Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 Dr. McCandless: I had emailed you that I would be interested in your study but I never saw the questionaire at the bottom of your response. (I went back and reread your email and now I see the questionaire). I am still interested if you don't already have the 40. Thanks, Terri > Listmates: I have received 24 questionnaires (thank you!) but need 16 more to have enough for the study. PLEASE fill out the questionnaires I have sent many of you who have not returned them. I do not require photos if that is inconvenient for you. MMR is getting lots of prominence, and this study stands to help us get more information about testing methods to try to ascertain if children do actually have live measles virus in their system. It may also help us come to some protocol for mega-vitamin A therapy which is definitely helping some kids. If any of you still want to be in the study, I will be collecting questionnaires until I get the 40, and then will have the saliva and serum kits sent out to you. > > These are the kind of exploratory studies that help lead us to effective treatments. We need both the saliva collection and a serum rubeola IgG to try to correlate the two. I need a paragraph about your child particularly any reaction to the MMR vaccine or regression after receiving it. If any of you have had an evaluation with me in the last few months, we already have the rubeola IgG, and will need only the saliva specimen. Thanks! Jaquelyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 Terri: I'm still collecting them and not quite yet to my quota - please complete and send in! Thanks, Jaquelyn Re: RUBEOLA STUDY Dr. McCandless: I had emailed you that I would be interested in your study but I never saw the questionaire at the bottom of your response. (I went back and reread your email and now I see the questionaire). I am still interested if you don't already have the 40. Thanks, Terri > Listmates: I have received 24 questionnaires (thank you!) but need 16 more to have enough for the study. PLEASE fill out the questionnaires I have sent many of you who have not returned them. I do not require photos if that is inconvenient for you. MMR is getting lots of prominence, and this study stands to help us get more information about testing methods to try to ascertain if children do actually have live measles virus in their system. It may also help us come to some protocol for mega-vitamin A therapy which is definitely helping some kids. If any of you still want to be in the study, I will be collecting questionnaires until I get the 40, and then will have the saliva and serum kits sent out to you. > > These are the kind of exploratory studies that help lead us to effective treatments. We need both the saliva collection and a serum rubeola IgG to try to correlate the two. I need a paragraph about your child particularly any reaction to the MMR vaccine or regression after receiving it. If any of you have had an evaluation with me in the last few months, we already have the rubeola IgG, and will need only the saliva specimen. Thanks! Jaquelyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 I wanted to add my child to this study, until I saw the measles vaccine reaction condtion. My son is high-functioning and I'm not sure he ever had a vaccine reaction. I recently came into possession of copies of his doctor's records from that period. I will look to see if anything is recorded. Dr. McCandless, would you want someone in your study who didn't have a known measles vaccine reaction? Thanks, Tony -----Original Message-----From: Jaquelyn McCandless Sent: Monday, November 10, 2003 7:23 AMTo: csb-autism-rx Subject: Re: Re: RUBEOLA STUDY Terri: I'm still collecting them and not quite yet to my quota - please complete and send in! Thanks, Jaquelyn [Tony] [snip...] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 Jan: Good question! The saliva will stay OK in the refrigerator for a long time. I advise everyone to get the saliva 1st, put it in the refrigerator until you go for the blood draw, then take it along so they can be sent together. Immunosciences is only closed on Christmas Day, and they are open on Saturdays to receive deliveries. You can go ahead with the Vit A dosing as soon as the samples are sent, unless you want to wait for results to see whether or not your child is a good candidate for this kind of treatment. (It may be a while, depending upon how quickly we get 40 samples back). Thanks for letting me clarify this. Jaquelyn To: csb-autism-rx Subject: OT - saliva study I am posting this as my question might be relevant to others involved. I have my son's kits and am busily practicing with a dummy pipette to have a chance of him cooperating enough to let me get 2 ml of saliva with the real test one. Because it is done 4 times over a day and then has to be sent overnight with blood sample on the day the sample is drawn I am looking at planning to do the sample on a Sunday and blood draw on a Monday. But I might not be able to get the draw arranged for this Monday. Question - would sending next Monday (Dec 22nd) pose a problem with the lab processing it because of holiday schedules? Would it be better to try and do the sending next Friday (19th) to avoid the holiday week - assuming Immunosciences can accept the samples on a Sat? And do we just go ahead with the Vit A dosing as soon as the samples are sent? I know I probably missed something posted earlier and of course had a computer upgrade and lost some material I had saved, but as the blood draw is going to be quite something, I don't want to mess up and have it for nothing ;-) jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 > > Jan: Good question! The saliva will stay OK in the refrigerator for a long time. I advise everyone to get the saliva 1st, put it in the refrigerator until you go for the blood draw, then take it along so they can be sent together. > > Immunosciences is only closed on Christmas Day, and they are open on Saturdays to receive deliveries. You can go ahead with the Vit A dosing as soon as the samples are sent, unless you want to wait for results to see whether or not your child is a good candidate for this kind of treatment. (It may be a while, depending upon how quickly we get 40 samples back). Thanks for letting me clarify this. Jaquelyn Thank you so much. Answers all my questions! jan Quote Link to comment Share on other sites More sharing options...
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