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Re: help! - service plan meeting with the public schools

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Janiece,

I wanted to add just a few words to Wanda's excellent suggestions...

I found your description of homeschooling your son moving and inspiring in so

many ways-particularly the emphasis on how much of a mutual process it has been

for you. Seeing teaching as a two-way process and perseverance have always been

the keys for me in being with a challenging child, Chelsey being a case in

point.

Retention seems to be the central issue, which led me to two questions: (1) what

nutritional supplements might support retention and (2) would retention improve

with simultaneous physical exercizes--that is, bringing the body in to hold the

" memory " of the learning experience. You're doing that already in a way with

some success in the way you play with him. I have often experienced how much

children (and adults for that matter) remember in their body--a certain position

of the body will recall a certain experience, etc. With Chelsey, certain body

movements were better than others for learning. I suspect ASD kids learn better

in motion.

In regard to the meeting and your apprehension about the school's motives in

offering support, it is hard to know since I'm not familiar with your particular

school system. In the school districts I know, OT for ASD kids can be offered

independently of school attendance (when it is available at all!). Unless you

have previous experience to the contrary, it might be easiest to simply ask then

directly about their motives and regulations. If they receive more funds per

child in attendence, they may very well be biased in the direction yo suspect.

On the other hand, in some districts they are so overwhelmed with special needs

kids that they are happy to support homeschooling. What is your local situation?

From what you say, they seem eager to help. You could just ask them " why? "

Plese let us know how the meeting turns out. I am getting more and more

interested in a hybred model for some ASD kids--that is, a mixture of

homeschooling (in a small community setting with parents sharing) plus services

being provided by the public system. As the number of ASD kids entering

schools increases, I believe this model will be one of the several ways to cope

with the extraordinary challenges that lie ahead.

Jack

J Tobey wrote:

Hello everyone,

My son has been receiving speech therapy in the public schools even though he is

otherwise homeschooled. At the last 504 meeting with the school (which was just

a routine meeting to sign papers for speech), I made a comment as we were

leaving the meeting about my son not being easy to teach because of his memory

and attention issues. Don't ask me why I said it, because I have no clue,

except that it fit in with the conversation at the time.

I ENJOY teaching him very much, but I've learned that we have to spend more time

on review than we do in learning new stuff. He forgets sight words, addition

facts, how to count by two's, phonic skills, etc. just a couple of weeks after

we move on to new stuff, unless we continue to review the old material over and

over. He might see a sight word that he has read over a couple of hundred times

before, but if it hasn't been reviewed for a month, it'll be as if he's never

seen it before in his life. THAT'S what makes teaching him difficult.

Well, that plus he doesn't have a good attention span unless he's doing

something exciting to him, so I make as much of his " work " seem like play as I

can! (Today, for example, I made a long road out of sight word cards. After

he walked down the road reading them, he was able to drive his remote control

car along the path! He loved it, and the words got practiced too!)

Oh, and he has trouble applying stuff he's learned as well. For example, in

reading, he can read many words in isolation (using phonic skills or sometimes

simply as sight words), but moments later have trouble with those same words

when they are in a story he's reading. (I've recently begun a new approach

which I think is helping a lot with that, but I won't take time to explain it

now.) He can even spell some words (using phonics skills) with letter tiles,

but have trouble reading his own list ten minutes later. Also, his speech

teacher has noticed that he has more trouble than most kids with making use, in

regular conversation, of new speech sounds he's learned, even though he can say

them perfectly in words in speech class. She says he doesn't monitor his own

everyday converstion and just continues saying the words incorrectly as he's

been doing since he first learned how to talk. I guess old habits are hard to

break!

Well, anyway, the school picked up on my comment the other day, and so the

speech teacher, whom I think highly of, arranged another meeting for the school

officials (including herself) to discuss it with me and possibly set up testing.

I was told that they would test/evaluate my son (by the OT, and the school

psychologist, and possibly by the resource teacher as well) even though he was

homeschooled, and that then the group would come up with a " plan " of what they

would offer him, but...here's the catch... the speech therapist said that most

likely none of it would be able to be put into action unless he was put back in

public schools.

I don't intend to put him back in public schools this year, and probably not

next year either (I'll decide that closer to next year.), so I don't see much

point in allowing them to put my son through all thoses tests, until such time

as I decide to put him back in public school. The speech teacher has assured me

that the ball is in my hands, and that I can simply deny testing if I

choose...yet even though I feel I can trust HER, I'm not so sure of the school's

intentions regarding this meeting. (I'm a former public school teacher myself,

and back during my P.S. years I, myself, might have been suspicious about a

child who was homeschooled but whom had some learning problems, and tried to

convince the parent to put him back in PS too! But now, on the contrary, I feel

I offer my child much MORE than he previously got in PS!)

In all honesty, I'm a bit nervous about the meeting, in case you hadn't already

guessed! lol The meeting is this Friday, by the way. I don't intend to tell

them all my son's learning related problems, as I don't want them to get the

school on my case and have them try to convince me to put my son back in P.S. I

really don't feel as if the ball is in my hands even if the speech therapist

says it is. Instead I feel as if they are trying to pull the rug out from under

me!

Does anyone have any suggestions or advice for me in dealing with the schools?

Has anyone had any luck in getting the schools to offer OT to their homeschooled

child? My son has a lot of upper body hypotonia which does interfer with his

schoolwork and his speech...but even when he was in public school, and I had a

note from his pediatrician requesting that the school evaluate him for OT, they

wouldn't do it!!!! So that's about the only thing I'd really like the school to

help with....yet I just don't see getting the service as a homeschooler.

I'd appreciate any hints or suggestions anyone has for me regarding the

meeting, OT, learning disabilities, etc! :-)

On the positive side of things, the whole process IS a learning and inner

healing experience for both my son and me! :-) I have learned to tailor my

teaching/interacting around his needs and learning styles, instead of trying to

force him into a rigid mold. His problems are opportunities for my growth and

learning, as well as his! And I think that I'm learning more and more about how

to teach him, as an individual, all the time. ....But will the school believe

me???

Janiece

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There is something to be said for the combination of movement and learning and

I'm guessing any OT could expand on it. Patty Lemer from Developmental Delay

Resources once told me the way to spot a good Speech Therapist was to see if

they were moving. She said ST should look like OT.

My son and I will often do a few quick Gym exercises before we start his

homework. I know when he's in the playground swinging, that's a great time to

teach him a song or rhyme. He's calm and receptive then.

Re: help! - service plan meeting with the public

schools

Janiece,

I wanted to add just a few words to Wanda's excellent suggestions...

I found your description of homeschooling your son moving and inspiring in so

many ways-particularly the emphasis on how much of a mutual process it has been

for you. Seeing teaching as a two-way process and perseverance have always been

the keys for me in being with a challenging child, Chelsey being a case in

point.

Retention seems to be the central issue, which led me to two questions: (1)

what nutritional supplements might support retention and (2) would retention

improve with simultaneous physical exercizes--that is, bringing the body in to

hold the " memory " of the learning experience. You're doing that already in a

way with some success in the way you play with him. I have often experienced

how much children (and adults for that matter) remember in their body--a certain

position of the body will recall a certain experience, etc. With Chelsey,

certain body movements were better than others for learning. I suspect ASD kids

learn better in motion.

In regard to the meeting and your apprehension about the school's motives in

offering support, it is hard to know since I'm not familiar with your particular

school system. In the school districts I know, OT for ASD kids can be offered

independently of school attendance (when it is available at all!). Unless you

have previous experience to the contrary, it might be easiest to simply ask then

directly about their motives and regulations. If they receive more funds per

child in attendence, they may very well be biased in the direction yo suspect.

On the other hand, in some districts they are so overwhelmed with special needs

kids that they are happy to support homeschooling. What is your local situation?

From what you say, they seem eager to help. You could just ask them " why? "

Plese let us know how the meeting turns out. I am getting more and more

interested in a hybred model for some ASD kids--that is, a mixture of

homeschooling (in a small community setting with parents sharing) plus services

being provided by the public system. As the number of ASD kids entering

schools increases, I believe this model will be one of the several ways to cope

with the extraordinary challenges that lie ahead.

Jack

J Tobey wrote:

Hello everyone,

My son has been receiving speech therapy in the public schools even though he

is otherwise homeschooled. At the last 504 meeting with the school (which was

just a routine meeting to sign papers for speech), I made a comment as we were

leaving the meeting about my son not being easy to teach because of his memory

and attention issues. Don't ask me why I said it, because I have no clue,

except that it fit in with the conversation at the time.

I ENJOY teaching him very much, but I've learned that we have to spend more

time on review than we do in learning new stuff. He forgets sight words,

addition facts, how to count by two's, phonic skills, etc. just a couple of

weeks after we move on to new stuff, unless we continue to review the old

material over and over. He might see a sight word that he has read over a

couple of hundred times before, but if it hasn't been reviewed for a month,

it'll be as if he's never seen it before in his life. THAT'S what makes

teaching him difficult.

Well, that plus he doesn't have a good attention span unless he's doing

something exciting to him, so I make as much of his " work " seem like play as I

can! (Today, for example, I made a long road out of sight word cards. After

he walked down the road reading them, he was able to drive his remote control

car along the path! He loved it, and the words got practiced too!)

Oh, and he has trouble applying stuff he's learned as well. For example, in

reading, he can read many words in isolation (using phonic skills or sometimes

simply as sight words), but moments later have trouble with those same words

when they are in a story he's reading. (I've recently begun a new approach

which I think is helping a lot with that, but I won't take time to explain it

now.) He can even spell some words (using phonics skills) with letter tiles,

but have trouble reading his own list ten minutes later. Also, his speech

teacher has noticed that he has more trouble than most kids with making use, in

regular conversation, of new speech sounds he's learned, even though he can say

them perfectly in words in speech class. She says he doesn't monitor his own

everyday converstion and just continues saying the words incorrectly as he's

been doing since he first learned how to talk. I guess old habits are hard to

break!

Well, anyway, the school picked up on my comment the other day, and so the

speech teacher, whom I think highly of, arranged another meeting for the school

officials (including herself) to discuss it with me and possibly set up testing.

I was told that they would test/evaluate my son (by the OT, and the school

psychologist, and possibly by the resource teacher as well) even though he was

homeschooled, and that then the group would come up with a " plan " of what they

would offer him, but...here's the catch... the speech therapist said that most

likely none of it would be able to be put into action unless he was put back in

public schools.

I don't intend to put him back in public schools this year, and probably not

next year either (I'll decide that closer to next year.), so I don't see much

point in allowing them to put my son through all thoses tests, until such time

as I decide to put him back in public school. The speech teacher has assured me

that the ball is in my hands, and that I can simply deny testing if I

choose...yet even though I feel I can trust HER, I'm not so sure of the school's

intentions regarding this meeting. (I'm a former public school teacher myself,

and back during my P.S. years I, myself, might have been suspicious about a

child who was homeschooled but whom had some learning problems, and tried to

convince the parent to put him back in PS too! But now, on the contrary, I feel

I offer my child much MORE than he previously got in PS!)

In all honesty, I'm a bit nervous about the meeting, in case you hadn't

already guessed! lol The meeting is this Friday, by the way. I don't intend to

tell them all my son's learning related problems, as I don't want them to get

the school on my case and have them try to convince me to put my son back in

P.S. I really don't feel as if the ball is in my hands even if the speech

therapist says it is. Instead I feel as if they are trying to pull the rug out

from under me!

Does anyone have any suggestions or advice for me in dealing with the schools?

Has anyone had any luck in getting the schools to offer OT to their

homeschooled child? My son has a lot of upper body hypotonia which does

interfer with his schoolwork and his speech...but even when he was in public

school, and I had a note from his pediatrician requesting that the school

evaluate him for OT, they wouldn't do it!!!! So that's about the only thing I'd

really like the school to help with....yet I just don't see getting the service

as a homeschooler.

I'd appreciate any hints or suggestions anyone has for me regarding the

meeting, OT, learning disabilities, etc! :-)

On the positive side of things, the whole process IS a learning and inner

healing experience for both my son and me! :-) I have learned to tailor my

teaching/interacting around his needs and learning styles, instead of trying to

force him into a rigid mold. His problems are opportunities for my growth and

learning, as well as his! And I think that I'm learning more and more about how

to teach him, as an individual, all the time. ....But will the school believe

me???

Janiece

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Share on other sites

> Retention seems to be the central issue, which led me to two

>questions: (1) what nutritional supplements might support retention

>and

Very recently I read on one of the ASD lists about lecithin. Since

my son has had some problems with taking EFA's (they used to lead

toward little daydreaming type seizures in him), and the article I

read about lecithin said it helped make EFA's usable by the body by

helping break down the fat (or something to that effect), I decided

to give it a try. I've also upped his EFA's to 2 ProEFA's a day

along with 1 ProEPA a day. He seems to be doing well on this so

far, yet it remains to be seen if the combination will actually help

his memory any. I've not recently been willing to stop our daily

review of sight words in order to see if he can continue to remember

them for longer than a few days! He seems to be making good

progress at the moment, and so I don't want to chance him regressing

again with his reading skills!

If anyone knows of any other supplements that might help with

retention, I'd love to hear about them!! :-)

>(2) would retention improve with simultaneous physical exercizes--

>that is, bringing the body in to hold the " memory " of the learning

>experience. You're doing that already in a way with some success

>in the way you play with him. I have often experienced how much

>children (and adults for that matter) remember in their body--a

>certain position of the body will recall a certain experience,

>etc. With Chelsey, certain body movements were better than others

>for learning. I suspect ASD kids learn better in motion.

Jack, this is very interesting! We do do things such as throwing a

dry bean into a muffin pan, and then identifying the sound (or word

or number fact) that the bean lands on, or basically the same game

with throwing beanbags on a homemade tic tac toe board that has

words on it, to see who can make tic tac toe first. We were

reviewing counting by twos the other day, and so he jumped around to

the various numbers that I had drawn on the driveway with chalk. Is

this the type of thing to which you're referring? Any sort of

active learning games? Or are there particular motions/positions

that you are referring to which would help more?

I am a little familiar with brain gym (I have a couple of books, but

have never seen it done by a professional), but haven't really used

this much recently, as it didn't seem to make much difference with

my son. Oddly enough, just last night as I was crawling exhaustedly

into bed, I pulled out a couple of brain gym books and reread a

little bit. I think I'll try some of the exercises again with my

son.

He had lots of problems doing the crosscrawl when he was four (he's

now 7), but quickly got to where he could do 50 repetitions in just

a few minutes...yet I couldn't tell any difference in behavior or

learning back then. (He didn't much like doing them though, after

the novelty wore off.) His private OT when he was four did say that

he had problems crossing the midline, and she and I both worked with

him on that. He's not had OT since he started kindergarten though,

since full day kindergarten (this was before he was homeschooled)

plus going to ST and OT afterschool was just too much for him and

wore him out!

>

> In regard to the meeting and your apprehension about the school's

>motives in offering support, it is hard to know since I'm not

>familiar with your particular school system. In the school

>districts I know, OT for ASD kids can be offered independently of

>school attendance (when it is available at all!).

I was told several weeks ago by the school ST that OT would be

available to my son as a homeschooled student, and that he needed

it. (She felt he had more trouble with hypotonia than most of her

other ST students.) But the assisant principal overheard her telling

me this, and later told her to tell me that OT is only available for

public school kids. (And yes, the schools here do get some money

for each kid enrolled, and even more if they require special

services.)

The school where we are naturally zoned, just happens to be the only

elementary in the district to which both ASD and NT kids attend

together. In fact, all the public school elementary ASD kids in the

district go there. The school district doesn't think of my son as

being ASD though. He was in a regular NT kindergarten and first

grade classroom, until I pulled him out to homeschool him. He has

quite a few ASD symptoms (gut problems, speech, hypotonia, low

weight gain, sensory problems, attention and learning problems, some

mild social problems - especially with adults, problems with eye

contact, etc.), but has never been doctor diagnosed as ASD or PDD

(even though several DAN and alternative doctors have indicated that

he was on the mild end of the spectrum, no one has given him a

formal diagnosis.) So what I'm saying is, the school really doesn't

know the extent of my son's medical issues.

I guess that since there are so many ASD kids at that one school,

the OT is probably very busy already. And that's probably why they

are hesitant to offer OT services to a homeschooler....especially

one that they think is NT, except for speech and attention issues.

>Unless you have previous experience to the contrary, it might be

>easiest to simply ask then directly about their motives and

regulations.

Yes, I'll ask them at the meeting tomorrow as to what their

regulations are. I just wanted to be somewhat educated about the

regulations before I went in there.

> Plese let us know how the meeting turns out.

Thanks, Jack! I will! And THANKS to ALL of you who wrote! I did

read several of the links that were sent yesterday, and one of them

was what reminded me of Brain gym!

Janiece

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> Patty Lemer from Developmental Delay Resources once told me the

>way to spot a good Speech Therapist was to see if they were

moving.

Thanks for writing, ! :-)

Perhaps that's the way to spot a good early childhood teacher as

well!

Janiece

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Janiece, and All.

In regard to supplements that may support improved retention, Jaquelyn tells me

that among general brain nourishers some people have found phosphatidyl-choline

and DMAE useful. She suggests that DMAE be given in the am only and in small

(50 mg) doses to begin with to avoid hyperactivity.

The movement games you described are exactly the kind of kinethetic learning I

was talking about. The general idea is to create a learning environment in

which the cognitive and movement functions connect seemlessly--as in the

examples you described. There is also a second group of exercises that I found

useful in which the position of the body, angle of the head, position of the

arms, contact with the " guide " and smal movements are all variables that affect

the ease of learning and retention.

I used to sit on the sofa side-by-side with Chelsey after picking her up from

school, listening to music and then creating our own tapes of her telling

stories and singing. I found that this process went better when (among several

other variables!) we were touching and she had one foot " kneading " my leg in a

rhythmic fashion. Another example of this kind of " motion/contact learning

enhancement " was the computer time we had each day. I ended up placing my hand

on her upper back (in a particular position) to help her maintain focus (many

people find this useful) while she jiggled her leg, again rhymically. In

general, when the jiggle was steady and relatively slow, she did well (in regard

to focus, comprehension and retention). When the motion was more sporadic or

faster, she did less well. It took me a while to find the particular

combination of contact and movement that worked better for her. Once we found

it, I could reinforce that behavior.

On regard to the school scene, you are fortunate to be in an inclusive

environment. Despite many challenges this creates for teachers, parents and

kids, in the long run this context seems to work the best for the ASD and NT

kids both...The issue is a complex and still controversial one, but that's my

growing sense of where we're all going.

I see your delemma. If you get the school to identify your son as ASD, you may

get the OT services, but they may give you a hard time about the homeschooling.

If you don't get that diagnosis, then it will be hard to get the additional

services. Depending on how the meeting went yesterday, you might try to have a

heart-to-heart talk with the ST and lay it all on the line ( " off the record " ).

She sounds empathetic.

The most persuasive part of your situation is the joy and creativity you and

your son are sharing in the homeschooling...This has got to be a huge plus

whatever else happens.

Jack

bluestarlight1999 wrote:

> Retention seems to be the central issue, which led me to two

>questions: (1) what nutritional supplements might support retention

>and

Very recently I read on one of the ASD lists about lecithin. Since

my son has had some problems with taking EFA's (they used to lead

toward little daydreaming type seizures in him), and the article I

read about lecithin said it helped make EFA's usable by the body by

helping break down the fat (or something to that effect), I decided

to give it a try. I've also upped his EFA's to 2 ProEFA's a day

along with 1 ProEPA a day. He seems to be doing well on this so

far, yet it remains to be seen if the combination will actually help

his memory any. I've not recently been willing to stop our daily

review of sight words in order to see if he can continue to remember

them for longer than a few days! He seems to be making good

progress at the moment, and so I don't want to chance him regressing

again with his reading skills!

If anyone knows of any other supplements that might help with

retention, I'd love to hear about them!! :-)

>(2) would retention improve with simultaneous physical exercizes--

>that is, bringing the body in to hold the " memory " of the learning

>experience. You're doing that already in a way with some success

>in the way you play with him. I have often experienced how much

>children (and adults for that matter) remember in their body--a

>certain position of the body will recall a certain experience,

>etc. With Chelsey, certain body movements were better than others

>for learning. I suspect ASD kids learn better in motion.

Jack, this is very interesting! We do do things such as throwing a

dry bean into a muffin pan, and then identifying the sound (or word

or number fact) that the bean lands on, or basically the same game

with throwing beanbags on a homemade tic tac toe board that has

words on it, to see who can make tic tac toe first. We were

reviewing counting by twos the other day, and so he jumped around to

the various numbers that I had drawn on the driveway with chalk. Is

this the type of thing to which you're referring? Any sort of

active learning games? Or are there particular motions/positions

that you are referring to which would help more?

I am a little familiar with brain gym (I have a couple of books, but

have never seen it done by a professional), but haven't really used

this much recently, as it didn't seem to make much difference with

my son. Oddly enough, just last night as I was crawling exhaustedly

into bed, I pulled out a couple of brain gym books and reread a

little bit. I think I'll try some of the exercises again with my

son.

He had lots of problems doing the crosscrawl when he was four (he's

now 7), but quickly got to where he could do 50 repetitions in just

a few minutes...yet I couldn't tell any difference in behavior or

learning back then. (He didn't much like doing them though, after

the novelty wore off.) His private OT when he was four did say that

he had problems crossing the midline, and she and I both worked with

him on that. He's not had OT since he started kindergarten though,

since full day kindergarten (this was before he was homeschooled)

plus going to ST and OT afterschool was just too much for him and

wore him out!

>

> In regard to the meeting and your apprehension about the school's

>motives in offering support, it is hard to know since I'm not

>familiar with your particular school system. In the school

>districts I know, OT for ASD kids can be offered independently of

>school attendance (when it is available at all!).

I was told several weeks ago by the school ST that OT would be

available to my son as a homeschooled student, and that he needed

it. (She felt he had more trouble with hypotonia than most of her

other ST students.) But the assisant principal overheard her telling

me this, and later told her to tell me that OT is only available for

public school kids. (And yes, the schools here do get some money

for each kid enrolled, and even more if they require special

services.)

The school where we are naturally zoned, just happens to be the only

elementary in the district to which both ASD and NT kids attend

together. In fact, all the public school elementary ASD kids in the

district go there. The school district doesn't think of my son as

being ASD though. He was in a regular NT kindergarten and first

grade classroom, until I pulled him out to homeschool him. He has

quite a few ASD symptoms (gut problems, speech, hypotonia, low

weight gain, sensory problems, attention and learning problems, some

mild social problems - especially with adults, problems with eye

contact, etc.), but has never been doctor diagnosed as ASD or PDD

(even though several DAN and alternative doctors have indicated that

he was on the mild end of the spectrum, no one has given him a

formal diagnosis.) So what I'm saying is, the school really doesn't

know the extent of my son's medical issues.

I guess that since there are so many ASD kids at that one school,

the OT is probably very busy already. And that's probably why they

are hesitant to offer OT services to a homeschooler....especially

one that they think is NT, except for speech and attention issues.

>Unless you have previous experience to the contrary, it might be

>easiest to simply ask then directly about their motives and

regulations.

Yes, I'll ask them at the meeting tomorrow as to what their

regulations are. I just wanted to be somewhat educated about the

regulations before I went in there.

> Plese let us know how the meeting turns out.

Thanks, Jack! I will! And THANKS to ALL of you who wrote! I did

read several of the links that were sent yesterday, and one of them

was what reminded me of Brain gym!

Janiece

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