Re: Time Magazine 1/11/10

January 4, 2010

Letter to Editor: Time magazine sent Jan 4 2010

I only wish the condition described here was indeed simply a phobia. I belong

to an " underground " of fellow sufferers that Mr. Grossman needs to know about.

Our collective decades of self-medication, attempts at diagnosis and behavioral

and psycho therapies will shed some light on this condition for him and his

doctor. (Simply Google " I hate eating sounds " . Research will easily start

there.) We have discovered striking commonalities such as average age of onset

and extremely close patterns of stimulus/response aross those who have

identified as having Soft Sound Sensitivity Syndrome (coined by Dr. M. ,

audiologist in OR.) I now know that there may be a genetic link: my father was

violent (fight or flight response) when triggered and other members of my family

will not eat wih other people because of the trigger sounds. I watch the news

and look for 4S: the lab assistant who broke up with his girlfriend because she

breathed too loud and the man who attacked the ice cream truck driver because of

the music are just two I've seen recently. There are those of us like me who

are fortunate enough to have insurance trying to get brain scans to see what

" wires are crossed " , and we look for any opportunity to increase public

awareness. The prolonged stress and adrenal exhaustion alone is debilitating

(for me: 43 years) but to not know what's going on and to spend tens of

thousands of dollars on therapy like I did is worse, especially in this day of

instant information on the internet. Please get the doctor to do his research

and help others do it too.

>

> An article by Lev Grossman. He is one of us...my sister found the magazine

while doing laundry...He talks about this...I will know try to locate

him...maybe he is in our group already!!

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