in the shower,

then cool your child down. Do not let them get overheated. If it's cold or

freezing outside, open the windows. If not, turn the AC on. These steps can

usually prevent the ER visit. If your child does not improve, take them

immediately to the ER. Croup is a viral disease and does not need

antibiotics. I hope this info helps.

Sandy

mom to (MDS) & Corey

[Guest guest]

was diagnosed with reactive airway disease. This is the diagnosis they

use when they are not sure whether or not it's asthma. It turned out that he

did not have asthma. We would have several severe bouts of croup a year. We

have grown out of this(fingers crossed, and prayers said). Croup is a spasm

of the larynx. There are things you can try to stop the ER visits. At the

first sign (almost usually during the night) the barking cough starts. Go

into a small bathroom and turn the shower on hot to steam it up. At the same

time, dose your child when Motrin(an anti inflammatory that will help whether

they have fever or not). Robitussin CF ( I always associate the CF with

"croup formula"), and start on oral prednisone. Prelone is great to have on

hand if this happens frequently. After atleast 15 minutes in the shower,

then cool your child down. Do not let them get overheated. If it's cold or

freezing outside, open the windows. If not, turn the AC on. These steps can

usually prevent the ER visit. If your child does not improve, take them

immediately to the ER. Croup is a viral disease and does not need

antibiotics. I hope this info helps.

we deal with this also in the same way... only we use the air conditioner in the bedroom at night to help kaitee breath....my husband doesnt mind the ummmmm brisk air but my side of the bed is piled high with quilts, comfortors and blankets.... I probably wear more clothes to bed then when I get up.....thankfully she to seems to be outgrowing the sessions in the hot steamy shower.....debbi

[Guest guest]

Thanks! also had the reactive airway disease dx, but Ped said asthma recently. We'll see. He hasn't had croup in about a year, though, ever since we started nebulizer treatments at first sign of problem. Unfortunately, the shower, cold air, etc. never worked for - he always kicked into respiratory distress. But now, age and albuterol have minimized it to more minor wheezing. Thanks. I'll keep the Robitussion CF in mind if needed.

Beth

Re: back to ped today

Beth, was diagnosed with reactive airway disease. This is the diagnosis they use when they are not sure whether or not it's asthma. It turned out that he did not have asthma. We would have several severe bouts of croup a year. We have grown out of this(fingers crossed, and prayers said). Croup is a spasm of the larynx. There are things you can try to stop the ER visits. At the first sign (almost usually during the night) the barking cough starts. Go into a small bathroom and turn the shower on hot to steam it up. At the same time, dose your child when Motrin(an anti inflammatory that will help whether they have fever or not). Robitussin CF ( I always associate the CF with "croup formula"), and start on oral prednisone. Prelone is great to have on hand if this happens frequently. After atleast 15 minutes in the shower, then cool your child down. Do not let them get overheated. If it's cold or freezing outside, open the windows. If not, turn the AC on. These steps can usually prevent the ER visit. If your child does not improve, take them immediately to the ER. Croup is a viral disease and does not need antibiotics. I hope this info helps. Sandymom to (MDS) & CoreyWon't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com*************************************************MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus*************************************************

[Guest guest]

Hi Beth,

When my son (15mds) was that age he had the same problems. We got a breathing machine from the Easter Seals and gave him breathing treatments whenever we felt that something was coming on. I do not regret it at all, as I think it helped to get on top of it. He spent most of the first two years of his life in the hospital with that and then when we got the breathing machine, we were able to catch it before it got to the point of having to be put in the hospital. never had asthma, but with the weak lungs it sounds about the same as what you are going through.

If I were you, I would not hesitate, because it really made a big difference in him.

Let me know what you decide.

Kerri

B DeHoff wrote:

has asthma, they think. He's almost 2 with DS or MDS. He's very prone to respiratory infections and compromised breathing. Most days, though, he breathes just fine, but when he gets sick, he quickly goes into a respiratory illness and wheezing. As a baby, he had severe croup. Does anyone have this type of problem with their kiddos? We're torn as to whether give him the albuterol breathing treatments 2-3 times every day or just when he has symptoms.

Thanks.

Beth

back to ped today

Well, we went for our check back w/ dr. thing and guess what....he had wheezing in his lungs. We did a breathing treatment and he got better. The Dr. thinks that we need to watch him, this is his 2nd episode doing this. It could be RSV again or Asthma showing up. It is viral what he has. Thank you for sending me notes and well wishes. We are exhausted. He has been taking a nap and resting pretty good. We have to do albuterol and a steroid. That is good for me. I am just tired of antibiotics. Tristan just gags himself and throws them up now. Funny how a 2 year old knows what medicine is! Jen T. Our Family Waves of H.O.P.E. "I believe that all through these dark and silent years God has been using my life for a purpose I do not know, but one day I shall understand and then I will be satisfied" (Helen Keller) Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com*************************************************MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus*************************************************