Re: My Joe -Quite long

[Guest guest]

Doesn't answer your question but I'm interested in the FC, are you saying NHS ST is delivering this?

Is it a keyboard? I haven't heard of this being offered before.

TIA

Vicky

[Guest guest]

I haven't met Joe but I'm incredibly moved at his insight......However if you don't mind my saying so, I would take the therapist aside and ask her not to be so negative. I'm sure she means well with this but I do believe that each and every one of these children have the chance to get better. Joe needs to know that. It's very dampening to the spirit to be told there is no hope.....xSubject: My Joe -Quite longTo: Autism-Biomedical-Europe Date: Friday, 6 May, 2011, 12:35

Hi I havent posted much about this before, but we are now doing facilitated communication with Joe, who is 12, severely autistic and just slightly verbal. We have a brilliant speech therapist who is very experenced in FC and who really believes in Joe's abilities.

He had a bittersweet conversation today, which I wanted to share:-

Therapist - What would you like to learn about?

Joe (facilitated) - WHY I AM AUTISTIC

(Therapist talks about changes to the brain, reads from encyclopaedia how brain works)

Joe (facilitated) HAVE UNDERSTOOD. THIS IS GOING TO BE MY LIFE

Therapist - What do you mean by that?

Joe I WILL NOT GET BETTER.

Therapist said he will always have autism but will get much better, talked about his home program, etc.

Those of you who have met Joe, or who have a severe, non verbal child yourselves will understand how incredible this is. Incredibly sad too.

But my question is for parents of children who may have communicated something similar, either verbally or with fc - I can use this as a way in to explain why I give him supplements, and get him hopefully to tell me how new supps make him feel, what helps, what doesnt - has anyone been able to communicate with their child to this extent - does anyone have any tips?

x

[Guest guest]

Sorry I didnt explain very well, she is NHS speech therapist and was

positive within the realms of beliefs instilled to most mainstream professionals

ie that you can treat the symptoms and get much better but never fully recover.

I have since spoken to him and explained further

x

>

>

> Subject: My Joe -Quite long

> To: Autism-Biomedical-Europe

> Date: Friday, 6 May, 2011, 12:35

>

>

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>  

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>

> Hi I havent posted much about this before, but we are now doing

facilitated communication with Joe, who is 12, severely autistic and just

slightly verbal. We have a brilliant speech therapist who is very experenced in

FC and who really believes in Joe's abilities.

>

> He had a bittersweet conversation today, which I wanted to share:-

>

>

>

> Therapist - What would you like to learn about?

>

> Joe (facilitated) - WHY I AM AUTISTIC

>

> (Therapist talks about changes to the brain, reads from encyclopaedia how

brain works)

>

> Joe (facilitated) HAVE UNDERSTOOD. THIS IS GOING TO BE MY LIFE

>

> Therapist - What do you mean by that?

>

> Joe I WILL NOT GET BETTER.

>

> Therapist said he will always have autism but will get much better, talked

about his home program, etc.

>

>

>

> Those of you who have met Joe, or who have a severe, non verbal child

yourselves will understand how incredible this is. Incredibly sad too.

>

>

>

> But my question is for parents of children who may have communicated something

similar, either verbally or with fc - I can use this as a way in to explain why

I give him supplements, and get him hopefully to tell me how new supps make him

feel, what helps, what doesnt - has anyone been able to communicate with their

child to this extent - does anyone have any tips?

>

> x

>

[Guest guest]

Wow !! Thanks for sharing Heartbreaking and inspiring He is a very smart boy to

ask such a question..I pray for his recovery xx

[Guest guest]

Hi Vicky

I think she is pretty unique. We pay her to see Joe privately but she also

works in some schools near us, so maybe she is LEA rather than NHS, sorry for

confusion, but yes the kids attending those schools do get to see her for free.

She also works at a residential centre for adults one day a week, and presumably

is employed by the county to work with her clients there.

It is definitely worth investigating, I can send you some video clips of Joe

doing fc if you are interested in trying it for

x

>

> Doesn't answer your question but I'm interested in the FC, are you

> saying NHS ST is delivering this?

> Is it a keyboard? I haven't heard of this being offered before.

> TIA

> Vicky

>

[Guest guest]

Congratulations Joe and !! A real breakthrough for Joe!

Love Jill

> >

> > Doesn't answer your question but I'm interested in the FC, are you

> > saying NHS ST is delivering this?

> > Is it a keyboard? I haven't heard of this being offered before.

> > TIA

> > Vicky

> >

>

[Guest guest]

Vicky I will send you a clip. Joe cant type unsupported, yet, have a look see

what you think

x

> >

> > Doesn't answer your question but I'm interested in the FC, are you

> > saying NHS ST is delivering this?

> > Is it a keyboard? I haven't heard of this being offered before.

> > TIA

> > Vicky

> >

>

[Guest guest]

Oh ,

Have got goosebumps..... off to get some tissues now.

Would love to see a clip if you have time,

God bless Nina xx

>

> Those of you who have met Joe, or who have a severe, non verbal child

yourselves will understand how incredible this is. Incredibly sad too.

>

>

[Guest guest]

,

That is incredable for Joe but also so difficult to deal with. He has come so

far since I have known him!

At least if he is able to tell you how he feels you can know explain to him as

you have.

It does make you realise how we must be so careful as to what we say in front

of them now.

Having you and Simon as parents will get him through this I am sure.

I do hope Georgia will be able express herself one day soon and feel it is

another avenue to explore.

I am sorry I missed you today - still travelling across London!

Sue xx

>

>

> Oh ,

> Have got goosebumps..... off to get some tissues now.

> Would love to see a clip if you have time,

> God bless Nina xx

>

> >

> > Those of you who have met Joe, or who have a severe, non verbal child

yourselves will understand how incredible this is. Incredibly sad too.

> >

> >

>

[Guest guest]

Hi ,

This is both heartbreaking and encouraging. I remember once looking at pictures

with my son, when he was about 5, on the computer. He saw one of himself before

his regression and started crying. I was horrified to realize that he might

remember things before he regressed, or that he might recognize that what he'd

had was now gone. At the same time, it made me redouble my efforts to help him.

I don't have any experience with this situation but I think trying to use Joe's

awareness and new ability to communicate with you as a way of making him a

partner in his biomedical treatments is the very best idea. I have done biomed

with people, who although very sick, are not struggling at all with

communication, and it is not even comparable to trying to help my son. If Joe

can learn how to share his feelings with you about the biomed, and if you can

try things that you might not have had luck with before and/or get his feedback

somehow because he is your partner, then I'd say his chances for improving are

significantly better.

Knowing how much he understands now, I would very much focus on the positive, on

how he is such a smart person and brave and worked so hard, but I would also

make sure he understands that he isn't fighting this battle alone. The you and

your husband will be doing whatever it takes to overcome physical problems that

are right now stopping him from being what he would like to be. I would also

say that I don't believe in autism--if that is in fact what you think. Autism

is just a description of behaviours--his behaviours can change, that's for sure,

just like they do for everyone. When faced with struggles, it is so much easier

to break them down into manageable pieces. That's how I try to think of my

son's problems. Not 'the autism' but the metal toxicity, the inflammation, the

nutritional status (and I break that down into pieces too), the

neurotransmitters, etc, etc. If you and Joe can communicate about these pieces

somehow, then he'll have specific health goals that he can be active in.

I hope that makes sense. Thinking of you both,

Anita

>

> Hi I havent posted much about this before, but we are now doing facilitated

communication with Joe, who is 12, severely autistic and just slightly verbal.

We have a brilliant speech therapist who is very experenced in FC and who really

believes in Joe's abilities.

> He had a bittersweet conversation today, which I wanted to share:-

>

> Therapist - What would you like to learn about?

> Joe (facilitated) - WHY I AM AUTISTIC

> (Therapist talks about changes to the brain, reads from encyclopaedia how

brain works)

> Joe (facilitated) HAVE UNDERSTOOD. THIS IS GOING TO BE MY LIFE

> Therapist - What do you mean by that?

> Joe I WILL NOT GET BETTER.

> Therapist said he will always have autism but will get much better, talked

about his home program, etc.

>

> Those of you who have met Joe, or who have a severe, non verbal child

yourselves will understand how incredible this is. Incredibly sad too.

>

> But my question is for parents of children who may have communicated something

similar, either verbally or with fc - I can use this as a way in to explain why

I give him supplements, and get him hopefully to tell me how new supps make him

feel, what helps, what doesnt - has anyone been able to communicate with their

child to this extent - does anyone have any tips?

> x

>

[Guest guest]

Congradulations Joe!!!This made me think of the Helen Keller story-so locked

away in her own blind and deaf world that she did not get the connection re

words and things until Annie Sullivan forced the issue. Do you think a repeated

sequence of typed/written word to thing would bring home the realization that

there is a useful connection for ? Not really trying to teach him how to

type/write but just to constantly stress the association of the word to the

thing until the light dawns. On the other end of things we had a young adult at

camp one summer whose parent was high on the education ladder. He readily used a

word board and could use the thing w his eyes closed. Yet his mother would not

even hear about trying him w a keyboard or hand held communicator! He was such a

smart guy who could probably pick up the use in an instant because he already

had the concept of words to things/actions. Just a thought,

> >

> > Doesn't answer your question but I'm interested in the FC, are you

> > saying NHS ST is delivering this?

> > Is it a keyboard? I haven't heard of this being offered before.

> > TIA

> > Vicky

> >

>

[Guest guest]

that is so incredibly moving, thanks for sharing. Anita is right

there, you must let him know that Autism does not EXIST as such, is just

a word to describe a set of symptoms. And that those symptoms are caused

by different problems going on in his body, some of which he may well be

able to overcome - some of them maybe even completely go one day.

If you feel he 'gets' that or wants to talk further, maybe try and use

that old comparison of a person being injured in a car crash, and how

often they are able to get better with lots of therapy and treatments

etc.

I know of one dad who showed this video to his (high functioning) son,

who is same age as this and with the same name, and the boy liked

seeing it and seeing it was possible to overcome those issues - the

video gave him lots of encouragement

Maybe you could show it to Joe and explain that yes, this boy in the

video was somewhat 'less injured' to start with but that there are

children and adults out there with more severe problems who manage to

fight them, at least to some degree, enough that their life improves a

lot.

> >

> > Hi I havent posted much about this before, but we are now doing

facilitated communication with Joe, who is 12, severely autistic and

just slightly verbal. We have a brilliant speech therapist who is very

experenced in FC and who really believes in Joe's abilities.

> > He had a bittersweet conversation today, which I wanted to share:-

> >

> > Therapist - What would you like to learn about?

> > Joe (facilitated) - WHY I AM AUTISTIC

> > (Therapist talks about changes to the brain, reads from

encyclopaedia how brain works)

> > Joe (facilitated) HAVE UNDERSTOOD. THIS IS GOING TO BE MY LIFE

> > Therapist - What do you mean by that?

> > Joe I WILL NOT GET BETTER.

> > Therapist said he will always have autism but will get much better,

talked about his home program, etc.

> >

> > Those of you who have met Joe, or who have a severe, non verbal

child yourselves will understand how incredible this is. Incredibly sad

too.

> >

> > But my question is for parents of children who may have communicated

something similar, either verbally or with fc - I can use this as a way

in to explain why I give him supplements, and get him hopefully to tell

me how new supps make him feel, what helps, what doesnt - has anyone

been able to communicate with their child to this extent - does anyone

have any tips?

> > x

> >

>

[Guest guest]

Awesome , if he can understand receptively then you could ask do you wonder why mum gives you these pills etc and take it from there

Mandi x

Hi I havent posted much about this before, but we are now doing facilitated communication with Joe, who is 12, severely autistic and just slightly verbal. We have a brilliant speech therapist who is very experenced in FC and who really believes in Joe's abilities.He had a bittersweet conversation today, which I wanted to share:-Therapist - What would you like to learn about?Joe (facilitated) - WHY I AM AUTISTIC(Therapist talks about changes to the brain, reads from encyclopaedia how brain works)Joe (facilitated) HAVE UNDERSTOOD. THIS IS GOING TO BE MY LIFETherapist - What do you mean by that?Joe I WILL NOT GET BETTER.Therapist said he will always have autism but will get much better, talked about his home program, etc.Those of you who have met Joe, or who have a severe, non verbal child yourselves will understand how incredible this is. Incredibly sad too.But my question is for parents of children who may have communicated something similar, either verbally or with fc - I can use this as a way in to explain why I give him supplements, and get him hopefully to tell me how new supps make him feel, what helps, what doesnt - has anyone been able to communicate with their child to this extent - does anyone have any tips? x

[Guest guest]

WOW , this is jaw-droppingly amazing, here's hoping this is the first step

forward to a much better future for Joe and you all!!!

Just wondering what made you think to try FC?

Nikki xxx

>

> Hi I havent posted much about this before, but we are now doing facilitated

communication with Joe, who is 12, severely autistic and just slightly verbal.

We have a brilliant speech therapist who is very experenced in FC and who really

believes in Joe's abilities.

> He had a bittersweet conversation today, which I wanted to share:-

>

> Therapist - What would you like to learn about?

> Joe (facilitated) - WHY I AM AUTISTIC

> (Therapist talks about changes to the brain, reads from encyclopaedia how

brain works)

> Joe (facilitated) HAVE UNDERSTOOD. THIS IS GOING TO BE MY LIFE

> Therapist - What do you mean by that?

> Joe I WILL NOT GET BETTER.

> Therapist said he will always have autism but will get much better, talked

about his home program, etc.

>

> Those of you who have met Joe, or who have a severe, non verbal child

yourselves will understand how incredible this is. Incredibly sad too.

>

> But my question is for parents of children who may have communicated something

similar, either verbally or with fc - I can use this as a way in to explain why

I give him supplements, and get him hopefully to tell me how new supps make him

feel, what helps, what doesnt - has anyone been able to communicate with their

child to this extent - does anyone have any tips?

> x

>

[Guest guest]

Hi Nikki

I had thought about FC for a long time, it was suggested by a son rise teacher

about 5 years ago, but at the time I was convinced that because Joe could talk a

bit I should be persevering with verbal communication. But realistically Joe's

speech has not developed measurably for 10 years now. When he became very

aggressive last year one of the suspected reasons was frustration for not being

able to communicate effectively. We tried makaton but because of his motor

planning problems he cant make the signs very easily.

I was looking around a possible school for Joe and mentioned to the head that I

knew one of the other pupils. I hadnt seen his mum for a couple of years and had

heard he was using FC. The head said something like " Well of course X is very

intelligent, not all of our pupils are like him " . Nikki if you had seen this

boy all his previous schools had written him off as being very low functioning.

He was quite a floppy boy, very weak upper body strength, I was so pleased for

him and his mum that they had found a way for him to communicate. I contacted

the mum and she put me in touch with the speech therapist. This other boy, the

school want him to take GCSEs now, without FC nobody would have known he had all

that intelligence inside him.

I also have a very good friend whose son is doing great with FC but it was

really the transformation in that other boy that spurred me to finally get on

with it

I can send you a video of Joe if you are interested in trying FC with your son

(not sure how verbal he is)

x

> >

> > Hi I havent posted much about this before, but we are now doing facilitated

communication with Joe, who is 12, severely autistic and just slightly verbal.

We have a brilliant speech therapist who is very experenced in FC and who really

believes in Joe's abilities.

> > He had a bittersweet conversation today, which I wanted to share:-

> >

> > Therapist - What would you like to learn about?

> > Joe (facilitated) - WHY I AM AUTISTIC

> > (Therapist talks about changes to the brain, reads from encyclopaedia how

brain works)

> > Joe (facilitated) HAVE UNDERSTOOD. THIS IS GOING TO BE MY LIFE

> > Therapist - What do you mean by that?

> > Joe I WILL NOT GET BETTER.

> > Therapist said he will always have autism but will get much better, talked

about his home program, etc.

> >

> > Those of you who have met Joe, or who have a severe, non verbal child

yourselves will understand how incredible this is. Incredibly sad too.

> >

> > But my question is for parents of children who may have communicated

something similar, either verbally or with fc - I can use this as a way in to

explain why I give him supplements, and get him hopefully to tell me how new

supps make him feel, what helps, what doesnt - has anyone been able to

communicate with their child to this extent - does anyone have any tips?

> > x

> >

>

[Guest guest]

Hi Vicky,

I asked our speech therapist about this before, she has been doing FC for a good

15-20 years and said she has learned over the years to pick out likely

candidates at the schools she works in. For us she came to see us for an initial

assessment. Joe was quite agitated at the time so was not all that interested

but she talked to him about the letter board and managed to get him to spell a

few things. I didnt know he could read or spell before this. He was really

wanting to get away and she showed him the letter board and said what to you

want to do, he typed out WARER. Before she got there he had been playing with

water (one of his stims) but she didnt know this. That was what convinced me

that it was him pointing to the letters not her guiding him.

I sent you a video clip of his session yesterday (it should be in your email

now) but at the beginning it took alot longer for him to type anything, I can

send you an early clip too if it would help.

She is an individual though not part of any company, Contactcandle probably have

a far more formal assessment.

My friend learned from Adam Barrett, whose sister has autism and communicates

through FC, their mum is on this list, I think he spent the whole day with her

son assessing and teaching her how to facilitate for him.

And to answer the rest of your question, no, Joe is very severe. There is very

little he is age appropriate in. He likes pop music at an age appropriate level

but also likes Big Barn Farm. He cant write his name unaided (although he did

once, aged 6) or draw anything, or ride a bike. He has an ipad now and that has

really helped him with spelling but the games he plays on it are designed for

pre-schoolers.

I always hoped there was more to him that I wasnt reaching but it is only

through FC that I have seen evidence of this.

And you dont sound dreadful at all

karen x

> > >

> > > Hi I havent posted much about this before, but we are now doing

facilitated communication with Joe, who is 12, severely autistic and just

slightly verbal. We have a brilliant speech therapist who is very experenced in

FC and who really believes in Joe's abilities.

> > > He had a bittersweet conversation today, which I wanted to share:-

> > >

> > > Therapist - What would you like to learn about?

> > > Joe (facilitated) - WHY I AM AUTISTIC

> > > (Therapist talks about changes to the brain, reads from encyclopaedia how

brain works)

> > > Joe (facilitated) HAVE UNDERSTOOD. THIS IS GOING TO BE MY LIFE

> > > Therapist - What do you mean by that?

> > > Joe I WILL NOT GET BETTER.

> > > Therapist said he will always have autism but will get much better, talked

about his home program, etc.

> > >

> > > Those of you who have met Joe, or who have a severe, non verbal child

yourselves will understand how incredible this is. Incredibly sad too.

> > >

> > > But my question is for parents of children who may have communicated

something similar, either verbally or with fc - I can use this as a way in to

explain why I give him supplements, and get him hopefully to tell me how new

supps make him feel, what helps, what doesnt - has anyone been able to

communicate with their child to this extent - does anyone have any tips?

> > > x

> > >

> >

>

[Guest guest]

Dear .

Your post is deeply moving and even though I'm in a public place I am in tears

right now. No one will be able to read what you have written without feeling

deeply for Joe and for you. But how INCREDIBLE that he can now tell you these

things! What more will say?? The sky is obviously the limit! Such hope for the

future! I'm sure you'll find a way to help him realise that too.

Lots of love to you, wonderful Mum.

Sharon xx

Sent using BlackBerry® from Orange

My Joe -Quite long

 

Hi I havent posted much about this before, but we are now doing facilitated

communication with Joe, who is 12, severely autistic and just slightly verbal.

We have a brilliant speech therapist who is very experenced in FC and who really

believes in Joe's abilities.

He had a bittersweet conversation today, which I wanted to share:-

Therapist - What would you like to learn about?

Joe (facilitated) - WHY I AM AUTISTIC

(Therapist talks about changes to the brain, reads from encyclopaedia how brain

works)

Joe (facilitated) HAVE UNDERSTOOD. THIS IS GOING TO BE MY LIFE

Therapist - What do you mean by that?

Joe I WILL NOT GET BETTER.

Therapist said he will always have autism but will get much better, talked about

his home program, etc.

Those of you who have met Joe, or who have a severe, non verbal child yourselves

will understand how incredible this is. Incredibly sad too.

But my question is for parents of children who may have communicated something

similar, either verbally or with fc - I can use this as a way in to explain why

I give him supplements, and get him hopefully to tell me how new supps make him

feel, what helps, what doesnt - has anyone been able to communicate with their

child to this extent - does anyone have any tips?

x

[Guest guest]

Thanks everyone for all your kind words, suggestions and encouragement, will

keep you posted

xx

[Guest guest]

Hi ,

I would love to see a clip of Joe doing FC! My DS is STILL non-verbal so i'm

still on the lookout for something that may work for him. We do occasionally get

a 'No' when he is severely stressed, but that's about it. Makaton, PECs have

always been non-starters for him, because of poor motor control and lack of

motivation to do these, plus he has gotten so good at getting what he wants

other ways that these get in the way! His receptive understanding is good as

well, he doesn't miss much of what is being said around him, especially if it

interests him, so i'm keen to consider what else i could use to reach him....

Lovely to hear how well your friends boy is doing considering he had been

written off as being very low functioning....inspiring and scary at the same

time, what if he had been just left and no one had bothered about him.......

tia, Nikki x

> > >

> > > Hi I havent posted much about this before, but we are now doing

facilitated communication with Joe, who is 12, severely autistic and just

slightly verbal. We have a brilliant speech therapist who is very experenced in

FC and who really believes in Joe's abilities.

> > > He had a bittersweet conversation today, which I wanted to share:-

> > >

> > > Therapist - What would you like to learn about?

> > > Joe (facilitated) - WHY I AM AUTISTIC

> > > (Therapist talks about changes to the brain, reads from encyclopaedia how

brain works)

> > > Joe (facilitated) HAVE UNDERSTOOD. THIS IS GOING TO BE MY LIFE

> > > Therapist - What do you mean by that?

> > > Joe I WILL NOT GET BETTER.

> > > Therapist said he will always have autism but will get much better, talked

about his home program, etc.

> > >

> > > Those of you who have met Joe, or who have a severe, non verbal child

yourselves will understand how incredible this is. Incredibly sad too.

> > >

> > > But my question is for parents of children who may have communicated

something similar, either verbally or with fc - I can use this as a way in to

explain why I give him supplements, and get him hopefully to tell me how new

supps make him feel, what helps, what doesnt - has anyone been able to

communicate with their child to this extent - does anyone have any tips?

> > > x

> > >

> >

>

[Guest guest]

I don't really know what to say - it's just so fantastic that you've

given him this tool for communication. I watched a clip of a woman using

FC a while back (not a young woman). She looked extremely disabled and

was stil having tantrums etc. but was very expressive through FC. The

thing that struck me most was they asked her how she felt before she

could communicate through FC (most of her life) and she said that it

felt like she didn't exist, that she simply wasn't there before she was

in touch with other humans. Emotional stuff.

Sara x

[Guest guest]

Dear ,

It's wonderful that you've realise your child really communicates with you.I

think Joe has already given a sign that he has higher cognitive

level.Definitely he is ready to move on much higher concepts.Perhaps you can

discuss this

with a professional.Self awareness is a major breakthrough I believe.I am happy

for you.

Dear Vicky,

Children with fine motor difficulties,motor problems writing is a really hard

things to do.But no need to stop us explore their mind.I encourage you to do

that. .I've done it and I am pleased that I've found a way to understand my

son's mind, what is he thinking.

I think you can explore 's understanding not with writing or typing.Because

organising thoughts, beating the word searching problems, retrieving the

information from memory, sequencing.,perhaps motor memory

problems as my speech therapist told me..so many.difficulties are

in front of them even ignore writing!

..So, rather

than going this route I would suggest use the brain's eliminating process for

the wrong.. one

process..If I give an example ;My son

has dypraxia, dyxlexia,short term memory problems, word searching..all the

things which I listed above, he has.I've done so many different type of

therapies with

him a part from ABA.I used different type of educational tools which I adapted

from major autism books.There was a time, I 've done cognitive thinking

sessions..usually it was recommended for higher skill level kids!

WE've done talking tree...simple conversation building approach from

.Winner's book

We've done :what did you do today? from Teach me language book..we've done

RFFC....Receptive Feature, Function, Class language practise and intraverbals a

lot prior this.he had still huge difficulty to find the words to express what is

he thinking..

The most effective tool for me was ..simple talking board...let's say a topic

I've chosen..we will talk about..I was given 4-5 word options..(if he can't

read you can use pictures) then..They were all similar but one of them is

really the answer, so he was eliminating the wrong ones used this approach to

understand what he is thinking..I use this talking board in every

opportunity.Another example;

His therapist was in the session.I asked him;

Do you like R.,said:Yes..

QWhy?

R.Because...couldn't give his response in any forms..

So, I gave him a few options in written forms..Because she is beautiful (true)

she is nice to you she is taking you to cafes she is always saying to

you do this, do that!

Q, is what is your first choice,why do you like her? Denis was sitting next to

him.

He chosen the first one...she is taking him to cafes..

The second one..he chooses because she is nice to him

Q.What is your least choice>

R.,chose...she is always do this do that..which is not true and he knows that!

We are ready to move on to IPOd type of device to speed up his responses..You

can also look at Indian poet Tito's mother's work.Soma...she starts with lots of

written format words to let the child to

choose...

All the best

nevin

>

> Hi I havent posted much about this before, but we are now doing facilitated

communication with Joe, who is 12, severely autistic and just slightly verbal.

We have a brilliant speech therapist who is very experenced in FC and who really

believes in Joe's abilities.

> He had a bittersweet conversation today, which I wanted to share:-

>

> Therapist - What would you like to learn about?

> Joe (facilitated) - WHY I AM AUTISTIC

> (Therapist talks about changes to the brain, reads from encyclopaedia how

brain works)

> Joe (facilitated) HAVE UNDERSTOOD. THIS IS GOING TO BE MY LIFE

> Therapist - What do you mean by that?

> Joe I WILL NOT GET BETTER.

> Therapist said he will always have autism but will get much better, talked

about his home program, etc.

>

> Those of you who have met Joe, or who have a severe, non verbal child

yourselves will understand how incredible this is. Incredibly sad too.

>

> But my question is for parents of children who may have communicated something

similar, either verbally or with fc - I can use this as a way in to explain why

I give him supplements, and get him hopefully to tell me how new supps make him

feel, what helps, what doesnt - has anyone been able to communicate with their

child to this extent - does anyone have any tips?

> x

>

[Guest guest]

I will send it again Vicky

x

> >

> > Hi I havent posted much about this before, but we are now doing facilitated

communication with Joe, who is 12, severely autistic and just slightly verbal.

We have a brilliant speech therapist who is very experenced in FC and who really

believes in Joe's abilities.

> > He had a bittersweet conversation today, which I wanted to share:-

> >

> > Therapist - What would you like to learn about?

> > Joe (facilitated) - WHY I AM AUTISTIC

> > (Therapist talks about changes to the brain, reads from encyclopaedia how

brain works)

> > Joe (facilitated) HAVE UNDERSTOOD. THIS IS GOING TO BE MY LIFE

> > Therapist - What do you mean by that?

> > Joe I WILL NOT GET BETTER.

> > Therapist said he will always have autism but will get much better, talked

about his home program, etc.

> >

> > Those of you who have met Joe, or who have a severe, non verbal child

yourselves will understand how incredible this is. Incredibly sad too.

> >

> > But my question is for parents of children who may have communicated

something similar, either verbally or with fc - I can use this as a way in to

explain why I give him supplements, and get him hopefully to tell me how new

supps make him feel, what helps, what doesnt - has anyone been able to

communicate with their child to this extent - does anyone have any tips?

> > x

> >

>

[Guest guest]

Same here.

Margaret

>

> Yes yes yes with knobs on and icing on the top

>

> Mandi x

>

>

> In a message dated 08/05/2011 15:01:35 GMT Daylight Time, MaddiganV@...

> writes:

>

> I wonder though if it's me rather than , does anyone else find other

> people get more out of their kids than they do?

>

[Guest guest]

Me too..........I'm just Mum!!!

>

> Yes yes yes with knobs on and icing on the top

>

> Mandi x

>

>

> In a message dated 08/05/2011 15:01:35 GMT Daylight Time, MaddiganV@...

> writes:

>

> I wonder though if it's me rather than , does anyone else find other

> people get more out of their kids than they do?

>