Hi Everyone

[Guest guest]

, thank you for sharing the beautiful picture of your little ones--they are very cute, God Bless, Sharon W mom to 15MDS, DS 13, and Tommy 9

[Guest guest]

Hi ,

What a lovely photo!

It made our day. I cannot believe how grown up they are now, Hope you are all keeping well.

Love Judy, Bill and (8mds)

p.s Here's one of at a Steps pop concert completely mesmerised at the Blackpool illuminations switch on last month. She had a good time dancing and singing.

- Original Message -----

From: Twomey

To: MosaicDS

Sent: Wednesday, September 19, 2001 1:14 PM

Subject: Hi everyone

Kids just wanted to say hi to you all, so they sent you a photo to cheer you all up

Regards from Oz mum to scott 3mds(nearly 4) and 1 (nearly 2)

Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com*************************************************MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus*************************************************

[Guest guest]

Thanks for sharing the picture of your children. They are sooooo cute.

[Guest guest]

What a joyful picture.

Say hi back to them from Gwedolyn Rose and myself.

, mother to Gwendolyn Rose age 9 (mds)

Reply-To: MosaicDS

Date: Wed, 19 Sep 2001 22:14:05 +1000

To: <MosaicDS >

Subject: Hi everyone

Kids just wanted to say hi to you all, so they sent you a photo to cheer you all up

Regards from Oz

mum to scott 3mds(nearly 4) and 1 (nearly 2)

Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com

*************************************************

MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus

*************************************************

[Guest guest]

I love 's smile!

Carol

Ben's mom

>From: "Judy Green"

>Reply-To: MosaicDS >To:

>Subject: Re: Hi everyone >Date: Thu, 20 Sep 2001 08:10:04 +0100 > >Hi , > >What a lovely photo! > >It made our day. I cannot believe how grown up they are now, Hope you are all keeping well. > >Love Judy, Bill and (8mds) > >p.s Here's one of at a Steps pop concert completely mesmerised at the Blackpool illuminations switch on last month. She had a good time dancing and singing. > > - Original Message ----- > From: Twomey > To: MosaicDS > Sent: Wednesday, September 19, 2001 1:14 PM > Subject: Hi everyone > > > Kids just wanted to say hi to you all, so they sent you a photo to cheer you all up > > Regards from Oz > mum to scott 3mds(nearly 4) and 1 (nearly 2) > > > > > > Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com > ************************************************* > MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus > ************************************************* >

[Guest guest]

Don't overreact to that first message re cancer! I was told the same thing back

in the summer, 2 different cancers, and then leukemia, and it all turned out to

not be true! Just a badly beat up liver! I went through a good (bad!) 3 months

thinking I have cancer, so the preliminary indications can definitely be wrong!

Ray

abijann <no_reply > wrote:

My tests came back and they think I may have cancer. Have to go

for more testing in the next week or so. I'm tired all the time.

Hope all of you are doing better since I last heard from you.

Take care

---------------------------------

[Guest guest]

Abijann, I am so sorry to hear about your brother and I will keep him and all of

you in my prayers and thoughts. Love and huggs, J

abijann <no_reply > wrote:I would like to ask you for your

prayers for my brother.

He has pancreatic cancer that has spread to his liver and lungs and

he may not be able to pull through this time around.

I was with him last night quite late. Do not have time to read

posts now...will do so when things get better. I thank you

for listening to me and being there for me through most of the

things I have gone through. I wish you all a nice day.

[Guest guest]

>

> I would like to ask you for your prayers for my brother.

> He has pancreatic cancer that has spread to his liver and lungs and

> he may not be able to pull through this time around.

My prayers are with both you and your brother. If it's time for him to

cross over I pray that it is gentle and safe. Take care of yourself

abijann.

[Guest guest]

>

> Sorry I haven't been on here. I was in a motor vehicle accident

> yesterday. Could not get stopped on the ice. Not feeling all

> that well now. HOpe you guys are doing better.

>

Hey abijann, do you live in the Portland, Oregon area? That's where I

am and we had a freak ice storm yesterday. It was wild! I was trying

to get back from the coast and ended up staying in a hotel 20 miles

from my house because I just couldn't make it.

Hope your injuries are nothing serious and that you're feeling better.

Hayden

[Guest guest]

Hi!

We're still getting over an ice storm here in Upstate SC. Cancelled my

last dr. appt. for me, but fortunately I was able to reschedule for Tuesday

afternoon. Supposed to be kind of a three-month checkup, see if everything

is going OK. Some things I did not mention in my intro post is that I have

NO

health insurance (no job), NO savings to speak of, several credit card

companies

calling daily, and only SS disability coming in. Fortunately I do live

with my parents,

so no worries about food/shelter/transportation. What this all boils down

to is

my medical care is basically take this medicine, eat right(?), no salt or

alcohol. Go

see the dr. if needed, otherwise come every once in a while for a check and

new blood

work. You can see why I feel like I'm in maintenance mode.

I hope you get to feeling better soon. I'll let y'all know what happens

at

the doctor..

> [Original Message]

> From: abijann <no_reply >

> To: <livercirrhosissupport >

> Date: 12/19/2005 6:15:32 PM

> Subject: hi everyone

>

> Sorry I haven't been on here. I was in a motor vehicle accident

> yesterday. Could not get stopped on the ice. Not feeling all

> that well now. HOpe you guys are doing better.

>

>

>

>

>

>

>

>

[Guest guest]

I have posted since I signed on to the group, but I got to say that what

I have read has showed me that you all care about what others are going

through.

I joined because I have a liver problem, what it is I am still in the

doctors changing it ever time I go see one. Had a biop 3 years ago and it

was stated that I had non-active hep and need to be watched. I was also told

I had a fatty liver which was strange because I was not over weight then. (

Stopped smoking so have gained some unwanted(30) weight ) The doc that did

the bio had left town so after a year of just having my MD keeping me

checked and going she came concerned and found me another Gastroligist (sp)

He just read my old biop and tells me I have NASH then had me get a

colonscopy done. I lost my insurance then and can not get any now due to

having a liver disorder. So my MD is keeping me from going nuts. My last lap

test where, AST 97 and ALT's 270. Since this all started I have never had

normal laps with these two. Sorry I forgot to say how this all started. I

was taking Lypitor for 4 years and blood was never check to see what it was

doing. When it finally was this is how my life has been since then.

This last week has been a bad spell for me do to fatigue and right side

pain. I have taken milk thistle and was told to go off it due to alergis

reaction. My Doctor put me on Fortamet and taking 1000 mg aday, but its not

showing it will help. I am at the point of just not going back to Doctor

since no insurance and lack of money. Feel like I am getting the run around

to much.

Thanks for listening

Hugs

Chryssy

[Guest guest]

I'm currently going thru the same thing with choosing a medicare

presrription plan for my husband.

The problem is he hasn't had the transplant yet and the plans are

drastically different for those after transplant in comparison with those

before transplant. If I knew he was going to get a transplant soon, I would

choose a plan that covers all his transplant drugs at a better rate, BUT we

just found out his meld dropped again to a 12 putting us in limbo so I am

now thinking I should get the plan that is best for pre transplant since it

looks like another year will go by waiting.

It is also amazing how some require prior authorizations while others

don't. That bothers me as I know after TP, doctors are always adjusting the

meds and I wonder how difficult it is to get the insurance company to

approve quickly. I do see some that doesn't require prior authorization but

they are up there in price at 75 a month and he doesn't need these after

transplant drugs yet.

Any thoughts on companies that have given you a tough time to avoid or ones

that are great to deal with? He just became eligible for medicare this

month so everything is new to us.

On 11/8/06, abijann <no_reply > wrote:

>

> Well another day and NO dollars. Anyone dealing with the drug

> plans with medicare? I tried out one insurance coverage,

> plugged in all our drugs into the site and then looked at the three

> plans with the annual total of the drugs for the year for all of

> them. The total was almost identical, yet the price for each

> plan was 14 dollars for one, 32 dollars for another and then 72

> dollars for the last one.

> I could see no difference in those plans except how much you

> pay every three months for the presciptions with the outcome still

> the same. Guess the big thing is whether you want to pay the most at

> the beginning, middle, or the end of the year. Have to fiqure out

> how long I can make it last in Stage one without progressing to stage

> 2 and the next big donut hole.

>

> !!!HEY< the elderly are sitting in rocking chairs and

> wasting away...lets get their blood pumping by getting them all

> upset and making them think about whether they will live or die...

> maybe if we excite them enough they will keel over with a heart

> attack...their going to die anyhow so lets torture them to death.!!!

>

> Who ever thought it was logical to pay less for medication coming

> clear across the USA in the ice and snow and left down at

> the mailbox which is 200 yards away and anyone can come along

> and take it, would happen. Were is the logic of it all of not being

> afraid of it getting loss in the mail..of it being warm instead of

> kept cold or the patient being totally out of the medication because

> they filled the wrong one and sent the wrong thing? People with

> serious disease who are on specialty drugs do not have a choice

> to go to the hometown pharmacy and pay a higher cost since these

> special drugs cost an arm and a leg and maybe even some other

> bodily part...Nee, NEE, Nee, Nee...think my mind is going.

> Apparently they are trying to keep the post office in business

> now that everyone is using email. If we had to pay the postage

> for all our mediation coming...it might just be worth to go

> to the hometown pharmacy. Anyone for a styrofoam container which

> I keep having to burn.

>

> What ever happen to the days when you could go to any doctor you

> wanted and just hand them your insurance card and it was taken

> care of...Or you could choose any pharmacy in your home town and

> get your medication early to stock up over the winter months so

> you would be SURE you had your medication. Our medical supplies

> come from clear out in CALIF...Our specialty drugs Come from

> Cincinati OHIO, our thirty day supply comes from Baltimore, Md,

> our unpaid-for drugs come from a hometown pharmacy, and our

> other medical supplies come from Louisiana. Why, cause that

> is how things are set up. When we had the other insurance...

> we had one pharmacy that took care of all the medical supplies and

> medication and would call us and remind us if we were almost out

> of our order.

>

> Anyone looking at this health care system they have in the USA...

> would probably shake their heads wondering if we had too much

> time on our hands and was becoming so bored as to even make

> the elderly almost want to sit down and cry or die.

>

> I'm laughing...but when you see tons of people with no health

> insurance at all...it makes you wonder if it is because of

> the way the system is set up and don't understand it; or companies

> shutting down ;or because they are working two part time jobs to make

> ends meet with no benefits...yet they say there are plenty of

> jobs...sure there are********* Only if you are rich and know

> someone to get in there where something pays more than the

> lowest wages. Or you can go out and in dept for millions of

> dollars trying to get an education and stay in debt for the rest

> of your life while instead of supporting your family...you

> are paying back the loans with maybe tacked on interest. And who

> pays the bill while you are filling your mind with all this

> knowledge that when you get to the grave...it won't matter anyway.

>

> Lets face it...this country is being run by the medical and

> educational monsters...and it is turning into a government for

> the rich, for the healthy, and for the young....period!

>

> If you made it this far in this post...I congratulate you...

> Any comments on this theory is not really appreciated but

> I expect they will come.

>

>

>