Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 Autchick: As you are aware, autism-mercury attracts many people who are disenchanted with doctors, and get a lot of fuel for their fire there, as the reigning guru is an avid DAN! doctor hater. If we all tossed out any therapy that didn't work for a particular child, we would have no therapies left. I agree with Debbie's assessment; I have seen many more children benefit from TTFD and with fewer side effects than I saw with DMSA. I seldom use ALA for ASD children any more, starting with Chelsey having the worst reaction to it than anything I've ever subjected her to. Yet I continued for a while to use it for other kids, until I finally learned that it is one of the most yeast encouraging compounds available. It needs to be used far along in the chelation process and with a pretty good gut in my opinion, though Andy has expressed that even with side effects the good will outweigh the negatives eventually; I did not find that to be so. I have used and recommended TTFD for hundreds of kids, with few side effects other than complaints of the smell and rashes for those who are sensitive either to the output of mercury on their skin or sensitive to the tiny amount of soy protein in the soy lecithin they use as a carrier. Lee Silsby pharmacy now has a soy-free TTFD for those, and Dr. Lonsdale has created Authia to deal with the smell problem. II continue to use DMSA and sometimes oral DMPS for older kids with high mercury, alternating it with TTFD, which I use on almost all my patients. With TTFD, I have not had to have the long delays to treat yeast that I had with DMSA and ALA, and it just steadily keeps helping the kids detox daily, so that's what I almost always strart the younger kids out on before getting into DMSA at this point. Jaquelyn Re: TTFD - " Hard on Liver? " - Dr. Lonsdale autchick wrote ->>>>>If you research some posts on TTFD from a few months ago on the >autism mercury board you will see one from a mother who brings her >child to see Dr. Lonsdale...she had to stop using TTFD for now >because of liver problems...she said this doctor has tunnel vision >when it comes to this treatment for chelation...he won't consider >using other methods at this point--------------------- ---------------------------------------------------------------------- ------ Hi! I think things may be out of context here...you state, Dr. Lonsdale won't consider other forms of chelation " at this point " ...well right on...a good medical call! If this child is having liver problems with a gentle form of chelation...why would Dr. Lonsdale consider using another form of chelation " AT THIS POINT " ... any other form commonly used is going to be stronger the TTFD, so why go there and cause an escalation of the liver issues? My 6 year old son is a patient of Dr. Lonsdale. Instead of tunnel vision, I have experienced a Dr. who is willing to review and try most things I ask him to. I haven't experienced any form of tunnel vision at all. He has great respect for Dr. McCandless and her protocols as well. The only treatment I mentioned that he wasn't keen on was Dr. Megson's Vit A + Bethanacol protocol. He hasn't seen it work with any of his kids. I don't classify his determination on it as not willing to explore other avenues. Dr. Lonsdale struck me as another doctor who has a passion for our kids but is more than a bit overwhelmed by what the kids are going through and that there are so many needing help. He of course is going to recommend TTFD (authia cream) first...it's his research baby after all and he has seen it working! As for my son, I have never been able to apply the full daily dose AM and PM, as it's too much for him. I am hoping to work up to it but right now I can only apply the AM dose every other day. My son's aluminium and copper levels especially, were off the charts. I have to chelate very slowly. We should also consider if the child with the Liver issues is at the same time, on other supplements, meds, protocols, etc...Seems to me the correct path was taken when liver issues were found and the treatment stopped. As our kids chelate, the metals are pulled from tissue/organs, etc...and enter the blood stream for processing by the liver on their way out of the body...there is always the chance for an overload which is why the liver test was done! I guess what I am saying here is that the TTFD wasn't hard on the liver....the HEAVY METALS were. The TTFD was doing it's job even with most of it increasing sulfation issues so the body naturally detoxifies. I would take a break and start off more slowly once the tests indicate his liver is responding normally again and then retest during treatment.> >>>>I would just be careful and >do alot of research on this one...no matter who the doctor is...>>>> That would be easy if " alot " of research existed. Dr. Lonsdale's abstract is on the web as recommendations from a few other Dan doctors. For the parent, our main form of info comes from us...parents and other caregivers with firsthand experience...even then each child is going to have their own individual response based on their biomedical condition....how much metals are present, etc.. Health, Love and Prayers! Deb :0) > > Walt and listmates: > > What is the e-mail address of this autism-mercury board? I would > like to read > > these posts and possibly join the group. > > Thanks, > > Ada > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Debbie, just wanted to ask what you see in your child that shows that you should slow down on the TTFD. We use it also, think it's great, but wonder how to judge if we should slow down on dosage a bit. Our son has been stimmy and I wonder if that comes from the metals circulating on their way out. Thanks for your thoughts on the subject! Abbie Re: TTFD - " Hard on Liver? " - Dr. Lonsdale autchick wrote ->>>>>If you research some posts on TTFD from a few months ago on the >autism mercury board you will see one from a mother who brings her >child to see Dr. Lonsdale...she had to stop using TTFD for now >because of liver problems...she said this doctor has tunnel vision >when it comes to this treatment for chelation...he won't consider >using other methods at this point--------------------- ---------------------------------------------------------------------- ------ Hi! I think things may be out of context here...you state, Dr. Lonsdale won't consider other forms of chelation " at this point " ...well right on...a good medical call! If this child is having liver problems with a gentle form of chelation...why would Dr. Lonsdale consider using another form of chelation " AT THIS POINT " ... any other form commonly used is going to be stronger the TTFD, so why go there and cause an escalation of the liver issues? My 6 year old son is a patient of Dr. Lonsdale. Instead of tunnel vision, I have experienced a Dr. who is willing to review and try most things I ask him to. I haven't experienced any form of tunnel vision at all. He has great respect for Dr. McCandless and her protocols as well. The only treatment I mentioned that he wasn't keen on was Dr. Megson's Vit A + Bethanacol protocol. He hasn't seen it work with any of his kids. I don't classify his determination on it as not willing to explore other avenues. Dr. Lonsdale struck me as another doctor who has a passion for our kids but is more than a bit overwhelmed by what the kids are going through and that there are so many needing help. He of course is going to recommend TTFD (authia cream) first...it's his research baby after all and he has seen it working! As for my son, I have never been able to apply the full daily dose AM and PM, as it's too much for him. I am hoping to work up to it but right now I can only apply the AM dose every other day. My son's aluminium and copper levels especially, were off the charts. I have to chelate very slowly. We should also consider if the child with the Liver issues is at the same time, on other supplements, meds, protocols, etc...Seems to me the correct path was taken when liver issues were found and the treatment stopped. As our kids chelate, the metals are pulled from tissue/organs, etc...and enter the blood stream for processing by the liver on their way out of the body...there is always the chance for an overload which is why the liver test was done! I guess what I am saying here is that the TTFD wasn't hard on the liver....the HEAVY METALS were. The TTFD was doing it's job even with most of it increasing sulfation issues so the body naturally detoxifies. I would take a break and start off more slowly once the tests indicate his liver is responding normally again and then retest during treatment.> >>>>I would just be careful and >do alot of research on this one...no matter who the doctor is...>>>> That would be easy if " alot " of research existed. Dr. Lonsdale's abstract is on the web as recommendations from a few other Dan doctors. For the parent, our main form of info comes from us...parents and other caregivers with firsthand experience...even then each child is going to have their own individual response based on their biomedical condition....how much metals are present, etc.. Health, Love and Prayers! Deb :0) > > Walt and listmates: > > What is the e-mail address of this autism-mercury board? I would > like to read > > these posts and possibly join the group. > > Thanks, > > Ada > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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