update

[Guest guest]

Hi All,

I'm back! I had some initial problems with the surgery. The day after the

operation, I ended up with chemical meningitis. That's when (as explained

to me by my nsg) something foreign mixes with the spinal fluid. I had

atrocious spinal headaches for about 24 hours, but after everything evened

out, the headaches disapated. About a week after being discharged, I had a

small spinal fluid leak and had to lay flat (in my home) for three days.

But, after that, the swelling went down and the headpains slowed down. He

(nsg) said it was the worst tether he's encountered with me yet...

I've been having some new problems since the surgery, but I'm hoping once

all is said and done, everything will at least go back to where I was before

surgery. I've had some set-backs so I'm hoping these problems are just the

end-result of these. So far, the surgery hasn't corrected any of the

initial complaints that brought me to surgery, but it's only been less than

three weeks and I am somewhat swollen still so I've still got some hope.

I do have two pictures from my surgery that my nsg took. If anyone is

interested, I have a great picture of my spinal cord after it was freed up.

You can see the tumor (lipoma) at the end of the spinal cord and you can

also see the falanges (sp) that spread out through the back bone (think

that's what they're called.)

Kathy

[Guest guest]

I'd love to see those pics--- I'm sure would too. Thanks for the

offer!

JR

[Guest guest]

update

Hi All,I'm back! I had some initial problems with the surgery. The day after theoperation, I ended up with chemical meningitis. That's when (as explainedto me by my nsg) something foreign mixes with the spinal fluid. I hadatrocious spinal headaches for about 24 hours, but after everything evenedout, the headaches disapated. About a week after being discharged, I had asmall spinal fluid leak and had to lay flat (in my home) for three days.But, after that, the swelling went down and the headpains slowed down. He(nsg) said it was the worst tether he's encountered with me yet...I've been having some new problems since the surgery, but I'm hoping onceall is said and done, everything will at least go back to where I was beforesurgery. I've had some set-backs so I'm hoping these problems are just theend-result of these. So far, the surgery hasn't corrected any of theinitial complaints that brought me to surgery, but it's only been less thanthree weeks and I am somewhat swollen still so I've still got some hope.I do have two pictures from my surgery that my nsg took. If anyone isinterested, I have a great picture of my spinal cord after it was freed up.You can see the tumor (lipoma) at the end of the spinal cord and you canalso see the falanges (sp) that spread out through the back bone (thinkthat's what they're called.)KathyKaty, Glad to hear everythig is better for you now. Yes i would love to see the pic. Take care and get well soon.

[Guest guest]

I would love to see them (the pics I mean). I am sorry things didn't go as

good as you hoped they would... crap.. ( I hope they do get better as

the swelling goes down.

Laurie

lauray@...

" If you judge people, you

have no time to love them. "

-Mother Theresa

update

>

> Hi All,

>

> I'm back! I had some initial problems with the surgery. The day after

the

> operation, I ended up with chemical meningitis. That's when (as explained

> to me by my nsg) something foreign mixes with the spinal fluid. I had

> atrocious spinal headaches for about 24 hours, but after everything evened

> out, the headaches disapated. About a week after being discharged, I had

a

> small spinal fluid leak and had to lay flat (in my home) for three days.

> But, after that, the swelling went down and the headpains slowed down. He

> (nsg) said it was the worst tether he's encountered with me yet...

>

> I've been having some new problems since the surgery, but I'm hoping once

> all is said and done, everything will at least go back to where I was

before

> surgery. I've had some set-backs so I'm hoping these problems are just

the

> end-result of these. So far, the surgery hasn't corrected any of the

> initial complaints that brought me to surgery, but it's only been less

than

> three weeks and I am somewhat swollen still so I've still got some hope.

>

> I do have two pictures from my surgery that my nsg took. If anyone is

> interested, I have a great picture of my spinal cord after it was freed

up.

> You can see the tumor (lipoma) at the end of the spinal cord and you can

> also see the falanges (sp) that spread out through the back bone (think

> that's what they're called.)

>

> Kathy

>

>

>

>

[Guest guest]

Good Morning

How are you this morning?

I dont or yet have given anyone warning about me being in pain and me getting

mean. I just stay to myself or try to.You know what aggravates me the most is

saying you look good etc.what the heck does looking good have to do with you

being in pain.or another thing i get is your moving around better today thats

good your not in pain.I hate when people say they understand what i am going

through especially when they start comparing my pain to theirs(heartburn

compared to my back pain my joint and muscle pain,my neck pain and say to me i

know what ur going through loli say take a rolaids and tell me when its gone

because guess what mine will still be there).You guys in this group are the only

ones who understand what i go through on a daily basis because u all go through

it also.It is sad when my 5 yr old granddaughter can tell when i am in pain and

she helps me with whatever i need and i dont ask her. when she spends the

night with us she continuously asks me

grandma u ok u need something did u take your meds etc.She has not been kept

in the dark with whats wrong with me i explain and my dr explains.my dr even

let her hold the machine on my abdomen in order to up my dosage in my pain pump.

which she thought was the coolesst thing and my dr sends home pics of where

they put the injections for my siatica for her to see. she knows the rods she

knows the catheter from pain pump and which one is the needle.

I agree noone has done anything to deserve the pain we go through.i used to

ask why me but its just a waste of energy because we will never know why.I was

born with the scoliosis it was inheritated from my father(lucky me i inheritaed

from a man who hit me as a child)I believe we are here for som reason and like

we are to be able to help others cope with their pain

I was diagnosed with narcolepsy 10 pecent induced by the meds other 90 from

who knows what,siatica,scoliosis,RA,stenosis of spine,carpal tunnel,rsd, had

cataracts in both eyes at 38 yr old,asthma,depression,anxiety,ovarian

cancer(remission) fibriod tumors central nervous damage deterioting muscles and

joints and plenty more things lmao

I am always saying i cant take anymore but evertime i go to drs it something

new

and all ~~~

I can certainly relate to feeling mean when you're in pain. There are

times when I'll tell people, " when I'm in alot of pain, I'd just as soon bite

your head off. So you'll understand if I keep to myself. " I don't intend to be

mean or angry, it just happens. It's all part of the disease of Chronic Pain.

And angry I am. Pissed off at me, you, the whole world. Why? Because

it's not fair that I should have to live this way. Because I didn't do anything

to deserve this, and sometimes it seems as if I'm paying for some unknown sin

or wrong-doing. I've been good, never did drugs or booze while growing up,

never got into fights at school (or anywhere else); I was the good girl.

Well guess what? Come to find out, I was BORN with the majority of

my physical problems. I was screwed from the moment of conception!

Ain't that a hoot??? Now I have to ask, why did God make me this way? What

lessons do I need to learn? Or do other people need to learn from me? Like I

said before, I have over 25 medical diagnoses. Here are just a few:

Lymphedema, possible Narcolepsy, Sciatica, Spinal arthritis, Spinal

stenosis, Lumbar lordosis, Carpal tunnel, Nerve damage in hands, Mild asthma,

Endometriosis, Hypothyroid, Degenerative disc disease, Facet joint syndrome,

Osteoarthritis, Bursitis, Tendonitis, Psuedotumor cerebri, Fibromyalgia,

Clinical

depression, Post traumatic stress, Social anxiety, Borderline personality,

Dysthymia, Panic disorder, etc, etc, etc. The list goes on & on. . .

I guess another question I ask frequently is, WHY ME??? And, one that

goes hand in hand, HOW MUCH MORE CAN I TAKE??? It's been said that God won't

give you more than you can handle. HAHAHA!!! I must respectfully disagree with

that statement. Most days, I can only deal with a few hours at a time. Sometimes

not even that much.

***********************************

in Washington

Emotionally and Medically screwed up

***********************************

[Guest guest]

Darcy, I am Good this morning. Let me tell you why. . .

Yeah, I like that too. I get " Gee, you look better " , or " How are you? " . I

look better than what? Than I did yesterday? Or better than ______ (fill in the

blank). As for how I am, I am alive today, thank you very much. That just

about says it all. You really don't want to know how I am, do you? If so, I'll

spend the next hour telling you about all my aches and pains, and why you should

not take anything for granted - because it could get taken away in a heartbeat

- leaving you. . . well, like me. I have a solid answer for " How are you? "

and that is " Good. " The very act of breathing for me is wonderful, so let it be.

Am I angry, envious, jealous, bitchy, etc? U betcha. All that and more. I am

also very grateful to just wake up in the morning (well, afternoon for me,

LOL).

***********************************

in Washington

Emotionally and Medically screwed up

***********************************

-------------------------------------------------------------------

In a message dated 7/23/2006 12:49:27 PM Pacific Standard Time,

Hugs-N-Pain writes:

> I dont or yet have given anyone warning about me being in pain and me

> getting mean. I just stay to myself or try to.You know what aggravates me

the

> most is saying you look good etc.what the heck does looking good have to do

> with you being in pain.or another thing i get is your moving around better

> today thats good your not in pain.I hate when people say they understand what

i

> am going through especially when they start comparing my pain to

> theirs(heartburn compared to my back pain my joint and muscle pain,my neck

pain and say

> to me i know what ur going through loli say take a rolaids and tell me

> when its gone because guess what mine will still be there).You guys in this

> group are the only ones who understand what i go through on a daily basis

because

> u all go through it also.